dyana
03-09-2004, 07:24 PM
daughter had malignant tumor removed and radiation therapy, pt so on . now must have mri. cat scans and chest x-rays every 3 months for 5 years. then she has to have metal rod placed in leg from hip to knee cuz radiation made her bone brittle.
ssi disability denied, so did medicare. we are appealing this will be third time. any suggestions?
dyana
ssi disability denied, so did medicare. we are appealing this will be third time. any suggestions?
dyana
Sponsor
lilvoyce7321
03-24-2004, 03:52 AM
daughter had malignant tumor removed and radiation therapy, pt so on . now must have mri. cat scans and chest x-rays every 3 months for 5 years. then she has to have metal rod placed in leg from hip to knee cuz radiation made her bone brittle.
ssi disability denied, so did medicare. we are appealing this will be third time. any suggestions?
dyana
Gosh I really wish I knew. I too have thyroid cancer and and have been playing around with disability now for one solid year. My lawyer says that since being denied twice, I will probably have another year and a half wait before my case gets reviewed in front of the judge.
I have insurance, but my insurance will not cover pet scans, cat scans and such. I ams supposed to have mine every three months too. My insurance claims it is investigational and will not pay. My pet scans run about 3000 a piece and the last time I had one they wouldn't even perform the test until I signed a promissory note right there in the office.
I can not work. I can barely walk from the radiation. I would very much like to keep in touch with you. Maybe you can let me know what happens and I can let you know what happens with me.
Bless you and your daughter,
-lilvoyce-
ssi disability denied, so did medicare. we are appealing this will be third time. any suggestions?
dyana
Gosh I really wish I knew. I too have thyroid cancer and and have been playing around with disability now for one solid year. My lawyer says that since being denied twice, I will probably have another year and a half wait before my case gets reviewed in front of the judge.
I have insurance, but my insurance will not cover pet scans, cat scans and such. I ams supposed to have mine every three months too. My insurance claims it is investigational and will not pay. My pet scans run about 3000 a piece and the last time I had one they wouldn't even perform the test until I signed a promissory note right there in the office.
I can not work. I can barely walk from the radiation. I would very much like to keep in touch with you. Maybe you can let me know what happens and I can let you know what happens with me.
Bless you and your daughter,
-lilvoyce-
chricart28
03-25-2004, 06:44 PM
yOU MAY WANT TO TRY st. jUDES HOSPITAL THEY WILL NOT TURN AWAY ANY CHILD IN OF NEED AND THEY WILL ALSO MAY BE ABLE TO HAVE INFORMATION IN YOUR AREA THAT SET ASIDE MONEY FOR THIS MOST HOSPITAL HAVER THIS OR NO OF PRIVATE NON PROFIT THAT CAN HELP. TRY st. jUDES i THIK ITS IN st PAUL MN
Katyana
03-25-2004, 07:02 PM
OMG!! That's awful. How can they let people suffer and die due to paper work politics?!
I so wish you guys in the USA would take the lead from Canada and get rid of the private health care system. In Canada the government pays for our health care, and we pay for it in our taxes.
daughter had malignant tumor removed and radiation therapy, pt so on . now must have mri. cat scans and chest x-rays every 3 months for 5 years. then she has to have metal rod placed in leg from hip to knee cuz radiation made her bone brittle.
ssi disability denied, so did medicare. we are appealing this will be third time. any suggestions?
dyana
I so wish you guys in the USA would take the lead from Canada and get rid of the private health care system. In Canada the government pays for our health care, and we pay for it in our taxes.
daughter had malignant tumor removed and radiation therapy, pt so on . now must have mri. cat scans and chest x-rays every 3 months for 5 years. then she has to have metal rod placed in leg from hip to knee cuz radiation made her bone brittle.
ssi disability denied, so did medicare. we are appealing this will be third time. any suggestions?
dyana
haylee31
03-26-2004, 08:25 AM
It is really bad that ppl must suffer because of lack of ins.
