MySonChris
04-14-2004, 02:35 PM
I just found this board. My son Chris was diagnosed with rhabdomyosarcoma on March 1 and it has spread to his bone marrow. They give him a 10% chance of surviving. He is only 15...my baby! We are all devastated but he is so brave and is (thankfully) positive he will beat it. I ask God every day to help him do just that and for strength for all of us. I can't bear the thought of my sweet boy having to go through all the chemo, transplants, surgery, radiation and pain and then maybe losing his fight after all. This is the worst thing a parent can face. Who would have thought this perfectly healthy child would have this disease! He found the lump in November (when his chances of surviving would have been around 70%) but he never said anything to me or to his Dad until March 1. He said he had told a friend and they joked about it but I am sure they never really thought it was cancer. I am having a hard time dealing with this...I cry all the time except in front of him. I would love to have some one to talk to. Please.
Sponsor
Kimberly8
04-14-2004, 03:11 PM
Oh God what a nightmare for a parent to have to go through. I am sure I will have no words to make things better or easier for you but I can offer my ear and shoulder. I can not imagine the pain and worry you are feeling. I am a mother of 3 girls...2 of which have mental illnesses, but even at that there is no comparision. I did lose a cousing who was 17 to brain cancer. It was absolutely devastating and my heart broke for his parents. I know they eventaully went to grief counseling to deal with the question of why should they outlive their son. Maybe counseling could help you, keep reaching out here to someone who is going through or already went through something similar so they can truly understand and help. I am truly sorry and will definetly keep you and your son in my prayers.
ok4now
04-14-2004, 06:54 PM
I am so sorry to hear this about your dear son Chris. Having faith in God can bring you great comfort during this very difficult time. Please remember that God is with you and hears your prayers. My prayers for your family will be to provide you with a clear path to the best doctors for your son. That He will console and comfort you in the very difficult time. That He will heal your son. Ask God to heal your son. I am here for support and very glad to offer you a shoulder to lean on. Claudia
haylee31
04-14-2004, 07:02 PM
I am so very sorry and my heart goes out to you and your
family. I am a mother of four and can not even begin to
imagine the grief you are living. I lost a sister who was two
to a liver disease. I can only relate on a smaller scale to
your pain. My thoughts and prayers are with your family.
Haylee
family. I am a mother of four and can not even begin to
imagine the grief you are living. I lost a sister who was two
to a liver disease. I can only relate on a smaller scale to
your pain. My thoughts and prayers are with your family.
Haylee
timsworld73
04-15-2004, 11:29 AM
First let me tell you I am very very sorry to hear for your son. BUT if I can give you some hope. Throw the percentages out the window....your son is not a perentage. Second, are you a spiritual family? My mother has liver cancer and was told that she cound not have transplant, chemo probably would not do anything for her. They basicly said Im sorry, your 49 year old mother just no chance. We refused to accept that. We believe that God is the greatest physician and we our church prayed for my mother. Now my mother is 100 %positive she wil beat this, because God will let her down. Well she had 3 tumors, one of the were 6mm, one 18mm, and the big one was 5.2cm x 5.3cm. She has been on the chemotherapy that they said would probably not work. Well it has been 12 weeks. and the new CT scan showed that the 6mm tumor is resolved...gone(they said they expected it to grow) the 18mm tumors is now 6mm, and the large one is now 3.2 x3.5. That is after only 12cweeks of chemo, no radiation. Just a faith so strong that she is in God's hands it should be carved in stone. So believe, for the is always hope. If you need to talk, feel free to write on the board.
Tim
Tim
MySonChris
04-15-2004, 04:17 PM
Thank you all for your words of support. It means so much to me! We all have been praying and asking for prayers and I feel sure that it is helping. He has been in chemo for 5 weeks now and the main mass has gone down considerably and after his last bone marrow test (this last Tuesday) all the cancer is gone from the marrow which is wonderful news. In the next several weeks they will do surgery to remove what is left of the main mass, and if I am correct he will receive radiation and then a bone marrow transplant using his own stem cells. Then more chemo and I don't know what all. Since it is an aggressive cancer, the Drs. say he will respond well, but that the cancer usually mutates and comes back worse than ever. That is the worst part. I have heard from so many people that percentages are meaningless and I am holding on to that! It means so much to me that there are wonderful people out there that who care enough to read and also respond to my posts. Thank you for letting me talk with you this way.
Charlene
Charlene
dyana
04-15-2004, 06:46 PM
i too agree with tim. your son is not a percentage or statistic. i can feel your pain. my daughter (24 yr.) was diagnosed iwith liposarcoma 7 months ago. lipo is also a soft tissue malignancy tumor. she had surgery to remove the tumor along with the entire femor muscle and nerves, 7 weeks radiation ( stage 3 cancer and very close margins)
they say her survival rate is 40% if she lives 5 years. mri's and cat scans, chest x-rays every 3 months for 5 years.
i let the cancer consume me. don't let it do that to you. we have no insurance so the 2 doctors that are out of state would not perform the surgery. i was frantic!! i could not take any more, knowing my girl could die if i did not get her surgery. the next day one doctor said he would do the surgery if i could pay 1/2 down. i borrowed the money and off we went to utah (we live in idaho) then i worried how could i pay the hospital.as we were leaving the account rep came to my girls' room and said it would be written off because it was an emergency. god came thru again. she now had to have another surgery to have a metal rod inserted into her bone because the radiation made her bone brittle. enough of my story. i guess all i can really say is god has a plan for us. it's real hard to listen for it, but it is there. you are a mother so i can't say not to worry cuz you will, i still do. it is our instinct. be strong for him and it will help him to endure what is in store for him. if you must cry, try not to in front of him. he will feel sorry for you, not himself. he will take all he has to becausee he wants to live. my girl is so strong, more than i. even thru the pain, she is still having alot of pain and problems. i hope i have not said anything to upset you any more than you are. take one day at a time. god bless you and your son and family. you are in our thoughts and prayers.
dyana & mandy
they say her survival rate is 40% if she lives 5 years. mri's and cat scans, chest x-rays every 3 months for 5 years.
i let the cancer consume me. don't let it do that to you. we have no insurance so the 2 doctors that are out of state would not perform the surgery. i was frantic!! i could not take any more, knowing my girl could die if i did not get her surgery. the next day one doctor said he would do the surgery if i could pay 1/2 down. i borrowed the money and off we went to utah (we live in idaho) then i worried how could i pay the hospital.as we were leaving the account rep came to my girls' room and said it would be written off because it was an emergency. god came thru again. she now had to have another surgery to have a metal rod inserted into her bone because the radiation made her bone brittle. enough of my story. i guess all i can really say is god has a plan for us. it's real hard to listen for it, but it is there. you are a mother so i can't say not to worry cuz you will, i still do. it is our instinct. be strong for him and it will help him to endure what is in store for him. if you must cry, try not to in front of him. he will feel sorry for you, not himself. he will take all he has to becausee he wants to live. my girl is so strong, more than i. even thru the pain, she is still having alot of pain and problems. i hope i have not said anything to upset you any more than you are. take one day at a time. god bless you and your son and family. you are in our thoughts and prayers.
dyana & mandy
dyana
04-15-2004, 06:48 PM
[the journey is long but the spirit is strong=dyana]i too agree with tim. your son is not a percentage or statistic. i can feel your pain. my daughter (24 yr.) was diagnosed iwith liposarcoma 7 months ago. lipo is also a soft tissue malignancy tumor. she had surgery to remove the tumor along with the entire femor muscle and nerves, 7 weeks radiation ( stage 3 cancer and very close margins)
they say her survival rate is 40% if she lives 5 years. mri's and cat scans, chest x-rays every 3 months for 5 years.
i let the cancer consume me. don't let it do that to you. we have no insurance so the 2 doctors that are out of state would not perform the surgery. i was frantic!! i could not take any more, knowing my girl could die if i did not get her surgery. the next day one doctor said he would do the surgery if i could pay 1/2 down. i borrowed the money and off we went to utah (we live in idaho) then i worried how could i pay the hospital.as we were leaving the account rep came to my girls' room and said it would be written off because it was an emergency. god came thru again. she now had to have another surgery to have a metal rod inserted into her bone because the radiation made her bone brittle. enough of my story. i guess all i can really say is god has a plan for us. it's real hard to listen for it, but it is there. you are a mother so i can't say not to worry cuz you will, i still do. it is our instinct. be strong for him and it will help him to endure what is in store for him. if you must cry, try not to in front of him. he will feel sorry for you, not himself. he will take all he has to becausee he wants to live. my girl is so strong, more than i. even thru the pain, she is still having alot of pain and problems. i hope i have not said anything to upset you any more than you are. take one day at a time. god bless you and your son and family. you are in our thoughts and prayers.
dyana & mandy[/QUOTE]
they say her survival rate is 40% if she lives 5 years. mri's and cat scans, chest x-rays every 3 months for 5 years.
i let the cancer consume me. don't let it do that to you. we have no insurance so the 2 doctors that are out of state would not perform the surgery. i was frantic!! i could not take any more, knowing my girl could die if i did not get her surgery. the next day one doctor said he would do the surgery if i could pay 1/2 down. i borrowed the money and off we went to utah (we live in idaho) then i worried how could i pay the hospital.as we were leaving the account rep came to my girls' room and said it would be written off because it was an emergency. god came thru again. she now had to have another surgery to have a metal rod inserted into her bone because the radiation made her bone brittle. enough of my story. i guess all i can really say is god has a plan for us. it's real hard to listen for it, but it is there. you are a mother so i can't say not to worry cuz you will, i still do. it is our instinct. be strong for him and it will help him to endure what is in store for him. if you must cry, try not to in front of him. he will feel sorry for you, not himself. he will take all he has to becausee he wants to live. my girl is so strong, more than i. even thru the pain, she is still having alot of pain and problems. i hope i have not said anything to upset you any more than you are. take one day at a time. god bless you and your son and family. you are in our thoughts and prayers.
dyana & mandy[/QUOTE]
ok4now
04-17-2004, 11:06 AM
Charlene,
you are so right, as are the other posters, percentages are meaningless. Keep on praying, remember always that it is God who is in control.....hold tight onto that and keep saying that to yourself everytime someone gives you the percentage speech. With God all things are possible.....I will continue to pray for a complete healing for your son and clear guidance in all choices that become yours to make for his care.
you are so right, as are the other posters, percentages are meaningless. Keep on praying, remember always that it is God who is in control.....hold tight onto that and keep saying that to yourself everytime someone gives you the percentage speech. With God all things are possible.....I will continue to pray for a complete healing for your son and clear guidance in all choices that become yours to make for his care.
MySonChris
04-17-2004, 06:34 PM
Thank you all again for your words of support! It means so much and I appreciate your prayers very much also. We can use all the prayers we can get. Chris goes into the hospital Tuesday for chemo. They finally figured how to keep the vomiting to a minimum. He will get another bone scan then. They said there was 'something' on each of his temples last time on or in the bone, so I am hoping that will be gone. He feels pretty good most days except after chemo. So when he feels good, we all feel good. I will try to remember to not let the cancer consume me. And to pay no attention to those !@!@!@ percentages. There have already been 3 or 4 things that have happened to him that "have never happened before" so I am taking that as a good sign actually because the Dr. said right off the bat that he has never had a child with the degree of cancer that Chris has survive. Well Chris WILL be the first of his patients to survive! (thankfully he did not say that in front of Chris!) I wish the Dr. had not said that but in a way it makes more determined to prove him wrong! Thanks to you all, I feel stronger and have more faith...thank you!
Charlene
Charlene
Ruth6:11
04-17-2004, 08:23 PM
There is someone you can pray to who will understand....
Just a gentle note that no one knows better than God what it is like to lose a son. You can pour out all your fears to Him - He's been there.
Just a gentle note that no one knows better than God what it is like to lose a son. You can pour out all your fears to Him - He's been there.
MySonChris
04-22-2004, 01:45 AM
Thanks Bronson and all. Chris had Chemo yesterday and today in the hospital. Also had a CAT scan and a bone scan ( I am so dumb about all this I don't really know the diff...yet). The best news is that our daughter looks like she is a match for a bone marrow transplant clinical trial that we are hoping to particapate in in Bethesda Maryland. We have been praying for this for weeks! In a few weeks Chris will have a transplant using his own cells but they tell me that using a close family members cells is a new treatment for the kind of cancer he has that has gone into the 4th stage or that returns...please pray for us. So he will have two bone marrow transplants. When we go to Maryland (in 6 months or so) we will be away from home for 2 months I think they said and my husband will have to take a leave from work...a scarry thought to say the least. But the Dr. says it is a very prommising trial so it will be worth it. Bronson, thank you for the info about those 2 drugs! I will look into it I promise! I am so thankfull for all the suggestions and help I can get! Chris feels pretty good for just having had his "big" chemo. He plays base guitar in a newly formed band and he has a 'gig' tomorrow. His music will keep him motivated to keep getting better. I feel optomistic for the first time since he was diagnosed! Thanks all.
Charlene
Charlene
DoOoOoM
04-23-2004, 03:26 AM
You and your family are in my prayers, especially Chris. My mom was diagnosed with bone cancer just last fall. It is a reoccurrence from her breast cancer she "recovered" from a year ago. She is hanging in there as well, but I know and feel your pain. It's hard to see someone so close to you go through such hell. Never give up the fight!:angel:
andybanandy
04-24-2004, 01:22 AM
you and your son are in my prayers.
it is verry good that your son has a positive attitude towards this. that is the key to fighting diseases, especially cancer, so they say. thats probably why hes doing very well now. tell him to visualize him being comlpetly healthy, and you visualize him being healthy also.
i hope he gets better
best wishes to you and your whole family
andy
it is verry good that your son has a positive attitude towards this. that is the key to fighting diseases, especially cancer, so they say. thats probably why hes doing very well now. tell him to visualize him being comlpetly healthy, and you visualize him being healthy also.
i hope he gets better
best wishes to you and your whole family
andy
ChestOut
04-27-2004, 06:11 AM
My son is 17. He has been in remission for over 3 years. Like you, I am trying to "not die the many deaths" in this *cancer pain*.
For the past 3 weeks although eating well my son continues to lose weight drastically. I too cry many a tears.
However, I find consulation knowing that in all this, my son is HAPPY. Most of all, I tell myself "God knows best and with time and prayer, I will be able to say with confidence like the song writer "It is well with my soul".
We are human IT HURTS. But dying the many deaths before we lose our children is worst.
I cherish his smile and this week I will take my son for blood work to find out if he is no longer in remission.
Believe me God/Jesus as in the poem Footprints will lift us through this valley.
The Lord is reigns and his mercy endures forever.
So carry your candle into the *cancer darkness* and no matter the stress and pain. Strive for restoration and healing in the name of Jesus.
Cry when you have to, release the pain in your motherly heart. Because, we have to be there for our precious children.
Have a blessed day and keep the faith do not let go.
FS
I just found this board. My son Chris was diagnosed with rhabdomyosarcoma on March 1 and it has spread to his bone marrow. They give him a 10% chance of surviving. He is only 15...my baby! We are all devastated but he is so brave and is (thankfully) positive he will beat it. I ask God every day to help him do just that and for strength for all of us. I can't bear the thought of my sweet boy having to go through all the chemo, transplants, surgery, radiation and pain and then maybe losing his fight after all. This is the worst thing a parent can face. Who would have thought this perfectly healthy child would have this disease! He found the lump in November (when his chances of surviving would have been around 70%) but he never said anything to me or to his Dad until March 1. He said he had told a friend and they joked about it but I am sure they never really thought it was cancer. I am having a hard time dealing with this...I cry all the time except in front of him. I would love to have some one to talk to. Please.
For the past 3 weeks although eating well my son continues to lose weight drastically. I too cry many a tears.
However, I find consulation knowing that in all this, my son is HAPPY. Most of all, I tell myself "God knows best and with time and prayer, I will be able to say with confidence like the song writer "It is well with my soul".
