matt'smom
04-16-2004, 06:51 PM
Hi again all,
Well, we just came from the nuerologist with a diagnosis of Autism. This is only one opinion, and when I called my pediatrician, he found it hard to believe. He said that I should definately get a second opinion. Any suggestions? Could the nuero be wrong ?(I hope)
Matt's mom
Well, we just came from the nuerologist with a diagnosis of Autism. This is only one opinion, and when I called my pediatrician, he found it hard to believe. He said that I should definately get a second opinion. Any suggestions? Could the nuero be wrong ?(I hope)
Matt's mom
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ABC~Mom
04-16-2004, 10:54 PM
i would get a second opinion...what could it hurt?
if your pediatrition found it odd then i would definatly seek other opinions.
good luck
if your pediatrition found it odd then i would definatly seek other opinions.
good luck
shue
04-17-2004, 11:22 AM
I would go see an pediatric psychiatrist or psychologist. See if you can find one affiliated with a medical school. Abby was diagnosed by three different psychologists/psychiatrists before we sought out the pedi. neurologist's opinion.
Good luck. I hope that you get a different diagnosis.
Good luck. I hope that you get a different diagnosis.
princessputter
04-17-2004, 09:48 PM
I would see a developmental speclisit... thats who dx`ed my son... a second.. third and even fouth opinion wouldent hurt.. but remember if it is autism.. ur not alone.. and it isent the end of the world either.. also... did the nuero say what kinna autism it is... there are a few on the spectrum.. i was told my son has classic autism... moderate to severe.. my son is also at this point is non verbal... so i would think that ur son would be higher on the spectrum.... keep your chin up... were always here if u need to talk... :bouncing:
matt'smom
04-17-2004, 10:54 PM
Hi again.
I think that I was so taken aback by the diagnosis that I didn't ask the nuero how severe it is. All she said was autistic. Matt is verbal, although he doen't engage anyoune in conversation. He likes talking to himself ALL the time. He sings nursery rhymes a lot too. He will look out the window and see flowers and say "oh, pretty flowers" over and over, but I'm glad that at least he knows what he's saying. He still does a lot of mimicing, but hasn't lost any of his language. He has become extremely active, much more over the last 2-3 months. He wakes up in the morning, walks directly over to the extra bed, and starts jumping for about 10 minutes. When I take him down, he turns aroung and does it again until he feels like he's had enough. Has anyone else had this experience? I was speaking to a family member about Matt's Diagnosis, and that I want another opinion. They tell me that it wouldn't hurt, but that a nuerologist is capable of making a proper diagnosis.
They also tell me that I'm in denial because I keep telling everyone that she could have been wrong. I will go ahead with the second nuero appt in June and keep my fingers crossed. I will get Matt involved in a ABA theraputic program in the meantime, because that couldn't hurt either.
Hopeful,
Matt's mom
I think that I was so taken aback by the diagnosis that I didn't ask the nuero how severe it is. All she said was autistic. Matt is verbal, although he doen't engage anyoune in conversation. He likes talking to himself ALL the time. He sings nursery rhymes a lot too. He will look out the window and see flowers and say "oh, pretty flowers" over and over, but I'm glad that at least he knows what he's saying. He still does a lot of mimicing, but hasn't lost any of his language. He has become extremely active, much more over the last 2-3 months. He wakes up in the morning, walks directly over to the extra bed, and starts jumping for about 10 minutes. When I take him down, he turns aroung and does it again until he feels like he's had enough. Has anyone else had this experience? I was speaking to a family member about Matt's Diagnosis, and that I want another opinion. They tell me that it wouldn't hurt, but that a nuerologist is capable of making a proper diagnosis.
They also tell me that I'm in denial because I keep telling everyone that she could have been wrong. I will go ahead with the second nuero appt in June and keep my fingers crossed. I will get Matt involved in a ABA theraputic program in the meantime, because that couldn't hurt either.
Hopeful,
Matt's mom
shue
04-18-2004, 10:48 AM
No. It's not the end of the world. While I wouldn't wish the difficulties that accompany ASD on anyone, I do feel blessed by Abby. Her differences make us privvy to first-hand miracles that we wouldn't witness otherwise and she has definately brought my husband and I closer together and closer to God. On a lighter note, things are certainly never dull around here!;)
Good luck to you Matt's mom. And keep hopeful.:)
Good luck to you Matt's mom. And keep hopeful.:)
kitswan
04-18-2004, 11:40 AM
Hi Matt'sMom,
My son, Riley was diagnosed with Autism this past Tuesday. Was I upset? Yes. To me, Riley is a sweet little boy, who will speak eventually. He has come a long way in the past 2 months or so, naming several objects in the kitchen. He loves to mimic all the Wiggles dance steps, and sing along (in his gibberish) to Blue's Clues and "Doda Exploda", as he calls her.
