Kmasta85
02-16-2004, 05:43 PM
Hello, I'm new to this whole healthboards.com experience. I was just looking to see If there was anyone else w/ Limb Girdle Muscular Dystrophy. I'm 19 and in college and always wanted to find someone that could relate to my problem. Let me know! ~Krista~
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KarriLewis
04-25-2004, 10:39 PM
How did you find out you had MD. My mom has it and I also show some symptoms but I am scared of finding out.
Delightful
12-10-2004, 05:01 PM
Krista posted in feb, Ryan posted in june now I am posting in dec.... i dont know if any of you will ever see this, but i just found this site and i wanted to add my name to the list of ppl with LGMD.
Jenna aka Delightful
Jenna aka Delightful
michigani
12-14-2004, 01:48 PM
Hello everyone.
I actually posted a reply to Ryan last week but unfortunately the entire thread disappeared. I found out I had LGMD almost three years ago. Right now I'm going through that transition of appearing "normal" but not being able to do simple little things. It's frustrating and scary. Like, I'll go to someone's house to pick up my teenage duaghter, but I can't get up their railingless steps. What do I do ? Ring the doorbell with a long stick? Or some coach at my kid's practice will say" hey dad, grab a mit and play shortstop". I can't. I would certainly fall down. Anyone else in this phase? No one "healthy" can relate, although they try. Other than that I'm very happy and very blessed. I have a beautiful wife and 2 healthy daughters.
Mark
I actually posted a reply to Ryan last week but unfortunately the entire thread disappeared. I found out I had LGMD almost three years ago. Right now I'm going through that transition of appearing "normal" but not being able to do simple little things. It's frustrating and scary. Like, I'll go to someone's house to pick up my teenage duaghter, but I can't get up their railingless steps. What do I do ? Ring the doorbell with a long stick? Or some coach at my kid's practice will say" hey dad, grab a mit and play shortstop". I can't. I would certainly fall down. Anyone else in this phase? No one "healthy" can relate, although they try. Other than that I'm very happy and very blessed. I have a beautiful wife and 2 healthy daughters.
Mark
DavidR81
12-16-2004, 02:31 AM
Mark,
I know exactly how you feel, I'm going through the same thing right now. It's nice to finally be able to talk to someone who I can relate to. I was diagnosed about a year ago, and still appear 'normal'. I havn't told most of my friends about it, and nobody even notices anything is wrong.
However, like you said even some of the simplest things become difficult, or impossible. Ice and snow are a big problem for me now. I can barely walk on it at all, and where I live we've got snow about 4-5 months of the year.
One of the first things I noticed and continues to be a problem is bending at the waist to do things like washing my hands at a low sink. Has anyone else had a similar problem? I feel like I'm going to fall forward, and usually need to hold myself with one arm and wash one hand at a time. I've noticed this years before I had any other noticable problems.
I sometimes wonder if it would be easier if most of the people around me knew the limitations I had, but its not an easy topic to bring up with friends. But aside from all that, I'm also quite happy and try not to let the limitations get in the way.
David
I know exactly how you feel, I'm going through the same thing right now. It's nice to finally be able to talk to someone who I can relate to. I was diagnosed about a year ago, and still appear 'normal'. I havn't told most of my friends about it, and nobody even notices anything is wrong.
However, like you said even some of the simplest things become difficult, or impossible. Ice and snow are a big problem for me now. I can barely walk on it at all, and where I live we've got snow about 4-5 months of the year.
One of the first things I noticed and continues to be a problem is bending at the waist to do things like washing my hands at a low sink. Has anyone else had a similar problem? I feel like I'm going to fall forward, and usually need to hold myself with one arm and wash one hand at a time. I've noticed this years before I had any other noticable problems.
I sometimes wonder if it would be easier if most of the people around me knew the limitations I had, but its not an easy topic to bring up with friends. But aside from all that, I'm also quite happy and try not to let the limitations get in the way.
David
michigani
12-16-2004, 10:50 AM
David,
I know EXACTLY what you're talking about. I didn't know how to tell my friends or mom or sisters. I didn't want to bum them out. But let me tell you this . . . it was a huge relief once I did. I didn't have to "hide" it anymore. I was going out of my way not to sit in low chairs or climb stairs with anyone watching. Once they knew, they understood. I didn't tell my co-workers for 2 years (just this Spring). They've been great.
