dermatomyositis [Archive] - HealthBoards.com Message Boards

JAYT

03-17-2001, 05:43 PM

I have dermatomyositis. Anyone else? If so, do you get by OK? Any info on subject will help, just found out I have it! Thanks,JAYT!!!!

[This message has been edited by JAYT (edited 03-24-2001).]

JAYT

03-24-2001, 05:27 AM

Originally posted by JAYT:

I have dermatomyositis. Anyone else? If so, do you get by OK? Any info on subject will help, just found out I have it! Thanks,JAYT!!!!

[This message has been edited by JAYT (edited 03-24-2001).]

C Reid

04-09-2001, 11:12 AM

My Dad was diagnosed with it in the fall of last year. I have been searching the internet for information about it. Any information you may have would be very helpful!!!!!

JAYT

04-10-2001, 06:20 PM

I know some about it. Go to accordant.com for more info. How is your father doing? How old is he? I'm 46. I guess the older people and children fare the worst with it. I'm in the middle. Good days and bad days. Also go to Myositis.org MDAusa.org Arthritis.org Rarediseases.org All those sights you can join or find more info. You can tell I've checked around. Take care and I hope your dad is doing fine!!

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pilwg

06-05-2003, 06:40 PM

Hi - I just found this site. I had dermatomyositis too. Its has been in remission for around ten yrs now. Thank God!

If anybody wants to talk about it you can email me since i've been through it too.

bye

Patrick (pilwg@yahoo.com)

Originally posted by JAYT:

I have dermatomyositis. Anyone else? If so, do you get by OK? Any info on subject will help, just found out I have it! Thanks,JAYT!!!!

[This message has been edited by JAYT (edited 03-24-2001).]

Tracy Moran

08-18-2003, 11:13 AM

I was diagnosed with dermatomyositis when I was 10 years old in 1977. I took prednisone for 6 months and recovered fully with no further symptoms. I think I'm one of the lucky ones in that regard. I discovered the Myositis Associaion of America a few years ago and they seem to have great info. Since I don't suffer with the disease now, I haven't researched as much as I would like. But, they have a yearly meeting that you might be interested in attending. Also, go to http://www.myositis.org/community/KIT.php and join a group to find others in your area.
Good luck.