Has anyone else here ever had to stay i hospital BECAUSE of their fibro? I am in just absolutely too much pain. I can not handle any more of it. I am so flared up! Plus stomach-possible ulcer is troubling me, ulnee nerve trapped at elbow and mitral valve prolapse giving me pains. None of mypain meds are enugh right now. Doesn't matter how I sit, lie, stand, walk nothing helps ease it. Only thign helps it when it gets this bad is morphine injection. Took kadian-morphine capsules daily for a while but that doesn't help just the injections. If any of you have, what were they able to/what did they do? I would love right now to just be hooked up to a morphine pump for a few days :(( ,,,and all this cryign does is make my head hurt too :((

meds I am taking for fibor and whatever else ails me at the moment.....
percocet 7.5
skelaxin 800mg
prevacid 30mg
ativan 2mg
effexor xr 150mg

Called rheumatologist this afternoon-gonna call me back tomorrow may ask to be admitted but don't know if I should bother....


ANYbodies thoughts or prayers right now would be VERY welcome....


BetsySue

i'm so sorry- i will send good thoughts your way. i am totally new to the pain, and flares, so i don't have any words of wisdom, but at the height of my flare about 2 weeks ago i thought i was dying (this was before i got dx'ed).

i heard there is a morphine patch, but i'm sure you already know about that.

i know what you mean about the crying making your head hurt- isn't that the worst, you just cry because you can't stand the pain, and get slapped in the face with head pain?

i'm sorry, i hope you feel better soon.

Dear BetsySue,

I feel so bad that there isn't anything I can do to help. I can just tell you that we're here for you will keep you in our thoughts and prayers. I have never been hospitalized because of the fibro pain but I came very close about 4 years ago. I tried to convince myself that I was overreacting when I wanted to go to the hospital so I stuck it out for days, barely able to move, I was in constant misery. If I ever get that bad again, I'm not going to stick it out at home, I'm going to go straight to the hospital. I think you should call your doctor and tell him how bad it is and see if he will go ahead and admit you. Since you are so tense because of the pain, it's just like a snowball effect, it is making everything worse. If you can get some relief from this severe pain, and relax, hopefully you can work through this horrendous flare. We're pulling for you! :)

Dear BetsySue,

I feel so bad that there isn't anything I can do to help. I can just tell you that we're here for you will keep you in our thoughts and prayers. I have never been hospitalized because of the fibro pain but I came very close about 4 years ago. I tried to convince myself that I was overreacting when I wanted to go to the hospital so I stuck it out for days, barely able to move, I was in constant misery. If I ever get that bad again, I'm not going to stick it out at home, I'm going to go straight to the hospital. I think you should call your doctor and tell him how bad it is and see if he will go ahead and admit you. Since you are so tense because of the pain, it's just like a snowball effect, it is making everything worse. If you can get some relief from this severe pain, and relax, hopefully you can work through this horrendous flare. We're pulling for you! :)


dr called back today said nothign else they can do but refer to pain management dr. HAH! a bit better than yesterday though-if i could just sleep for more than an hour withpout waking up wanting to scream!!

So sorry to hear youre having a bad flareup and in so much pain hon.
Im on hydrocodone 7.5 4x a day plus ultram (tramadol) for breakthru pain. None of it takes the pain away tho, just takes the edge off of it.
I was also sent to a pain management doc who of all things THINKS its best NOT to treat fibro with pain drugs but with guafenesin and EXercise. THE IDIOT!!! FIrst thing he wanted to do was take me OFF the pain meds. I was already on guafenesin for the past year and that along WITH the pain meds hardly touched the pain. I cant imagine not taking them and just trying to bear the pain.
Know what the funny thing was?? He actually had the nerve to tell me and my hubby that he KNEW fibro was extremely painful and he knew he wouldnt be able to take his own advice, but was treating his patients without drugs so that they wouldnt get "hooked" on them and turn them into addicts.
My own primary doc (who was treating me for the fibro before) disagrees and said people shouldnt have to bear pain. DRUGS were made to 'help" people and a good doctor is required to do his duty to make patients more comfortable.
So, for now, i see my primary doc, and shes wonderful. I do beleive shes doing everything in her power to treat me with dignity. She also told me if the pain ever gets so severe i cant handle it, to go to the ER. Hope you get some good results soon hon.
Jen

Jen's post made me think of something else. I too am being treated by my primary physician, he has several patients with fibro and keeps very current on new developments for treatment of the pain. He believes that fibro is real and that the pain is very real. On urging from my husband and friends, I have gone to neurologists, internists, physical therapists and rhuematologists. The neurologist didn't believe in fibro, told me it was all in my head. The physical therapy just put me in more pain, the internist was the only one that helped in any way, he prescribed Mirapex for my restless leg pain at night. So I went back to my primary and I will continue to go to him because he believes in my pain. He also knows that I will not abuse the pain meds he gives me. When I call or go in to his office in severe pain, he gives me something to help. If I take a specific medication for a few months, or even a few years and then suddenly am not getting any relief from the pain, he will change the medication. And if the pain is unbearable, he gives me lortab or percacet to have on hand and I only use that to get through the really bad times. I too am taking Ultram along with Neurontin, right now the two of them together seem to be my wonder drugs, I have been doing pretty well for several months now with only minor flares that don't last too long. I don't know how long these drugs will be effective, but hopefully when/if I become tolerant of them, there will be something else that will help and I know my doctor will help me with it. Bottom line is, we are in pain, it is chronic pain, it's not going away. So if we are going to live like this for the rest of our lives, we have to have a medical partner that will help us live as comfortably as possible. My mother died of colon cancer. A few months before she died, she was in and out of a coma and when she was conscious, she was in horrible pain. We asked her oncologist about giving her stronger drugs for the pain, his reply was he didn't want her to become addicted! I then called her primary care physician, who had been treating her for years and told him this. He prescribed injections of morphene every 2 hours, he said and I quote "she's going to die, who cares if she gets addicted to pain meds if it makes her comfortable for the last days/hours of her life". I think you have got to find a doctor that will be your "partner" in treating this disease. I'm sorry, I've been rambling, but it just frustrates me so much when I hear about people suffering in pain, as Jen said, that is why pain medication is available. Take care of yourself and keep us posted on your progress, know that we're here to listen and help if we can.