We are human IT HURTS. But dying the many deaths before we lose our children is worst.
I cherish his smile and this week I will take my son for blood work to find out if he is no longer in remission.
Believe me God/Jesus as in the poem Footprints will lift us through this valley.
The Lord is reigns and his mercy endures forever.
So carry your candle into the *cancer darkness* and no matter the stress and pain. Strive for restoration and healing in the name of Jesus.
Cry when you have to, release the pain in your motherly heart. Because, we have to be there for our precious children.
Have a blessed day and keep the faith do not let go.
FS
I just found this board. My son Chris was diagnosed with rhabdomyosarcoma on March 1 and it has spread to his bone marrow. They give him a 10% chance of surviving. He is only 15...my baby! We are all devastated but he is so brave and is (thankfully) positive he will beat it. I ask God every day to help him do just that and for strength for all of us. I can't bear the thought of my sweet boy having to go through all the chemo, transplants, surgery, radiation and pain and then maybe losing his fight after all. This is the worst thing a parent can face. Who would have thought this perfectly healthy child would have this disease! He found the lump in November (when his chances of surviving would have been around 70%) but he never said anything to me or to his Dad until March 1. He said he had told a friend and they joked about it but I am sure they never really thought it was cancer. I am having a hard time dealing with this...I cry all the time except in front of him. I would love to have some one to talk to. Please.
MySonChris
04-27-2004, 10:22 AM
Thank you ChestOut for your words. I pray all goes well for you and your son and that you get good news when you see the Dr. I am glad to hear your son is happy! That is a blessing. Chris is happy too and keeps busy when he feels good. It does feel like we as parents die a thousand deaths dealing with a childs cancer. I feel like I am in the worst nightmare you could imagine and I can't wake up. What adds to the pain is that Chris is pushing me away and acts so angry towards me and my husband most of the time. I know he is angry and affraid and also a typical teen so I try to keep that all in mind but it hurts when I want so much to just hold him and try to somehow protect and comfort him. I am so glad when he does show some affection and when we talk. And I am thankful for every day that God gives us to be together. Is it ever enough time? Please let me know how your son is doing and you both will be in my prayers.
Charlene
Charlene
lbp35
04-27-2004, 04:27 PM
:angel: Please, please do not stop praying! A very good friend of mine was recently diagnosed with squamous cell carcinoma of the throat. He is only 37 years old. At first the doctor thought it had spread to his chest and bones and gave us the dreaded news that if it had, there was nothing they could do. He was devestated but we never gave up or stopped praying! I trusted God and gave it up to him but asked if he would please spare his life. Today he called sobbing that he had gotten good news. The cancer did not spread, it has localized in his throat. He is not out of the woods yet, he has a long road ahead of him...aggressive chemo and radiation but it could have been alot worse. i believe God had a hand in this, I just know it! :bouncing: My friend also loves to sing and this has not affected his voice box just his tonsils. I told him he now needs to sing in church! Please never give up...it may look really bad one day but it is God's plan, and God's time, not ours! I had to learn this the hard way! God bless! :angel:
pms_barbie
04-27-2004, 05:22 PM
My thoughts and prayers are with you and your family. I lost my younger sister last year. I know how hard this kind of stuff is. Just trust in God . I know that gets hard to do at times also. Just know he is with you and he will help you through this time.
ChestOut
04-27-2004, 08:56 PM
Footprints in the Sand (to encourage us on in the name of Jesus)
One night a man had a dream. He dreamed
he was walking along the beach with the LORD.
Across the sky flashed scenes from his life.
For each scene he noticed two sets of
footprints in the sand: one belonging
to him, and the other to the LORD.
When the last scene of his life flashed before him,
he looked back at the footprints in the sand.
He noticed that many times along the path of
his life there was only one set of footprints.
He also noticed that it happened at the very
lowest and saddest times in his life.
This really bothered him and he
questioned the LORD about it:
"LORD, you said that once I decided to follow
you, you'd walk with me all the way.
But I have noticed that during the most
troublesome times in my life,
there is only one set of footprints.
I don't understand why when
I needed you most you would leave me."
The LORD replied:
"My son, my precious child,
I love you and I would never leave you.
During your times of trial and suffering,
when you see only one set of footprints,
it was then that I carried you."
written by Mary Stevenson
My God can do anything!
One night a man had a dream. He dreamed
he was walking along the beach with the LORD.
Across the sky flashed scenes from his life.
For each scene he noticed two sets of
footprints in the sand: one belonging
to him, and the other to the LORD.
When the last scene of his life flashed before him,
he looked back at the footprints in the sand.
He noticed that many times along the path of
his life there was only one set of footprints.
He also noticed that it happened at the very
lowest and saddest times in his life.
This really bothered him and he
questioned the LORD about it:
"LORD, you said that once I decided to follow
you, you'd walk with me all the way.
But I have noticed that during the most
troublesome times in my life,
there is only one set of footprints.
I don't understand why when
I needed you most you would leave me."
The LORD replied:
"My son, my precious child,
I love you and I would never leave you.
During your times of trial and suffering,
when you see only one set of footprints,
it was then that I carried you."
written by Mary Stevenson
My God can do anything!
ChestOut
04-28-2004, 02:31 AM
I do not believe in recreating the wheel. . . . This story tells the kinds of emotional turmult I am experiencing at present. I hope that through everything, I eventually will be able to say bravely, "It is well with my soul":
In our modern age of uncertainty, anxiety and often fear, we can be encouraged by words of the beloved and timeless hymn, "It is Well with My Soul." Written during a tumultuous time in Horatio Gates Spafford's life, the hymn continues to provide peace and comfort in the midst of struggle. Spafford was born in 1828 and spent his early years in New York. He later moved to Chicago and became a successful lawyer and businessman. Spafford was also a deeply religious man, active in his Presbyterian church as a Sunday School teacher and lay servant, as well as in the Young Men's Christian Association. Beginning in the 1870s, Spafford's faith was tested by a series of tragic events. In 1871, the Great Chicago Fire destroyed real estate located along the shores of Lake Michigan, which comprised a tremendous portion of the Spafford's investments. In 1873, a physician counseled the Spaffords to take a vacation for Mrs. Spafford's health and the family's well-being. Knowing that a dear friend, Dwight L. Moody would be preaching in an evangelistic tour in England, the Spaffords decided to leave for a vacation in England. Subsequently, Spafford's wife, Anna Lawson Spafford, and their four daughters-Maggie, Tanetta, Annie, and Bessie-boarded an American ship named the S.S. Ville du Havre. Detained due to business, Mr. Spafford stayed behind but intended to follow his family in a few days.
On November 22, 1873, the S.S. Ville du Havre, sailing off the coast of Newfoundland, was struck by an English ship, the Lochearn. The Ville du Havre sank in twelve minutes. Two hundred and twenty-six lives were lost, including the Spaffords' four daughters. After hours of floating in the turbulent waters, Mrs. Spafford was rescued. Arriving in Wales, she cabled her husband with the message, "Saved alone." Receiving the horrifying news, Spafford left immediately to join his wife. He asked the captain of the ship on which he was sailing to notify him when they approached the approximate area where the Ville du Havre went down. Notified that the area was near, Spafford went down into his cabin, and near the scene of his daughters' tragic deaths, penned the words of "When Peace Like a River," better known today as "It is Well with My Soul." The hymn refers to Romans 5:8, "But God demonstrates His own love toward us, in that while we were still sinners, Christ died for us." The Spaffords eventually met up with Dwight Moody. "It is well," Spafford told him quietly, "the will of God be done."
The words of Spafford's beloved hymn follow:
When peace, like a river, attendeth my way,
When sorrows like sea billows roll;
Whatever my lot, Thou hast taught me to say,
"It is well, it is well with my soul."
It is well with my soul
It is well, it is well with my soul.
Thou Satan should buffet, tho' trials should come,
Let this blest assurance control,
That Christ has regarded my helpless estate,
And hath shed His own blood for my soul.
It is well with my soul
It is well, it is well with my soul.
My sin... O, the bliss of this glorious thought,
My sin, not in part but the whole,
Is nailed to the cross and I bear it no more,
Praise the Lord, praise the Lord, O my soul!
It is well with my soul
It is well, it is well with my soul.
And Lord, haste the day when the faith shall be sight,
The clouds be rolled back as a scroll,
The trump shall resound and the Lord shall descend,
"Even so" - it is well with my soul.
It is well with my soul
It is well, it is well with my soul.
Copyright (C) 2000-2003, Eras of Elegance,
:angel: Please, please do not stop praying! A very good friend of mine was recently diagnosed with squamous cell carcinoma of the throat. He is only 37 years old. At first the doctor thought it had spread to his chest and bones and gave us the dreaded news that if it had, there was nothing they could do. He was devestated but we never gave up or stopped praying! I trusted God and gave it up to him but asked if he would please spare his life. Today he called sobbing that he had gotten good news. The cancer did not spread, it has localized in his throat. He is not out of the woods yet, he has a long road ahead of him...aggressive chemo and radiation but it could have been alot worse. i believe God had a hand in this, I just know it! :bouncing: My friend also loves to sing and this has not affected his voice box just his tonsils. I told him he now needs to sing in church! Please never give up...it may look really bad one day but it is God's plan, and God's time, not ours! I had to learn this the hard way! God bless! :angel:
In our modern age of uncertainty, anxiety and often fear, we can be encouraged by words of the beloved and timeless hymn, "It is Well with My Soul." Written during a tumultuous time in Horatio Gates Spafford's life, the hymn continues to provide peace and comfort in the midst of struggle. Spafford was born in 1828 and spent his early years in New York. He later moved to Chicago and became a successful lawyer and businessman. Spafford was also a deeply religious man, active in his Presbyterian church as a Sunday School teacher and lay servant, as well as in the Young Men's Christian Association. Beginning in the 1870s, Spafford's faith was tested by a series of tragic events. In 1871, the Great Chicago Fire destroyed real estate located along the shores of Lake Michigan, which comprised a tremendous portion of the Spafford's investments. In 1873, a physician counseled the Spaffords to take a vacation for Mrs. Spafford's health and the family's well-being. Knowing that a dear friend, Dwight L. Moody would be preaching in an evangelistic tour in England, the Spaffords decided to leave for a vacation in England. Subsequently, Spafford's wife, Anna Lawson Spafford, and their four daughters-Maggie, Tanetta, Annie, and Bessie-boarded an American ship named the S.S. Ville du Havre. Detained due to business, Mr. Spafford stayed behind but intended to follow his family in a few days.
On November 22, 1873, the S.S. Ville du Havre, sailing off the coast of Newfoundland, was struck by an English ship, the Lochearn. The Ville du Havre sank in twelve minutes. Two hundred and twenty-six lives were lost, including the Spaffords' four daughters. After hours of floating in the turbulent waters, Mrs. Spafford was rescued. Arriving in Wales, she cabled her husband with the message, "Saved alone." Receiving the horrifying news, Spafford left immediately to join his wife. He asked the captain of the ship on which he was sailing to notify him when they approached the approximate area where the Ville du Havre went down. Notified that the area was near, Spafford went down into his cabin, and near the scene of his daughters' tragic deaths, penned the words of "When Peace Like a River," better known today as "It is Well with My Soul." The hymn refers to Romans 5:8, "But God demonstrates His own love toward us, in that while we were still sinners, Christ died for us." The Spaffords eventually met up with Dwight Moody. "It is well," Spafford told him quietly, "the will of God be done."
The words of Spafford's beloved hymn follow:
When peace, like a river, attendeth my way,
When sorrows like sea billows roll;
Whatever my lot, Thou hast taught me to say,
"It is well, it is well with my soul."
It is well with my soul
It is well, it is well with my soul.
Thou Satan should buffet, tho' trials should come,
Let this blest assurance control,
That Christ has regarded my helpless estate,
And hath shed His own blood for my soul.
It is well with my soul
It is well, it is well with my soul.
My sin... O, the bliss of this glorious thought,
My sin, not in part but the whole,
Is nailed to the cross and I bear it no more,
Praise the Lord, praise the Lord, O my soul!
It is well with my soul
It is well, it is well with my soul.
And Lord, haste the day when the faith shall be sight,
The clouds be rolled back as a scroll,
The trump shall resound and the Lord shall descend,
"Even so" - it is well with my soul.
It is well with my soul
It is well, it is well with my soul.
Copyright (C) 2000-2003, Eras of Elegance,
:angel: Please, please do not stop praying! A very good friend of mine was recently diagnosed with squamous cell carcinoma of the throat. He is only 37 years old. At first the doctor thought it had spread to his chest and bones and gave us the dreaded news that if it had, there was nothing they could do. He was devestated but we never gave up or stopped praying! I trusted God and gave it up to him but asked if he would please spare his life. Today he called sobbing that he had gotten good news. The cancer did not spread, it has localized in his throat. He is not out of the woods yet, he has a long road ahead of him...aggressive chemo and radiation but it could have been alot worse. i believe God had a hand in this, I just know it! :bouncing: My friend also loves to sing and this has not affected his voice box just his tonsils. I told him he now needs to sing in church! Please never give up...it may look really bad one day but it is God's plan, and God's time, not ours! I had to learn this the hard way! God bless! :angel:
sandrae
04-28-2004, 04:39 PM
Wake up every day and with that day do what you can.
If tomorrow is too much to think about think about the next 8 hours. If that is too much to think about, think about the next 1 hour.
Faith in God is what pulls us through many times. Faith in comfort. Faith in knowing that we can survive this day. Faith in what keeps you strong will continue to keep you strong.
Faith in knowing that you can write here...anytime you need to.
My thoughts and prayers are with you tonight.
If tomorrow is too much to think about think about the next 8 hours. If that is too much to think about, think about the next 1 hour.
Faith in God is what pulls us through many times. Faith in comfort. Faith in knowing that we can survive this day. Faith in what keeps you strong will continue to keep you strong.
Faith in knowing that you can write here...anytime you need to.
My thoughts and prayers are with you tonight.
ChestOut
04-30-2004, 06:44 AM
The cancer specialist cancelled yesterday due to illness.
In desperation and the consciousness of drastic weight lost I took my son to another doctor yesterday. To be succinct he said he appears to be no longer in remission. But the blood work is necessary to confirm my diagnosis.
In my heart I know now the blood work for me is just a formality. As much as I tried to be prepared and be strong in the Lord. I cried from then until now. My eyes are swollen and I am still crying.
The complexity of my situation is that I am actually contemplating getting to work after I do his blood work today. I will try to get to work. Somehow, I am so grieved. My son is my only child. My faith in God was strengthen recently . . . but the human part of me is in an emotional storm.
How are you doing today? As you requested below, I am willing to talk to you as I too am walking this cancer road with my son and definitely Jesus has to be lifting me.
Bye for now.
I just found this board. My son Chris was diagnosed with rhabdomyosarcoma on March 1 and it has spread to his bone marrow. They give him a 10% chance of surviving. He is only 15...my baby! We are all devastated but he is so brave and is (thankfully) positive he will beat it. I ask God every day to help him do just that and for strength for all of us. I can't bear the thought of my sweet boy having to go through all the chemo, transplants, surgery, radiation and pain and then maybe losing his fight after all. This is the worst thing a parent can face. Who would have thought this perfectly healthy child would have this disease! He found the lump in November (when his chances of surviving would have been around 70%) but he never said anything to me or to his Dad until March 1. He said he had told a friend and they joked about it but I am sure they never really thought it was cancer. I am having a hard time dealing with this...I cry all the time except in front of him. I would love to have some one to talk to. Please.
In desperation and the consciousness of drastic weight lost I took my son to another doctor yesterday. To be succinct he said he appears to be no longer in remission. But the blood work is necessary to confirm my diagnosis.
In my heart I know now the blood work for me is just a formality. As much as I tried to be prepared and be strong in the Lord. I cried from then until now. My eyes are swollen and I am still crying.
The complexity of my situation is that I am actually contemplating getting to work after I do his blood work today. I will try to get to work. Somehow, I am so grieved. My son is my only child. My faith in God was strengthen recently . . . but the human part of me is in an emotional storm.