I can still walk around work but can't get up out of chairs after meetings. And I also appreciate the ice and snow. I walk very tentaively on dry pavement but when it's slippery, I'm terrified. And strong gusts of wind are frightening as well, I almost blew over several times but so far I've lucked out.
I can't bend over either. If I drop a quarter I don't even bother. Only with ME I feel like I'm going over backwards. My calves are strong but I've got no shins, quadriceps or stomach strength. I have LGMD2B caused by Dysferlin protein deficiency.
Best of luck and feel free to ask me anything. I've done lots of research.
Mark
I know EXACTLY what you're talking about. I didn't know how to tell my friends or mom or sisters. I didn't want to bum them out. But let me tell you this . . . it was a huge relief once I did. I didn't have to "hide" it anymore. I was going out of my way not to sit in low chairs or climb stairs with anyone watching. Once they knew, they understood. I didn't tell my co-workers for 2 years (just this Spring). They've been great.
I can still walk around work but can't get up out of chairs after meetings. And I also appreciate the ice and snow. I walk very tentaively on dry pavement but when it's slippery, I'm terrified. And strong gusts of wind are frightening as well, I almost blew over several times but so far I've lucked out.
I can't bend over either. If I drop a quarter I don't even bother. Only with ME I feel like I'm going over backwards. My calves are strong but I've got no shins, quadriceps or stomach strength. I have LGMD2B caused by Dysferlin protein deficiency.
Best of luck and feel free to ask me anything. I've done lots of research.
Mark
Delightful
12-19-2004, 10:41 PM
Mark,
......
However, like you said even some of the simplest things become difficult, or impossible. Ice and snow are a big problem for me now. I can barely walk on it at all, and where I live we've got snow about 4-5 months of the year.
......
David
Mark I can not agree with you more... Winter in Canada can make it a challenge for me also.... I find that sometimes I am over cautious and then end up falling anyways.... so not I just take my time, and my friends and family know I have LGMD so they always escort me to my car or to where ever I might be going... I loose my balance quit easily and so I find it very disorienting when I am latched onto someone’s arm, I would rater walk alone and just have them help me up should I fall.
......
However, like you said even some of the simplest things become difficult, or impossible. Ice and snow are a big problem for me now. I can barely walk on it at all, and where I live we've got snow about 4-5 months of the year.
......
David
Mark I can not agree with you more... Winter in Canada can make it a challenge for me also.... I find that sometimes I am over cautious and then end up falling anyways.... so not I just take my time, and my friends and family know I have LGMD so they always escort me to my car or to where ever I might be going... I loose my balance quit easily and so I find it very disorienting when I am latched onto someone’s arm, I would rater walk alone and just have them help me up should I fall.
bdthom
12-26-2004, 06:59 PM
Hello everyone,
I just found healthboards and saw this thread.
I can relate to what you all are going through
After having a normal childhood
I was diagnosed with LGMD back in 1983 when I was 15 years old
Between then and 1991 walking got to be a real pain I would always fall but I did not want to give that up untill I had no choice.
I started using an electric scooter back in 1991 because I use to fall a lot when walking and the company I was working for did not want me to hurt myself on their property , though I continued to walk at home up to 97. Today I use a pride Jazzy to get around , and I drive a modified PT Cruiser.
We moved last year from Massachusetts to Florida so the cold and snow can no longer bother me
I wish you all the best and Happy Holidays
Bruce
I just found healthboards and saw this thread.
I can relate to what you all are going through
After having a normal childhood
I was diagnosed with LGMD back in 1983 when I was 15 years old
Between then and 1991 walking got to be a real pain I would always fall but I did not want to give that up untill I had no choice.
I started using an electric scooter back in 1991 because I use to fall a lot when walking and the company I was working for did not want me to hurt myself on their property , though I continued to walk at home up to 97. Today I use a pride Jazzy to get around , and I drive a modified PT Cruiser.
We moved last year from Massachusetts to Florida so the cold and snow can no longer bother me
I wish you all the best and Happy Holidays
Bruce
dkbladez
01-15-2005, 09:02 PM
Do males get this more than women? I have similiar problems. Walking and falling at anytime. I haven't told many people. I scope out places before I go there to see if there are stairs, sidewalks, etc. I stay away from visiting people because I have went places without rails and I have to leave because I can't get up the stairs. I have four small children so it is very important for me to stay active. I know I need to get a cane but I really don't want to seem helpless. The people that do know, treat me differently and are sometimes too helpful. I guess i should be thankful but my pride gets in the way. It is sure nice to hear other people with my same pain. I haven't been diagnosed yet but I'm waiting to go to a 2nd neurologist. The first thinks I have some form of myopathy.
