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JayLynn
07-22-2003, 06:19 AM
Hello everyone,

I am about to start my son on a gluten/casein free diet and I want to know if anyone here is trying this with their child. If so, could anyone give me suggestions on where to find recipes or could anyone give me a list of things they feed their child? My son is 2 years old and he loves bread and pastas. I know I have to cut those things out of his diet and replace it with something new.

Any help would be appreciated!

Jessica

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Joanne
07-22-2003, 11:48 PM
Well, there are some free recipes on line. I bought the Special Diets for Special Kids cookbook by Lisa Lewis. It had a lot of good recipes. You can also call all of the companies. I called all of the cereal companies, candy companies, snack foods, ext. and told them that my son could not have gluten or casein. They would tell me if a product contained either. I also called my local fast food resutaunts and spoke to the manager (Ryan is big on french fries). I explained that he could not have french fries that were fried in the same grease as the chicken nuggets ior anything else with wheat. Only french fries could be cooked in the grease. Some of the fast food places do use different fryers for only french fries. Some of them read me the ingredients on the fremch fries. Some even offered to ccok me a burger and not put it on the bun. (so I could use on that was gluten free) I also made a lot of my own food. I bought a bread maker. It was so much easier. There are also a ton of places that sell mixes for cakes and cookies. I bought everything on the internet except frozen foods which I bought from the local health food market. (Waffles and pizza crust) I also bought my soy cheese there and at some grocery stores. I can get soy yogurt from my local grocery store. (I called them to make sure there was no gluten or casein in the product. Dairy free does not always mean casein free or gluten free.) There are even hotdogs that are GFCF. You can get almost anything GFCG. I found chocolate on line. Let me know what else you need. I could go on forever. Good luck. I'll look forward to hearing from you.
Joanne

JayLynn
07-24-2003, 01:31 PM
Joanne,

Thanks for your help. I just bought the book you mentioned online a couple days ago. I'm waiting to get it in the mail (and to learn more) before I start the diet. I also ordered Super Nu Thera and I plan to try that once I start the diet. I live overseas because my Husband is in the Air Force and we shop at the commissary on base. The commissary is limited and they never get anything new. What I am going to do is read the cookbook and make what I can on my own with what I can get at the commissary. Maybe I should buy a bread maker too! I'm a horrible baker! I am looking online at specialty food stores to buy snacks and other things to feed him during the week to make things easier. Do you know of any good food stores? I don't know if you can mention store names on the board or not. I'll look over the cookbook and see what I can do. Thanks for your help and if you can think of anything else, please let me know!

Thanks,
Jessica

JayLynn
07-24-2003, 01:34 PM
One other thing, has the diet helped Ryan? How old is he?

Nicksmom
07-24-2003, 06:05 PM
My son is just gluten free.......he's fine with casins so that diet is much easier for us. The diet was hard in the beginning but now it's easy. I got rid of my wheat flour and we buy brown rice flour, white rice, flour, and an all porpose gluten free flour mix. I like to use the brown rice flour and get chicken strips diped in egg and then roll it in the flour and fry it up, that's how we make our chicken nuggets now. If theres a birthday in the house, Pamala's brownie mix has a great chocolate fudge cake receipt in the back, you'll never know it's gluten free. I also buy gluten free pancake mix from the health food store that taste good, especially if you add a handfull of frozen blueberries to the mix. As for bread, they sell it in the store, but it taste really bad. I make sandwhiches on rice cakes, and also gluten free walfles. We also get spaghetti made from rice noodles. They also make spaghetti made from corn, but it doesn't taste that good. They have a lot of cook books out for people with celic's disease so they are all gluten and casin free reciepts that will really help you out.

*Rachel K*
07-24-2003, 08:46 PM
Jaylynn,

You might want to try kinnikinnick. I think I spelled it right. My son was on the diet for a year and half. I bought lots of food and vitamins from a local health food store that carried Kirkmans vitamins and supplements and also carried Kinnikinnicks products which my son liked alot. They carry breads, pretzels, cinnamon rolls, hamburger buns and hotdog buns, donuts, waffles and lots of other stuff. Their products seems to be the best tasting GF/CF products on the market (in my opinion). Nothing is like the real stuff but their products come close. They have a website you can visit and buy from. Good Luck!

Rachel

[This message has been edited by *Rachel K* (edited 07-24-2003).]

