Hi,
I am new here and I thought i would share my experience from last weeks doctor visit. I originally went to my gp because i was experiencing burning hot sensations down either leg with pain to the touch (even if it was just a piece of clothing touching it) I would occasionly have the same sensations on the back of my arms and other places. She said it was "peripheral neuropathy" and referred me to a neurologist. I had all sorts of blood tests done which were all normal, then I had an mri ms protocol, to rule out ms. I went for the follow up appointment and the neuro doc had just received my test results as he was walking in the door. He told me to come look at the screen and told me I had 2 cysts on the left ventricle part of my brain. Then he said there was nothing he could tell me about them until I had another MRI which is going to be tommorow (monday) this news took me by shock and when the doctors visit was over I left with only the info that I have two cysts. I didnt know what to do or think. Acouple days later I got a fever with chills all over my body and shooting pains everywhere. I called my doctor and he never called me back. I have no idea the severity of this problem and I have had a week and a half to fantasize about how i could be dying or not. Is there anyone else with this same problem?? Should I get another neurologist.?? Is it normal for them not to tell me any details?? I still havent read about anyone who had 2 cysts..... one of mine is 4 centimeters.......

i dont know anything about cyst in the brain u could look it up on the net and see i also have the same problems i had a mri on brain for ms wont know my results until june first did u see the mris i was curious because i have my pictures and there is a white circle on the left brain and i seen something by my nose but i know nothing about mris and what to look for good luck if u dont think your nero is doing right with u i would find another for seconde opinion

Well,

Why do you have to wait so long to get your results?? I went back for another mri on monday and yesterday i went in again to the neurologist so that he could discuss the mri results with me. He told me that the two cysts have nothing to do with my symptoms. On my first visit he told me they had everything to do with my symptoms. Now all of the sudden he is saying it has nothing to do with it and the cysts are congenital which means they have been present since birth, and not to worry about them. He also said he has no idea wwhy i am suffering thses strange symptoms and he has ruled out everything that has to do with the brain or nervous system and said it was "probably a result of anxiety and stress" but then he kept saying he wasnt sure. So, he just wants me to get another MRI in a year to make sure the cysts are harmless. I never actually got to see my mris because they do everything on the computer and they didnt give me a copy, so i dont even know what color the cysts would show up as in your brain?????

my nero ordered some kind of sleep test also and it was done with some senser stuff and i guess it takes 10 to 14 days for the results ,he was waiting for them results to come in to .the hospital gives me a set of mris everytime i have one done so i have my own.the sleep center called to day i have to have a follow up done another sleep test my nero wanted t done guess i stop breathing alot in my sleep and he ordered a 2 1/2 nerve testing to be done on the 15 of june on my brain and arms legs .he is a ways away from me kinda a long drive he wanted to get a couple of test done so i wouldnt have to make so many trips and your nero saying different things and not being sure no wonder u are stessed this is my second nero my first one gave me and my husband 5 minuets the first time i set in a room for a hour they forgot about me if u arent comfrotable about what he said see another one for a second opinion u are aloud to do that keep me posted and i hope u find out whats wrong cause all them symtoms are not normal i also go see a rheumatoligist she has found out alot to

Well,

I have been searching through all of the posts on the board to see if anyone else suffered from my same symptoms. I came upon this post here.. and the only difference between my symptoms and hers is that my skin gets hot to the touch,I found this on page 26 I think :

"I have pain in my skin, that travels around my body in large patches. It feels like a bad sunburn or a bad bruise, but there are no changes to the skin's colour, temperature or thickness. It's usually in the areas from the waist down. It is painful without touching it, but if these patches are touched, it's aggrevated more. The patches can come and go without warning, and can move around. Additionally, I have several extremely painful points also, such as my lower back & hips, thighs, ankles & heels. I can tolerate broad pressure (like a flat hand), but if I'm pressed with a fingertip, it's excrutiating. Quite often I have difficulty walking because the pain on the backs of my heels is too severe (not under my heel, but on the back and sides, between ankle bones). I've been told I may have fibromyalgia, or reflex sympathetic dystrophy, but neither of these match my symptoms quite right... Have you heard of this before??"

how about rheumatoid arthuritis i was diagnoised with fibro also but i have the same pains and alot of health problems i was just diagnoised with ra my finger tips and wrist also get warm and my 2 index fingers are twisted and painful my hips ankles toes knees elbows lower back and neck are twisted and very painful do u go see a rheumatoligist that is who found mine

I havent been diagnosed with anything yet. I had a rheumatoid factor blood test and it was negative. I put a call in to my gp and i am going to see if she will refer me to a rheumatologist. i have a crooked pinky and i cant straighten my fingers on my right hand, but i was born with a crooked finger so i dont know if that has anything to do with anything.

i have a friend and her son was born with ra so it might be a posibility i did refere myself to a rheumy so if your gp doesnt u can find one yourself i dont know where your from if u was close by i could give the name of mine she is really good and she listens and she dont give up my blood test for a while didnt show anything but she knew something was wrong and she said to be paitent with her she will find it finally my blood test are starting to show she has me on a cancer drug now and i have to go back every two weeks for a month or 2 for blood work i am going through so many test right now iam seeing a hematoligist on wensday for my blood work he done im hoping its not what he thinks and everything is ok the first week of june i should get a lot of my results back