How far up does your neuropathy go? [Archive]

farscape66

04-07-2004, 01:34 PM

Diabetic neuropathy of both feet. On Neurontin. I have tingling through the whole foot and aknle and shin bone. Is this normal? How far up can tingling go?

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loretta kay

04-07-2004, 08:01 PM

Hi! I guess we both have the same question.....MY feet have been completly numb for over 4 years with no treatment till now.(broke my ankle 4 times) I still did not go for help...figured I had M.S...was in a dipression and just continued to drink (thats proubly why I have this) any how I did get one test about a year ago and confirmed I had Neuropathy<came home..got on the web...looked it up...thought O.K.....(denile)....And figured I'll deal with it. Answer to your question is yes it can travel...thats why three days ago I went to the Cleveland Clinic to begin my journey into this .......my right hand is almost completely numb. That happened in about 3 weeks. My feet took about 2 years to get there. The last few days have been hard I already I'am living under great stress in my personal life. Getting on this site yeasterday and really having to face what seems to be my future, has been hard.I have all the symptoms.(well seem's most) But you see, I already knew what I did 't wont to face till now...I have been sober about a year and a half..I'am A very young minded 45 year old..I have children...and dreams of doing alot of running around still. well at least walking around as fast as I can!That has not been the case either but ya know what I mean. Tell me more about yourself.Do you know whats wrong with you at all, how long has this been going on ETC.I have done a bit of resurch on my own, nothing like some of these people, they sound like they all went to med school..but I guess with this illness you had better.

farscape66

04-07-2004, 08:30 PM

I am 45 male type 2 diabetic. I was very depressed and refused to see doctors for 10 years, I knew I was diabetic, I just got worse and worse. Then one day I had a mild stroke 3 years ago. I have been under treatment ever since. Now I am left with two numb and tingling feet. No cure but the neurontin helps relieve it a little.

farscape66

04-07-2004, 08:30 PM

loretta kay

04-08-2004, 01:41 AM

It's me again, excuse my spelling(always have been bad at that) but with my right hand going numb it's a bit harder.I'am type 2 too,not on insulin, was once about 9 years ago. I too had a mild stroke, year and half ago, detoxing off of alcohol, I'am guessing thats what caused the neuropathy.,combination of alot of things.I have never been in a chat room or what ever you call this.Just got on the computer about 4 mths ago. I have been avoiding this problem and I can't any more so thought I would try to get more info. and found this site.I went to Cleveland Clinic for the first time monday they put me on neurontin also, I'am also on zoloft for depression.I don't have E.S.P. or any thing but it sounds like you have just given up.How bad are your feet, can you walk? I have never talked to any one with neuropathy before, not that I wonted to , I mean I just wonted to not look at it, I broke my ankle 4 times in one year,the feeling was completly gone, feet looked like "bird feet" Hay I used to have pretty sexy feet. The point is, with all this happening I did't get it checked out.Are you able to work, whats hapening with you????

farscape66

04-08-2004, 08:01 AM

I can still walk, just a lot of numbness and tingling. I sometimes have a slight limp. Since my job is a sitting one, computer scientist, I am not on disability yet. But you never know. I also have a back problem that is causing me considerable pain. My type 2 diabetes is under complete control, very good numbers. But the damage had allready been done, and as far as I know cannot be reversed. Does the neurontin help? What is your dosage?

delrae4753

04-08-2004, 11:19 AM

my neuropathy involves both legs both feet most of the toes about 90 percent of my fingers my hand s and half of my left are and elbow walking has good and bad points some days the legs are like rubber and most of the times the hands dont work like they should gripping and handing anything in the lft arm is impossible and to my worst scenerio im left handed this is a horrid disease

tattooedlady

04-25-2004, 10:50 PM

Hi there. My neuropathy goes all the way up to my hips and it's also in my hands. Walking without holding onto something is impossible for me now, so I have to use a wheelchair when I go to the store. Driving is out of the question, so I have to depend on other people to take me everywhere. (I hate that!!) It hasn't moved any further up my body in 6 months, so I'm hopeful that it's done devouring me. I've been taking Neurotin for a few months and I can tell the difference, big time. It makes me feel like a dingbat, but I don't care. It helps with the really bad part of the pain. I can finally sleep through the night. I keep cold wet towels on my feet constantly to help with the burning sensation and it really helps alot. I'm hoping for a cure for nerve damage, but my neurologist says there's no real research going on. I have to have hope that something will change for me. I'm a 41 year old mom of 5 little kids. I can't leave my house without help. It sucks that I can't do things with my kids. So hope is all I have. Good luck to all of you.

farscape66

04-26-2004, 08:44 AM

I never imagined that it could spread that far. Is your diabetes under good control? I wish you the best of luck. I thought I had a problem with the feet and the shin bones but what you describe is very scary.

tattooedlady

05-01-2004, 08:24 PM

I don't have diabetes. They don't know what has caused this. My neurologist said it could even be "bad genes." Who knows. I've just about given up. This is terrifying for me. I never get to go outside anymore. I just sit here........waiting for something to happen. I thought the punishment for sin is death. Not sitting in a wheelchair in agony. I guess this is what my life is going to be, forever. Sorry for being so depressing.

jgm77055

05-01-2004, 09:16 PM

you and i must be related i have the same ailments