undefined
Well..............I dont know how to start ??
Maybe I should start with Thanking all of you who took the time to reply to me - it means alot !!!!! THANK YOU :)

The bad news ??
I broke down in tears in the Specalist Room - he told me that there was nothing more 'he' could do for me.
Because I am showing extra symptoms now of : psorisis and general pain in knees , shoulders , elbow - these are not as bad as my back - mainly bad on morning - very stiff and achy PLUS Ulcerative Colitis.

Because of these things, as well as my back, he has been discussing me with my other doctors (skin specialst and Gastro Specialist) and they all are now thinking it is connected!
He said he thinks I've got an auto immune problem. :eek:

Well that scared the "****" out of me!!
I burst into tears and the last little bit of hope that I walked in that room with - was suddenly gone - forever!

I was so dissapointed he couldnt offer me anything............and so upset to learn that the news was worse than I ever imagined.

He wants to send me to a Pain Clinic (last time I went to one of these it was useless - all psych think your pain has gone away - type thing!!!)
And also wants to send me to a Rheumatologist at same Hosp

This news really shocked me....................really shocked me.

I dont think I have stopped shaking properly since 12am!

I feel that it has taken so much of me - there is nothing left.

I so want a life back and would do anything to get it.

My Boyfriend was very supportive and came in with me.:angel:
I saw the look of sadness in his eyes - he was trying to be strong for me.

I have told him that now is the time if he wants to leave, before he starts to feel trapped - but he says no.

WELL................So I WENT DREADING ONE THING............AND CAME OUT FAR MORE SCARED AND UPSET WHEN I CAME OUT !!! :confused:

Papillonisback

PS: Hi Christina - haven't forgotton you.............so lovely to hear from you again. Take it easy!!

Pappilonisback, that is not such bad news. In fact, it may be good news. There are many autoimmune diseases such as Lupus, Rheumatoid Arthritis, Sjogren's Syndrome, and many more. There are medications to treat them. Once under treatment, your symptoms may disappear or at least be much less. The good news is that you don't need surgery! Please see a rheumatologist as soon as possible, tell him/her all your symptoms, and get treatment!

StillWater

Papillonisback, I agree with stillwater. This may turn out to be something of a blessing...don't give in to the panic you are feeling. YOu may have something that is easily treated, which would be a lot better than having to have surgery.

A pain clinic isn't like a psych office....I am not sure why he wants to send you there before you get a diagnosis....they will treat your pain.

If you have an auto-immune disease I would think you should see a rheumatologist as soon as you can.

Please let us know how you are doing and what the doctor finds out for you.

Carol

papillonisback:

Don't feel bad, the guys are bringing up a point: It may actually be a blessing. At least he didn't say you need surgery. They may say it is linked because if you are going through all these it may giving you stress and therefore giving you more back ache...

I know how you feel.... with chronic pain we feel so sensitive and we get really emotional. Follow the advise of the doctors and see where it takes you. I think you will do alright. We are all praying for each other to do better.
:) R

Pappalonisback, are you still here?

If you are, please let us know how you are.

StillWater

HI

yep I'm still here.

took me a couple of dayd to fully digest what he had said (and to stop crying).

My discs are still worn with DDD but there is nothing that an operation would cure (short of replacing them which UK here, dont do)

My other joint pains are not half as bad as my back.

The psorisis is getting so bad - like really bad sunburn that stings and itches and burns.

He said he was going to refer me to a Rheumatologist - so I'm still waiting.

In the mean time - no help!

My gp has started me on Amitryptaline which seems to have helped a bit.

Having a lot of troublewith the joints under my bum - two boney bits on either side - sore and hurt bad when sat.

So, no new news - just waiting until they decide they have time to help me.

Still a bit worried - didnt even know what an auto immune disease was ?? !!!! :confused:

LOVE TO YOU ALL

Papillonisback :wave:

Papillonisback, are you seeing a dermatologist for your psoriasis? There are several new treatments out but I cannot remember the name of any of them. I have psoriasis but my worst area is my scalp. It was so bad I was going bald..dermatologist gave me a script for something to rub into my scalp at night. After 3 weeks, the psoriasis was almost completely gone. I now have an almost full head of hair again.
Good luck...
Carol

Pap,

I have an autoimmune disorder classified as connective tissue disease, I also have DDD, my NS said it was because of the connective tissue being destroyed. I am in the same boat. No surgery will help and I have been told pain management is the only answer for me, but there are lots of new drugs and treatments out there that can give you back your life.

Don't give up.