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ljs3
04-13-2004, 09:13 PM
My right ear hurts SO bad! :eek: As I sit here at the computer I am having a major earache and it even hurts to push on my ear or move it around. Does anyone else experience ear pain? I read about others have plugged ears, ringing in the ears, etc. But how about pain? And what do you do for it?

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dan44
04-13-2004, 11:12 PM
I get ear pain in my left ear. It hurts so bad I can't hardly touch it sometimes. Becomes red and warm to the touch too. Happens anytime but a lot at night when I am in bed.
Not sure if it is a symptom or not.
Dan

hobbitcutie
04-14-2004, 01:20 AM
I don't have pain, but mine itch like crazy all the time, and my ear wax is (and has always been) a nasty orange/brown color.

ljs3
04-14-2004, 02:02 PM
Davesfancy, Have your dr's done any type of tests to find the cause of your ear pain? Is yours constant or does it come and go? Last night I took a Bextra (anti-inflammatory) and it seemed to help. I got up this morning feeling fine but as the day goes on I am starting to have ear pain. I hate this!!! :confused:

ljs3
04-14-2004, 11:58 PM
Boy do I agree with that! There is no set pattern on when it will hurt, what makes it hurt or how long it will hurt. Mine hadn't hurt for over 2 months now all of a sudden it's hurt everyday for a week. One time if hurt for a few hours and then mysteriously disappeared. And I'm not nuts!!! ha ha Yesterday I took an anti-inflammatory and it stopped hurting. Tonight I took one and it still hurts. I can put my ear in between my two fingers and squeeze it and it doesn't hurt but when I push on the whole ear or move it around I feel pain. Do you also get pain in your face and along your jaw line? Sometimes my head hurts behind my ear. I've been to an ENT and an Oral Surgeon and have had an MRI of my jaw joint. Nothing conclusive to explain why I have ear pain. The oral surgeon did say that the disc could be slipping in and out of place and pushing on nerves, muscles, ligaments, etc. I dunno. I just know I hate it when it hurts. It consumes me and I'm grouchy with my kids because the pain has me on edge.

sbboyceut
04-15-2004, 03:21 AM
It's sooo frustrating to go see the Doctor and say,"my ears hurt, I think I may have an ear infection." and then your Dr. looks and responds;"HMMM...they look normal, nothing bad in there." But you know something is up because they ache and ache and itch like hell and drain LIKE CRAZY. Sigh....bummer. I understand what you are going thru. A heating pad does help with the pain sometimes.

lori j
04-15-2004, 05:34 AM
Mine started out that way, I spent many visits to my gp doc & then to an ent doc. Was on 19 different anti-biotics in a year. The ent doc did cat scan & other tests & could not find any reason for the pain. It was horrible, I had horrible pain in my ear, usually only the right one & then it spread to the left one. I had every test the ent doc could do. Finally went to the oral surgeon had a wisdom tooth out & mentioned to him about the ear pain, he did a whole face scan & then examined around my jaw by the ear. Bingo!! TMJ!! Most of my pain was in the ear, I did get headaches & a warm (fever like) feeling on the right side of my face & sometimes even into my neck & the glands in my neck would get sore too & my eyes. Hope this helps.

westin4
04-15-2004, 11:05 AM
lj,
I too have had intense ear pain. I do suffer more from clogged ears, but I have been around the block with the ent due to severe ear pain and a totally closed ear. He could, of course, not find anything wrong. I even had a hearing test while there and had marked hearing loss in the ear that is always clogged but the only thing he could suggest was a tumor......gee thanks! He sent me to a neurologist and I had the whole cat scan, dye injection test done......of course nothing came up, finally the neurologist dianosed me as having tmj. When I got the tmj splint the first symptom to go was the ear pain, but it took a loooooooong time for my first dentist to get my bite right on it, once that was accomplished the pain was gone. I have also experienced severe pain when swallowing sometimes, it is like it starts in my throat, shoots down my chest and up into my ear. But, here again, it might happen two or three days in a row then not happen for months. I think so much of what I have had has been all tmj related, it has just taken 10 years to get a clear cut picture of it.
Karen

ljs3
04-15-2004, 01:36 PM
Karen,

Was it just based on your symptoms that the neurologist diagnosed TMJ or did some of the tests indicate TMJ? I don't get a clogged ear, just pain. I don't know where to turn. Maybe I should have our primary Dr. refer me to a neurologist. We have a very well known TMJ specialist in town but our dental or medical insurance won't cover it. It is so darn frustrating. It's interesting that your pain would disappear for a month or so and then reappear. It's crazy, isn't it??? Oh, did he mention tumor because of the clogged feeling you got?