We had an in-home evaluation about a month ago, where Riley was considered on par within his age bracket for everything but speech. He was at a 16 month speech level. I was pretty happy. It WAS just a speech delay! Then came Tuesday.
We went to UMASS Pediatric Neurologist, and both the Ped and the Speech Pathologist said Riley had some level of Autism (what level, I'm not sure) and would benefit from 20-30 hours (a week!) of in-home therapy. Riley's symptoms? Mostly speech delay (speaks approximately 30 nouns, and no sentances), personality change, as in was a happy baby toddler, seems very fussy, agitated, and frustrated in the past year. Plays with other children, but no interest in adults. I can't complain, the doctor says it WON'T get worse, only better, with therapy.
Living in Massachusetts, which allows me some of the best medical care in the world, has been a comfort to me. As I understand it, Autistic programs are state funded here, and aggressive. I will go ahead and try out the therapy, and see how it goes. I've decided that it's not the label (Autism) that's important, it's where I go from here.
I've been on the computer most of the week, looking up information on Autism, and just now decided to look up message boards. This was the first one I came to, and as you and I seem to be in a similar boat, I thought I would stop in and say hello, and try to offer some encouraging words.
My best to you and your son,
Kit
My son, Riley was diagnosed with Autism this past Tuesday. Was I upset? Yes. To me, Riley is a sweet little boy, who will speak eventually. He has come a long way in the past 2 months or so, naming several objects in the kitchen. He loves to mimic all the Wiggles dance steps, and sing along (in his gibberish) to Blue's Clues and "Doda Exploda", as he calls her.
We had an in-home evaluation about a month ago, where Riley was considered on par within his age bracket for everything but speech. He was at a 16 month speech level. I was pretty happy. It WAS just a speech delay! Then came Tuesday.
We went to UMASS Pediatric Neurologist, and both the Ped and the Speech Pathologist said Riley had some level of Autism (what level, I'm not sure) and would benefit from 20-30 hours (a week!) of in-home therapy. Riley's symptoms? Mostly speech delay (speaks approximately 30 nouns, and no sentances), personality change, as in was a happy baby toddler, seems very fussy, agitated, and frustrated in the past year. Plays with other children, but no interest in adults. I can't complain, the doctor says it WON'T get worse, only better, with therapy.
Living in Massachusetts, which allows me some of the best medical care in the world, has been a comfort to me. As I understand it, Autistic programs are state funded here, and aggressive. I will go ahead and try out the therapy, and see how it goes. I've decided that it's not the label (Autism) that's important, it's where I go from here.
I've been on the computer most of the week, looking up information on Autism, and just now decided to look up message boards. This was the first one I came to, and as you and I seem to be in a similar boat, I thought I would stop in and say hello, and try to offer some encouraging words.
My best to you and your son,
Kit
KathleenW
04-18-2004, 05:01 PM
Kit, it sounds like you are doing all the right things. It takes a lot of time, hard work, and research to help your child. I completely agree with the doctor when he said with intensive therapy that Riley will not get worse only better. That is awesome that he is 29 months and you are already getting early intervention. So many people make the mistake of taking the wait and see approach. My thoughts are what if your child starts therapy and catches up immediately. Then you can discontinue services and not worry. What could hurt about getting them started immediately. There is a very small window that parents with children of autism have to get their child on the right track. The children with the best outcomes start therapy before the age of 3.
My son started his ABA program at 33 months and we are ecstatic with the results.
Let us know about his progress. We will all be wishing you and your child the best of luck!!!!!!!!!!!!!!!!!
My son started his ABA program at 33 months and we are ecstatic with the results.
Let us know about his progress. We will all be wishing you and your child the best of luck!!!!!!!!!!!!!!!!!
princessputter
04-20-2004, 10:23 PM
My mother inlaw is still in denyal.. and my sons dx was.. 6 months ago... my son had speech at 14 months and lost it.. he uses sign.. and occasionally says momma... i think everyone comes to terms with any dx.. at their own speed.. best of luck :bouncing: