guidos girl
03-15-2004, 05:59 PM
We just had a session with our daughtors Phycholigest(sp?) I am very confused , angry and hurt. Our daughtor is 8, been diagnosed since 1997 as Asbergs. We have allways had issues with her behaviour. For 3 years she has been on Dexatrin, Novotarazadone and Risparadol. I allways questioned the risparado's side effects because her anger level was getting very high. I asked the Dr. about this and expressed that I was more concerned with her anxicty level. He told me that if I could get her off of it then he would perscribe her Paxil. So I have gotten her off if the risparadol, anger is better but ticks have appeared more frequently, sleep is almost non existant and her anxiety is throught the roof. Well in the visit today, he refused to give us the paxil, said to keep her off of the risparadol and that it seems like she is outgrowing the dosage of dexatrin that she is on.
Ok, so when we talk to him about what to do, he says that it is a parenting issue because she does not have behaviour problems at school. I am so tired of this, he has said this before, but now he is starting again. His reasoning......Autistic children do not hold it in???? OMG I am at a loss, very tired and dont know where to turn. If this all seems like rambeling I am sorry, very hard day.
Please someone give me your thoughts.
Thanks. :confused:
Ok, so when we talk to him about what to do, he says that it is a parenting issue because she does not have behaviour problems at school. I am so tired of this, he has said this before, but now he is starting again. His reasoning......Autistic children do not hold it in???? OMG I am at a loss, very tired and dont know where to turn. If this all seems like rambeling I am sorry, very hard day.
Please someone give me your thoughts.
Thanks. :confused:
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BetsyAnn
03-16-2004, 12:11 AM
I am very sorry for what you are going through. It sounds very frustrating. And I am sure that lack of sleep makes it almost impossible.
It sounds as if you don't see eye to eye with your doctor. Perhaps a second opinion from a different physician is in order.
Best of luck to you and your family.
It sounds as if you don't see eye to eye with your doctor. Perhaps a second opinion from a different physician is in order.
Best of luck to you and your family.
concerned grand
03-16-2004, 11:13 AM
I am very sorry for what you are going through. It sounds very frustrating. And I am sure that lack of sleep makes it almost impossible.
It sounds as if you don't see eye to eye with your doctor. Perhaps a second opinion from a different physician is in order.
Best of luck to you and your family.
So sorry to hear about your situation. My granddaughter will be 8 in April . She has not been on medication. She is indeed a handful. It can be very trying on everyone. I would go to another doctor for starters. Just remember you are not alone. I will be praying for you!
Concerned Grand
It sounds as if you don't see eye to eye with your doctor. Perhaps a second opinion from a different physician is in order.
Best of luck to you and your family.
So sorry to hear about your situation. My granddaughter will be 8 in April . She has not been on medication. She is indeed a handful. It can be very trying on everyone. I would go to another doctor for starters. Just remember you are not alone. I will be praying for you!
Concerned Grand
suzann61
03-18-2004, 11:31 AM
I do agree about seeing another Dr. Regarding his (dr.) statement about not holding it in behaviour etc....they do I ahve a friend who has a son 14 high functioning autism...and he does go through the day holding things in because he is aware that he is different and doesn't want to stand out...etc...by the time he gets to the car after school he may be angry, or emotional etc because he has tries to mantain all day....
I also have twin boys with autism 13...One does very well in school behaves etc...when he gets home he can be more himself...say silly things,
talks with his hands...watches tv programs that a "normal" 13 year old wouldn't....etc...
Suzann
I also have twin boys with autism 13...One does very well in school behaves etc...when he gets home he can be more himself...say silly things,
talks with his hands...watches tv programs that a "normal" 13 year old wouldn't....etc...
Suzann
guidos girl
03-18-2004, 12:18 PM
I do agree about seeing another Dr. Regarding his (dr.) statement about not holding it in behaviour etc....they do I ahve a friend who has a son 14 high functioning autism...and he does go through the day holding things in because he is aware that he is different and doesn't want to stand out...etc...by the time he gets to the car after school he may be angry, or emotional etc because he has tries to mantain all day....
I also have twin boys with autism 13...One does very well in school behaves etc...when he gets home he can be more himself...say silly things,
talks with his hands...watches tv programs that a "normal" 13 year old wouldn't....etc...
Suzann
Our Dr. Tells US all the while looking at me :rolleyes: and says that he has never heard of Autistics holding it in and then letting it all go unless they are "allowed too" and that I am not doing her any good if I "let" her do this. Is there ANY truth to this???
I also have twin boys with autism 13...One does very well in school behaves etc...when he gets home he can be more himself...say silly things,
talks with his hands...watches tv programs that a "normal" 13 year old wouldn't....etc...
Suzann
Our Dr. Tells US all the while looking at me :rolleyes: and says that he has never heard of Autistics holding it in and then letting it all go unless they are "allowed too" and that I am not doing her any good if I "let" her do this. Is there ANY truth to this???
juliek0202
03-19-2004, 12:16 AM
We just had a session with our daughtors Phycholigest(sp?) I am very confused , angry and hurt. Our daughtor is 8, been diagnosed since 1997 as Asbergs. We have allways had issues with her behaviour. For 3 years she has been on Dexatrin, Novotarazadone and Risparadol. I allways questioned the risparado's side effects because her anger level was getting very high. I asked the Dr. about this and expressed that I was more concerned with her anxicty level. He told me that if I could get her off of it then he would perscribe her Paxil. So I have gotten her off if the risparadol, anger is better but ticks have appeared more frequently, sleep is almost non existant and her anxiety is throught the roof. Well in the visit today, he refused to give us the paxil, said to keep her off of the risparadol and that it seems like she is outgrowing the dosage of dexatrin that she is on.
Ok, so when we talk to him about what to do, he says that it is a parenting issue because she does not have behaviour problems at school. I am so tired of this, he has said this before, but now he is starting again. His reasoning......Autistic children do not hold it in???? OMG I am at a loss, very tired and dont know where to turn. If this all seems like rambeling I am sorry, very hard day.
Please someone give me your thoughts.
Thanks. :confused: I would first change doctors or at least get a second opinion. Your doctor shoud be more supportive. If you were willing to try the paxil, then he should have also. School is a more structured setting than home is. Plus they probably have more help with your daughter at school than you do at home. It's not a parenting issue. I believe parents of autistic children have already "earned their wings" if you know what I mean. It is a difficult lifelong challenge. Trial and error most of the time and sometimes even what works today may not work tomorrow. My son sleeps well with clonidine at bedtime. He's 7 and on 0.3mg at bedtime. As he gets older and gains more weight the dosage will probably need to be increased. I think he feels better when he gets sleep but without the med he wouldn't sleep. He is good at school also, but when he gets home, he lets loose. My older son sleeps well with melatonin. He is 13. He holds it in all day at school because he doesn't want to be singled out as different. Then he acts like himself at home. He is aspbergers. And I love them both dearly. Good Luck and God Bless. I know it's hard...
Ok, so when we talk to him about what to do, he says that it is a parenting issue because she does not have behaviour problems at school. I am so tired of this, he has said this before, but now he is starting again. His reasoning......Autistic children do not hold it in???? OMG I am at a loss, very tired and dont know where to turn. If this all seems like rambeling I am sorry, very hard day.
Please someone give me your thoughts.
Thanks. :confused: I would first change doctors or at least get a second opinion. Your doctor shoud be more supportive. If you were willing to try the paxil, then he should have also. School is a more structured setting than home is. Plus they probably have more help with your daughter at school than you do at home. It's not a parenting issue. I believe parents of autistic children have already "earned their wings" if you know what I mean. It is a difficult lifelong challenge. Trial and error most of the time and sometimes even what works today may not work tomorrow. My son sleeps well with clonidine at bedtime. He's 7 and on 0.3mg at bedtime. As he gets older and gains more weight the dosage will probably need to be increased. I think he feels better when he gets sleep but without the med he wouldn't sleep. He is good at school also, but when he gets home, he lets loose. My older son sleeps well with melatonin. He is 13. He holds it in all day at school because he doesn't want to be singled out as different. Then he acts like himself at home. He is aspbergers. And I love them both dearly. Good Luck and God Bless. I know it's hard...