westin4
04-15-2004, 07:08 PM
lj,
This whole darn thing is crazy isn't it? Nobody knows what I am living with except for those of you on this board. The ent suggested a tumor, I think, because he was at the end of his rope with me. I had been and been and been for ear pain and no hearing in my right ear, I thought I would go nuts with every dr telling me there was nothing wrong with my ears. When he did that amplified hearing test and I had marked hearing loss than he said perhaps I had a tumor. Of course I had myself convinced I did, went through the tests...nothing. I went back to my regular dr, who by then was thinking maybe I had MS because I had such muscle spasms and this numb, tingly feeling all over my face but especially in my nose on the right side and my right eye lid. She sent me to the neurologist thinking I had MS. He did some motor skill testing and had me explain at loooooooong length what exactly was happening and when it all began. He felt around on my jaw, looked at the way my teeth came together and asked me if I had heard of tmj. I told him I had because my sister has it, a mild case, and he sent me on to a dentist from there. Now I have been around the block, come back and gone around again with dentists. I think, FINALLY, I have found one who knows what the heck I am dealing with and he also says that all of these weird symptoms I have can all be tmj related! HALLELUIAH!!!!!!!!!!!!! I have been to him now 11 times, he just did impressions for a permenant splint today. He is very understanding and very knowledgeable. If you find a dentist or tmj dr and you don't think you are getting help or getting treated like you need to be, leave, don't waste time and money just because they say they "know" about the condition. I have very good dental insurance however they don't want to shell out a penny for tmj. My dentist I have just found has not charged me anything for 11 visits. He said he has got to get me straightened out and then we will worry about how to write this up for insurance coverage. He has given me the hope that I am going to get my life back.
I hope you can find someone, if your insurance won't cover it, but you can find someone who can help, it is money well worth spent. I had no symptoms for several years, and I cannot believe this monster has returned!! hahaha
Karen

ljs3
04-15-2004, 11:22 PM
Karen/Davesfancy,

My mri showed degenerative changes of the meniscus. However, no one could tell me exactly what that meant. When I initially went to our family for the ear pain he sent me on to an ent and said that the ent would probably do a scan of my sinuses and brain. When I asked him why a brain scan he said because some tumors can cause ear pain. When I went to the ent and asked him about that he said, 'you don't have a tumor.' However, he couldn't figure out why I had ear pain either. So he sent me on to an oral surgeon and he did a tomogram (?) which showed that something, can't remember what, goes back slightly farther than it should and when it does it is irritating nerves, ligaments, muscles, etc., in that area. He suggested I see a dentist in our area who specializes in tmj. Unfortunately our insurance won't cover me to go see her. And her initial appointment fee is ridiculously high. So where do I go from here? I dunno!!! :confused:

Just tonight I was at my son's baseball game and I could feel my ear aching. I moved it around and felt pain. Five minutes later I moved it around and no pain. I know Dr's think I'm crazy when I tell them that. One nurse looked at me and said, 'well, don't move it around if it hurts!' I felt like saying, 'o.k. honey, then tell me why it hurts in the first place, tell me it's nothing to worry about and I'll stop moving it around to see if it hurts!' Grrrrrrr!!!

westin4
04-15-2004, 11:35 PM
guys, I'll tell ya, if it weren't for reading and reading all the posts on this board and then finally venting on here, I think I would have gone postal by now!! hahaha, I mean this just blows my mind when you think of how we have all been told the tumor thing.....which is so kind to do to someone and then turn around and tell them it';s not a tumor but oh by the way, I have no answers!! I think I have read about more conditons on the net than I care to admit and have thought at one time or another I had them all. Sometimes I actually felt like at least if I had one of those at least I would have some answers or a fix. I don't really feel like that, but when you are so desperate........ lj, I don't know what to do if your insurance won't pay for a consult, but this is just my thought, if you have to pay for a stinkin consult than maybe it is not the place to go. I have paid consults and of course end up not even liking that dentist or specialist. I didn't have to pay any consult for my dentist now, and I think he is the one. What I am saying is, just because they have all the bells and whistles doesn't mean a darn thing. I am very turned off by the dental profession though because of having been through soooooooo many of them and the last one being the icing on the cake....
I hope you can figure out a way to get some kind of help though, because it will only escalate on you.
davesfancy........thank you for the hugs, I feel very cynical though because I am so afraid something will happen and he will change, I know that probably isn't going to happen,but I have "fired" sooooo many dentists and I am not even picky!!! I just want help! :)
Karen

ljs3
04-16-2004, 12:44 AM
Karen,

I've had the same thoughts. As a matter of fact I was just telling my husband last night that I wish I had something with a 'name' and then they could treat it. But this 'not knowing' is for the birds!