[This message has been edited by *Rachel K* (edited 07-24-2003).]

JayLynn
07-25-2003, 07:41 AM
Thanks for everyone's suggestions. It's great that I can come here for help. Does anyone know of things I can buy at a regular grocery store until I am able to find a store that ships overseas?

memehegan
07-26-2003, 12:42 AM
Hi Jessica
We have been gf/cf for several years and my son has shown a tremendous impovement. The diet is not easy but for us the immediate results were reward enough to continue. Is there a good milk substitue available at the comissary? In the begining of the diet just remember that you are doing the best you can, I have even heard of some parents that start slowly, introducing and substituting a little at a time, for us we didnt immediately go gf/cf- I switched to rice dream chocolate milk- easier to substitue because of the flavor- and rice crispies- neither product is perfect but both are low in in g/c. I also immediately eliminated processed meats and used only meats without addivitives. I planned our menus for the whole family based on rice, potatos, fresh or frozen meats and vegetables. My son no longer eats corn, but in the begining he did- so the first night it was tacos- not packaged seasoning, but just ground meat, tomato paste, garlic and chili(mcormicks are the only spices that tell if they contain glueten that I know of ) I used crunched up rice cakes instead of bread crumbs for meat loaf-find a margerine that says parve up in the right hand corner- its a corn based product. Hopoefully you can get some rice flour to make pancakes or waffles-I follow almost the same recipies- except I use a special baking powder- featherweight(blue label) is caisin free. Baking soda i believe is a safe product and if you use enough eggs what you make will rise any way. I wouldnt waste my time on a bread maker- it takes forever to perfect a product in there- quick breads are easier- follow a regular recipie- just a little more eggs usually works. Sometimes I even beat the egg whites stiff and gently fold them in before baking. The recipies in the book will be great too. We use rice cakes for a base for tuna, egg or peanutbutter(when he could eat it) - if you can get brown rice -hanson mill- it makes awesome fresh soft shell tortillas! Just mix a 1/4 c in a coffee cup with an egg and some water until it is thinner than pancake batter- the thinner the better- add salt or cinnamon- no sugar, heat up a griddle until very hot- and barely greased(it will smoke alot) pour on batter, immediatly flipp and there done- my whole family devours them!after they are cooked you can add what ever seasoning. Also you can cook a thick (rice)pancake base in the microwave - like a 1/2 inch thick in a coffee cup for a minute or so, then (dont burn your self on steam) cut in half and toast it- instant bun! If you have family who would be willing to, they could also mail stuff - the best product I have found here are cyber soychips- cinnamon and garlic are awesome snacks and affordable(we didp the cinnamon rice cakes in unsweetened applesauce), and at hannaford in with the asian foods is an affordable white rice pasta- 1.99! (Linguni and spaggehetti)At the Health Food store its $5-7 bucks for 10 oz! I also have eliminated table sugar and sweeten tons of foods with concentrated apple juice. Also a great summer snack is - frozen bananas on a stick then dipped in concentrated grape juice! In a pinch you can make your own rice milk or rice pudding or rice eggnog- just cook up like a cup of instant rice, throw it in the blender with it a cup of water, and pure, then run it through a strainer. Then I put it back on the stove sweeten and add a pinch of salt to taste, then boil- when it is boiling I stir the hot mixture into a beaten egg, and pour it back into the pot and simmer for just a few more seconds- never letting it boil to make sure that any semonila germs from the eggs are dead! Instead of a bread maker I would recomend a fry daddy. French fries go along way to appease "a cranky I hate this diet child" And you drop globs of that thick pancake batter in it with diced fruit for instant doughnut holes! I have even grated a whole potato over it - it forms a cute 'nest' to plop scrambled eggs on!-meme