Thanks! :angel:
Thanks! :angel:
michigani
01-17-2005, 01:36 PM
dkbladez,
You've just described exactly what I myself (and probably everyone with MD) goes through when first suspicious that something's wrong. I understand completely. But I can tell you this . . . hard as it was to finally tell my family, friends and co-workers, it feels so much better now that they understand why I can't climb stairs very good, get up out of chairs, etc. Hiding and avoidance were much harder emotionally than finally coming out with it. I've told lots of people on this board, contact MDA, they're great and have huge resources to help you.
Good luck and keep us posted.
Mark
You've just described exactly what I myself (and probably everyone with MD) goes through when first suspicious that something's wrong. I understand completely. But I can tell you this . . . hard as it was to finally tell my family, friends and co-workers, it feels so much better now that they understand why I can't climb stairs very good, get up out of chairs, etc. Hiding and avoidance were much harder emotionally than finally coming out with it. I've told lots of people on this board, contact MDA, they're great and have huge resources to help you.
Good luck and keep us posted.
Mark
pason147
01-19-2005, 01:47 PM
I'm a 59 year old female that was diagnosed in 1999 with LGMD. I am still working full-time, but it is really getting hard to get around. I can't do steps so that cuts back on what I can actually do at work. I can't even step up on a curb without holding onto something.
Can anyone give me some indication of what to expect with regard to having to use a power scooter and working full-time.
Thanks, Pat :wave:
Can anyone give me some indication of what to expect with regard to having to use a power scooter and working full-time.
Thanks, Pat :wave:
michigani
01-20-2005, 08:53 PM
Hi Pat,
So many people on this board seem to be going through the same thing and experiencing the same frustrating and frightening things, ie. can't climb stairs, can't get up a curb, can't get out of a chair, etc. I've also had to sell my motorcycle, my golf clubs and my skis. I know there's thousands of MD people out there but it always feels like I'm the only one I know that's like this. It's nice to be able to talk to people that can relate.
As far as using a scooter at work I wish I could give you advice. I'm still walking ok (basically slow because of foot drop) but my big problem is I work in an older, not very accessible building. Getting into it and around during the day are the big problem. It would be almost impossible to be productive in my engineering office in a wheelchair or scooter. I don't wish to retire at 44 but fortunately I've been paying premiums on disability insurance for many years. I might be forced to take that road and find a proffession I can do out of my home.
I hope everything works out for you (and all of us). Best of luck !
Mark
So many people on this board seem to be going through the same thing and experiencing the same frustrating and frightening things, ie. can't climb stairs, can't get up a curb, can't get out of a chair, etc. I've also had to sell my motorcycle, my golf clubs and my skis. I know there's thousands of MD people out there but it always feels like I'm the only one I know that's like this. It's nice to be able to talk to people that can relate.
As far as using a scooter at work I wish I could give you advice. I'm still walking ok (basically slow because of foot drop) but my big problem is I work in an older, not very accessible building. Getting into it and around during the day are the big problem. It would be almost impossible to be productive in my engineering office in a wheelchair or scooter. I don't wish to retire at 44 but fortunately I've been paying premiums on disability insurance for many years. I might be forced to take that road and find a proffession I can do out of my home.
I hope everything works out for you (and all of us). Best of luck !
Mark
dkbladez
01-22-2005, 08:37 PM
Hi Mark,
I know how you feel. My job is not really the problem, it's getting to work. I work in a downtime area with long streets and hills and lots of people-all things that are very scary to me now :) I try to catch rides when I can but I am much too independent to depend on others, so I contemplate on finding another job or finding other options for income. I love this board. I really like you all can feel my pain.
Shellette
I know how you feel. My job is not really the problem, it's getting to work. I work in a downtime area with long streets and hills and lots of people-all things that are very scary to me now :) I try to catch rides when I can but I am much too independent to depend on others, so I contemplate on finding another job or finding other options for income. I love this board. I really like you all can feel my pain.