How are you doing today? As you requested below, I am willing to talk to you as I too am walking this cancer road with my son and definitely Jesus has to be lifting me.
Bye for now.
I just found this board. My son Chris was diagnosed with rhabdomyosarcoma on March 1 and it has spread to his bone marrow. They give him a 10% chance of surviving. He is only 15...my baby! We are all devastated but he is so brave and is (thankfully) positive he will beat it. I ask God every day to help him do just that and for strength for all of us. I can't bear the thought of my sweet boy having to go through all the chemo, transplants, surgery, radiation and pain and then maybe losing his fight after all. This is the worst thing a parent can face. Who would have thought this perfectly healthy child would have this disease! He found the lump in November (when his chances of surviving would have been around 70%) but he never said anything to me or to his Dad until March 1. He said he had told a friend and they joked about it but I am sure they never really thought it was cancer. I am having a hard time dealing with this...I cry all the time except in front of him. I would love to have some one to talk to. Please.
brighterday
04-30-2004, 10:57 AM
I can not say that I can feel what you feel.My husband has Rcc and I am so sad but that can be nothing compared to seeing your child sick.I would like to say that I believe in God and his loving Grace but there comes a time when we are so sad that even we as humans don't know what to pray but that is when the holy spirit knows what we feel even by our crys.The Lord hears and sees every tear that falls from you about your son.He loves you even when we feel alone and sad. I am glad to hear that your son is so strong that will help him.I trully believe in going through this with my husband that being loved and keeping positive is stronger than any treatment they will give him.From experience try to keep his life with his friends and family life as normal as possible.Let him do what he feels like doing.He has not changed. He is still your happy fun son that enjoys teenage fun. My prayers are with all of your family.So when you cry in those early mornings when you can't sleep, you are not alone in your anguish we will be praying for you. We are to "LOVE ONE ANOTHER"
tammy27530
04-30-2004, 12:28 PM
First let me tell you I am very very sorry to hear for your son. BUT if I can give you some hope. Throw the percentages out the window....your son is not a perentage. Second, are you a spiritual family? My mother has liver cancer and was told that she cound not have transplant, chemo probably would not do anything for her. They basicly said Im sorry, your 49 year old mother just no chance. We refused to accept that. We believe that God is the greatest physician and we our church prayed for my mother. Now my mother is 100 %positive she wil beat this, because God will let her down. Well she had 3 tumors, one of the were 6mm, one 18mm, and the big one was 5.2cm x 5.3cm. She has been on the chemotherapy that they said would probably not work. Well it has been 12 weeks. and the new CT scan showed that the 6mm tumor is resolved...gone(they said they expected it to grow) the 18mm tumors is now 6mm, and the large one is now 3.2 x3.5. That is after only 12cweeks of chemo, no radiation. Just a faith so strong that she is in God's hands it should be carved in stone. So believe, for the is always hope. If you need to talk, feel free to write on the board.
Tim
B"BY MY STRIPES YOU ARE HEALED" PRAISE GOD. tim GOD has his hands on your mother.and chris he has his hands on your son also. i will pray for both of you. GOD BLESS
Tim
B"BY MY STRIPES YOU ARE HEALED" PRAISE GOD. tim GOD has his hands on your mother.and chris he has his hands on your son also. i will pray for both of you. GOD BLESS
haylee31
04-30-2004, 01:23 PM
Chris and your family are in my prayers. I also wanted to
add my girlfriends mother was diagnosed with cancer not
sure what type { this was years ago } they told her she
had 6 months to live. She turned that 6 months in to
6 1/2 years and showed the doctors how wrong they can
be sometimes. During those 6 1/2 years on two different
times they said she was within weeks. She just kept
fighting and proving them wrong. Keep positive and
dont ever give up hope. :angel: Haylee
add my girlfriends mother was diagnosed with cancer not
sure what type { this was years ago } they told her she
had 6 months to live. She turned that 6 months in to
6 1/2 years and showed the doctors how wrong they can
be sometimes. During those 6 1/2 years on two different
times they said she was within weeks. She just kept
fighting and proving them wrong. Keep positive and
dont ever give up hope. :angel: Haylee
ChestOut
04-30-2004, 05:44 PM
Thanks to one and all for your encouraging words.
Today we did the blood work with another cancer specialist.
Hopefully by Monday we will do the CT scan and ultrasound.
Even as I type this post he is happily enjoying his recreational activities.
Already I am thanking God for the times my son and I had together free of medications and hospital visits. My God is an awesome God.
Again thanks to everyone.
Today we did the blood work with another cancer specialist.
Hopefully by Monday we will do the CT scan and ultrasound.
Even as I type this post he is happily enjoying his recreational activities.
Already I am thanking God for the times my son and I had together free of medications and hospital visits. My God is an awesome God.
Again thanks to everyone.
sandrae
04-30-2004, 11:04 PM
How is Chris doing and how is the family doing? You are in my thoughts every night.
MySonChris
05-04-2004, 12:01 PM
I am sorry it has been a while since I have been able to respond. Chris is doing well right now. He has chemo today and tonight he and his older brother and a friend and I are going to a Slipknot concert. Will write more later. THANKS to all for your thoughts and prayers!
Charlene
Charlene
ok4now
05-04-2004, 12:33 PM
So happy to hear that Chris is doing well....and even happier to hear that he is going to enjoy a night out with his brother and a friend. Chris will continue to be a daily part of my prayer requests for a complete healing....
MySonChris
05-08-2004, 02:16 PM
Hi all, Chris had the best time at the Slipknot concert. All the guys signed his bass and other things, posed for pictures and talked with him giving him encouragement. He was thrilled! He was worn out for 2 days afterwards! Sandrae, thank you so much for your words. Faith is what we are using to keep us from giving up. That is all we have left-that and hope. We really believe in our hearts that he will be cured. Tammy 27530, thanks so much for your prayers. We need lots of them! And BrighterDay what you said really touched me. I agree with you that being loved and staying strong is at least as important as the chemo and all that stuff to help heal Chris. He is amazingly strong and positive! I admire him so much! We are trying to keep his life as 'normal' as possible especially keeping him active with his friends. He is sad that he can't play his bass for now because he does not want to mess up the autographs, but he should be getting his Make-a-Wish soon and he wants a new bass. Please keep praying for us. What is Rcc? I will pray for both of you also. Haylee31, it is so encouraging to hear about your girlfriends Grandmother who is so strong and proved those Drs. wrong! That is what we are determined to do as well. And OK4now, thanks for the prayers and words of encouragement! We all appreciate it so very much! Thanks to everyone.
Charlene
Charlene
Poet48
05-11-2004, 10:01 AM
sometimes we fought each other,and sometimes side by side.
but the love we brothers share,can never be denied.
we fought our childhood battles,some we won and some we lost.
but the battle that Jim fights today,we must win at any cost.
we search for ways to help him fight,but we can't find the answer.
we feel so helpless trying to fight,this evil we call cancer.
if I could take his place,I would do it gratefully.
because I know my brother Jim,would do the same for me.
if I could take his pain,and give my strength for just a day.
but the only thing that I can do,for my brother Jim is pray.
we know that he will win this fight,our prayers will turn the tide.
because my brother has the lord,fighting by his side.
written by Terry L. Lane
i wrote this for my brother who for the second time in his 52 year life is fighting cancer.the first time he was 29 years old and he won the battle this time the cancer is is much worse he has 3 tomors attached to his liver and are cutting off the blood supply to the liver the chemo has taken it's toll, but he has not given up and we will never give up.to everyone reading this never give up
but the love we brothers share,can never be denied.
we fought our childhood battles,some we won and some we lost.
but the battle that Jim fights today,we must win at any cost.
we search for ways to help him fight,but we can't find the answer.
we feel so helpless trying to fight,this evil we call cancer.
if I could take his place,I would do it gratefully.
because I know my brother Jim,would do the same for me.
if I could take his pain,and give my strength for just a day.
but the only thing that I can do,for my brother Jim is pray.
we know that he will win this fight,our prayers will turn the tide.
because my brother has the lord,fighting by his side.
written by Terry L. Lane
i wrote this for my brother who for the second time in his 52 year life is fighting cancer.the first time he was 29 years old and he won the battle this time the cancer is is much worse he has 3 tomors attached to his liver and are cutting off the blood supply to the liver the chemo has taken it's toll, but he has not given up and we will never give up.to everyone reading this never give up
brighterday
05-11-2004, 10:17 AM
Hi,
I was absolutely thrilled to hear that Chris had such a great time! Thats what life is all about! Music is wonderful.I bet he is very talented and creative.All of you are in my prayers daily.It helps to see our love ones enjoying life instead of dwelling on the sad.Oh! I do have my days that is for sure.Those early mornings when everything is quiet and dark.But then like you and Chris I think about something that we did or laughed about the day before and you smile and realize that hey! We were blessed with another day full of life and wonderful memories.
You asked about RCC.It is Renal Cell Carcinoma(Kidney Cancer) There is no treatment that touches it.You have to have surgeries and hope that it does not come back.My husband has had 4 surgeries in the last three years and he will have another on May 28.We just had one of those early morning talks just today.He is down a little but then we laughed about something dusted off our tears and fears and went on with the day.that sounds harsh but that is how we survive the worry.We will have our 22 anniversary june 22.I love him as much today as I did then.he is a wonderful person--my very best friend.It hurts to see him in pain but we try to live life as normal as possible.
Keep up the good work MOM that you are doing to keep Chris's life normal.It sounds like you are doing a wonderful job. Happy Belated mothers day!!!!!!God Bless You.
I was absolutely thrilled to hear that Chris had such a great time! Thats what life is all about! Music is wonderful.I bet he is very talented and creative.All of you are in my prayers daily.It helps to see our love ones enjoying life instead of dwelling on the sad.Oh! I do have my days that is for sure.Those early mornings when everything is quiet and dark.But then like you and Chris I think about something that we did or laughed about the day before and you smile and realize that hey! We were blessed with another day full of life and wonderful memories.
You asked about RCC.It is Renal Cell Carcinoma(Kidney Cancer) There is no treatment that touches it.You have to have surgeries and hope that it does not come back.My husband has had 4 surgeries in the last three years and he will have another on May 28.We just had one of those early morning talks just today.He is down a little but then we laughed about something dusted off our tears and fears and went on with the day.that sounds harsh but that is how we survive the worry.We will have our 22 anniversary june 22.I love him as much today as I did then.he is a wonderful person--my very best friend.It hurts to see him in pain but we try to live life as normal as possible.
Keep up the good work MOM that you are doing to keep Chris's life normal.It sounds like you are doing a wonderful job. Happy Belated mothers day!!!!!!God Bless You.
MySonChris
05-13-2004, 02:22 PM
Terry, that was a wonderful poem. I will pray for your brother Jim and for you and your family. Are there any other treatments that might work? Any clinical trials that look hopeful? You are SO right...never give up! Jim sounds strong and all your love will help keep him strong. May God bless you and your wonderful brother.
Brighterday, thank you for the Mothers Day wish.
Chris is very talented in my opinion- he just loves playing his bass. I think it will help keep him strong and positive as he fights this awful cancer. He had a catheter put in his chest Monday in preparation for his bone marrow transplants.They harvested his cells Tuesday and they told us it usually requires from 2 to 4 visits to get enough cells but he did it in one! He continues to amaze me. Friday he will have his in-patient chemo. I will be thinking of you and your husband on May28 when your husband has another surgery. I am glad you and your husband can talk about the hard times as well as the good times. I think it is important that you both are honest about the cancer and can talk about the fears. Sometimes it helps to share the fears and then somehow they are easier to cope with. And congratulations on your 22ond anniversary! I will pray for you both that you have many many more happy and healthy ones! My prayers to all who are fighting cancer and other illness. I hope someday there will be a cure and...who knows...is it too much to pray for- an immunization? Chris' Doctor says they are researching that very possibility. Best of luck. Charlene
Brighterday, thank you for the Mothers Day wish.
Chris is very talented in my opinion- he just loves playing his bass. I think it will help keep him strong and positive as he fights this awful cancer. He had a catheter put in his chest Monday in preparation for his bone marrow transplants.They harvested his cells Tuesday and they told us it usually requires from 2 to 4 visits to get enough cells but he did it in one! He continues to amaze me. Friday he will have his in-patient chemo. I will be thinking of you and your husband on May28 when your husband has another surgery. I am glad you and your husband can talk about the hard times as well as the good times. I think it is important that you both are honest about the cancer and can talk about the fears. Sometimes it helps to share the fears and then somehow they are easier to cope with. And congratulations on your 22ond anniversary! I will pray for you both that you have many many more happy and healthy ones! My prayers to all who are fighting cancer and other illness. I hope someday there will be a cure and...who knows...is it too much to pray for- an immunization? Chris' Doctor says they are researching that very possibility. Best of luck. Charlene
Poet48
05-13-2004, 04:43 PM
hi sorry to say the news here is not good the only treatment that he could have was chemo that didn't work jim is putting his affairs in order we will go this saturday to prepare jims resting place he is maxed out on his morphine and he says he is ready to go home his pain is so bad he will be laid to rest on his home place in langly tx. when the fight is over in the family plot god bless everyone who is fighting this evil pray for us to be strong for jim
terry lane palestine tx.
terry lane palestine tx.
MySonChris
05-13-2004, 05:16 PM
Oh Terry, I am so sorry! I will pray for all of you to be strong and that your beloved brother will be as comfortable as possible and know how strong your love for him is. I can't imagine what you are going through. My heart is breaking for you. May God be with you all.
Charlene
Charlene
lbp35
05-13-2004, 09:11 PM
Terry, Please don't stop praying! I know sometimes it's so hard to keep your faith but please don't give up. At least pray for the strength to help your brother and if it is his time according to God's will, just pray he goes home peacefully. I will continue to keep you and your brother :angel: in my prayers.God bless you.
brighterday
05-14-2004, 01:56 PM
Terry my heart and prayers are with you and your bother and family.Words can not even begin to explain the hurt I feel for you right now.------------------------------------------
We went to counsel with my husbands doctor yesterday.His surgery will be very dangerous.His adrenal can sart bleeding and if it does they will have to cut off supply to his one kidney.He will wear a bracelet after so people will know that he takes special meds.He can not stay in the sun long because he can dehydrate quickly.If he gets sick he will have to seek help quick.We are to understand that he could die within 3 days of not having his meds to regulate adrenal function. I pray that they do not find anymore cancer during sugery.He has been so strong but I saw something in him yesterday that looked very tired and strained.He wants me to go and TRY to make plans for the future in case of burial.This is hard but he says it has to be done that none of us never know and that is true.This is very difficult for me to think about.If love would get him through then he would already be well because I love him so.
I do pray for a cure.A vaccine would be wonderful.This is a terrible disease.As God says it may take our body but it can not have the soul.
We went to counsel with my husbands doctor yesterday.His surgery will be very dangerous.His adrenal can sart bleeding and if it does they will have to cut off supply to his one kidney.He will wear a bracelet after so people will know that he takes special meds.He can not stay in the sun long because he can dehydrate quickly.If he gets sick he will have to seek help quick.We are to understand that he could die within 3 days of not having his meds to regulate adrenal function. I pray that they do not find anymore cancer during sugery.He has been so strong but I saw something in him yesterday that looked very tired and strained.He wants me to go and TRY to make plans for the future in case of burial.This is hard but he says it has to be done that none of us never know and that is true.This is very difficult for me to think about.If love would get him through then he would already be well because I love him so.
I do pray for a cure.A vaccine would be wonderful.This is a terrible disease.As God says it may take our body but it can not have the soul.
Poet48
05-14-2004, 06:58 PM
hello everyone thank you all for your kind thoughts and prayers it helps to share my pain with others who understand i try to stay strong for my mother she has already lost one child on thanksgiving day 12 years ago and i thought she would never get over that.my baby sister died at 28 years of age and my dad died this past year but sometimes it hurts so bad and i just cannot stop the tears the only comfort i find is eather here or in my poetry my love and prayers i send to everyone i want share what is written this on my sisters head stone "if tears could build a highway and memories a lane i would walk right up to heaven and bring you home again"
god bless you all terry
god bless you all terry
ChestOut
05-14-2004, 11:44 PM
"Yea, though I walk through the valley of the shadow of death, I will fear no evil: for thou art with me; thy rod and thy staff they comfort me."
Somehow, I am becoming a woman of few words. Poet48, I too am a lover of poetry. Yours is really great.
Our God is an awesome God, He will see us through.
hello everyone thank you all for your kind thoughts and prayers it helps to share my pain with others who understand i try to stay strong for my mother she has already lost one child on thanksgiving day 12 years ago and i thought she would never get over that.my baby sister died at 28 years of age and my dad died this past year but sometimes it hurts so bad and i just cannot stop the tears the only comfort i find is eather here or in my poetry my love and prayers i send to everyone i want share what is written this on my sisters head stone "if tears could build a highway and memories a lane i would walk right up to heaven and bring you home again"
god bless you all terry
Somehow, I am becoming a woman of few words. Poet48, I too am a lover of poetry. Yours is really great.
Our God is an awesome God, He will see us through.
hello everyone thank you all for your kind thoughts and prayers it helps to share my pain with others who understand i try to stay strong for my mother she has already lost one child on thanksgiving day 12 years ago and i thought she would never get over that.my baby sister died at 28 years of age and my dad died this past year but sometimes it hurts so bad and i just cannot stop the tears the only comfort i find is eather here or in my poetry my love and prayers i send to everyone i want share what is written this on my sisters head stone "if tears could build a highway and memories a lane i would walk right up to heaven and bring you home again"
god bless you all terry
delrae4753
05-15-2004, 12:19 AM
my thoughts and prayers are with you and you family and your son Chris I will place you on my prayer board
angelsalive
05-20-2004, 08:20 PM
Hi
Iam sorry to hear that Chris is so sick. But believe me God will not take him. God does not need to take our children from us. If he needed more children in Heaven he would just creat them. After all he is the creator of the heavens and earth. It is so sad that he is blamed for everything bad that happens to us humans when in fact it is either just ill health or something we have created that is killing or harming us all. eg. cars, cigaretts, drugs, guns. There is so much we do not understand, but a heavenly father taking babies and children from parents does not even make sense. I would pray for your son to be given a miracle, a healing. But his work on earth may already be done. Love him and pray for his soul.
Good Luck
Iam sorry to hear that Chris is so sick. But believe me God will not take him. God does not need to take our children from us. If he needed more children in Heaven he would just creat them. After all he is the creator of the heavens and earth. It is so sad that he is blamed for everything bad that happens to us humans when in fact it is either just ill health or something we have created that is killing or harming us all. eg. cars, cigaretts, drugs, guns. There is so much we do not understand, but a heavenly father taking babies and children from parents does not even make sense. I would pray for your son to be given a miracle, a healing. But his work on earth may already be done. Love him and pray for his soul.
Good Luck
MySonChris
05-22-2004, 10:59 AM
Terry, how are you doing? I think about you every day.
Chris is doing good. We saw the Dr. on Tuesday and he said that Chris is doing so well that he wil not need the surgery they expected him to have. He will still need to have the radiation treatments, more chemo and bone marrow transplants. He will go to transplant the end of July.
Have been busy. We are moving and our daughter is graduating this Thursday. She has cerebral palsy but she graduated in the usual 12 years and we are very proud of her. We are very proud of both our kids...they are so strong and brave...they are my heros.
Delrae4753, thank you for your thoughts and prayers. Thanks to all!
Terry, please let us know how you are doing. I will continue to pray for you and your family.
C.
Chris is doing good. We saw the Dr. on Tuesday and he said that Chris is doing so well that he wil not need the surgery they expected him to have. He will still need to have the radiation treatments, more chemo and bone marrow transplants. He will go to transplant the end of July.
Have been busy. We are moving and our daughter is graduating this Thursday. She has cerebral palsy but she graduated in the usual 12 years and we are very proud of her. We are very proud of both our kids...they are so strong and brave...they are my heros.
Delrae4753, thank you for your thoughts and prayers. Thanks to all!
Terry, please let us know how you are doing. I will continue to pray for you and your family.
C.
ChestOut
05-22-2004, 05:02 PM
C, I am glad more positives are happening in your life :)
Terry, how are you doing? I think about you every day.
Chris is doing good. We saw the Dr. on Tuesday and he said that Chris is doing so well that he wil not need the surgery they expected him to have. He will still need to have the radiation treatments, more chemo and bone marrow transplants. He will go to transplant the end of July.
Have been busy. We are moving and our daughter is graduating this Thursday. She has cerebral palsy but she graduated in the usual 12 years and we are very proud of her. We are very proud of both our kids...they are so strong and brave...they are my heros.
Delrae4753, thank you for your thoughts and prayers. Thanks to all!
Terry, please let us know how you are doing. I will continue to pray for you and your family.
C.
Terry, how are you doing? I think about you every day.
Chris is doing good. We saw the Dr. on Tuesday and he said that Chris is doing so well that he wil not need the surgery they expected him to have. He will still need to have the radiation treatments, more chemo and bone marrow transplants. He will go to transplant the end of July.
Have been busy. We are moving and our daughter is graduating this Thursday. She has cerebral palsy but she graduated in the usual 12 years and we are very proud of her. We are very proud of both our kids...they are so strong and brave...they are my heros.
Delrae4753, thank you for your thoughts and prayers. Thanks to all!
Terry, please let us know how you are doing. I will continue to pray for you and your family.
C.
haylee31
05-25-2004, 09:01 AM
Checking in to see how Chris is doing and to let you know
you are in my daily thoughts and prayers. Haylee
you are in my daily thoughts and prayers. Haylee
MySonChris
05-29-2004, 10:10 AM
Hi Haylee,
Chris is doing very well right now, thank you so much for asking. He is off vincristine for a few weeks now and he is so happy that some of his hair and eyebrows are growing back. However, this Friday he goes into the hospital for more intensive chemo (he will be there for 5 days instead of the usual 2 or 3) because they are adding different drugs so I hope he will not lose his new hair! We have been busy here...moving, my daughters graduation, out of town guests...but Chris is so excited that he will soon be in his new room. We have to move to be ready for Chris' bone marrow transplant which will be in late July. I have to scrub down all walls and cupboards and all, steam clean carpets and furniture- stuff like that. Will be busy but I will update Chris' condition every chance I get. Thanks for your concern! It helps me to be able to 'talk' to someone about my sweet son! He is still so upbeat and positive! What a kid!
C.
Chris is doing very well right now, thank you so much for asking. He is off vincristine for a few weeks now and he is so happy that some of his hair and eyebrows are growing back. However, this Friday he goes into the hospital for more intensive chemo (he will be there for 5 days instead of the usual 2 or 3) because they are adding different drugs so I hope he will not lose his new hair! We have been busy here...moving, my daughters graduation, out of town guests...but Chris is so excited that he will soon be in his new room. We have to move to be ready for Chris' bone marrow transplant which will be in late July. I have to scrub down all walls and cupboards and all, steam clean carpets and furniture- stuff like that. Will be busy but I will update Chris' condition every chance I get. Thanks for your concern! It helps me to be able to 'talk' to someone about my sweet son! He is still so upbeat and positive! What a kid!
C.
ChestOut
05-29-2004, 04:10 PM
I share your JOY. Our God is an awesome God.
Hi Haylee,
Chris is doing very well right now, thank you so much for asking. He is off vincristine for a few weeks now and he is so happy that some of his hair and eyebrows are growing back. However, this Friday he goes into the hospital for more intensive chemo (he will be there for 5 days instead of the usual 2 or 3) because they are adding different drugs so I hope he will not lose his new hair! We have been busy here...moving, my daughters graduation, out of town guests...but Chris is so excited that he will soon be in his new room. We have to move to be ready for Chris' bone marrow transplant which will be in late July. I have to scrub down all walls and cupboards and all, steam clean carpets and furniture- stuff like that. Will be busy but I will update Chris' condition every chance I get. Thanks for your concern! It helps me to be able to 'talk' to someone about my sweet son! He is still so upbeat and positive! What a kid!
C.
Hi Haylee,
Chris is doing very well right now, thank you so much for asking. He is off vincristine for a few weeks now and he is so happy that some of his hair and eyebrows are growing back. However, this Friday he goes into the hospital for more intensive chemo (he will be there for 5 days instead of the usual 2 or 3) because they are adding different drugs so I hope he will not lose his new hair! We have been busy here...moving, my daughters graduation, out of town guests...but Chris is so excited that he will soon be in his new room. We have to move to be ready for Chris' bone marrow transplant which will be in late July. I have to scrub down all walls and cupboards and all, steam clean carpets and furniture- stuff like that. Will be busy but I will update Chris' condition every chance I get. Thanks for your concern! It helps me to be able to 'talk' to someone about my sweet son! He is still so upbeat and positive! What a kid!
C.
haylee31
06-01-2004, 10:42 AM
Glad to hear Chris is feeling better. :) You are in my
thoughts. Please keep us all updated. Haylee
thoughts. Please keep us all updated. Haylee
Poet48
06-16-2004, 07:51 AM
hello every one sorry i have not replied sooner i wish i had good news but god took James A. Lane home early yesterday morning he died at around 4 am he was 51yrs.9months old my prayers now turn to chris and everyone who suffers from this evil called cancer Jim fought the good fight and now he is at rest god answered my prayers and took his pain away may god bless you all with a long and wonderful life
Terry
Terry
ok4now
06-16-2004, 08:56 AM
My prayers are with you Terry. I am so very sorry for your loss. Claudia
MySonChris
06-17-2004, 03:01 PM
Terry, I am so very sorry to hear of your dear brothers passing. We are here to listen if you want to share your pain.
Sorry I have not updated everyone on Chris' progress. We are still moving and just got the internet hooked up today. Chris is very positive his fight against this horrible cancer will be rewarded with a long and healthy, cancer free life. His positive attitude has paid off so far. He has had minimal side effects so far. He feels good most of the time thankfully.
He got his Make-a-Wish yesterday- a new bass guitar, amp and a new computer tower. He is so happy! It was wonderful to see him so happy. He said he felt like doing a back flip but he said he would probably hurt himself if he did.
I will update later. All is well for now. God bless you all.
C.
Sorry I have not updated everyone on Chris' progress. We are still moving and just got the internet hooked up today. Chris is very positive his fight against this horrible cancer will be rewarded with a long and healthy, cancer free life. His positive attitude has paid off so far. He has had minimal side effects so far. He feels good most of the time thankfully.
He got his Make-a-Wish yesterday- a new bass guitar, amp and a new computer tower. He is so happy! It was wonderful to see him so happy. He said he felt like doing a back flip but he said he would probably hurt himself if he did.
I will update later. All is well for now. God bless you all.
C.
Gogoboots17
07-03-2004, 06:14 PM
Hello to all who read here. I started reading everyones letters and couldn't stop. Of course Chris's story grabbed me first. I have a 15 year old boy named Grant with Osteosarcoma. He was diagnosed on 11-18-02. It was in his left wrist. After two horrible rounds of chemo he had limb-slavage surgery on the arm on 3-17-03. He then went through infections, really bad chemo side effects and numerous more sugeries. In October of 03, on a routine CT scan of the chest, tumors were found in the lungs. We went from a very good chance of survival to less and less. He has had 4 surgeries on the lungs and more chemo of different types and nothing has slowed it down. Radiation does not work on Osteo so that isn't an option. His left lung is full of tumors and when they went in to clean him up some last week, they just closed things up because there was too much. His make a wish is a cruise and we have put it off because of always being in chemo recovering from something. They have rescheduled it for the 25th of July. Please pray for us to make it to the cruise without Grant being sick. He started yesterday with bad pain in the left side and I am wondering if this is the start of bad things. I am so scared. Grant is the most wonderful kid in the world. Oh, I forgot to mention that he had to have the arm amputated in April also. That is so small compared to losing him. He has never complained about it and still plays X-box with the stump! He is so amazing and he makes everyone laugh all the time. He is prepared for what is ahead but suffering is his biggest fear. (Mine too) Please don't think we have lost our faith because we haven't but there comes a time when you know that things really don't look good for you. My prayer is for Grant to get his cruise and to enjoy itand for God to allow him to be with me for as long as possible. He is my only child at home and I have been divorced for 10 years. He is my whole life. So when I read about Chris and Terry's brother, and all the other's who have written here, I just want to say that I am praying for you all and to keep hanging on to that faith and hope. Kevin Sharp, a country music singer, once told us to never let anyone take "hope "away from us. He is a cancer survivor of Ewings Sarcoma. He is a big inspiration for kids with cancer. He does alot of Make a wish's. Charlene, hang in there and just keep taking one day at a time. I sleep with Grant and watch him breath all night and thank God he is with me now. God bless you all.
Prayers, Glenna
Prayers, Glenna
ChestOut
07-04-2004, 01:51 AM
Thy faith hath made thee whole.
St Matthew, 9. 22
My Dear Board Friends,
I have thrown my faith towards the greatest physician.
Since I was last here. My son had a nervous breakdown.
At first, I became a little lost and confused but the word reminded me that Jesus sought out the 1 missing sheep.
I sought pray for healing for my son from any Christian believer I met along the way.
I attended a Deliverance session on Wednesday 23, 2004. I rebuilt my faith.
On Tuesday June 29, 2004 I met with the doctor who informed me that my son's blood work was back and it showed the cancer (lymphoma) was not active. He then said that he hoped to do a CAT Scan and the ultra sound to confirm that my son's cancer was truly inactive.
Then he informed me that Chip was resistant to the medications given.
As I observe my son and continue to pray with him each day when I visit him in hospital. I have noticed both physically and verbally that he is improving. He repeatedly says he feels so well.
Faith can move mountains. If my son continues to be resitant to his medications yet shows so many signs of improvement. I can only now say. MY GOD CAN DO anything.
I give him thanks and praises. I now can say no matter the final outcome, "It is well with my soul."
Hello to all who read here. I started reading everyones letters and couldn't stop. Of course Chris's story grabbed me first. I have a 15 year old boy named Grant with Osteosarcoma. He was diagnosed on 11-18-02. It was in his left wrist. After two horrible rounds of chemo he had limb-slavage surgery on the arm on 3-17-03. He then went through infections, really bad chemo side effects and numerous more sugeries. In October of 03, on a routine CT scan of the chest, tumors were found in the lungs. We went from a very good chance of survival to less and less. He has had 4 surgeries on the lungs and more chemo of different types and nothing has slowed it down. Radiation does not work on Osteo so that isn't an option. His left lung is full of tumors and when they went in to clean him up some last week, they just closed things up because there was too much. His make a wish is a cruise and we have put it off because of always being in chemo recovering from something. They have rescheduled it for the 25th of July. Please pray for us to make it to the cruise without Grant being sick. He started yesterday with bad pain in the left side and I am wondering if this is the start of bad things. I am so scared. Grant is the most wonderful kid in the world. Oh, I forgot to mention that he had to have the arm amputated in April also. That is so small compared to losing him. He has never complained about it and still plays X-box with the stump! He is so amazing and he makes everyone laugh all the time. He is prepared for what is ahead but suffering is his biggest fear. (Mine too) Please don't think we have lost our faith because we haven't but there comes a time when you know that things really don't look good for you. My prayer is for Grant to get his cruise and to enjoy itand for God to allow him to be with me for as long as possible. He is my only child at home and I have been divorced for 10 years. He is my whole life. So when I read about Chris and Terry's brother, and all the other's who have written here, I just want to say that I am praying for you all and to keep hanging on to that faith and hope. Kevin Sharp, a country music singer, once told us to never let anyone take "hope "away from us. He is a cancer survivor of Ewings Sarcoma. He is a big inspiration for kids with cancer. He does alot of Make a wish's. Charlene, hang in there and just keep taking one day at a time. I sleep with Grant and watch him breath all night and thank God he is with me now. God bless you all.
Prayers, Glenna
St Matthew, 9. 22
My Dear Board Friends,
I have thrown my faith towards the greatest physician.
Since I was last here. My son had a nervous breakdown.
At first, I became a little lost and confused but the word reminded me that Jesus sought out the 1 missing sheep.
I sought pray for healing for my son from any Christian believer I met along the way.
I attended a Deliverance session on Wednesday 23, 2004. I rebuilt my faith.
On Tuesday June 29, 2004 I met with the doctor who informed me that my son's blood work was back and it showed the cancer (lymphoma) was not active. He then said that he hoped to do a CAT Scan and the ultra sound to confirm that my son's cancer was truly inactive.
Then he informed me that Chip was resistant to the medications given.
As I observe my son and continue to pray with him each day when I visit him in hospital. I have noticed both physically and verbally that he is improving. He repeatedly says he feels so well.
Faith can move mountains. If my son continues to be resitant to his medications yet shows so many signs of improvement. I can only now say. MY GOD CAN DO anything.
I give him thanks and praises. I now can say no matter the final outcome, "It is well with my soul."
Hello to all who read here. I started reading everyones letters and couldn't stop. Of course Chris's story grabbed me first. I have a 15 year old boy named Grant with Osteosarcoma. He was diagnosed on 11-18-02. It was in his left wrist. After two horrible rounds of chemo he had limb-slavage surgery on the arm on 3-17-03. He then went through infections, really bad chemo side effects and numerous more sugeries. In October of 03, on a routine CT scan of the chest, tumors were found in the lungs. We went from a very good chance of survival to less and less. He has had 4 surgeries on the lungs and more chemo of different types and nothing has slowed it down. Radiation does not work on Osteo so that isn't an option. His left lung is full of tumors and when they went in to clean him up some last week, they just closed things up because there was too much. His make a wish is a cruise and we have put it off because of always being in chemo recovering from something. They have rescheduled it for the 25th of July. Please pray for us to make it to the cruise without Grant being sick. He started yesterday with bad pain in the left side and I am wondering if this is the start of bad things. I am so scared. Grant is the most wonderful kid in the world. Oh, I forgot to mention that he had to have the arm amputated in April also. That is so small compared to losing him. He has never complained about it and still plays X-box with the stump! He is so amazing and he makes everyone laugh all the time. He is prepared for what is ahead but suffering is his biggest fear. (Mine too) Please don't think we have lost our faith because we haven't but there comes a time when you know that things really don't look good for you. My prayer is for Grant to get his cruise and to enjoy itand for God to allow him to be with me for as long as possible. He is my only child at home and I have been divorced for 10 years. He is my whole life. So when I read about Chris and Terry's brother, and all the other's who have written here, I just want to say that I am praying for you all and to keep hanging on to that faith and hope. Kevin Sharp, a country music singer, once told us to never let anyone take "hope "away from us. He is a cancer survivor of Ewings Sarcoma. He is a big inspiration for kids with cancer. He does alot of Make a wish's. Charlene, hang in there and just keep taking one day at a time. I sleep with Grant and watch him breath all night and thank God he is with me now. God bless you all.
Prayers, Glenna
keisha122
07-04-2004, 01:09 PM
im sorry to hear about your son! my aunt has breast cancer and she is a fighter. believe in god, and pray god will take care of you and your son. my aunt went through chemo and has two more treatments to go. yes, its hard but god see you crying and he hears your prays! cancer does mean death! the doctor told my greatgrand fatherwhen he had cancer that he was going to die(time limit), and the doctor died before he did! so no man can tell you how long you have to live thats gods job! be encouraged and god bless you! :)
ChestOut
07-05-2004, 01:12 AM
Thanks for your words of encouragement Keisha122. May God bless you and keep you through your adversities.
I am convinced no weapon formed against us, shall prosper.
im sorry to hear about your son! my aunt has breast cancer and she is a fighter. believe in god, and pray god will take care of you and your son. my aunt went through chemo and has two more treatments to go. yes, its hard but god see you crying and he hears your prays! cancer does mean death! the doctor told my greatgrand fatherwhen he had cancer that he was going to die(time limit), and the doctor died before he did! so no man can tell you how long you have to live thats gods job! be encouraged and god bless you! :)
I am convinced no weapon formed against us, shall prosper.
im sorry to hear about your son! my aunt has breast cancer and she is a fighter. believe in god, and pray god will take care of you and your son. my aunt went through chemo and has two more treatments to go. yes, its hard but god see you crying and he hears your prays! cancer does mean death! the doctor told my greatgrand fatherwhen he had cancer that he was going to die(time limit), and the doctor died before he did! so no man can tell you how long you have to live thats gods job! be encouraged and god bless you! :)
MySonChris
07-27-2004, 11:37 AM
Hi all.
This is the day we have been working towards for a long time. Chris goes in to start his bone marrow transplant today. He is doing great with all the treatments so far so we are in high hopes that this will go as well. He is not worried- at least he says he is not, but I am scared speachless...guess that is why I have not written for a while. He will be in the hospital for at least three weeks and I will be there as much as I can. They do not allow 'rooming in' but I can stay as long as I want as long as I go home at some point every day. I will post how things are going.
Charlene
This is the day we have been working towards for a long time. Chris goes in to start his bone marrow transplant today. He is doing great with all the treatments so far so we are in high hopes that this will go as well. He is not worried- at least he says he is not, but I am scared speachless...guess that is why I have not written for a while. He will be in the hospital for at least three weeks and I will be there as much as I can. They do not allow 'rooming in' but I can stay as long as I want as long as I go home at some point every day. I will post how things are going.
Charlene
MySonChris
08-10-2004, 01:56 PM
Hi all. Chris is 6 days after transplant, and things were going pretty well until about 3 days ago when it seems everything started going wrong. Mouth and throat sores, nose bleeds and throwing up were the worst so far, and it could get worse they tell me. He is on morphine for pain and that makes him even more nausious (sp?) He wrote an e-mail to me telling me how one of his days went. Here is what he said-
"hey guess what i did today, i woke up with a bloody
nose, then i threw up blood, then i felt sick all
day, then my nose started bleeding again, so i put ice
on it, then i tried to take my pills, but i threw them
up and it was all bloody, and my nose bled for at
least 3 hours. but then the nurse came in and told me
to blow my nose as hard as i could, then she told me
to spray a half a bottle of nose spray in one side, and the other half on the other of my nose. that made the bleeding
stop finally, but then i started feeling itchy all
over the place, and when i swallow, it feels like
massive heartburn. then i ate 2 popsicles and threw
up, it hurt real bad. that was my day, i left out a
few parts, but u kno what they were so u can fill in
the blanks.its 10:45 pm the time. k, i gotta pee, then im
gonna take a shower, so talk to u later. love you.
bye. nite. "
Despite everything he is still in good spirits...for the most part anyhow. The Dr. thinks he will be ready to go home in about 10 days if all goes well. Back in the BMT , one boy finally got to leave the hospital after being there for 10 weeks, another baby had been there for most of her 9 months of life and has a long was yet to go. Sadly, 2 children didn't made it. One was a 14 year old girl and the other was a baby. What these poor children and their familys go through is mind numbing and heart breaking. I feel fortunate that Chris is doing as well as he is...so far...(knock on wood). He also has a long way to go. It is making me nuts that we are not even sure he will be able to go to Maryland for the transplant using his sisters cells. It is a clinical trial, and there is no word yet on if they will still be recruiting when he is ready to go. I hope he will be able to go because I am hopefull that it will be the best hope for a complete recovery. They say most of the time, cancers like Chris' come back even with all the treatments he will get, and there is no cure after that. So we hope a second transplant might give him the immunities he needs to keep it from coming back.
Gotta get back to the hospital to be with him so I will keep ya all posted. Take care- Charlene
"hey guess what i did today, i woke up with a bloody
nose, then i threw up blood, then i felt sick all
day, then my nose started bleeding again, so i put ice
on it, then i tried to take my pills, but i threw them
up and it was all bloody, and my nose bled for at
least 3 hours. but then the nurse came in and told me
to blow my nose as hard as i could, then she told me
to spray a half a bottle of nose spray in one side, and the other half on the other of my nose. that made the bleeding
stop finally, but then i started feeling itchy all
over the place, and when i swallow, it feels like
massive heartburn. then i ate 2 popsicles and threw
up, it hurt real bad. that was my day, i left out a
few parts, but u kno what they were so u can fill in
the blanks.its 10:45 pm the time. k, i gotta pee, then im
gonna take a shower, so talk to u later. love you.
bye. nite. "
Despite everything he is still in good spirits...for the most part anyhow. The Dr. thinks he will be ready to go home in about 10 days if all goes well. Back in the BMT , one boy finally got to leave the hospital after being there for 10 weeks, another baby had been there for most of her 9 months of life and has a long was yet to go. Sadly, 2 children didn't made it. One was a 14 year old girl and the other was a baby. What these poor children and their familys go through is mind numbing and heart breaking. I feel fortunate that Chris is doing as well as he is...so far...(knock on wood). He also has a long way to go. It is making me nuts that we are not even sure he will be able to go to Maryland for the transplant using his sisters cells. It is a clinical trial, and there is no word yet on if they will still be recruiting when he is ready to go. I hope he will be able to go because I am hopefull that it will be the best hope for a complete recovery. They say most of the time, cancers like Chris' come back even with all the treatments he will get, and there is no cure after that. So we hope a second transplant might give him the immunities he needs to keep it from coming back.
Gotta get back to the hospital to be with him so I will keep ya all posted. Take care- Charlene
ok4now
08-10-2004, 02:44 PM
Charlene, my prayers continue for Chris and for your family. You son is an amazing young man, strong and courageous with a wonderful zest for life and all the challanges it is bringing him.
Keep faith in God....He will protect and provide. He will guide the way and have everything fall into place for Chris. Trust in Him. Call on Him for everything and He will be there for all of you. Claudia
Keep faith in God....He will protect and provide. He will guide the way and have everything fall into place for Chris. Trust in Him. Call on Him for everything and He will be there for all of you. Claudia
MySonChris
08-11-2004, 11:28 PM
Thank you Claudia, your words mean more to me than you could ever know. Yes Chris is an amazing young man. All the nurses and doctors are very impressed with his courage and strength and how his positive attitude is helping him do so well with all his treatments. He is my hero and I wish I had his courage and strength. Oh, how I love that child!
Concerns
08-12-2004, 12:22 AM
Charlene.. my heart is with .. and my prays goes to u and ur child... i'm really gald that things are goin well with Chris...hopefully he will be out playin' his new bass ...
Let It Bleed
08-17-2004, 05:39 AM
This thread caught my eye. Life is crazy. I wasn't through the first post before I got teary-eyed. By the 12th page, I'm counting each breath of air I breath as blessing, both your sons are an inspiration.
MySonChris, I hope you continue to vent you worries, sorrows, joys, hopes, and celebrations here and we will continue to keep you and your child in thought and prayer. Let us know.
Chest Out, You're the vet around these parts and the courage and FAITH you and your son have shown is amazing. Keep your heads up, God has a purpose for your son's life, otherwise he would of let him pass.
Poet, if you're still around, my condolences. Words are useless, but in this venue typed word is all we can offer. I noticed you're in Palestine, Tx. I live on Lake Palestine (part-time) near Frankston. You know the area. I live in West Texas the other part of the year. How are you?
Everyone take care.
MySonChris, I hope you continue to vent you worries, sorrows, joys, hopes, and celebrations here and we will continue to keep you and your child in thought and prayer. Let us know.
Chest Out, You're the vet around these parts and the courage and FAITH you and your son have shown is amazing. Keep your heads up, God has a purpose for your son's life, otherwise he would of let him pass.
Poet, if you're still around, my condolences. Words are useless, but in this venue typed word is all we can offer. I noticed you're in Palestine, Tx. I live on Lake Palestine (part-time) near Frankston. You know the area. I live in West Texas the other part of the year. How are you?
Everyone take care.
MySonChris
08-20-2004, 02:23 PM
Hello Everyone,
As I read the posts here, I am so touched by everyones words and stories. You all have a courage and faith that is so inspiring and it means so much to me. Thank you all for sharing.
Chris got out of transplant on Tuesday Aug. 17- I hope that is the right date- and was doing great at home until it was time to hook him up to his TPN (food that is given threw his tubes in his chest). With in a few minutes he began itching, turning red, having trouble swallowing, he got hives and began swelling up. I disconected the pump to his feeding tubes and called 911. He got so sick so fast I was afraid he might not make it until the ambulence came! They took him to the Hospital and on the way gave him meds and by the time we got to the hospital he was much improved. We still are not sure why he had that reaction but now he is not on any food replacements. We see the Dr. todat to decide what to do next. We were also informed that his next transplant in Maryland was moved up and we could be going as soon as 2 weeks from this coming Monday! So fast!! I have barely had a chance to catch my breath from the last one! I do not even know if they will help us pay for air fair or anything! Don't know where the $ will come from and we will be gone for 2 months they tell us so we have to pay 2 months rent, utilities and all in advance so we will have a place to come home to. If anyone has any advice, I would welcome it. Flying is new to me and managing a child with cancer and one with cerebral palsy (my daughter who is Chris' bone marrow donor) seems overwhelming. I am a nervous wreck! Chris however is as strong and brave as ever. He is so happy to be home with his new bass and his own bed. He wanted me to sleep next to him on the floor after the alergic reaction on Tuesday and I happily did that and also the next night. We never expected that kind of problem so we are worried what might sneek up on us next!
Gotta run. thanks for listening...please continue to pray for all who fight these horrible diseases and their loved ones...and the Doctors who work so hard to heal us!
Charlene
As I read the posts here, I am so touched by everyones words and stories. You all have a courage and faith that is so inspiring and it means so much to me. Thank you all for sharing.
Chris got out of transplant on Tuesday Aug. 17- I hope that is the right date- and was doing great at home until it was time to hook him up to his TPN (food that is given threw his tubes in his chest). With in a few minutes he began itching, turning red, having trouble swallowing, he got hives and began swelling up. I disconected the pump to his feeding tubes and called 911. He got so sick so fast I was afraid he might not make it until the ambulence came! They took him to the Hospital and on the way gave him meds and by the time we got to the hospital he was much improved. We still are not sure why he had that reaction but now he is not on any food replacements. We see the Dr. todat to decide what to do next. We were also informed that his next transplant in Maryland was moved up and we could be going as soon as 2 weeks from this coming Monday! So fast!! I have barely had a chance to catch my breath from the last one! I do not even know if they will help us pay for air fair or anything! Don't know where the $ will come from and we will be gone for 2 months they tell us so we have to pay 2 months rent, utilities and all in advance so we will have a place to come home to. If anyone has any advice, I would welcome it. Flying is new to me and managing a child with cancer and one with cerebral palsy (my daughter who is Chris' bone marrow donor) seems overwhelming. I am a nervous wreck! Chris however is as strong and brave as ever. He is so happy to be home with his new bass and his own bed. He wanted me to sleep next to him on the floor after the alergic reaction on Tuesday and I happily did that and also the next night. We never expected that kind of problem so we are worried what might sneek up on us next!
Gotta run. thanks for listening...please continue to pray for all who fight these horrible diseases and their loved ones...and the Doctors who work so hard to heal us!
Charlene
MySonChris
08-20-2004, 02:25 PM
Hello Everyone,
As I read the posts here, I am so touched by everyones words and stories. You all have a courage and faith that is so inspiring and it means so much to me. Thank you all for sharing.
