Hi,
Has anyone had a similar experience to me? (I was 17...27 now) After having hepititus (the non-dangerous one) and Glandular fever twice i had to go into hospital for two seperate reasons and be put under general anaethetic twice in a very short space of time. (1 month in between).

I woke up from the second anaesethic gasping for air. I had also been given an epidural which didn't wear off for 3 days.
The next morning after the op and for the next year I was bed ridden, feeling like I was on a constant anaethetic drip. Doctors called it M.E offered me drugs (which I refused) I decided to try and help myself, through diet and supplements and homeopathic medicine etc.

This is where I am now for the last 5 years I have been able to work again, and have got on top of the fatigue, my eyesight is better and I feel better.
Some other problems despite my improvement have been getting steadily worse (I have to admit I have been going off my gluten/dairy/wheat free diet at times and this does seem to co-incide with when I get attacks.)

I have been getting attacks of numbness I am totally numb in quite a few places around my body which have not improved since day one but are gaining new numb areas, I will get an attack of numbness like I have been given a local anaesthetic...it will last anything form a couple of hours to days and then it seems to go but leaves the area not as before. (if that makes sense.) I am still getting visual problems, I have had attacks of serious incontinence caused by attakcs of numbness and have had episodes of breathing problems, dead feet dizziness, nausea. When I am really bad I can't speak properly as my left side of my face gets numb and can't move my hands , they feel like they have been held in freezing cold water and I can't use them properly.

My Doctor has told me that my blood tests all suggest an autoimmune disease or some type of disease (white blood cells active and crp levels and protein levels really high). I have had a lumber punch and an MRI scan both of which were normal. could it be something else they haven't thought of or could it be MS but with no signs yet?

Although I have been ill for 10 years I think these attacks and MS type symptoms have been really significant in the past 5 years. Surely it would have shown up by now on there scans etc, I can't understand it myself.

I don't know who to ask for help each doctor passes me to the next saying yes, she does have abnormal blood tests that show inflammation in the body etc but no-one can give me an anwser.

If there is someone who could suggest I be tested for something else or advise me I would really appreciate it, I gave up looking for the anwser for a couple of years until I kept getting more attacks which were leaving me worse off so I am carrying on again searching for a diagnosis.
Thanks

LR

I have simular symptoms as you and I have an autonomic nervous system disorder. If you answer yes to most of these questions, then you should have a Tilt Table Test done.
1. I feel my hands/feet tingling or burning.
2. I feel flushed or feverish.
3. I feel my vision is blurred.
4. I feel dizzy or lightheaded.
5. I feel like I am choking.
6. I feel my heart pounding.
7. I feel short of breath.
8. I feel nauseated.
9. I feel faint.
10. I feel I'm sweating extensively.
11. I feel my ears are ringing/buzzing.
12. I feel unsteady/wobbly.
13. I feel hot or cold. (extreme)
...there is more, but I won't go on. I know what you are going through with the doctors. I hope this might be about to help. Do you get dizzy when you stand up from a lying position, does your heart rate go up when you stand?
Even if you don't have many of these things, you should really try to find a neurologist!

Hi Eal,
Thanks for replying.

I get some of the symptoms you mentioned.
I get the tingling hands feet a lot
I get the like I have the flu feeling a lot of the time
I have the blurred vision
I get dizzy and lose balance.
I get short of breath, I feel sick a lot and have the ringing in my ears and my hands and feet go so cold that I can't use them properly.
but I have to say the Numbness and the eye disturbances are the most prominent/persistent symptoms, the others come and go.
I will enquire about the tilt-table test thing...what is it?