Shellette
perplepashion
06-01-2005, 06:51 PM
Hi, is anyone still out there? I, too, have LGMD and would like to talk to others. I have had it as far back as I can remember. My family says I had it at birth. I have an older sister with the same muscular weakness, so my family knew what to look for. Although we were never diagnosed until I recently went to a neurologist to have it checked out. We never knew anyone else who had symptoms like ours. We must have a very slow progressing form. I am now 47 and my sister is 62. My sister still gets around ok. She uses a walker and wheelchair now. I still walk around my house, but I've started using a wheelchair in public. It's easier and faster. I'd like to talk with others that have LGMD. What I've read so far sounds very familiar. Most of what others are experiencing, I have experienced all along. Although it seems LGMD can be very individual to each person, there are many things that sound very 'text book'. Hope to hear from others soon!
Billie
Billie
sarah scott
06-07-2005, 05:36 PM
Hi,
this is all very new to me. I have a four month old baby and i have been told he has MD but there are not sure which type. This is all very scary for me but it is great to have people to talk to. I only know the pain from a mothers point of view and would like to understand how it feels so i can be prepared how my son will feel. It is nice to know there is others with this condition. I was starting to feel like it was only my son. :)
this is all very new to me. I have a four month old baby and i have been told he has MD but there are not sure which type. This is all very scary for me but it is great to have people to talk to. I only know the pain from a mothers point of view and would like to understand how it feels so i can be prepared how my son will feel. It is nice to know there is others with this condition. I was starting to feel like it was only my son. :)
perplepashion
06-07-2005, 05:44 PM
Hi Sarah,
I can understand how you would be very concerned with your son having MD. Until it is determined which tpye of MD he has, it would be hard to say how it will be for him. Have you been online to read about the different forms of MD? Best of luck. Let us know how his diagnois comes out.
I can understand how you would be very concerned with your son having MD. Until it is determined which tpye of MD he has, it would be hard to say how it will be for him. Have you been online to read about the different forms of MD? Best of luck. Let us know how his diagnois comes out.
sarah scott
06-07-2005, 05:57 PM
Hi, Thank you so much for a reply. I am waiting on so many test results but will keep you posted. All the best and thank you again. Sarah :bouncing:
dkbladez
06-11-2005, 06:45 PM
Hi all,
Well I had another dr. appt this week. This lady make me feel worse than I do. She keeps asking me if I'm ready for a cane. But I say "no", I'm only 32. How do you know if you are ready or not? My primary care gave me paperwork for a handicap placard for parking but I haven't even done that yet. Am I in denial? She still just says its a definite muscle myopathy with weakness all over. It started with my legs but I'm starting to have problems with my arms. She is going to do the muscle biopsy soon to see exactly what it is. How do they tell if it's just a myopathy or a dystrophy? Can dystrophy only be hereditary? My father and 3 of his siblings (all men) had inclusion cell dystropy or at least that's what they think it was. It so happens that my fathers' parents were actually related in some way and she thinks this is how this all got started.
I'll keep you posted.
Shellette
Well I had another dr. appt this week. This lady make me feel worse than I do. She keeps asking me if I'm ready for a cane. But I say "no", I'm only 32. How do you know if you are ready or not? My primary care gave me paperwork for a handicap placard for parking but I haven't even done that yet. Am I in denial? She still just says its a definite muscle myopathy with weakness all over. It started with my legs but I'm starting to have problems with my arms. She is going to do the muscle biopsy soon to see exactly what it is. How do they tell if it's just a myopathy or a dystrophy? Can dystrophy only be hereditary? My father and 3 of his siblings (all men) had inclusion cell dystropy or at least that's what they think it was. It so happens that my fathers' parents were actually related in some way and she thinks this is how this all got started.
I'll keep you posted.
Shellette
michigani
06-14-2005, 10:15 AM
Hi Shellette,
I hope I can answer some of your questions.
A Myopathy is ANY muscle disease. A Dystrophy is a specific type of myopathy. A distrophy is characterized by muscle degeneration, or wasting away.
How do you know when you're ready for a cane or HC parking placard??? You will know. When you are scared to walk across an open area without hanging on to something, it will be time for the dreaded cane. When you have to stop every 100 feet crossing a parking lot because you feel like your legs will collapse you will be ready for the parking permit. I gave in a year ago. And I am one of the most vain and stubborn people ever born. After about 5 times using either, you get used to it and realize that people don't really think anything of it. Yes it's embarrasing at first but that goes away. I use them both about 25% of the time. Better to use them, than to suffer the danger and embarassment of falling down. Go ahead and get them and keep them handy. You do not HAVE do use them right away but you'll have them when you are ready.
