Just found this board when I was looking for info on Chronic Inflammatory Demyelinating Polyradiculoneuropathy. My husband has just been diagnosed with it. I have MS and hypogammaglobulinemia (CVIDS). I know we sound like walking medical dictionaries, but actually we are just regular people. Would love to share with some others with the same problems.
Penny

HI Penny
Boy, you sure have a lot to deal with! :eek: I have low Iga possibly cvid. I'm going through testing now. Also, allergies, fibromyalgia and ibs. My husband had a knee replacement in Nov. and now has rsd as a result. Life sure can throw alot at us sometimes can't it! Do you have ivig therapy?
mamu

I have been on IVIG for about 6 mos now.......a treatment every 4 wks is what they have prescribed. It has taken a while for the gamma counts to come up, but they are getting better. Of course the IVIG has little effect on the other globulin factors so they continue low, but I knew that going in. I have only had to be hospitalized with a major infection (fungal kidney infection) once since I have been on the IVIG and I consider that a major victory. Before, it was almost a monthly event.
I have been on all of the meds for MS and all have had to be stopped for one reason or the other. A nice thing is that now they are testing (on other people) the efficacy of IVIG on MS. So, maybe I am treating both of the problems with one med. I have very little MS disability and haven't had a relapse in about 4 months, so things are looking up.
Now if we can just get my husband on some treatment for the CIDP!
Penny