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View Full Version : Malignant Paraganglioma anyone?


 

 

 
TereB52
02-13-2004, 05:03 PM
I have a glomus tumor in my head that became malignant after radiation. It has spread to my spine, pelvis and lungs. I need information about possible cures or anything that can help. Any info will be greatly appreciated!

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zuzu8
02-13-2004, 10:58 PM
Have you talked to your oncologists about the possibility of getting you into a clinical trial?
Here are two main clinical trial resources published on MEDLINE's website (permission to post from mods).

http://www.rtog.org/faqpatient.html

..or from The National Institutes of Health (NIH):

http://www.clinicaltrials.gov/ct

Hope this might be of some help.
Good luck!
zuzu xxx





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