my hubby has a mass on his neck and the ER would not
do test because of are ins. Then are family doc is holding
off on test because of ins. he even said it was because of
the ins. We were finaly approved for medicad which will
get in like 3 weeks. It is not fair though we should be
like Canada and the goverment should let everyone get
the medical treatment we deserve. My sister had a tumor
in her ovary { 10 years ago} the size of a orange she was
terrified it was cancer she had to come up with the cash
before they would do surgery. Thank goodness it was
none cancerous but she should not of been put off because
of not having ins. Best of luck to you and your daughter
will be in my prayers. Haylee
my hubby has a mass on his neck and the ER would not
do test because of are ins. Then are family doc is holding
off on test because of ins. he even said it was because of
the ins. We were finaly approved for medicad which will
get in like 3 weeks. It is not fair though we should be
like Canada and the goverment should let everyone get
the medical treatment we deserve. My sister had a tumor
in her ovary { 10 years ago} the size of a orange she was
terrified it was cancer she had to come up with the cash
before they would do surgery. Thank goodness it was
none cancerous but she should not of been put off because
of not having ins. Best of luck to you and your daughter
will be in my prayers. Haylee
ucla gal
03-26-2004, 11:31 AM
In most states there are sliding scale low cost and no cost health care programs for children based on family income. These programs are run by either the state or a charitable organization. If you do a search online under kids healthcare sliding scale (add your state) you should pull something up.
cbesner
03-27-2004, 02:54 AM
daughter had malignant tumor removed and radiation therapy, pt so on . now must have mri. cat scans and chest x-rays every 3 months for 5 years. then she has to have metal rod placed in leg from hip to knee cuz radiation made her bone brittle.
ssi disability denied, so did medicare. we are appealing this will be third time. any suggestions?
dyana
Depending on the age of your daughter and income, you can apply at your local welfare office for medi-cal (California); Medicaid (other states). There are insurance programs and you should take advantage of them. For children under the age of 19 there is low-cost health insurance in the state of California called Healthy Families. If your daughter is over the age of 21 she can apply directly for herself and if she has no income she can qualify for zero share of cost medical insurance.
ssi disability denied, so did medicare. we are appealing this will be third time. any suggestions?
dyana
Depending on the age of your daughter and income, you can apply at your local welfare office for medi-cal (California); Medicaid (other states). There are insurance programs and you should take advantage of them. For children under the age of 19 there is low-cost health insurance in the state of California called Healthy Families. If your daughter is over the age of 21 she can apply directly for herself and if she has no income she can qualify for zero share of cost medical insurance.
MySonChris
04-24-2004, 10:58 PM
I am so sorry Dyana! I am kinda new here but I found this site and I hope it might help you and anyone ekse in a rough spot like you. Good luck and I will be praying for you and your daughter.
http://www.firsthandfoundation.org/
Frequently Asked Question About First Hand
What are First Hand's application guidelines?
First Hand accepts applications on an ongoing basis on behalf of applicants who meet the following minimum criteria:
• Individual child (a child is defined as an individual still under the care of a pediatrician)
• Child must have a specific healthcare need that is not covered by an existing financial net such as insurance, state aid, charitable organization, or by the child's family.
Who may submit a First Hand Foundation application?
Any person (family member, friend, social worker, health provider) may submit an application on behalf of a child with a special need.
What kinds of expenses are covered by First Hand Foundation grants?
First Hand grants generally fit into three categories:
1) Clinical expenses: expenses associated with clinical procedures, treatment, medicine, therapy, prosthesis, etc.
2) Durable medical goods: wheelchairs, assistive technology equipment, specialized transportation and care devices
3) Displacement expenses: expenses associated with families of seriously ill children who must relocate during treatment
http://www.firsthandfoundation.org/
Frequently Asked Question About First Hand
What are First Hand's application guidelines?
First Hand accepts applications on an ongoing basis on behalf of applicants who meet the following minimum criteria:
• Individual child (a child is defined as an individual still under the care of a pediatrician)
• Child must have a specific healthcare need that is not covered by an existing financial net such as insurance, state aid, charitable organization, or by the child's family.
Who may submit a First Hand Foundation application?
Any person (family member, friend, social worker, health provider) may submit an application on behalf of a child with a special need.
What kinds of expenses are covered by First Hand Foundation grants?
First Hand grants generally fit into three categories:
1) Clinical expenses: expenses associated with clinical procedures, treatment, medicine, therapy, prosthesis, etc.
2) Durable medical goods: wheelchairs, assistive technology equipment, specialized transportation and care devices
3) Displacement expenses: expenses associated with families of seriously ill children who must relocate during treatment