:bouncing:

Hello everyone,

I am new to this message board. I was diagnosed with Acute Refractory Rheumatoid Arthritis a few years ago. That has been a long and challenging ordeal to say the least.

Three weeks ago I landed in the hospital in serious condition with a white blood count of 3, hemoglobin of 7 and platelets of 51. I was severely dehydrated since I hadn't been able to keep any food down for quite some time. Any way, long story short, I spent 15 days in the hospital and the team of doctors did all kinds of tests. First a CT scan to find out where to look. Then they did a brocialscope, bone marrow biopsy and a lymph node biopsy.

The broncial scope indicated that I had PCP pneumonia. They gave me a blood transfusion, tons of hydration. I ran a temp of 104 degrees for four days.

The lymph node biopsy came out clear. No lymphoma

But the bone marrow indicates Myelodysplasia syndrome. I saw the hemotologist/oncologist yesterday and she informed me that I have about a 50/50 chance of developing Acute Leukemia in the next 6 months. I am right in the middle of the fence. It could go either way for me.

I am posting to find out if there are others out there like me and their challenge with MDS.

Happy Days.
Yoprice

Yoprice, reading your post was like looking at my last 2 months of trying to find out what is wrong with me. My WBC is at 3.7 Hgb is up to 10 and at the lowest my platlet count was 45. I have seen Hem/Onc and Rhemy both are saying they don't know why, I work in a hospitel and the docs I work with are pushing me to ask for bone marrow Bx. I had iron infusion in Jan. all numbers went up...only to fall little each month after. This whole thing is making me crazy. I wish you all the best.