I'm thinking of either having our family dr. refer me to a different ent because I didn't like the other one. And seeing and ent would be covered under insurance. Or, emailing this 'great' tmj dentist here in town, telling her my situation, and see what she says. It's worth a shot. Maybe she'll take pity on me.

Has your ear pain come and gone in the same day as I described mine to do. It almost seems like I get a cramp in my ear and after opening and closing my mouth a few times or moving my ear around I readjust something and the pain goes away. But that doesn't happen every time. Sometimes it continues to hurt the whole day. Who knows!!! :rolleyes:

ljs3
04-16-2004, 12:48 AM
Karen,

I've had the same exact thoughts. In fact I was just telling my husband last night that I wish someone would tell me exactly what I have, give it a name, and treat it. Why do we have to have something odd?

I'm thinking of having our family dr. refer me on to a different ent. Seeing and ent is covered under insurance. I also might email this great tmj dentist here in town, tell her my story, and maybe she'll take pity on me. Worth a shot!

Does your ear pain ever come and go in the course of a day as I mention mine does? It almost feels like sometimes I get a cramp in my ear and when I open and close my mouth a few times and move my ear around the pain goes away. But other times the pain stays the whole day. No pattern at all! Never the same!!! :rolleyes:

lori j
04-16-2004, 03:29 AM
Karen, my ent doc didn't say tumor, but when he said cat scan of course this crazy mind of mine went right to the worst!!!! TMJ is a hard one to diagnose, but once you start reading all the symptoms others have, you connect the dots real quick!

Our insurance will not pay a penny for it either. There is something, some group trying to get congress to rule it a bone problem since it is in the jaw joint, not really a dental thing, so maybe one of these years they will get around to ruling it so we can get it paid for..

lori j
04-16-2004, 03:34 AM
Karen,

I've had the same thoughts. As a matter of fact I was just telling my husband last night that I wish I had something with a 'name' and then they could treat it. But this 'not knowing' is for the birds!

I'm thinking of either having our family dr. refer me to a different ent because I didn't like the other one. And seeing and ent would be covered under insurance. Or, emailing this 'great' tmj dentist here in town, telling her my situation, and see what she says. It's worth a shot. Maybe she'll take pity on me.

Has your ear pain come and gone in the same day as I described mine to do. It almost seems like I get a cramp in my ear and after opening and closing my mouth a few times or moving my ear around I readjust something and the pain goes away. But that doesn't happen every time. Sometimes it continues to hurt the whole day. Who knows!!! :rolleyes:

ljs3, just wanted to ask, do you crack your jaw from side to side? I used to do it all the time when I was nervous & stressed. I think that & gritting my teeth when I was stressed caused all my pain & the problems with my TMJ. My oral surgeon gave me some pain pills, but I never had any other treatment & my ear, jaw, all the pains & fever like symptoms are gone now, since he told me I had to retrain myself & catch myself when I would do both of these things. Also, he told me not to chew gum or eat hard things to chew. Since I've retrained myself (catch myself doing it & stop) I have been 100% better without any specialist or treatment. Sometimes we have to find what caused the TMJ to flare up in the first place.

I used to teach dancing, for about 6 years & I would chew gum while teaching as my mouth would get very dry, talking the steps all the time. I think those 6 years of that had a lot to do with irritating the jaw joint too.
Think about what you do & when you have the ear pain the most. You may be able to self diagnose what is causing yours. Good Luck.

