kim1980
03-12-2004, 10:37 PM
HELLO-I WAS JUST DIAGNOISED WITH GOODPASTURES DISEASE(OR SYNDROME WHICHEVER YOU CHOOSE.)
THIS IS A RARE DISEASE 1 IN 100,000
NOBODY KNOWS TOO MUCH -INCLUDING MANY DOCTORS--IT IS TOO RARE FOR THEM TO EVEN HAVE EXPERIENCE WITH IT!
IF ANYONE KNOWS ANYTHING ABOUT THIS DISEASE--OR HAS IT--PLEASE CONTACT ME!
kim1980
THIS IS A RARE DISEASE 1 IN 100,000
NOBODY KNOWS TOO MUCH -INCLUDING MANY DOCTORS--IT IS TOO RARE FOR THEM TO EVEN HAVE EXPERIENCE WITH IT!
IF ANYONE KNOWS ANYTHING ABOUT THIS DISEASE--OR HAS IT--PLEASE CONTACT ME!
kim1980
Sponsor
Kristine1976
03-25-2004, 03:52 PM
I do not know *anything* about Goodpasture's syndrome and I was curious so I just looked it up on the internet. Even though it is an autoimmunie disorder, it primarily impacts the lungs and kidneys so maybe post your message on the Kidney Disorder Forum and see if anyone there knows of anything. Just remember that you have the ability to be stronger than your disease. Best of luck to you!!!! Sorry couldn't be of more help.......Kristine