ChestOut
03-19-2004, 02:05 AM
We just had a session with our daughtors Phycholigest(sp?) I am very confused , angry and hurt. Our daughtor is 8, been diagnosed since 1997 as Asbergs. We have allways had issues with her behaviour. For 3 years she has been on Dexatrin, Novotarazadone and Risparadol. I allways questioned the risparado's side effects because her anger level was getting very high. I asked the Dr. about this and expressed that I was more concerned with her anxicty level. He told me that if I could get her off of it then he would perscribe her Paxil. So I have gotten her off if the risparadol, anger is better but ticks have appeared more frequently, sleep is almost non existant and her anxiety is throught the roof. Well in the visit today, he refused to give us the paxil, said to keep her off of the risparadol and that it seems like she is outgrowing the dosage of dexatrin that she is on.
Ok, so when we talk to him about what to do, he says that it is a parenting issue because she does not have behaviour problems at school. I am so tired of this, he has said this before, but now he is starting again. His reasoning......Autistic children do not hold it in???? OMG I am at a loss, very tired and dont know where to turn. If this all seems like rambeling I am sorry, very hard day.
Please someone give me your thoughts.
Thanks. :confused:
I thank God for mother's intuition and reading as many books on autism and special needs. With intuition, knowledge gained from books or on line and self-evaluation of daily events . . . child rearing of a special needs individual becomes easier.
I have recently been through a horrid experience whereby my son's doctor listened to the "untruths" of my son's teacher. After tears and calming of emotions then evaluating the situation I changed doctors and when the surprised teacher was confronted by the doctor she told the truth.
So, go with your feelings guidos girl. Get pass the confusion. Take a little of each problem at a time and do what works. The doctors and those who do not live with autism 24/7 sometimes play too much judge and jury.
Personally, I find heart to heart talks with my teenage son works. Most of all I know his favourite reward and I can get him to move the earth for this reward.
He is going through a period now without medication and guidos girl so far so good. Imagine his former doctor and teacher were trying to stiffle him with medication. I forgive them and say the Lord's Prayer regularly as I become lost for words in pray.
Guidos girl, best regards to you.
Each day is a challenge.
Go on line and read Mother Theresa's poem, "People Are Unreasonable".
Ok, so when we talk to him about what to do, he says that it is a parenting issue because she does not have behaviour problems at school. I am so tired of this, he has said this before, but now he is starting again. His reasoning......Autistic children do not hold it in???? OMG I am at a loss, very tired and dont know where to turn. If this all seems like rambeling I am sorry, very hard day.
Please someone give me your thoughts.
Thanks. :confused:
I thank God for mother's intuition and reading as many books on autism and special needs. With intuition, knowledge gained from books or on line and self-evaluation of daily events . . . child rearing of a special needs individual becomes easier.
I have recently been through a horrid experience whereby my son's doctor listened to the "untruths" of my son's teacher. After tears and calming of emotions then evaluating the situation I changed doctors and when the surprised teacher was confronted by the doctor she told the truth.
So, go with your feelings guidos girl. Get pass the confusion. Take a little of each problem at a time and do what works. The doctors and those who do not live with autism 24/7 sometimes play too much judge and jury.
Personally, I find heart to heart talks with my teenage son works. Most of all I know his favourite reward and I can get him to move the earth for this reward.
He is going through a period now without medication and guidos girl so far so good. Imagine his former doctor and teacher were trying to stiffle him with medication. I forgive them and say the Lord's Prayer regularly as I become lost for words in pray.
Guidos girl, best regards to you.
Each day is a challenge.
Go on line and read Mother Theresa's poem, "People Are Unreasonable".