tmosey
04-16-2004, 04:00 AM
:angel: To everyone on this post,

I feel for everyone of you. I have suffered from TMJ for the last 9 years. This is what I have learned about it. TMJ can cause all of the symptoms you all have listed plus alot more. It depends how bad your TMJ is. TMJ is a problem with the joint that connects your top and bottom jaw together. When this joint is no longer aligned right it causes TMJ. Because your eyes, ears, nose and throat are all connected by the same muscles and nerves they are all effected. After the joint is no longer aligned it will cause damage to the muscles and nerves over a period of time. That time is different for everyone. I too was fitted for a mouth guard and I wear mine at night when I sleep. Some things will make it worse such as: grinding/clenching your teeth when you sleep, chewing gum, nuts and yawning to wide. Oh, and having your mouth open wide like when your getting your teeth worked on at the dentist is bad too. When you have had TMJ for long enough your neck and shoulder will start to spasm and feel like your muscles are constantly stiff. This is also from the TMJ. One thing that really helps is to have a deep muscle massage from a licensed massage therapist. The deep muscle massage HURTS while it is being done because they find all the tight muscles and push on them in a certain way until they release. If you can endure the pain it is well worth it. It's like the saying, "no pain no gain". My insurance pays $2,500 for the treatment of TMJ and $4,000 maximum for life. The reason why insurance will not pay for it is because there is no FDA approved cure for it. TMJ is a dental and medical problem. The dental part is the Temporomandibular Joint (jaw Bone), and the medical part is all the other symptoms that happen with it. So, when I go to get relief for my TMJ they bill my insurance for medical and dental. It still is not enough but at least for now they pay some of it. I have had all the same tests and they all come back with TMJ. I recently had a different test done. It was a muscle test of my head, face, neck and shoulders. It showed how bad the muscles are from the constant pressures of the TMJ. After they see how tight the muscles are, the put a small magnet in your mouth behind your bottom lip and give you small electric shocks to your face and neck to try and untighten the muscles. I never finished the treatment because my insurance would not pay for it. The part I told you about is the first phase of the treatment. The second phase is when the take an impression of your mouth and give you a mouth prosthetic which look like invisaligns and you wear one on the top and one on the bottom all the time day and night. You even eat with them in. After the first week you come back and they adjust them. This goes on for about one month until they get your teeth and jaw aligned back to the correct position. Once that is achieved you wear braces for up to one year. That way the position they have achieved is permanent. Then you are done and your TMJ is gone! The draw back is that insurance does not cover this treatment and the first phase is $2,000 and the second phase is $4,000. I know alot of people who have done this and it has worked for them and they no longer have TMJ.
Anyway, I hope this has helped some of you. If you have any further questions please feel free to ask me.

Have a great day!
Tmosey

westin4
04-16-2004, 11:01 AM
lj,
Yes, my symptoms all come and go in the same day. Sometimes I wake up and my ear is in a cramp. When I am first getting awake I think it is going to be an awful tmj day and then my symptoms will lessen for who knows what reason. I can also think it is going to be a good tmj day and all of the sudden I feel them coming on and I end up on the couch all day in agony. Since I have gotten this soft splint I am having better control, but I haven't had symptom free days. I have a hard, permenant splint on the way, but this is to carry me over til it is ready. My ear pain/clogged symptoms are the ones that come and go the most. My ear can be closed and ache for days then all of the sudden it is open and pain free. It can be feeling great one minute and all of the sudden I can't hear anything out of it and I get an extreme dizzy feeling when it is coming on. I know the ear thing is going to start by that.......I will be sometimes just sitting watching tv and this ( I don't know quite how to describe it ) EXTREME dizziness that causes me to hold onto something comes over me and then in a minute or so my ear is totally shut and it the pain sets in......sometimes it lasts for only a minute or two, sometimes it lasts all day, sometimes it lasts for days on end. That symptom alone is the one that I fear. It caused me to think I had so many serious things wrong. Not that tmj isn't serious, but I mean fatal or things like MS. Right now I have a burning sensation in the back of my throat on the right side with a piercing pain going up the left side of my head and the right side of my nose is all numb and tingly. BIZZARE! At least I know after all these years that I am not psychotic! I used to be afraid that maybe I was going crazy since NOBODY could find anything wrong with me. It makes no sense that dental insurance doesn't cover something like this because for me it truly has been a debilitating condition.
Karen

westin4
04-16-2004, 09:49 PM
tmose, can I ask where you heard of such treatment, in the USA? I mean of ALL the dentists, neurologists, oral surgeons, ent's and regular dr'r, I have never heard of such unless you are describing the invisalign, that is what it sounds like.
Karen