The biopsy may show a lot. My biopsy did. They will look at the tissue with a microscope to see if there is any cell damage or deformity. Then they will do muscle staining where they put drops of different chemicals on a few muscle cells. The reaction tells them if certain proteins are missing that healthy people would have. They can do dozens of tests with a tiny, tiny piece.
As far as heredity goes, YES, MD is hereditary. Surf the web and read about Dominant and Recessive genes and heredity. It will all make sense. ESPECIALLY if two people with a recessive gene get together. This would GUARANTEE that the bad gene is passed on. In my case I have a defective gene. It's the gene that manufactures the muscle-building protien Dysferlin. Therefore I cannot build muscle. My big mystery is that the dysferlin production stopped when I was 35 and not when I was 2. Nobody knows why.
Best of luck. I understand completely.
Mark
I hope I can answer some of your questions.
A Myopathy is ANY muscle disease. A Dystrophy is a specific type of myopathy. A distrophy is characterized by muscle degeneration, or wasting away.
How do you know when you're ready for a cane or HC parking placard??? You will know. When you are scared to walk across an open area without hanging on to something, it will be time for the dreaded cane. When you have to stop every 100 feet crossing a parking lot because you feel like your legs will collapse you will be ready for the parking permit. I gave in a year ago. And I am one of the most vain and stubborn people ever born. After about 5 times using either, you get used to it and realize that people don't really think anything of it. Yes it's embarrasing at first but that goes away. I use them both about 25% of the time. Better to use them, than to suffer the danger and embarassment of falling down. Go ahead and get them and keep them handy. You do not HAVE do use them right away but you'll have them when you are ready.
The biopsy may show a lot. My biopsy did. They will look at the tissue with a microscope to see if there is any cell damage or deformity. Then they will do muscle staining where they put drops of different chemicals on a few muscle cells. The reaction tells them if certain proteins are missing that healthy people would have. They can do dozens of tests with a tiny, tiny piece.
As far as heredity goes, YES, MD is hereditary. Surf the web and read about Dominant and Recessive genes and heredity. It will all make sense. ESPECIALLY if two people with a recessive gene get together. This would GUARANTEE that the bad gene is passed on. In my case I have a defective gene. It's the gene that manufactures the muscle-building protien Dysferlin. Therefore I cannot build muscle. My big mystery is that the dysferlin production stopped when I was 35 and not when I was 2. Nobody knows why.
Best of luck. I understand completely.
Mark
dkbladez
06-26-2005, 09:01 PM
Hey Mark,
You are a pro at this, one other question, how do you deal with seating in public places? I went to a wedding yesterday and the seats were so low, I had to get help getting up. The same thing with restaurants. Any help, is definitely appreciated.
Thanks,
Shellette
You are a pro at this, one other question, how do you deal with seating in public places? I went to a wedding yesterday and the seats were so low, I had to get help getting up. The same thing with restaurants. Any help, is definitely appreciated.
Thanks,
Shellette
michigani
06-27-2005, 09:02 PM
Good question !
I go to my daughter's school programs and I'll lean against the back wall rather than get stuck in a folding chair. I usually avoid sitting if it's only for a few minutes, for instance in a dentist's waiting room. I usually sit in a booth at restaurants. I can push off the back. To get out of an armless chair, I turn sideways and push off of the seat with one hand, and the back with the other hand. Have a helper hold it steady if you need. Even this is getting harder though because my arms are getting weaker too. :(
I'm looking into a portable hydraulic lifter. It lifts 80% of your weight. Problem is lugging it around. But it would be good for around the house at least.
You sound like you're in the same stage as me. I can relate, believe me.
Good luck and God bless ! :angel:
Mark
I go to my daughter's school programs and I'll lean against the back wall rather than get stuck in a folding chair. I usually avoid sitting if it's only for a few minutes, for instance in a dentist's waiting room. I usually sit in a booth at restaurants. I can push off the back. To get out of an armless chair, I turn sideways and push off of the seat with one hand, and the back with the other hand. Have a helper hold it steady if you need. Even this is getting harder though because my arms are getting weaker too. :(
I'm looking into a portable hydraulic lifter. It lifts 80% of your weight. Problem is lugging it around. But it would be good for around the house at least.
You sound like you're in the same stage as me. I can relate, believe me.
Good luck and God bless ! :angel:
Mark
dkbladez
07-02-2005, 11:00 AM
Hello All,
Thanks Mark, I'm glad that someone in this world understands what I'm going through.
Thanks Again,
Shellette
Thanks Mark, I'm glad that someone in this world understands what I'm going through.
Thanks Again,
Shellette
Miss Jaz
08-02-2005, 12:16 AM
I was diagnosed 20 years ago at the age of two and a half at first it was just MD. I have had two muscle biopsies and they are fairly sure it is LG. I grew up in school with all the symptoms you all have described. They tried to control my MD for as long as they could with prednisone, but it caused a lot of problems in return. About seven years ago the medications stopped working and it has been a fairly steady decline since then. I can't stand or weight bare at all any more and in the last three years it has really started to affect my upper body. Every case of LGMD can vary so much that you never know what to expect but you have to educate yourself so that you are aware of your changing condition.
It was so nice to read all your stories. Best wishes.
It was so nice to read all your stories. Best wishes.
Tiwan
08-19-2005, 02:37 PM
Hi, I was diagnosed with LGMD about 3 years ago.I have been managing myself for along while .I have a little problem with people helping me out.I haven't got adjusted to that one yet.But anyway I am 35 years of age with three boys.My left side of me is fading away slowly but, yet I still manage to move around with out a wheel chair. I don't want that yet I just don't want my children haveing to help there mama around.I still can't believe this happen to me.My mother has it and so does my two aunts.But, I never knew that it would of come at me! I am hurting !But,now I am paining and I don't take any medication because there is no cure for it.If someone could please talk with me! :angel: I would feel more asure of myself.
michigani
08-20-2005, 12:47 PM
Tiwan,
I understand. I was diagnosed at 39, 4 years ago. I have two daughters, 13 and 16. My dad had LGMD, he lived to be 67. I also hate having people help me. I've always been the "helper". I also hate using a cane or other equipment, but I've gotten used to the fact that it's better than falling down. You probably are going through a phase between "normal" and disabled. It's very tough and awkward because people don't understand why you can't climb stairs or get out of a chair or get up a 4" curb. Sound familiar?
But trust me, there have been huge advances in the last 5, even the last 2 years. There's no cure but there are many, many hopeful solutions for us on the horizon. The thing that keeps me going is that I believe there WILL be a cure in my lifetime. My dad never had this hope. Good luck and write to this board whenever you need to talk. There's some great people on this board that understand completely.
Mark
I understand. I was diagnosed at 39, 4 years ago. I have two daughters, 13 and 16. My dad had LGMD, he lived to be 67. I also hate having people help me. I've always been the "helper". I also hate using a cane or other equipment, but I've gotten used to the fact that it's better than falling down. You probably are going through a phase between "normal" and disabled. It's very tough and awkward because people don't understand why you can't climb stairs or get out of a chair or get up a 4" curb. Sound familiar?
But trust me, there have been huge advances in the last 5, even the last 2 years. There's no cure but there are many, many hopeful solutions for us on the horizon. The thing that keeps me going is that I believe there WILL be a cure in my lifetime. My dad never had this hope. Good luck and write to this board whenever you need to talk. There's some great people on this board that understand completely.
Mark
coachmatt34
01-25-2006, 09:36 PM
I am also new at this, i am 19 years old and i have LGMD. I am starting to get worse and i am also very scared. I just really wish i had someone to talk to that could help me through this time.
Matt
Matt
dkbladez
02-05-2006, 04:17 PM
Hi Tiwan,
I'm also a mom. If you have any questions, feel free to ask me. What are your symptoms and what are you having the hardest time with. With me, its fatigue and not feeling like have energy for anything.
Best wishes,
Shellette
I'm also a mom. If you have any questions, feel free to ask me. What are your symptoms and what are you having the hardest time with. With me, its fatigue and not feeling like have energy for anything.
Best wishes,
Shellette
Broxy
02-07-2006, 10:50 AM
Hi im 20 yrs old and i have MD but still going through the exact diaognosis process, i get scared too but mostly frustrated so i kinda know what your talking about and i'll be here to talk too.