bcsimpsons
04-30-2004, 02:59 AM
:angel: Hi everyone,
My name is becky and I am 22 years old. I had a brainstem/cerebellum stroke on 12/24/03. Unfortunately, nobody believed that that is what was happening so I did not get diagnosed until about three weeks later. How stupid is that? Needless to say, therapy is going terrible. Balance is terrible in all positions. Left hand was affected and won't hold on to things to well. My legs were the most affected which really aggrivates me since I had been a dancer, diver, actress, going to nursing school, working as a nurses assistant. You name it, I was probably doing it. At the moment I can stand up for about five minutes but the whole time my legs shake violently. Dr says that it is due to increased tone. But this makes it very difficult to even stand let alone try to take steps. Therefore, I am still in a wheelchair :mad: :mad: :mad:. Thankfully my speech wasn't really affected since all that I am able to do from before the stroke is sing. this is the only thing that keeps my spirits up and pressing forward. There are so many days that I just want to curl up vanish from the cruel world that i live in. Thanks for having sights like this. It really helps to get your feelings out to people who can't yell at you for your feelings.
Becky :angel:
My name is becky and I am 22 years old. I had a brainstem/cerebellum stroke on 12/24/03. Unfortunately, nobody believed that that is what was happening so I did not get diagnosed until about three weeks later. How stupid is that? Needless to say, therapy is going terrible. Balance is terrible in all positions. Left hand was affected and won't hold on to things to well. My legs were the most affected which really aggrivates me since I had been a dancer, diver, actress, going to nursing school, working as a nurses assistant. You name it, I was probably doing it. At the moment I can stand up for about five minutes but the whole time my legs shake violently. Dr says that it is due to increased tone. But this makes it very difficult to even stand let alone try to take steps. Therefore, I am still in a wheelchair :mad: :mad: :mad:. Thankfully my speech wasn't really affected since all that I am able to do from before the stroke is sing. this is the only thing that keeps my spirits up and pressing forward. There are so many days that I just want to curl up vanish from the cruel world that i live in. Thanks for having sights like this. It really helps to get your feelings out to people who can't yell at you for your feelings.
Becky :angel:
Sponsor
janet119
04-30-2004, 09:35 PM
:wave: hi there,
im with you in the frustration of a brainstem stroke. i have had 7 of them. brainstem strokes seem to get better in the long term. one year post last stroke i was still not walking/standing or doing much of anything. now i am walking with a cane/walker, doing lots of stuff. it was a long road though, lots of therapy. keeep at it, yoour stroke is still pretty new. takes 2 years for most of what you will get back. after that the reocovery slows down. in my opinion after 2 years i am still getting better. did they find out why you had a stroke? thats important so you know how to fix it so you wont have another one.
hang in there....better days ahead.
janet
im with you in the frustration of a brainstem stroke. i have had 7 of them. brainstem strokes seem to get better in the long term. one year post last stroke i was still not walking/standing or doing much of anything. now i am walking with a cane/walker, doing lots of stuff. it was a long road though, lots of therapy. keeep at it, yoour stroke is still pretty new. takes 2 years for most of what you will get back. after that the reocovery slows down. in my opinion after 2 years i am still getting better. did they find out why you had a stroke? thats important so you know how to fix it so you wont have another one.
hang in there....better days ahead.
janet