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2cutekids
05-11-2004, 09:41 PM
I have a 4 yo with possable Asperger's Syndrome or PDD-ONS. My dr's seem to think it is the AS, but he was in on of his full blown episodes. Not answering ?, ranting about things, and stuff like that. He started to slow down in his drawing about 4-5 mos ago. He use to draw great and now he will draw lines and scribbles. He talks non stop, is a tippie toe walker. He is overly friendly, has no stranger danger. He is the sweetest boy you have every met. Says " I love you" like 50 x a day. He throws tantums, and flaps his hands. He knows all of his letters, both upper and lower case since he was like 2.5. All of his colors, can count to at least 20 and form 10 backwards. He remembers everything.

We put him in a regular pre-school last week and seems to be doing good. The teachers have NO idea what this disorder is or how to work with it.

I have been thinking about trying the milk free diet. In fact today, I didn't give him any. I swear his speech was better, but I may be hearing things. lol. Should I do away with the wheat also, or just wait to see what the dariy does?

My dd seems normal, she is 18 mos, but since she has been about 1ish, little after, she can't handle fruit/juice and sometimes I wonder about veggies... they seem not to digest. Could it be a milk and fruit allergy at work, too much sugar? She also seems to get reacurent external yeast infections. Could this be something?

I know that I'm changing alot of subjects, but I have soo many ?, and little time...

Thank you and I hope to hear for some of you soon.

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autmom
05-11-2004, 11:26 PM
External yeast could be a sign of internal yeast overgrowth.
It seems to be a common problem in autism. I'm treating my 23 year old autistic son for that now. He also just started a milk free diet and is doing well with that. He didn't go wheat free since the testing didn't show he needed to. He's also taking many supplements due to what we found out. I had his tests done by mail at The Great Plains Lab.

My son was also very early with his numbers and letters.

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:wave:

texasmommy
05-12-2004, 10:10 AM
2cuteKids,
your son sounds a lot like mine. He is also 4, will be 5 next month. He is AS. He is a tippie toe walker too. Very smart, knew all his letters, numbers, colors shapes, etc. by about 2.5. His biggest problems are socially.....ecolalia and tantrums. He recites his favories show verbatum. He gives us a lot of joy. We have recently started him on the supplement DMG and will start him on multi-vitamin supplements high in B6 and magnesium soon. The DMG seems to help his tantrums a bit.

Good Luck!

KathleenW
05-12-2004, 01:31 PM
Yes!! Definitely take your son off milk. It changed my son 150%. I would keep him off milk for a whole month and try to keep a diary of all of the positive improvements that you see. If you don't notice a huge difference than I would keep milk in his diet. Read labels and check for words like casein and whey which are also milk. After 1 month without milk I would also try the wheat free diet. It would be hard to know what was really working if you did both of them at once. When I took milk out of his diet I also started using 50 mg of B6, 250, mg of magnesium and DMG every day.

BetsyAnn
05-12-2004, 02:11 PM
2cutekids,
I would definitely give the casein free and gluten free diets a try. I am still very new to this. My son has only been on the casein free diet for 3 weeks. The second day without any milk products we saw a big improvement in speech, since then the speech improvements have been more subtle. We have also noticed improvements in eye contact and responsiveness. The greatest improvement has been in sleep. It has been so dramatic that there is no way that it is coincidental or wishful thinking.

Our doctor told us to go casein free for three weeks before going gluten free also. I am going to wait a few more weeks before going gluten free. It's been alittle overwhelming eliminating every source of casein so I am not quite ready to eliminate the gluten. I am working on getting my family used to foods that are both casein and gluten free however to make the transition easier.

I have read that if your child has had autistic traits from birth that they are likely having problems with the casein. If your child has the regressive type of autism they are likely having problems digesting gluten. Also the proteins are so similar that if they have problems with one they are likely to have problems with the other. Also, soy proteins are very similar. So it is probably a good idea to avoid the soy also.

Our doctor recommends trying the casein free diet for at least three weeks and the gluten free diet for at least three months (it takes longer to rid the body of gluten.)The following is a qoute from literature our doctor gave us. "I have found this (CFD/GFD) to be the intervention that makes the most consistent difference. There are blood test that can be done to see if your child has a particlular problem with this but my experience has been that the accuracy is not great and so I usually don't order them. I think the best test is a trial of the diet."

We have had one dietary infraction. I served "casein posioned" cookies while
my son was napping. Well, I forgot to put them away and he got ahold of one after his nap. He did not sleep well for three days and his behavior was more autistic like than it had been. The morning after the cookie the teachers at his early intervention class immediately noticed a difference in his behavior.

My son is also on numerous supplements. Omega-3-fatty oil is the only one that made an immediate and very observable difference. I do believe that they all work together and help his overall health and development.

Good luck with your two cute kids.

laellis1975
05-12-2004, 11:36 PM
Hi, I also have a son who has aspergers syndrome, he is now almost 11, and I am trying the gluten and caisen free diet thing as well, seems great. Your son really sounds like he has aspergers syndrome. Most children with as, are very smart, as sounds your son. When my son was 2.5 years old, he would tell me the name of every song that came on the country music channel on tv, he would tell me who the artist was, and sing EVERY song, word for word! He did this for some time, then his interest changed. Anyway, the luten and caisen diet can be very hard to follow, as there is so many things that they cannot have, I have also cut out all processed foods, anything with artificial colors, or artificial flavors. Can be very frustrating, but can also make a big difference for them, especially for how they feel! Good luck to you.

jan58
05-14-2004, 02:03 PM
Dear "2 Cute kids"
Please get a reference from your doctor to get your son into a specialist.
These kids can be very bright and yet have other unusual characteristics.
The sooner he can get therapy and other help, the better! I wish you th e
best!! :)

 
 
 




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