Hi everyone,

Hope you're all ok.

I'm doing pretty good dizzy wise, get "off" moments throughout the day but on the whole not too bad at all. I still feel sooooo tired though, I'm really hoping I will eventually get some energy back. Does anyone know why we feel so fatigued with this, is it the sheer brain power being used to get better?? Subs??

I'm also doing a lot of studying at the moment, plus full time working and looking after two very energetic children. Maybe I've just answered my own question!!!

Any advise would be appreciated.

Cheers


Lizzy x

I'm also doing a lot of studying at the moment, plus full time working and looking after two very energetic children. Maybe I've just answered my own question!!!


I believe you just did answer your own question. All that would be enough to tire you out without the dizzy stuff. My husband and mother once sent me to the doctor because I kept on falling asleep at 9pm in front of the TV. Can't remember if I was out at work then, but certainly not studying as well. The dr. asked me how many kids I have (3) and what time I get up (6am) and said i was quite entitled to fall asleep at 9pm. Still, to please all concerned he sent me for blood tests - which were fine. Maybe you should get bloodwork too, just to make absolutely sure, and put any doubts to rest. (What actually upset my husband was I nodded off while he was talking to me!)

Sounds to me like you're doing just great.

Madeleine

Hi Lizzy

...." why we feel so fatigued with this, is it the sheer brain power being used to get better??".....



Well the theory goes---

There are a number of mental(cognitive areas ) process that are impacted---one of which is " decreased mental stamina"

---For a vestibular patient an hour or two of concentration is a special blessing, and most days 15 minutes of intellectual concentration is very fatiguing.

--So this decreased mental stamina can wreak havoc with your ability to function in any normal personal setting, from planning a menu to organizing your day's do list, to tracking your children's conversation.

---And Even when you're fatigued and vestibular and you know you put in a good day and have done the best you can, that internal lock that says "I know I did this, I can retrieve what I did today, I can look at the big picture, and I had a good day" is not there for most vestibular patients. That alone, even within a loving supportive family and with no financial problems, would create anxiety and depression.

---So---their(vestibular researchers)---hypothesis is:

--that the reason you have this problem as a vestibular patient is that your brain stem is affected. The brain stem is a stalk connected to the spinal cord. There are nuclei located in the brain stem that attach to your balance system; they are also highly important for keeping your cortex, your thinking areas, alert and aroused and attentive.

--They think---that since you're constantly fighting the mismatch from your visual input and your disordered balance system that a very basic mechanism -- a mechanism that was developed as you learned to sit and crawl and that influenced how you later manipulated objects and then walked and spoke and thought, a mechanism that's taken for granted and built into very fundamental habits -- could it be that something that fundamental is being distorted? That the vestibular and visual disturbance interferes with nuclei functioning within the brain stem and thus interferes with your sequencing of information and impairs and reduces your processing capacity?

---That is an intriguing hypothesis, exceedingly difficult to test

---Nevertheless it makes some sense, as anyone with a vestibular disorder can speak to

--- They think(guess) that you can get improvements through--training him- or herself to think again. As a vestibular patient, you must learn to move around in a slightly different-sized intellectual room. As you learn, just as in physical vestibular therapy....


In any case---that---is the where a large body of current thinking/knowledge is at...but...they have a long way to go........


.........."Any advise would be appreciated"....

With the current state of research---think---I would go with the advise of:

CALVIN COOLIDGE(he was known as "silent Cal")

Nothing in the world can take the place of PERSISTENCE.
Talent will not; nothing is more common than unsuccessful men with talent.
Genius will not; unrewarded genius is almost a proverb.
Education will not; the world is full of educated derelicts.
Persistence and Determination alone are omnipotent. The slogan "Press On,"
has solved and always will solve the problems of the human race.

Glad your feeling better!!

:cool:

Nearly cried at your post subs! Thank you! Liked the quote at end! v interesting about the brain thing. Yes lizzy get v tired with this and cognitively challenged daily! You're almost there it sounds! xxx

Thanks guys and thanks Subs, v interesting stuff!!

Madeleine I think you're right, when I think about it I used to fall asleep on the sofa at 10pm before this dizzy lark - very easy to put everything down to my ear probs. And I'm sure my ears used to crackle a bit before this as well, its just that I have now become very ear aware if you know what I mean. My ENT said he thought I had become a little "over vigilant"!!, by that I think he meant worrying unnecessarily!! Alright for him to say eh?

Subs, did you ever feel very fatigued during your recovery?

Lizzy x

Hi Lizzy

..." Subs, did you ever feel very fatigued during your recovery?"...

Every day for the first 8 to 9 months...could not sleep more the 2-4 hours at night---would jump right out of bed---for some reason---prob the flight or fight junk being triggered---by some movement I made in my sleep......bummer!!!!!!

:cool:

Yeah, remember you said you got that wierd jumpy thing at night, me too - its gone now thank god.

Just feel so tired by the end of the day......I will persevere! I am very thankful for the improvements I have seen on the dizzy front, I guess it will just take time to get back to my old self.

Thanks x