Chris got out of transplant on Tuesday Aug. 17- I hope that is the right date- and was doing great at home until it was time to hook him up to his TPN (food that is given threw his tubes in his chest). With in a few minutes he began itching, turning red, having trouble swallowing, he got hives and began swelling up. I disconected the pump to his feeding tubes and called 911. He got so sick so fast I was afraid he might not make it until the ambulence came! They took him to the Hospital and on the way gave him meds and by the time we got to the hospital he was much improved. We still are not sure why he had that reaction but now he is not on any food replacements. We see the Dr. today to decide what to do next. We were also informed that his next transplant in Maryland was moved up and we could be going as soon as 2 weeks from this coming Monday! So fast!! I have barely had a chance to catch my breath from the last one! I do not even know if they will help us pay for air fair or anything! Don't know where the $ will come from and we will be gone for 2 months they tell us so we have to pay 2 months rent, utilities and all in advance so we will have a place to come home to. If anyone has any advice, I would welcome it. Flying is new to me and managing a child with cancer and one with cerebral palsy (my daughter who is Chris' bone marrow donor) seems overwhelming. I am a nervous wreck! Chris however is as strong and brave as ever. He is so happy to be home with his new bass and his own bed. He wanted me to sleep next to him on the floor after the alergic reaction on Tuesday and I happily did that and also the next night. We never expected that kind of problem so we are worried what might sneek up on us next!
Gotta run. thanks for listening...please continue to pray for all who fight these horrible diseases and their loved ones...and the Doctors who work so hard to heal us!
Charlene
As I read the posts here, I am so touched by everyones words and stories. You all have a courage and faith that is so inspiring and it means so much to me. Thank you all for sharing.
Chris got out of transplant on Tuesday Aug. 17- I hope that is the right date- and was doing great at home until it was time to hook him up to his TPN (food that is given threw his tubes in his chest). With in a few minutes he began itching, turning red, having trouble swallowing, he got hives and began swelling up. I disconected the pump to his feeding tubes and called 911. He got so sick so fast I was afraid he might not make it until the ambulence came! They took him to the Hospital and on the way gave him meds and by the time we got to the hospital he was much improved. We still are not sure why he had that reaction but now he is not on any food replacements. We see the Dr. today to decide what to do next. We were also informed that his next transplant in Maryland was moved up and we could be going as soon as 2 weeks from this coming Monday! So fast!! I have barely had a chance to catch my breath from the last one! I do not even know if they will help us pay for air fair or anything! Don't know where the $ will come from and we will be gone for 2 months they tell us so we have to pay 2 months rent, utilities and all in advance so we will have a place to come home to. If anyone has any advice, I would welcome it. Flying is new to me and managing a child with cancer and one with cerebral palsy (my daughter who is Chris' bone marrow donor) seems overwhelming. I am a nervous wreck! Chris however is as strong and brave as ever. He is so happy to be home with his new bass and his own bed. He wanted me to sleep next to him on the floor after the alergic reaction on Tuesday and I happily did that and also the next night. We never expected that kind of problem so we are worried what might sneek up on us next!
Gotta run. thanks for listening...please continue to pray for all who fight these horrible diseases and their loved ones...and the Doctors who work so hard to heal us!
Charlene
MySonChris
08-20-2004, 02:27 PM
sorry I pushed the post button twice
dyana
08-20-2004, 03:58 PM
charlene, you are doing great and will be fine. chris is a fighter. i wish i could give you e-mail address's but the healthboard does not allow it. there are organizations that will give you free air fair, free lodging ( or at least reduced).
contact the social worker of your hospital and the one you
will be going to and they should help. also contact the american cancer society, they can also help. i have a daughter that has cancer and it is a battle in itself then the financial demon is no help. we have no insurance at all so it is not fun. but you do what you have to do. god bless you and chris and the rest of your family. give your daughter a big hug for being brave enough to donate.
huggggsss!!!!
dyana
contact the social worker of your hospital and the one you
will be going to and they should help. also contact the american cancer society, they can also help. i have a daughter that has cancer and it is a battle in itself then the financial demon is no help. we have no insurance at all so it is not fun. but you do what you have to do. god bless you and chris and the rest of your family. give your daughter a big hug for being brave enough to donate.
huggggsss!!!!
dyana
earthdayapril22
08-23-2004, 08:57 PM
I just came to this topic and im just 19 years old and i always had a panic for cancer.. because of all this that i hear. But i know Chris WILL be ok at the end because there are many people praying for him and i just want to let you know that im going to pray for him every night.You just have to have faith in God even though sometimes it is difficult. :)
dv8
08-25-2004, 12:02 AM
I just want to say that i am very very sorry about your son chris and know that the lord will be with him every step of the way. I wish you and your family the best of luck, and like i said, remember, the lord is with him.
MySonChris
08-25-2004, 12:09 PM
Thank you Dyana, dv8 and earthdayapril22 so much for your words of encouragement. I can not tell you how much it means to me and thanks for the prayers also. Chris is doing very well right now but he is so anxious for his hair to come back! He had the most beautiful thick, dark hair and now he does not even have eye brows or nose hair! The lack of nose hair is an issue since his nose runs constantly...yuck...poor thing. He needs to see an audiologist for constant ringing in his ears which is a side effect of the high doses of chemo and may be permant. I hope it is not permant- that is so annoying for him. Just one more thing he has to deal with! I wish I could take on all of his problems for him. We still do not know when we will be going to Maryland but we heard that we have to pay our own air fair to get there. This could be a challenge along with everything else but I guess I will turn it over to God and do the best we can. Nothing will stop me from getting the treatments that will hopefully keep my son alive! I would sell everything I own if I have to!
Well, take care all and thanks for all the prayers and thoughts. God bless all of you!
Well, take care all and thanks for all the prayers and thoughts. God bless all of you!
dyana
08-25-2004, 03:13 PM
there is a program called angel_____ to pay for air fare.
[ removed ]
[ removed ]
justhangnout
08-29-2004, 05:06 PM
How are things going with Chris and YOU? I know as a parent of a sick child its so hard to leave them in God's hands on a daily basis. Will be praying for you and your family too.
sissylisa
08-30-2004, 03:57 AM
im so sorry, that is a parents worse nightmare, will keep him and your family in my prayers. god bless.
Jack_Bentley
09-01-2004, 07:14 AM
Good Morning, I had cancer twice. Had 8 months of Chemo, you have received some very good advice. I must say one thing, faith and prayer are awesome, but a good Doctor is a gift from God, so use them. Make sure your son trusts him as well as you. That is very important. I have an 18 year old son and a 15 year old daughter, make sure you allow your son to vent. He is and will try to be strong for you. I found that after chemo nothing tasted better than a chocolate milkshake, it was calming on the stomach and seemed to be the only thing I could taste. One more thing, I found it very helpful to speak to others that had been thru what I was going thru. That helped the times I wanted to stop treatment. My heart goes out to your Son and your family, Cancer is a life altering diease. If I can help or speak to him, please let me know, May God Bless You, Jack :wave:
lbp35
09-19-2004, 12:25 PM
Pam,
I will include Jason in my prayers! Cancer is nothing for God! He can handle anything. I am praying for my friend who has stage 4 cancer to St Jude, St Anthony and St Peregrine (patron saint of cancer). Jason will also be at the top of my priority list. Please stay strong!God bless you. :angel:
I will include Jason in my prayers! Cancer is nothing for God! He can handle anything. I am praying for my friend who has stage 4 cancer to St Jude, St Anthony and St Peregrine (patron saint of cancer). Jason will also be at the top of my priority list. Please stay strong!God bless you. :angel:
TCrockett
09-19-2004, 05:17 PM
Pam Archer, you and your son will be in my thoughts and prayers. My father is now undergoing his second battle with cancer and both times the doctor has said the very same thing "there is no cure, you will only be prolonging his life" After my fathers first battle he was cancer-free for 14 years. And now the doctors are amazed at the progress they have made with chemo and radiation. I think the phrase "there is no cure" is an accurate scientific statement for a doctor to make when it comes to cancer. Nothing is ever for sure, what works for some people has no effect on others... so really, for cancer, there is no definate 100% certain cure. No guarantees. But the same thing could happen for your son, the treatments could prove to be very effective and 20 years from now he could be saying "I beat the odds". We just don't know unless we do it. I think its unfortunate that doctors use that phrase, it is a very defeating choice of words. Your son does have a chance PamArcher... and he will need all of your strength to believe that. Your family will be in my prayers.
T
T
TheTwo^Pigeons
09-23-2004, 04:09 PM
HI im so sorry to hear about your son chris, sorry about the late post but im new to these boards. As never having cancer i cant understand the experience your going through but im here to make it better. The chinese say that cancer is the symptom not the disease, they believe that if a person dies that its of the symptom not because of a disease. If you can look on the net about some remedies that they use that might be helpful. I also remember that God is with us at all times and he will always look after us all. Having recently loosing my grandmother I always think that she is with me and my family and looks after us and i hope she looks out for your son too anyways always here to help
Dave :)
Dave :)
Maryilee
10-01-2004, 02:18 PM
Reading your post, Pam, I realized that at this very minute your son could be undergoing his tests. Sending thoughts and prayers that all is well.
I came to this board because my son has a lump on his leg that he noticed two months ago when he injured it in an accident. Thought at the time that it was accident related. After two months, the lump is still there, though my son doesn't know if it was there all along or if the original swelling went away. This could just be a coincidence. Anyway, he has an MRI scheduled for Tuesday. The doctor has not mentioned cancer or anything like it, but I can't help being scared. The lump is hard and painless and not on a bone, but on the inside of his lower leg. When I did an internet search to look for possible causes, about the only thing that came up, (over and over!) was rhabmyosarcoma (sp?) and other soft tissue sarcomas. Scary!
I haven't told my son my fears since at the moment, they seem silly. He's 16, btw.
I also want to send thoughts and prayers to Chris and his family. Hopefully things are going well. He sounds alot like my son. My son taught himself guitar and bass guitar. He's getting pretty good at it.
I came to this board because my son has a lump on his leg that he noticed two months ago when he injured it in an accident. Thought at the time that it was accident related. After two months, the lump is still there, though my son doesn't know if it was there all along or if the original swelling went away. This could just be a coincidence. Anyway, he has an MRI scheduled for Tuesday. The doctor has not mentioned cancer or anything like it, but I can't help being scared. The lump is hard and painless and not on a bone, but on the inside of his lower leg. When I did an internet search to look for possible causes, about the only thing that came up, (over and over!) was rhabmyosarcoma (sp?) and other soft tissue sarcomas. Scary!
I haven't told my son my fears since at the moment, they seem silly. He's 16, btw.
I also want to send thoughts and prayers to Chris and his family. Hopefully things are going well. He sounds alot like my son. My son taught himself guitar and bass guitar. He's getting pretty good at it.
Maryilee
10-02-2004, 09:31 PM
I'm so sorry that the test results weren't what you had hoped. It has to be the hardest thing in the world to go through.
My son has no other symptoms, so I'm guessing his lump is just a cyst or something. He has an MRI on Tuesday, so then we'll have more answers. He has a hereditary form of anemia, so symptoms like your son had probably would have been attributed to that.
I will be thinking of your son and pray that his MRI shows better news.
Mary
My son has no other symptoms, so I'm guessing his lump is just a cyst or something. He has an MRI on Tuesday, so then we'll have more answers. He has a hereditary form of anemia, so symptoms like your son had probably would have been attributed to that.
I will be thinking of your son and pray that his MRI shows better news.
Mary
CKUCLER
10-06-2004, 01:10 PM
Pam,
I am so sorry to hear about your son Jason and what you guys are going through. I can't even imagine it. I am glad to see you are faithful in your prayers. Keep praying for Gods strength in Jason and that he would give him the strength to go one more day with treatment. If anyone understands pain and suffering it is Christ himself. I will be praying for Jason to want to fight and to remember it's not the Dr's who heal him but the Lord. Just because the Dr's say there is no cure doesn't mean God can't make a miracle happen. It's one Dr.'s opinion and just constantly remind him of your love for him and to fight, even though it's hard. Just as you said a cure could be right around the corner. Never lose hope and I'll pray he don't lose hope as well. It's tough I know, but remind him of Job. Who lost everything including his health and God restored him his health and everything ten fold. Please keep us updated on him and know I will be praying for you guys in these hard and difficult times.
In His Grip,
Ckucler
I am so sorry to hear about your son Jason and what you guys are going through. I can't even imagine it. I am glad to see you are faithful in your prayers. Keep praying for Gods strength in Jason and that he would give him the strength to go one more day with treatment. If anyone understands pain and suffering it is Christ himself. I will be praying for Jason to want to fight and to remember it's not the Dr's who heal him but the Lord. Just because the Dr's say there is no cure doesn't mean God can't make a miracle happen. It's one Dr.'s opinion and just constantly remind him of your love for him and to fight, even though it's hard. Just as you said a cure could be right around the corner. Never lose hope and I'll pray he don't lose hope as well. It's tough I know, but remind him of Job. Who lost everything including his health and God restored him his health and everything ten fold. Please keep us updated on him and know I will be praying for you guys in these hard and difficult times.
In His Grip,
Ckucler
Maryilee
10-09-2004, 06:28 PM
My son's MRI came back just saying that it was inflammation/and or a soft tissue contusion. It was all in the fat tissue. I guess it's scar tissue from his bike accident? The doctor said for him to take ibuprofen and if it isn't resolved in a few weeks, to call him. I saw the MRI report, but couldn't really make sense of it.
Boy, it seems like with your son, it's two steps forward, one step back. :-( I so hope everything turns out well. I also have an 18 year old son in addition to my 16 year old. Even though they are adults, doesn't it seems like just yesterday they were little boys running up for hugs?
Boy, it seems like with your son, it's two steps forward, one step back. :-( I so hope everything turns out well. I also have an 18 year old son in addition to my 16 year old. Even though they are adults, doesn't it seems like just yesterday they were little boys running up for hugs?
hannasnana
10-11-2004, 12:48 AM
:wave: Will be continuing to pray tonight for you, your son and family. You all must be exhausted.
God Bless :angel:
God Bless :angel:
mziquit01
10-11-2004, 01:04 AM
I am a new member to this health board. Thankful for this kind of support on our health concerns. I will pray for your sons health and your peace of mind and strength. Try not to cry, tell your son there is a chain of prayers and support! I will be here, as will many i'm sure to talk to when you need to. God Bless
hannasnana
10-11-2004, 02:21 AM
Hi Mzi, welcome to this board. Prayer is a power tool isn't it? I couldn't have made it through my life without it......and my relationship with the Lord.
God Bless :angel:
God Bless :angel:
NOTSONUTSO
10-16-2004, 10:19 PM
Dear Pam: Thank you for sharing your beautiful story of hope and heartache. I am praying for your precious son. We cannot begin to understand why children get this horrible disease. It is hard enough for adults to deal with. I, myself, don't have any 'personal' experience with cancer. I do have a first cousin in town who is gynecologic oncologist. I hope Jason's doctors are as caring and compassionate as my cousin is with his patients.
Please keep us posted. I am praying for a Happy Ending (new beginning) for your son.
Please keep us posted. I am praying for a Happy Ending (new beginning) for your son.
bunny2
10-18-2004, 02:20 PM
I have a cousin that was diagnosed with brain cancer when he was 1. He was given a 2% survival rate. Today he is 4 years old and cancer free. So miracles do happen and just know that you and your family will be in my prayers.
hope1220
10-19-2004, 06:04 PM
My heart breaks for you Pam-- I lost my mom and dad from lung cancer in May of 2003 (they died 15 days apart and were both young 60's)-- this is a terrible disease-- but especially for a child. I have a son 15 years old as well and they think they are indestructable and we pray they are. I wished there was something I could do personally but just know that Jason is on my prayer list in SS and personally. I think of him often. Please keep us posted on him.
Love and Hugs-- Hope B. Memphis -Tn.
Love and Hugs-- Hope B. Memphis -Tn.
hope1220
10-20-2004, 10:51 AM
Pam ~ Thanks for the update-- we are praying and will continue until he is rid of this problem. Keep us updated when you can. Love and Hugs-- Hope B. Memphis, Tn.
hope1220
10-20-2004, 11:41 AM
Pam-- I don't know why I didn't think to offer this earlier but wanted to extend this offer and hope that you pray about it and let me know if you think you would like to explore this option.
I live in Memphis Tennessee very near the infamous St. Judes Children's Hospital which claims great success in many childhood cancers. Please research their hospital [ removed ] but I have also heard that St. Jude has special "family suites" for families traveling from out of town in search of treatment also - [ removed ]But take a moment to research the stats on St. Jude
Hope B. Memphis, Tenn. [ removed ]
I live in Memphis Tennessee very near the infamous St. Judes Children's Hospital which claims great success in many childhood cancers. Please research their hospital [ removed ] but I have also heard that St. Jude has special "family suites" for families traveling from out of town in search of treatment also - [ removed ]But take a moment to research the stats on St. Jude
Hope B. Memphis, Tenn. [ removed ]
lovekennedy
10-21-2004, 05:11 PM
oh love, i'm so sorry. you'll fight this, you're whole family will. sending you prayers and a hug.
Lauren
Lauren
positive4u
10-25-2004, 02:46 AM
Pam, my heart bleeds for you & Jason. One personal question that you don't have to answer if you don't want to--would Jason be able to do any sperm banking to preserve his heritage? I'm not trying to sound cruel, but had to do this in my own case. Sending prayers your way.
Positive4U :)
Positive4U :)
Let It Bleed
10-25-2004, 02:51 AM
G'luck Jason & Pam. Jason is a fighter by the looks of it, but so is mom. Praying for everyone involved. I don't post much, but I'm always reading. Keep in touch.
lbp35
10-25-2004, 09:35 AM
Pam,
I totally agree with you. Worry about Jason right now. Do all you can to get him well. You never know what will come up in the future medically that could help him with the children thing some day.Maybe he would even adopt. There are wonderful children out there who need families. I pray for my friend who has throat cancer every night and I also include Jason. Trust God & please take care of yourself also!
I totally agree with you. Worry about Jason right now. Do all you can to get him well. You never know what will come up in the future medically that could help him with the children thing some day.Maybe he would even adopt. There are wonderful children out there who need families. I pray for my friend who has throat cancer every night and I also include Jason. Trust God & please take care of yourself also!
Soulcatcher
10-26-2004, 11:41 PM
I will pray! ^i^
NOTSONUTSO
10-27-2004, 02:06 AM
Pam, I have been praying for you and Jason. I am still hoping for the Happy Ending/New Beginning for your precious first-born. Please let us know how it goes.
wana lee
wana lee
hope1220
10-28-2004, 12:55 AM
First of all let me tell you that you and Jason are still in our prayers and will be until you guys are through with this. But just wanted to mention that 7 years ago I had a son that was born 17 weeks premature!!! He only weighed 1lb 4oz. He is perfect now (thank the good Lord) - no problems at all none - he doesn't even have to wear glasses which is very common for preemies. But the reason I am telling you this is I spent many many hours at the NICU waiting for any length of time to go and just sit by my baby. When I had to wait in the waiting room I met many people. One mom was there waiting to see her preemie twins that were doing fine but a bit under weight. During our conversation she told me that she felt extremely lucky. She said a couple of months before she and her husband were to marry - he found a lump in one of his testacles. It turned out to be cancer and both testacles were removed. The cancer was very agressive and had spread to other parts (sorry I can't remember where) - but they decided together to "bank" his sperm - just in case. His health worsened and they postponed their wedding more than once. He was experiencing severe depression. Eventually they were married - no wedding. After a long battle and many surgeries her husbands cancer disappeared. He looked as healthy as a horse at the hospital waiting to see his babies. But I remember him trying to comfort me when I was so worried about my son. Doctors originally told me he only had a 30% chance of survival and he would surely be impaired mentally and probably be legally blind. None of that was true. And this man told me his story and said that his doctors never thought he would beat the cancer but he did. I just wanted you to know that others have been in the same situation and are just fine now. I know how hard it must be for all of you, but there are many people pulling for him and I know it is hard thinking that he won't have "his own" children -- but you never know what other doors this may open for him in the future. He could later marry and adopt the most precious child he could hope for and if it weren't for his decision not to "bank" that thought may not have occurred to him. You never know what one action will bring to you later on in the years so try not to worry so much about that dear - Sending prayers and hugs your way-- Hope B.
NOTSONUTSO
10-29-2004, 12:13 PM
Jason is an inspiration to me. Thank you, Pam, for 'introducing' us to your son. Go Jason!!!!!!!!!!!!!!!!!!!!!!!!!! :bouncing:
hannasnana
10-29-2004, 01:08 PM
Hi Pam,
Thank you far always coming back to post the results for your son. All of us moms hearts and prayers are with you both.
About Jason not wanting to take the narcotic for pain, my daughter is the same way. She has just started to have migraines in the last year on a continual basis and would rather endure the pain than the side effects of the narcotic drugs. There are other meds for her, but she does not like the narcotics.
Your a wonderful, brave mom!!! God Bless you, I know you must be so tired and burned out. I pray that the Lord will refresh you and strengthen YOU.
God Bless!!! Take CARE!!!!
PS....will also keep Jason in our prayers too.
nana
Thank you far always coming back to post the results for your son. All of us moms hearts and prayers are with you both.
About Jason not wanting to take the narcotic for pain, my daughter is the same way. She has just started to have migraines in the last year on a continual basis and would rather endure the pain than the side effects of the narcotic drugs. There are other meds for her, but she does not like the narcotics.
Your a wonderful, brave mom!!! God Bless you, I know you must be so tired and burned out. I pray that the Lord will refresh you and strengthen YOU.
God Bless!!! Take CARE!!!!
PS....will also keep Jason in our prayers too.
nana
gemmy200
10-29-2004, 03:49 PM
Ecclesiastes tells us that there is a season for every purpose under heaven,
Even a time to heal,
This prayer is for you Jason.....
A prayer for healing at this time.
May you be healed of your sickness,
may you be healed from emotional wounds,
And may the Lord make his face to shine on you and give you peace.
In Jesus name......AMEN! :angel: :angel: :angel: :angel: :angel: :angel:
Even a time to heal,
This prayer is for you Jason.....
A prayer for healing at this time.
May you be healed of your sickness,
may you be healed from emotional wounds,
And may the Lord make his face to shine on you and give you peace.
In Jesus name......AMEN! :angel: :angel: :angel: :angel: :angel: :angel:
MySonChris
11-01-2004, 10:14 PM
Hello Pam, Jason and all. I am so sorry it has been so long since I have posted here. Pam, you and Jason will be in my prayers! Chris and I have been going back and forth to Bethesda getting his chemo and before that he had all kinds of tests to see if he was eligable for the study ( he is obviously). Chris has rhabdo like Jason but the main mass was located behind his scrotum and had spread to his bone marrow and lymph nodes in his abdomen. He has since been through all the 'regular' chemo and an auto BMT using his own stem cells which went very well. He had a complete response to the chemo and is so far cancer free. So now we are going to Bethesda for his third round of chemo before the transplant using his sisters cells. The transplant will happen after Thanksgiving and with any luck he will be out of the hospital for Christmas! We will have to stay in Maryland for a month or two after he gets out to be sure there are no complications and then we can come home. He is so positive and strong and I know he would tell Jason to never give up! I know that everyone is different, but Chris has had a fairly reasonable reaction to the chemo as far as nausia. He had the most difficulty during his 5 day hospital stays, but what he gets now they give him in a pump that he carries in a fanny pack that runs for 24 hours and then they change it and it runs another 24 hours for 4 days. Then they give him a 'bollus' of another drug on the fifth day which is the one that has the most risk of causing nausia. No hospital stays! They say it is easier to tollerate that way and it seems to be so much easier for Chris. I have no idea if something like that would be available for Jason.
I hope to be able to keep up with reporting Chris' progress better than I have been. Best of luck to you, Pam and your wonderful son Jason. Remember that with God, all things are possible.
I hope to be able to keep up with reporting Chris' progress better than I have been. Best of luck to you, Pam and your wonderful son Jason. Remember that with God, all things are possible.
scheryl
11-04-2004, 12:15 AM
I know just how you feel. My son has a cancerous ependymoma. 3rd ventricle. We live in Mn and he had surgery done at childrens in mpls. It now has been 4 yrs and he just turned 15. [ removed ] I will be praying for the best possible outcome for you and your son. Just keep putting one foot in fromt of the other.
Scheryl :wave:
Scheryl :wave:
NOTSONUTSO
11-05-2004, 11:49 AM
Dear Pam, I appreciate you keeping us updated on Jason's treatments, etc. I am fervently praying for this young man. I 'tear up' every time I read your posts. My heart aches for you. It must be almost unbearable for you to see your son's struggles and fears and wanting to take it all away. Please don't give up, Jason!!!!!!!!!!!!!!!!!!!! I am rooting for you!!!!!!!!!!!!!! :) wana lee
annonymousgirl
11-07-2004, 06:50 PM
I'm not a parent, but I feel for you. I hope that things get much better for you, and maybe God will answer your prayers in the way you wish, and your son will be cured. I will keep you and your family in my prayers. [ removed ]
God Bless,
Robyn
God Bless,
Robyn
jane777
11-14-2004, 04:57 PM
hi there i am so very sorry to hear about your son my thoughts are with him and you at this time, i know what you are going through, when my son was nine years old he was rushed to GREAT ORMOND STREET HOSPITAL with a brain tumor ( posterior fossa medulloblastoma ) our world was turned upside down, i know its so hard to stay positive but we have to for them, its so hard to watch them go through chemotherapy and radiation and all the time your thinking you would rather it be yourself then your baby,and every night you pray please let him be ok, my son did get through his cancer and is now 18, it has left him with other problems but he is still with us, i do hope you son will beat this and my thoughts are with you all, please keep in touch and let us know how he is doing.
jane777
11-15-2004, 11:38 AM
dear pam i am so sorry for you and your family right now, please try not to take to much notice of what other mums tell you, everybody is different, when blaine ( my son) had cancer there were other children there that had the same as him my son got through this others did not we are all different pam, dont give up hope pam, be strong your not going to bury your son he will get through this, and you cry as much as you want ( scream and shout if you have to) its ok to do so, i will be thinking of jason on the 17 this wed, when he has his scans, and i will be praying for you all, good luck jason, and take care of yourself to pam :angel:
MySonChris
11-15-2004, 01:41 PM
Hi Pam and everyone,
I am also praying for you and Jason and I know the fear and pain you are going through. It is so hard to know that there is the chance that your precious child might be taken from you...it makes me sick to my stomach and it still feels like some horrible nightmare that I can't wake up from. I have chosen to keep my head in the sand about most of the stats of rhabdo and no one told me ( and thankfully no one told Chris either) that no one with bone marrow involvement has survived. They gave Chris a 10% chance so naturally we are holding on to that 10%. There IS hope and there is a chance for recovery for both our children. Hang on to that! They CAN beat this cancer Pam so please tell Jason to fight and don't give up! Everyone is so careful not to give us false hope but all we want is a chance and with the help of God, Chris and Jason will have long, healthy lives. Such beautiful hearts they have, so much to offer...the world needs these young men to make this world a better place to live. And as stated before on this thread, with God, all things are possible!
Chris is doing very well right now. He has had his third round of chemo at the NIH and just after Thanksgiving he and I will be going back there to begin the work-up for his transplant. He will have all the PET and CT scans and all the rest and then begin the high dose chemo with the actual transplant happening on December 8th. I worry about Graft vs host and about rejection and all the many problems that could happen but I am just going to pray that he will do fine and it will be a complete sucess. I will be thinking of Jason this week as he has his scans and all and I will be praying for you both. I will ask God to surround Jason with His beautiful white light of love, strength and healing and to keep him safe.
As far as I know, the protocol that Chris is on is still open. I do not know what I am allowed to say here but you might look into it. I do not know if Jason fits the criteria or if you would even be interrested...do a search of clinical trials for rhabdo...the one Chris is on uses a related donors stem cells so good luck. There might be other trials that you might be interrested in. Best of luck and believe in miracles!
Charlene
I am also praying for you and Jason and I know the fear and pain you are going through. It is so hard to know that there is the chance that your precious child might be taken from you...it makes me sick to my stomach and it still feels like some horrible nightmare that I can't wake up from. I have chosen to keep my head in the sand about most of the stats of rhabdo and no one told me ( and thankfully no one told Chris either) that no one with bone marrow involvement has survived. They gave Chris a 10% chance so naturally we are holding on to that 10%. There IS hope and there is a chance for recovery for both our children. Hang on to that! They CAN beat this cancer Pam so please tell Jason to fight and don't give up! Everyone is so careful not to give us false hope but all we want is a chance and with the help of God, Chris and Jason will have long, healthy lives. Such beautiful hearts they have, so much to offer...the world needs these young men to make this world a better place to live. And as stated before on this thread, with God, all things are possible!
Chris is doing very well right now. He has had his third round of chemo at the NIH and just after Thanksgiving he and I will be going back there to begin the work-up for his transplant. He will have all the PET and CT scans and all the rest and then begin the high dose chemo with the actual transplant happening on December 8th. I worry about Graft vs host and about rejection and all the many problems that could happen but I am just going to pray that he will do fine and it will be a complete sucess. I will be thinking of Jason this week as he has his scans and all and I will be praying for you both. I will ask God to surround Jason with His beautiful white light of love, strength and healing and to keep him safe.
As far as I know, the protocol that Chris is on is still open. I do not know what I am allowed to say here but you might look into it. I do not know if Jason fits the criteria or if you would even be interrested...do a search of clinical trials for rhabdo...the one Chris is on uses a related donors stem cells so good luck. There might be other trials that you might be interrested in. Best of luck and believe in miracles!
Charlene
jane777
11-15-2004, 07:19 PM
dear charlene i am so sorry to hear about you son chris, and my thoughts are with you and chris at this very sad and hard time, i feel for you and pam at this time, stay strong and your babys will get through this, it does not matter how old they are they will always be our babys, i am thinking of you all :angel:
jane777
11-17-2004, 11:53 AM
dear pam, i am not sure what time it is there, it is 3.30pm here ( GB ) i can not stop thinking about jason and yourself it brings me to tears knowing the pain you are going through, i can understand jason wanting to give up, we think its bad when we are feeling ill for a couple of days :rolleyes: but to go through all the pain and feeling sick day in day out for months on end must be so very very bad, i hope jason can stay strong and keep going, i feel for him so much, keep it up jason you are a brave young man :) and pam i cry for you to,what you are going through as a mother is the worst thing ever, the thought of your baby being taken from you, and to watch him suffer like that its just not fair, the first thing i thought about when i woke today was jason and how the scans were going today 17.11.04. as i said dont know time there so not sure if he has had them yet, please let me know next time you are on site, my best wishes to jason,yourself and all your family my thoughts are with you all :)
jane :angel:
jane :angel:
jane777
11-18-2004, 10:09 AM
dear pam, thats the thing with all these test they take so long, jasons feeling bad already without going all day without food and drink,i remember my Blaine had to do the same thing, one time he said please mum give me a little drink i will not tell the doc, it breaks your heart to watch what they have to go through. i hope it will be tears of joy to pam, i will keep fingers crossed, my thoughts are with you all, thats the hardest bit waiting for results they seem to take forever, keep strong and positive pam, jason dont give up your doing so well, so brave, :) keep us posted pam and take care of yourself.
jane :wave:
jane :wave:
jane777
11-24-2004, 09:51 PM
hi pam,
so so glad to hear jasons scan results came back clear :bouncing: i do hope he will keep having his treatment, i will keep my fingers crossed, take care, and we will all keep praying for jason :wave:
so so glad to hear jasons scan results came back clear :bouncing: i do hope he will keep having his treatment, i will keep my fingers crossed, take care, and we will all keep praying for jason :wave:
kerry1
11-24-2004, 10:44 PM
Chris's Mom - how is he doing? I don't want God to take your son, either. All I can tell you is what I would do if I had cancer, or someone close to me had it - I would be VERY, VERY AGGRESSIVE and research the darn thing in every book, website, magazine, and health-store pamphlet I could find. I would read up on chemo & radiation, and natural treatments, including supplements and diets. That's just a part of my personality - try to knock me down and I come back up kicking twice as hard and saying "oh YEAH???". But I understand that you might just feel exhausted and overwhelmed. All I know is that doctors don't have all the answers, and the answers are somewhere out there, floating around, waiting for us to latch onto them. I wish I could give you something better than this. But good luck to you and God Bless. I'm praying for him too.
