I have been taking the meds for about 2 years now for my Fibromyalgia but I never realized that they may be a problem until last month when my dr started getting really strict about not giving me my refills when I wanted them. I just got angry and felt like I had to have them or I was going to be in this horrible pain.
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Christin
02-24-2004, 04:10 PM
Unfortunately, people like me and many others who abuse hydros for no medical purpose are the ones who make docs scared to overprescribe for legit medical reasons. I know nothing about your disease, other than I have heard it is very painful with no solution. If you have a legit medical problem that includes chronic pain, you should be able to be given whatever medication can control the pain. If you talk with your doc and cannot come to an agreement on pain management, find another doc. And be completely honest. Anyone asking a doc for pain meds is usually suspected to various degrees of being "drug seeking". But if you find a good doc with experience with your disease, you should be able to obtain adequate pain relief. (I am basically paraphrasing what I have heard pharmacists tell patients in my old profession)
mannhattin
02-24-2004, 04:25 PM
Well I go to a Pain Managment Dr and he has had me try every kind of injection out there but they don't seem to help I am just scared that there is more pain in my mind then I really have I'm only 23 and Have been on the hydo fro 2 years now.
Christin
02-24-2004, 04:32 PM
From what I understand, there is a difference between dependence and addiction. Someone who suffers from legit chronic pain is dependent on pain meds, just as a diabetic is dependent on insulin. I wish I had more answers for you, the only thing I heard repeatedly from pharmacists was to find another doc, and then another and another until you find one that helps you find a way to live comfortably. Has your doc ever discussed Neurontin with you?
mannhattin
02-24-2004, 04:47 PM
No what is Nurontin? I think he is scared by my age
Christin
02-24-2004, 04:54 PM
Neurontin is a fairly new (1994) drug that is labeled as an anticonvulsant (for seizures). However, it is now more and more widely being prescribed for chronic pain, and even more specifically for your fibromyalgia (sp?) It is non habit forming, and may be worth asking your doc about it.
mannhattin
02-24-2004, 05:15 PM
Well I think that I am gonna ask him about that. Thank you very much. It is hard you know when you have a 3 year old and live your life in pain or in a pill bottle
Christin
02-24-2004, 05:30 PM
My goodness...a 3 year old to take care of on top of this! I have a 7 yr old, so at least he gets to go to school during the day while I am going crazy trying to get off this stuff (I'm just a plain old addict, no medical necesity for pain meds). I really hate my husband sometimes and we have more than our share of marriage problems, financial problems, etc., but I don't know what I would do right now if he weren't around to take care of our son. My son and I are best friends and enjoy each other so much when I am "high", but when I'm going through withdrawals, I am scared to even look at him. Do you have any help? Husband, kid's father, other family?
When you next see your doc, try to bring some info on neurontin being used for chronic pain to show him. Some docs just don't know the newer pharmacolgical choices. Then again, he may know and just have a valid reason for not giving it a shot in your case. Anyway, google "neurontin, chronic pain", and print out some info to show to him. A good doctor will not be offended that you have taken initiative in treating your illness. :)
mannhattin
02-24-2004, 05:40 PM
I have a Husband to help me with him at night when I get home form work but I am also tired when I get home. He has always been spoiled by me, his mother whome ever and sometimes he acts like he doesn't understand how I feel. and we spend time snapping at each other.
Christin
02-24-2004, 05:57 PM
Ah marriage. There ain't a perfect one out there, especially the ones dealing with the issues we are talking about. A conclusion I came to: husband just can NOT understand how you feel. Words never get communicated correctly and everyone has their own needs. There's just no way around it. And there is no single way to resolve your problems...every marriage is vastly different with its own problems and personalities. However, assuming your husband is healthy, you might want to just tell him flat out that you can't bathe the kid, do the dishes, fill in the blank, tonight. Not that you don't want to. But that you CAN'T. You have a medical condition that unfortunately does not allow you do all the things you want. Some men respond to that sort of communication...makes 'em feel needed, like they are being the leader of the family, all that machismo stuff. That happens to be the tactic that finally gave us some peace from so much fighting. In general, I personally think guys are very simple, and simplistic answers, while they might sound trite, sometimes do the trick. Hang in there... :)
Angel of Mercy
02-24-2004, 10:41 PM
I have been taking the meds for about 2 years now for my Fibromyalgia but I never realized that they may be a problem until last month when my dr started getting really strict about not giving me my refills when I wanted them. I just got angry and felt like I had to have them or I was going to be in this horrible pain.
I know exactly what you feel. I too have severe Fibromyalgia, Myofascia and other neurological problems. I take Norco 10 for pain Ambien for sleep and for a short while Xanax. I cannot function without pain medication and I do not abuse my pain medication. At the most on really bad days I'll take 5 pain pills. I could not get out of bed in the morning without popping a pill and waiting for it to tell my brain that I can deal with the severe pain I feel. I don't know about you but the pain medication does not even come close to easing the pain but more along the lines of it just telling my brain to friggin deal with it.
There are different degrees of Fibromyalgia and unfortunately I have it bad. I can no longer work, I can't climb the stairs in my home most days, I can't race my 4-wheeler anymore or even simply ride it.
I haven't found a doctor yet who isn't scared to death to keep prescribing more than 2 refills for pain medication so I do what I gotta do which does not mean I have doctor shopped. The four doctors I had were all referred and specialist. To some that would seem like I'm an addict because I do what I have to do but it's all in how and why you use the medication. I've fired all four of my different specialists and possibly going in search of others but in all honesty my frame of mind right now is I'm done with docs. Whatever my fate in life is...is! And I am sooooooo ready for the walk on the other side.
I have been on just about every other kind of medication out there that is not a narcotic and NONE of them have touch the pain nor tells my brain to handle it. I've been on all the different seizure medications that are "suppose" to work great for pain, etc... All that's happened is that I have drawers full (litteraly) of half bottles of medication and spent many hundreds of dollars on the stuff. I will make a recommendation that if you are paying for your meds and not just co-pays that you do NOT have the entire prescription filled untill you see if it's going to work. I learned that the hard way. My pharmacist knows me well and he will tell me how many I should fill at first as in...if this medication hasn't helped you in x amount of days then it more than likely won't so now I never get more than a seven day supply.
Bottom line...DOCTORS SUCK IN MY BOOK!!!
I wish you luck and you do very much have my sympathy. One other note...just because we are dependent on pain medication to have any sort of sorry life does not mean you are an addict...For people who truly have pain the pain medication works on that first and foremost. I honestly do not get high off of the medication. I know I'm not making much sense in what I just wrote above but if you do enough studies on it you will know what I'm talking about.
Take Care!
AoM
mannhattin
02-27-2004, 01:04 PM
Well I am glad that I'm not alone. My family is always riding me about the meds that I take and I just wanted to check in with others who have the same kinda problems. I have a 3 year old and I can't imagine not being able to deal with him.
Like you said the pain meds not touch the pain in all reality but they tell your brain that it's better then it was.