lah72
02-13-2004, 12:51 PM
I've had petit mal seizure disorder since 1991. It was discovered when my father saw me slumped over the recliner with drool coming out of my mouth. Luckily my mother is a nurse and she knew what to do, and they took me to the hospital. That was one of only 3 grand mal seizures I have had in my life.
My doctor put me in depakote which I was on until June of 2003. I shook easily, at times I couldn't even hold a spoon properly to eat a bowl of soup. I gained a lot of weight and at times I was rather spacey and my mood would change. I wouldn't get angry or violent but rather somber or quiet. My partner at work at times would ask "are you ok?" Most of the time when I was fine I was jovial, sarcastic, down to earth and joked around a lot. She sensed mood changes in me.
When I went on Topamax. I have lost a lot of weight, which I am happy for, and I don't shake nearly as much. I'm also not as spacey. However I have trouble sleeping, especially when I first went on it, I would wake up 3 or 4 times at night. My brain would click on and be very active at night. My doctor cut my medicene and while I sleep better, I still have trouble and cannot sleep 7-8 straight without it being interrupted. I've also noticed or think I'm noticed problems with concentrating, alertness and short term memory.
It also seems since being on Topamax that my seizures may have increased. I had one in October, and already 2 this year. When I was on Depakote they were few and far between and I was on a higher dosage of Depakote, but I never want to go back to Depakote again.
I also have a hard time describing the seizure to my doctor. I am fully aware of them, but they last only for seconds and then they are over. Rooms either become darker or lighter than what they are. Objects appear farther away. I see rainbow prisms in my peripheral vision, and I become disoriented.
I had one at work the other day and noticed in my left eye there was a red blood spot in the white part(the sclera) of the eye. It wasn't completely red like I had been rubbing my eyes. It was a red squiggly line in the sclera. Could this be related to the seizure or something totally different? It has gone away now, but I thought it was rather strange.
My doctor put me in depakote which I was on until June of 2003. I shook easily, at times I couldn't even hold a spoon properly to eat a bowl of soup. I gained a lot of weight and at times I was rather spacey and my mood would change. I wouldn't get angry or violent but rather somber or quiet. My partner at work at times would ask "are you ok?" Most of the time when I was fine I was jovial, sarcastic, down to earth and joked around a lot. She sensed mood changes in me.
When I went on Topamax. I have lost a lot of weight, which I am happy for, and I don't shake nearly as much. I'm also not as spacey. However I have trouble sleeping, especially when I first went on it, I would wake up 3 or 4 times at night. My brain would click on and be very active at night. My doctor cut my medicene and while I sleep better, I still have trouble and cannot sleep 7-8 straight without it being interrupted. I've also noticed or think I'm noticed problems with concentrating, alertness and short term memory.
It also seems since being on Topamax that my seizures may have increased. I had one in October, and already 2 this year. When I was on Depakote they were few and far between and I was on a higher dosage of Depakote, but I never want to go back to Depakote again.
I also have a hard time describing the seizure to my doctor. I am fully aware of them, but they last only for seconds and then they are over. Rooms either become darker or lighter than what they are. Objects appear farther away. I see rainbow prisms in my peripheral vision, and I become disoriented.
I had one at work the other day and noticed in my left eye there was a red blood spot in the white part(the sclera) of the eye. It wasn't completely red like I had been rubbing my eyes. It was a red squiggly line in the sclera. Could this be related to the seizure or something totally different? It has gone away now, but I thought it was rather strange.
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momof3mjt
02-14-2004, 08:24 PM
welcome to the board! You will find people here with problems JUST like yours..and then you will see that some with "E" have COMPLETLY different experiences. I didn't realize how different it could be for each person! But there are some GREAT people here with TONS of advice, support and experiences. So make yourself at home, and again...WELCOME!
Lindy
Lindy
lah72
02-15-2004, 02:16 AM
welcome to the board! You will find people here with problems JUST like yours..and then you will see that some with "E" have COMPLETLY different experiences. I didn't realize how different it could be for each person! But there are some GREAT people here with TONS of advice, support and experiences. So make yourself at home, and again...WELCOME!
Lindy
Thanks for the welcome
Lindy
Thanks for the welcome
Jodebra
02-25-2004, 05:02 AM
:wave:
Hiya, I've had some horrible seizures in the last three yrs and every time I have one they always turn out different. one fit I would have would be for a couple of seconds and then wake up (always lose consciousness,fall down and hurt myself) feeling alittle bit ill and just go to sleep it all of and then there are times which are every other week where I would have a huge seizure black out and wake up with a bitten tongue and very unsure what happened and panic when people are either around me or holding me I just fall back into a seizure from the panic and fuss I made over waking up to a painfull head from falling or any other part of my body I hurt.The thing is my neurologist and seizure Specialist's don't know what is wrong with me I've had spent a week in hospital with a E.E.G walkman kinda thing with electrodes stuck to my head to see what is going on whether it's stress thats doing it, M.R.I's,Cat scan's, All they found was that I have an abnormal brain and a cyst which isn't anything to do with my epilepsy.there are about 5 different types of seizures(I HAVE MOST OF THEM) and prob more that aren't yet found out.And I reckon your eye went blood shot while you had a fit but I wouldn't worry to much just aslong as it's back to normal.just keep on your med unless you have a bad side effect (if you do tell your doctor). so stick to your med and the more you stick to it the more chance you'll get better.If you have anything else to ask I'll be more then happy to try and answer them.best of luck :angel: Jo.
Hiya, I've had some horrible seizures in the last three yrs and every time I have one they always turn out different. one fit I would have would be for a couple of seconds and then wake up (always lose consciousness,fall down and hurt myself) feeling alittle bit ill and just go to sleep it all of and then there are times which are every other week where I would have a huge seizure black out and wake up with a bitten tongue and very unsure what happened and panic when people are either around me or holding me I just fall back into a seizure from the panic and fuss I made over waking up to a painfull head from falling or any other part of my body I hurt.The thing is my neurologist and seizure Specialist's don't know what is wrong with me I've had spent a week in hospital with a E.E.G walkman kinda thing with electrodes stuck to my head to see what is going on whether it's stress thats doing it, M.R.I's,Cat scan's, All they found was that I have an abnormal brain and a cyst which isn't anything to do with my epilepsy.there are about 5 different types of seizures(I HAVE MOST OF THEM) and prob more that aren't yet found out.And I reckon your eye went blood shot while you had a fit but I wouldn't worry to much just aslong as it's back to normal.just keep on your med unless you have a bad side effect (if you do tell your doctor). so stick to your med and the more you stick to it the more chance you'll get better.If you have anything else to ask I'll be more then happy to try and answer them.best of luck :angel: Jo.