NOTSONUTSO
11-25-2004, 12:00 AM
Dearest Pam (mother of Jason)
I check here at least once a week to hear how Jason is doing. I know I will cry when I read your posts, but I can only imagine what you are going through and how hard it must be to write about your son's illness (or maybe it is a catharsis in some way???) I am praying that you and your precious son and his siblings and father will have a happy Thanksgiving despite the spector of serious illness hovering. I hope you guys will have many more holiday seasons to cherish together. I pray for Jason every day and I am still holding out hope for that happy ending/new beginning!!!!!!!!! XOXO!!!!!! :) luv, wana lee
I check here at least once a week to hear how Jason is doing. I know I will cry when I read your posts, but I can only imagine what you are going through and how hard it must be to write about your son's illness (or maybe it is a catharsis in some way???) I am praying that you and your precious son and his siblings and father will have a happy Thanksgiving despite the spector of serious illness hovering. I hope you guys will have many more holiday seasons to cherish together. I pray for Jason every day and I am still holding out hope for that happy ending/new beginning!!!!!!!!! XOXO!!!!!! :) luv, wana lee
holst
11-27-2004, 01:38 AM
Pam,
You are tearing my heart out with your posts about Jason. I hope and pray that God will grant healing for him. I can't imagine your pain seeing your son in such agony and having the thought that you could lose him. I am happy that you have some good news with the clear scans.
I came to this board a short while ago because my sister, who is also schizophrenic, was just diagnosed with small cell lung cancer, with mets to the liver and brain. She has had such a hard and lonely life. My heart is in pieces for her. Even though she has had such struggles in her life I still don't want her to die. I wish I could have done more to make her life happy.
Prayers and blessings to Jason and Chris and everyone suffering from this horrible disease.
You are tearing my heart out with your posts about Jason. I hope and pray that God will grant healing for him. I can't imagine your pain seeing your son in such agony and having the thought that you could lose him. I am happy that you have some good news with the clear scans.
I came to this board a short while ago because my sister, who is also schizophrenic, was just diagnosed with small cell lung cancer, with mets to the liver and brain. She has had such a hard and lonely life. My heart is in pieces for her. Even though she has had such struggles in her life I still don't want her to die. I wish I could have done more to make her life happy.
Prayers and blessings to Jason and Chris and everyone suffering from this horrible disease.
lululemon
11-28-2004, 01:42 AM
Hi Pam,
As I read your posts, my heart and prayers go out to you, your son Chris, and your family. Being a mother myself I can't begin to imagine being in your situation. My 10 yr old daughter was diagnosed with an illness earlier this year and it was horrible being in and out of the hospital.She is doing much beter now.We were blessed to come acoss something that helped her and may be of some help for you son aswell. I wish your son the best of health and my prayers and blessings are with you and your family.
As I read your posts, my heart and prayers go out to you, your son Chris, and your family. Being a mother myself I can't begin to imagine being in your situation. My 10 yr old daughter was diagnosed with an illness earlier this year and it was horrible being in and out of the hospital.She is doing much beter now.We were blessed to come acoss something that helped her and may be of some help for you son aswell. I wish your son the best of health and my prayers and blessings are with you and your family.
holst
11-29-2004, 01:00 PM
Pam,
Since I first read your posts, I have put Jason in my prayers. I can actually feel the pain through your words as you write about the agony you are going through watching your son endure chemo. There is always hope through prayer.
Thank you for the prayers and sentiments you expressed for my sister.
Continued blessings to you and your family,
holst
Since I first read your posts, I have put Jason in my prayers. I can actually feel the pain through your words as you write about the agony you are going through watching your son endure chemo. There is always hope through prayer.
Thank you for the prayers and sentiments you expressed for my sister.
Continued blessings to you and your family,
holst
ash10
11-30-2004, 12:58 AM
My eyes swelled right full with tears when I read your story. I too have cancer and through the cancer clinic I met this girl who only has a 6% chance of living. I know exactly how you must be feeling and at a time like this I find it best to praise God for everything he has given you. You shouldn't block out all possibilities though, but remember that God has a plan for everyone...If God brings you to it, He'll bring you through it! I have learned alot about life these past years through my treatment and the strength that I find in so many individuals diagnosed with cancer is unbelievable... it is my inspiration to keep going. Hearing of your son it sounds like he is strong-willed and won't give up. Those of us who may lose a battle make an impression; an impression for the rest of us to work on to win the war. All my love, support, luck, and prayers are with you.
I'm not sure if this is the kind of response you were looking for but please feel free to contact me if you need someone to listen or talk to.
-Ashley
I'm not sure if this is the kind of response you were looking for but please feel free to contact me if you need someone to listen or talk to.
-Ashley
shellie562
11-30-2004, 12:48 PM
Dearest Pam, I am new to this site & just happened upon this thread while looking for bunion sugery info(ugh!).. :angel: Maybe God led me here, as he leads me daily..maybe a conincidence..MAYBE NOT!..I too am a mother whose life was changed by CANCER. My son Aaron was 3 yrs. old and only lived 5 mths. after his diagnosis-Malignant Rhabdoid Tumor of the Kidney. The most important/touching part of Aaron's story was not that he died, but how he lived & how God lived through him. Only due to my desperation during his illness, did I open my eyes to God's love and see his "work" in my life..I knew that God had all of the power to heal my child and that HIS will, not mine would be done..but that didn't stop me from praying incessantly that he would heal him..I know that my closeness to God & my faith in Him are what allowed me to have ever present grace through Aaron's ordeal-that was God's grace, not mine!..That same grace is the grace that God has bestowed upon you to encourage Jason to continue his battle...if there comes a time to give in, to cease fighting, and you are close to God HE WILL TELL YOU & there will be no denying his message....IF NOT, you follow every "instinct", that instinct is God...He could have allowed anyone to be Jason's mother, but he chose you...he knew that you would be his strongest advocate and his prayer warrior when he needed it most. I don't believe that God causes us or our children to get sick...but I do believe that when afflictions strike us, if allowed, he will use it for his glory & honor. I will be praying faithfully for you, Jason, & your family. God has a plan, you are his child, and he will never forsake you!...... Prayerfully, Shellie (I will continue to monitor Jason's progress)
holst
12-01-2004, 11:00 PM
Gosh Shellie,
What a beautiful and powerful message you have shared about gaining strength through God's love. I am so sorry for the tremendous loss of your son, Aaron. It is the ultimate sacrifice in this life and nothing but God's love can fill that void. I am struggling with dealing with my sister dying from cancer at this time. I have not always been religious, but am finding a bit of peace in believing that she will have a better and joyous life beyond this one.
Thank you for sharing your story. The world is a better place with people like you in it.
take care,
holst
What a beautiful and powerful message you have shared about gaining strength through God's love. I am so sorry for the tremendous loss of your son, Aaron. It is the ultimate sacrifice in this life and nothing but God's love can fill that void. I am struggling with dealing with my sister dying from cancer at this time. I have not always been religious, but am finding a bit of peace in believing that she will have a better and joyous life beyond this one.
Thank you for sharing your story. The world is a better place with people like you in it.
take care,
holst
NOTSONUTSO
12-03-2004, 01:19 PM
Dearest Pam, I wanted to make a quick check here to see how Jason is doing. My heart is just breaking for you and your precious family. Thank you so much for sharing such sacred parts of your life with us. It gives me a whole new perspective on my life and makes me so much more aware of my blessings. I am crying as usual for Jason and his dear mother, but I don't mind. I think about you guys every day. I even emailed my cousin who is a gyn oncologist here in town (just to "vent.") All of his patients are female obviously, but he has had some young patients with rare sarcomas in the uterise (sp?) , etc.
I feel so inadequate and helpless. I will continue to pray for you and Jason and enlist others to do so. Jason, please, please, please don't give up. Archer family--have a Merry Christmas and I pray for a wonderful New Year. wana lee :) God be with you.
I feel so inadequate and helpless. I will continue to pray for you and Jason and enlist others to do so. Jason, please, please, please don't give up. Archer family--have a Merry Christmas and I pray for a wonderful New Year. wana lee :) God be with you.
NOTSONUTSO
12-13-2004, 02:58 PM
Hi Pam! I'm sorry you haven't heard from Chris's mother. Maybe they are just really busy with the holidays, and hopefully, "no news is good news?"
I am wondering how you and Jason and the rest of your family are doing? I hope you guys are enjoying the beauty of the holiday season. I pray for Jason every day that he can have a full and happy life. Merry Christmas to the Archer family!!!!!!!!!!!!!! With love, wana lee :)
I am wondering how you and Jason and the rest of your family are doing? I hope you guys are enjoying the beauty of the holiday season. I pray for Jason every day that he can have a full and happy life. Merry Christmas to the Archer family!!!!!!!!!!!!!! With love, wana lee :)
NOTSONUTSO
12-15-2004, 02:25 PM
Dear Pam, I read the article about Jason and was moved to tears as usual. What a brave young man! I'm glad the doctor was encouraging him to continue treatment instead of being so pessimistic like the first doctor who basically gave Jason a "death sentence." Once again, I thank you for keeping us all updated on Jason. I hope Chris is doing well and that you hear from his mother soon. Jason: Happy 19th birthday (12/16) and may you celebrate many more!!!!!!!!!!!!!!!! wl
jane777
12-24-2004, 07:52 PM
dear pam just wanted to say that i am thinking of jason,you and your family at this time,and i hope that 2005 brings you good news my very best wishes to you all. :wave:
MySonChris
01-08-2005, 11:00 PM
Dear Pam, Jason and everyone,
I am so sorry it has been so long without writing to let you all know what is going on. I have had a hard time getting on a computer and it has been pretty busy for us here at the NIH. Chris is fine thank God! And thank you for all the prayers and concern! Chris' stem cell transplant was Dec. 8 and except for 3 weeks non stop of 'the runs' , nausia and pnumonia, he did great. He left the hospital on Christmas day and we have been at the Inn ever since. We will stay here for a couple of weeks more ( hopefully that is all) before going back home to Colorado. Pam, I pray for you and Jason every time I pray for Chris (which is pertty much every day) and we feel that God has been right here helping us and we feel we have been given a miracle...and we pray that you and Jason have already received one too! Sounds like you had a nice Christmas and Jason sounds so strong! I hope you both do not give up! I have met several families here whose children also have rhabdo and they are doing well. Some of them have relapsed but are responding well to treatments and feeling pretty good. I have talked to some whose kids have had it for 6 or more years and are still doing well, still getting the chemo, but doing well none the less. Chris had trouble with nausia for several days but they just kept giving him his anti-nausia meds, trying different ones in different combos and it eventually went away. He is amazing to me...he never complained and when it was all over he said it all went much easier than he expected and was working out in the gym the day he was released from the hospital and continues to work out every 3 to 4 days. He is determined to live his life and not let this *#@! cancer slow him down... not for long any way. I am so proud of him and he is proud of himself too. The doctors are proud as well. I told them all along that Chris would amaze them and I think he has. You have an amazing son also Pam and you are an amazing mother! God Bless both of you in this new year!
Charlene
I am so sorry it has been so long without writing to let you all know what is going on. I have had a hard time getting on a computer and it has been pretty busy for us here at the NIH. Chris is fine thank God! And thank you for all the prayers and concern! Chris' stem cell transplant was Dec. 8 and except for 3 weeks non stop of 'the runs' , nausia and pnumonia, he did great. He left the hospital on Christmas day and we have been at the Inn ever since. We will stay here for a couple of weeks more ( hopefully that is all) before going back home to Colorado. Pam, I pray for you and Jason every time I pray for Chris (which is pertty much every day) and we feel that God has been right here helping us and we feel we have been given a miracle...and we pray that you and Jason have already received one too! Sounds like you had a nice Christmas and Jason sounds so strong! I hope you both do not give up! I have met several families here whose children also have rhabdo and they are doing well. Some of them have relapsed but are responding well to treatments and feeling pretty good. I have talked to some whose kids have had it for 6 or more years and are still doing well, still getting the chemo, but doing well none the less. Chris had trouble with nausia for several days but they just kept giving him his anti-nausia meds, trying different ones in different combos and it eventually went away. He is amazing to me...he never complained and when it was all over he said it all went much easier than he expected and was working out in the gym the day he was released from the hospital and continues to work out every 3 to 4 days. He is determined to live his life and not let this *#@! cancer slow him down... not for long any way. I am so proud of him and he is proud of himself too. The doctors are proud as well. I told them all along that Chris would amaze them and I think he has. You have an amazing son also Pam and you are an amazing mother! God Bless both of you in this new year!
Charlene
missann
01-12-2005, 02:38 AM
I am new to healthboards and wanted to see if there were others going through some of the same situations as I am going through. My husband was diagnosed with Rhabdo. January of 2004 and just finished treatments in November of 2005. I'm sorry I haven't had the time to read through all of the posts about the two boys, Chris and Jason, whom I'm assuming have Rhabdo as well. Are Chris and Jason children? My husband is 23 now and from what I've heard and read he is pretty "old" for this type of cancer.
Right now we are waiting for the results of all of the scans since he is finished with treatments. We are confident that they will all show no signs of cancer...yet we are very scared for what the future may bring. I pray that this new protocol will increase his chances at a long and healthy future!!
Hope you all are doing well! :)
Right now we are waiting for the results of all of the scans since he is finished with treatments. We are confident that they will all show no signs of cancer...yet we are very scared for what the future may bring. I pray that this new protocol will increase his chances at a long and healthy future!!
Hope you all are doing well! :)
missann
01-13-2005, 01:47 AM
Pam,
Thank you. My husband also has alveolar rhabdomyosarcoma, the doctors said that when he was diagnosed it had probably only been growing 6 months or less. However, you wouldn't have known it by the size of the tumor and the fact that it had already metastasized. We were lucky we caught it when we did because it almost distroyed his vision and it had almost reached the base of his brain.
I don't know if this is strange or not, but I find myself more depressed about everything now that treatments are over. I'm so afraid for the future. I feel like we fought so hard all year and now we're doing nothing...no chemo to keep it away...I feel defenseless...moreso than I did during treatments. I haven't been sleeping well because horrible thoughts just keep rolling over and over through my head. Everything is just so uncertain even if we do get great results from all of his scans. I keep trying to focus on the positives. I am so grateful for all of his doctors and the support everyone has given us. I haven't given up hope...just a little weary from being strong for everyone for so long.
Thank you for the prayers...
missann
Thank you. My husband also has alveolar rhabdomyosarcoma, the doctors said that when he was diagnosed it had probably only been growing 6 months or less. However, you wouldn't have known it by the size of the tumor and the fact that it had already metastasized. We were lucky we caught it when we did because it almost distroyed his vision and it had almost reached the base of his brain.
I don't know if this is strange or not, but I find myself more depressed about everything now that treatments are over. I'm so afraid for the future. I feel like we fought so hard all year and now we're doing nothing...no chemo to keep it away...I feel defenseless...moreso than I did during treatments. I haven't been sleeping well because horrible thoughts just keep rolling over and over through my head. Everything is just so uncertain even if we do get great results from all of his scans. I keep trying to focus on the positives. I am so grateful for all of his doctors and the support everyone has given us. I haven't given up hope...just a little weary from being strong for everyone for so long.
Thank you for the prayers...
missann
NOTSONUTSO
01-20-2005, 02:38 AM
Pam--I hope all goes well with Jason's lab work on Friday. I will be thinking about you guys and as always, keeping you in my prayers. Hope to hear from you soon for an update on "our Jason." wl :)
lisa30777
01-20-2005, 12:27 PM
Your family are in my thoughts and prayers x