TRACIEL
04-20-2004, 10:59 AM
I was hoping someone could give me some advise on what to do next. I too suffered from extreme ear pain on the right side. After a year of going back to the doctor he finally mentioned TMJ. I went to the ortho (his advice) and was told to put braces on. Well during the braces period I would complain of "noises" in my jaw area. It sounded like a slipping noise or rubbing noise. The orthodontist basically told me that if it continued that I would have to see a specialist. I of course did not understand that because I thougt he was the specialist. Anyway we continued with the braces for 3.5 years. He worked slowly. Anyway once the braces came off I started to get a pulsating noise in my right ear if I bent down to pick something up or move my head in a certain direction. I also get this sound if I put pressure in my ear by pushing, it is not constant like I said only if I bend down or move. This has been going on for 13 months now. I have gone thru all of the feelings of what if I have a tumor, etc., etc. My doctor just said "you don't have a tumor" but never really did any testing. I just went to a new dentist yesterday and he is sending me to a Jaw & Mouth Surgery facility for a diagnosis. He said by looking at me with my mouth open that my right TMJ Joint looks to be dislocated. He said it definetly looks like it sticks out. Well I definetly don't want to have surgery and I'm not sure what this Dentist will do for me. Does anyone have any advise what to expect.

westin4
04-20-2004, 11:20 AM
Traciel,
I too have that pulsating feeling when I bend over or look down. That seems to be one symptom I have consistantly, in fact I have had it for so long I don't think anything of it anymore. I am sure it is tmj related, not a tumor, but I know how you feel. I would not know what to expect at the surgery center, but I would be very, very hesitant to go that route without having even been through splint therapy. This is just something my detinst said but that less than 1% of the population with tmj disorders should ever consider going the surgery route, he said at all costs other treatments should be explored. I wish you the best of luck,
Karen

TRACIEL
04-20-2004, 11:53 AM
Thank you so much for the advice Karen. I feel so much better knowing someone has a similar symptom as me. I will have my consultation and see what they recommend me to do. As of yet I have not had an MRI or anyother test done, so I guess I should have those done to see what is wrong exactly with my TMJ Joint. I do remember reading that most everyone recommends NO SURGERY.

Thanks again for your response

tmosey
04-20-2004, 07:02 PM
tmose, can I ask where you heard of such treatment, in the USA? I mean of ALL the dentists, neurologists, oral surgeons, ent's and regular dr'r, I have never heard of such unless you are describing the invisalign, that is what it sounds like.
Karen

Karen,
I went to see a dentist in Las Vegas, Nevada where I live. Most dr's do not know of this treatment because these dr's are new. The doctor's name is Gregg C. Hendrickson. The treatment I told you about is very expensive and not covered by insurance. It consists of two phases and takes about 1 1/2 years to complete. It is not invisalign. I would have completed the treatment except I could not afford it. If you are in a different state, maybe Dr. Hendrickson knows of someone in your area. Best of Luck!!!! Tracey Mosey

keri33keri
11-07-2009, 03:02 AM
My left ear gets a sharp pain. For the past 3 goimg on 4 days my ear has been getting these sharp pain. Like some one has a voodoo doll they are poking it with a pin. The pain isn't in my ear. It started at the top of my ear and now has moved down to my ear lope. The pain is severe at times . The pain isn't constant. It will be there and than its gone. I dont feel it when i am sleeping. Its not a coonatant pain it goes and comes back for about a 2 3seconds at a time. Right now as i type it is becoming more of a constant pain..

pearl1975
11-07-2009, 03:53 AM
I had ear pain when my problems started 15 months ago. My ear was really bad for about 3-4 months, then it got better, now It hurts for a few minutes sometimes.... it felt like something was in it...., like an infection or a bug.
now the pain has stuck into my lower face, or better to say, my mouth inside...
the crazy thing is I can not even describe this pain properly...I can not show where it is exactly, just that it is inside.... and deep....

WAYNE VOSS
11-12-2009, 04:30 PM
It feels like my ear "pops" out of joint,,,like it get dislocated. It will hurt for days, or hours....Until the ear "relaxes" and falls back into joint. Usually this happens at night when I sleep. Using a heating pad helps, not only with the pain, but allowing it to "slip" back into place. It starts when I somehow "pull" on the ear incorrectly. This seems to be getting easier and easier to do,,,so I really watch how I dry my ears, or as in last night, use a cutip. Try a heating pad for about 40 minutes at low heat. I hope this helps! I'll be on it again tonight.....No,,youre not nuts,,this does happen,,,just not sure what or why?





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