ladyinpink
05-26-2004, 10:26 AM
Recently I went to the DR. complaining about pain in my legs and a "rash" on my inner thigh. At first she was not sure what the problem was and thought maybe it was because I had started a heavier workout regiment. After I said a few more things she asked if I had anyone in my family with DM, Lupus or RA. I was not sure being I don't know any of my mothers family and only my paternal grandparents are around. My Dr. sent me down for an ANA and like we assumed it came back positive. My C level protiens where 1.24. My sister-in-law was diagnosed with DM just after she was got married in 1994 and has been doing very good for the past 3 years. Now to my point. She stated that her C protiens where a lot higher than my were and she also said that Birth Control can cause a higher level than normal. I am not sure what to do I have most of the symtoms but fear of loosing my insurance and the fact that I can't get an apointment with a Rhumatologist have me pulling my hair out!!! Has anyone else had a low c protien and still been diagnosed? Please help!
Ashley :confused:
Ashley :confused:
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ladyinpink
05-28-2004, 11:53 AM
My Dr said that was fine and she is still wanting me to see the Rheumatologist.
zip2play
06-06-2004, 09:28 AM
Ashley,
ANA and C-Reactive protein can go high from any mysterious infection, often the cause isn't found.
A good idea is to retest a month later and if still high run a battery of more sensitive auto-antibody, RNA and DNA tests (about 6 of them) that spell out more precisely if an auutoimmune disease is preseent.
Also the ANA pattern of cells on a slide is helpful in diagnosis.
Your family doctor can run all these tests with a simple blood draw.
ANA and C-Reactive protein can go high from any mysterious infection, often the cause isn't found.
A good idea is to retest a month later and if still high run a battery of more sensitive auto-antibody, RNA and DNA tests (about 6 of them) that spell out more precisely if an auutoimmune disease is preseent.
Also the ANA pattern of cells on a slide is helpful in diagnosis.
Your family doctor can run all these tests with a simple blood draw.
ladyinpink
06-08-2004, 05:03 PM
thankyou. My Dr. does not want to run anymore tests she just wants me to see a specialist. I am not experiancing any of the symptoms I had before and am not taking any medications. I think I may wait this out instead of putting myself there all those tests.
hannasnana
08-25-2004, 02:29 AM
Hi ladyinpink, I was able to lower my ANA by changing my diet to REALLY healthy and detoxing. You could try it then retest. I didn't go to a ruemologist at the suggestion of my Dr either. I wanted to treat my symtoms naturally. I think the meds they put you on are a hazzard to your health. I didn't test positive for lupas, arthritis, RA or anything like that. Just have a high ANA. I haven't tested lately, but I cut it in half the first year.
Achim
07-02-2006, 04:03 PM
Hello Hannasnawa
I have DM. How high was your ANA. Mine is 1:165....am encouraged about the fact that you could lower it through proper diet. What exactly would you recommend?
thx
Achim
I have DM. How high was your ANA. Mine is 1:165....am encouraged about the fact that you could lower it through proper diet. What exactly would you recommend?
thx
Achim
Galsal59
08-28-2006, 09:33 PM
I find this sentence interesting. Recently a C Reactive Protein test on my was at 1.260. I'm just curious to know if that was considered high. Rarely is an ESR elevated for me and when it is only just barely so. ANA is negative. Fwiw, I haven't been on birth control pills for years either.
I haven't a clue whether Myositis is involved here or not. I found a med record from a prior dr that had myositis on each visit. Personally, if it were more than just a temporary thing he would have said something, right.
My C level protiens where 1.24. ...she also said that Birth Control can cause a higher level than normal. Ashley :confused:
Thanks,
Sal
I haven't a clue whether Myositis is involved here or not. I found a med record from a prior dr that had myositis on each visit. Personally, if it were more than just a temporary thing he would have said something, right.
My C level protiens where 1.24. ...she also said that Birth Control can cause a higher level than normal. Ashley :confused:
Thanks,
Sal