Hi all, I had to post as I'm beginning to think this VRT is starting to work. I have been doing the eye exercises now for 5 wks (am following Ilia's London VRT programme - you carry on with exercises til your are symptomless).
Just yesterday I noticed I shopped in a supermarket and felt 95%. Today I walked into town (15mins) - trying to do this more rather than use car - and felt again, 95%. Got to a cafe where I met friends and managed to have lunch and sit for 45mins - at this point things began to get more intensely dizzy - what I get is I dont know where I am in space, my body sways, dizzy in head and I go v v preoccupied and spaced out and clumsy. But I can normally only be in the cafe for 10mins before I feel like this.
I am also noticing if I go out or do something, the dizziness is less severe or wears off more quickly than it did. Like for instance, at the start of this nightmare, after a 10mins walk I would have to lie down for 30 mins.
Is tis what happens? The dizziness is still there but gradually we can do more and it lessens? I sure hope so. It's given me the much needed hope Ive been waiting for, for 16mths!
SUBS. You have been v quiet? A questions - do you think, a bit like Vicki was told, that the reason why many people dont get better for a long time is because their eyes dont match the new signals? Ie: Can just the eye exercises for VRt be enough for some people? Im not saying they are all I need to do as I highly doubt it and I intend to do the whole VRT programme but I have heard the eye thing being mentioned a bit?
Hi Ilia - promise will chat this weekend, will text you when am on. Hope you're feeling ok.
xxx
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lizzy33
02-20-2004, 01:41 PM
Hi Emsybobs,
Yes I think thats how things go, I gradually just started to feel like I could cope and found myself thinking about other things other than how I was feeling - I think this is a good sign. I work with a lady who had Labs for about 6 months, she said one day she just noticed that when she looked up it didnt feel odd, then it would feel odd again. Gradually these problem movements became less of a problem until eventually, very slowly they vanished. That was 4 years ago and she's been fine since. I dont think she did any VRT, just kept active and tried to stay positive.
Glad you're feeling better - long amy it continue.
Lizzy x
tummy2
02-20-2004, 03:21 PM
Lizz, That is exactly how my frist run of this ended 3 years ago. I just gradually found myself not occuppied with the dizziness. Until I eventually didnt even remember having it..... I was like "Huh, I'm not dizzy anymore!". Also, your happier and you are able to go out more which takes your mind off of it as well.
Hi Emsybobs,
Yes I think thats how things go, I gradually just started to feel like I could cope and found myself thinking about other things other than how I was feeling - I think this is a good sign. I work with a lady who had Labs for about 6 months, she said one day she just noticed that when she looked up it didnt feel odd, then it would feel odd again. Gradually these problem movements became less of a problem until eventually, very slowly they vanished. That was 4 years ago and she's been fine since. I dont think she did any VRT, just kept active and tried to stay positive.
Glad you're feeling better - long amy it continue.
Lizzy x
quincy
02-20-2004, 04:35 PM
Hi em,
Congratulations on your recovery. I have a question about your sitting in a restaurant. I can relate to the spacey feeling.
Where were you sitting in relation to your friends. Were there people passing behind them as you were talking to them? Were you facing a wall with a busy wallpaper or painting? Was it loud in there? Were you starting to feel more tense (sitting a bit stiffer or uncomfortably?).
I find that visual stimulation can do a number on my balance in some situations.
Hope you steadily improve.
quincy
Emsybobs
02-20-2004, 05:04 PM
Thanks to allf or your responses.
Quincy - this happens - when focusing on people - wherever I am to be honest - it is the focusing on a face that causes the dizzies. Ok, darker places are far worse but the more I sit the worse it gets. I often have to get up move around then sit down again - then I feel a little better. It is the brain/eyes trying to deal with it I guess but yes I agree, different wallpaper/certain environments can def worsen things. Hope you're ok xxx
Subs30
02-20-2004, 05:26 PM
Hi Emsybobs
..."better for a long time is because their eyes dont match the new signals?"...
It(VRT) is all important---but---there is not much doubt---in the mind of the medical research types---(that work in this area)---that good "Vision" with no complications is vital to returning the "BRAIN" to normal(compensating)---I believe that---also!!!!
..."Is tis what happens? The dizziness is still there but gradually we can do more and it lessens?"...
It is exactly what(and the way it) happens---for 99.9%---with highly complex, busy and dark---vision situations---getting better last.....
After all---when you are normal(no probs)---your "BRAIN"---is using 50% or more of it's processing power---to handle and sort out the visual image--it(you) is seeing---can you imagine---how much power is being devoted by it now---to sort out the visual scene.........
Further---the "Equilibrium Center" of the brain---has a bias --toward---using the vestibular system--for balance---when it(vestibular) became "screwed up"---the E/C of the brain had to shift---to your vision system for more of it's input---that is not bad---but it is not the best---because---your vision system---can be fooled---when it comes to your body's "spatial position"---the VRT Eye exercises along with the other VRT exercises---is re-establishing the normal Equilibrium Center input balance,i.e., vestibular--principal, vision and then Proprioceptive Information.
Yep--still at 100%---no problems so far
:cool:
willsmommy
02-20-2004, 07:13 PM
Hi Emys,
What you described is EXACTLY how my dizzies got better - this is deffinately a major sign that you are getting better!! :)
dizzyinmissouri
02-22-2004, 12:08 AM
Hi all, I had to post as I'm beginning to think this VRT is starting to work. I have been doing the eye exercises now for 5 wks (am following Ilia's London VRT programme - you carry on with exercises til your are symptomless).
Just yesterday I noticed I shopped in a supermarket and felt 95%. Today I walked into town (15mins) - trying to do this more rather than use car - and felt again, 95%. Got to a cafe where I met friends and managed to have lunch and sit for 45mins - at this point things began to get more intensely dizzy - what I get is I dont know where I am in space, my body sways, dizzy in head and I go v v preoccupied and spaced out and clumsy. But I can normally only be in the cafe for 10mins before I feel like this.
I am also noticing if I go out or do something, the dizziness is less severe or wears off more quickly than it did. Like for instance, at the start of this nightmare, after a 10mins walk I would have to lie down for 30 mins.
Is tis what happens? The dizziness is still there but gradually we can do more and it lessens? I sure hope so. It's given me the much needed hope Ive been waiting for, for 16mths!
SUBS. You have been v quiet? A questions - do you think, a bit like Vicki was told, that the reason why many people dont get better for a long time is because their eyes dont match the new signals? Ie: Can just the eye exercises for VRt be enough for some people? Im not saying they are all I need to do as I highly doubt it and I intend to do the whole VRT programme but I have heard the eye thing being mentioned a bit?
Hi Ilia - promise will chat this weekend, will text you when am on. Hope you're feeling ok.
xxx
Hi!
What you are describing sounds alot like what I am experiencing now. I am having alot of 95 to 100% moments. Really feeling good alot of the time, but not all the time. Sometimes I have moments when I feel the symptoms but they don't stay as long and I am recovering faster. I know that eye exercises are making a difference for me. I really wish I lived closer to Chicago cause they have wonderful equipment that would probably help it along even better, but... have to do with the home exercises!
Anyway, I am so thankful to the Lord for feeling this good again. I laugh alot now and laughing, even smiling was tough for awhile. :)
Hope your days get better and better. Seems like several are starting to see some hope right now!!!