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cind
05-15-2004, 12:07 AM
I've recently been told by a Doctor I may have this syndrome altho its a difficult thing to diagnose. Is there anyone out there who has this or can give me any information about symptoms...prognosis..surgery etc??????

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zuzu8
05-15-2004, 05:46 AM
Cind,
I'm sorry you have this, but congratulations to your doctor(s) for a proper diagnosis...Thoracic Outlet Syndrome is pretty rare and so often mis-diagnosed.
Intensive physical therapy usually works...surgery would be the last resort in most cases.

With moderator's permission to post, here is a link to MEDLINE's website (the National Institutes of Health) and the page on TOS with info from the Cleveland Clinic and others. The board no longer makes links clickable, so you'll have to copy and paste it into your address bar:

http://search.nlm.nih.gov/medlineplus/query?DISAMBIGUATION=true&FUNCTION=search&SERVER2=server2&SERVER1=server1&PARAMETER=thoracic+outlet+syndrome&x=14&y=14

Good luck,

zuzu xx

tishea
05-16-2004, 10:30 PM
Thoracic Outlet syndrome can be caused by tightness in your pectoralis muscles of your chest...I would look up on the net some stretches for these muscles to loosen things up. I am not saying by any means that this is the cause of your trouble, it's just a common cause for some people. It can also be caused by some muscles in your neck called the scalenes. It might be helpful to try stretching these out too...by looking those up on the net too. Again, these are just some common causes for the syndrome and I am certainly not trying to diagnose anything. Make sure that your doctor thinks it's okay to do these stretches before you go ahead hard core with them. Hope you are well soon or have some relief

michmcdougal
05-19-2004, 09:50 PM
Have you experienced any type of facial tingling or pressure along with this problem? I have, in fact this is how it started, but my neurologist doesn't seem to think it is related to the thoracic outlet.

cind
05-25-2004, 12:33 AM
michmcdougal,
I have never had any of the symptoms you're talking about...the tingling in the face etc. My symptoms are in my arms and shoulders. I hope you find the root of the problem. It can be very frustrating. Good luck

cind
05-25-2004, 12:42 AM
davesfancy,
Thanks for the reply...it sounds so much like me. I spend alot of time on the computer and i know my posture is lousy. I started physical therapy today and can't wait to go again.......right now they have me doing the stretching thing every hour. I didn't get this way overnight and it won't get better overnight but I'm encouraged with the therapy. Best of luck to you
Cind

strbay
07-14-2004, 11:15 PM
I told my rheumatologist that I had numbness that went from my wrists to my pinkies and ring fingers (on both hands). It seemed to actually be worse at night. He told me that it is a condition that it is related to back injuries, arthritis, or poor posture. Like the above posts, I was advised that exercises that would strengthen my back and help my posture would improve the numbness. Mine did improve,... however, repetitive motion (like being on the computer) did irritate things.

payton
12-21-2007, 01:22 PM
have any of you heard of elevations in blood pressure in chronic TOS due to the compression of the vagal nerve. incase you are not pruvy to the vagal nerve situation - it is a cranial nerve that passes through the medial scalenes and anterior scalenes (which are major components of TOS) on its way to innervating the diaphragm, heart, GI, and other anatomical structure. it plays a major role in heart rate and BP. well i have had severe TOS for the last couple of years and about a year ago my BP has gotten pretty high at times, just curious.
-Thanks ahead of time





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