Joanne
07-26-2003, 02:57 PM
Sorry it took me so long to reply. First, Ryan did very well on the diet. We saw tremendous changes in his GI tract and his mood swings (which I associate from the pain in his GI tract.) We have stopped the diet for now. He began to lose weight from the limited foods. We have sent a urine test to find out if we need to re implement the diet. Ryan no longer has casein though. We keep him strict on that (he never really had any dairy anyway.) Here are a few things I can suggest. Some rice crispies have gluten in them. Check to make sure they have no malt in the ingredients. As long as they are free of malt, they should be O.K. But I always suggest calling the manufacturer to make sure. You can gring them up to use as bread crumbs and you can't tell. We fry chicken strips with rice crispies all the time. I bough a bread maker because Ryan love peanut butter and jelly. He does not have a nut issue. He did not like the store bought gluten free bread. I bought rise flour, potatoe starch and tapioca flour and combined them, then substituted them for the flour in a recipe. I also used xantam gum to help it rise. I called the company that made the bread maker for suggestions on the settings for the gluten free bread. I bought my bread maker from a clearance rack at a local department store so it only cost me 10 dollars. It is money well spent in my opinion. I also used it to make dough. We would make pretzles in the oven and hamburger and hot dog rolls. All of my children loved them. Ryan's major issue with the diet was that he refuses to eat meat. I have tried everything and nothing works. He won't even eat from a fast food resturaunt. This limited his diet tremendously. Just to warn you, soy flour has a strong bean taste. I never found a way to hide it. Not even in brownies. I have a great and easy recipe for brownies that are GFCF. I also had a great resource. My best friend is Jewish. During Passover, they do not eat 7 grains (please forgive me if I mess this up, I am not Jewish). She gave me a lot of recipices that are GF as well as CF. They cannot have meat and dairy together (if they are "kosher") So a lot of her recipies were also dairy free. Vance's dairy free is the best substitute I found for baking. It is a little sweet. Let me know if I can help more in any way. It must be extemely difficult to implement a diet when you have limited resources.
Joanne

Joanne
07-26-2003, 02:59 PM
I forgot, Ryan is 4. I also am not a good baker. Check my profile and email me. I am also unsure if I can give you names of stores or not. I can give you some other recipies and suggestions on stores.
Joanne

Joanne
07-26-2003, 03:05 PM
I can't seem to get my email on my profile. Here it is.
rjesarver@cavtel.net

JayLynn
07-26-2003, 04:39 PM
Thanks everyone for all of your help. You all are dedicated parents and your children are lucky to have you! It's going to be difficult at first with the GFCF diet. I'm going to start with diary today and then work my way to the other stuff once I have more cookbooks and know of more places to shop. I would like to know if the chronic diarrhea stops once the GFCF diet start taking effect? My son has had diarrhea as far back as I can remember. I had a stool sample tested and he also had a blood test done on his metabolism and the doctor said everything is fine, but it doesn't take a genuis to know that chronic diarrea is not normal. Also, my son does not have a lot of diary products in his normal diet anyway, but I can say that he eats a lot of bread. I know I need to cut that out, but I need to wait until I have other things to replace the bread with. He loves rice, but the flavored rice and from what I understand, I cannot give him most flavored rices. Thank you all and Joanne, I will drop you an email sometime.

Best Wishes!

Joanne
07-26-2003, 07:47 PM
Once I implemented the GFCF, Ryan bagan having bowel movements only once a day (he usually had 3-4). Two weeks later, he was potty trained!!! Can't wait to hear from you.
Joanne

memehegan
07-27-2003, 09:14 PM
Hi Just one more thing to keep in mind, as you pull him off of wheat and dairy he may go through withdrawl them same as an opium addict would, becoming more cranky and aggressive but it doesnt last for long. My son was bone and skin before the diet- I believe he was actually starving to death because his gut lacked the enzymes it needed to proces the protien from all the milks, cheeses, breads and cereals he ate!After the diet he gained weight and shot up like a weed so fast! He started talking and making eye contact and went from spch and language being untestable to being advanced several years, and his IQ's, verbal and nonverbal both rose 10 points- the nonverbal went up to 118!- also before the diet he had little diareah- his only symptoms were exzema and red red red ears and of coarse autistic symptoms. He has permantent learning disabilities and I will never know if it was a birth defect or damage from malnurishment or from mercury poisioning! I know when he was about 8 he had his teeth cleaned- he had 4 gray fillings in his mouth at that point- just the cleaning litterally sent him over the deep end for 24 hours and regressed him for months. I never thought I'd make it through that winter. And I read every ingredient they put in his mouth to clean the teeth but until then I was unaware of the conection between mercury and fillings and that just cleaning the so called safe fillings could leach mercury out of them and re-expose an already weakened body structure to more poisoning. -meme

[This message has been edited by memehegan (edited 07-27-2003).]





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