XGypsyX
05-27-2004, 12:44 AM
Hello, what im about to post here i hope helps someone out.. because a few days ago i almost had a sever problem that costed my life.I am not posting this to scare anyone.. all my post is is saying make sure this Drug(topamax) is right for you and ask alot of questions to your doctor!
I had sever migrains.. they were every night. and my dr prescribed to me Topamax.
I took it for a period of 5 days. during this time i had 23 of the lesser known common side affects and one which was very dangerous.. was suicidal tendencies.. i am not normally depressed under any cercumstances.. so i knew it must have been the drug. However the problem with this was that topamax causes confusion..i had alot.. had you asked me to take a walk and find my way home..i would not have found my house.
Another problem was i was not able to communicate with anyone..i could barely think for myself.. and had it not been for the small bouts of time that allowed me to call for help i might not be here today to beable to post this to help someone else. This drug scares me. im sure it helps people with seizures and ive never had any of those so im not downing the possibilities of its possitive results for some. I am only suggesting before taking anything always always ask questions.
i asked many questions and i was not told it can cause suicidal tendencies.. now i will always look up all side affects to anyting i take.. (which wont be anything for a long time as i am not real trusting of anything i take prescribed) tahnks for listening..and if you have any of those side affects.. talk to your doctor emediatly.. be well.. Gypsy
I had sever migrains.. they were every night. and my dr prescribed to me Topamax.
I took it for a period of 5 days. during this time i had 23 of the lesser known common side affects and one which was very dangerous.. was suicidal tendencies.. i am not normally depressed under any cercumstances.. so i knew it must have been the drug. However the problem with this was that topamax causes confusion..i had alot.. had you asked me to take a walk and find my way home..i would not have found my house.
Another problem was i was not able to communicate with anyone..i could barely think for myself.. and had it not been for the small bouts of time that allowed me to call for help i might not be here today to beable to post this to help someone else. This drug scares me. im sure it helps people with seizures and ive never had any of those so im not downing the possibilities of its possitive results for some. I am only suggesting before taking anything always always ask questions.
i asked many questions and i was not told it can cause suicidal tendencies.. now i will always look up all side affects to anyting i take.. (which wont be anything for a long time as i am not real trusting of anything i take prescribed) tahnks for listening..and if you have any of those side affects.. talk to your doctor emediatly.. be well.. Gypsy
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papergoods
05-27-2004, 02:18 AM
what mg did you take? This is scary
XGypsyX
05-29-2004, 04:41 PM
they had me start out on 50 mg;s yes it is scarey..today ive done searches to find others who have felt the same way..and i found a website that dedicates alot of ppl that have suffered some light brain damage and also either commited suicide or attempted.. and im absolutly floored! at how many ppl there are who has had the same problems i did..and the scarey thing is.. is your almost a vegetable..having know idea what is going on so..how can anyone ask for help..during there times for depression? i stopped talking to everyone..i was agressive..and didnt want to hurt anyone so i always sat to myself..and most of all..i was so angry at my doctor..that i wanted to hurt him too(side affect no im not a violent person) but..that is why its dangerous..cause you have no idea what its going to affect and how..
i hope that they find something else for people to take for migrains and pain.. i for one wont ever take "anything" for migrains again. id rather feel pain the worst i could emagine then to feel the way i did for 5 days during my time with topamax. this druig in my oppinon needs to be off the market!
i hope that they find something else for people to take for migrains and pain.. i for one wont ever take "anything" for migrains again. id rather feel pain the worst i could emagine then to feel the way i did for 5 days during my time with topamax. this druig in my oppinon needs to be off the market!
XGypsyX
06-07-2004, 05:53 PM
Fibrogrl, id definatly stop, if i were you.. personally find another doctor.. my doctor is no longer my doctor.. he never returned my calls either.
It baffles me when a doctor gives this type of medications knowing full well what it can and will cause for someone that they are not more responsible.. i have called the AMA(american medical association) on my doctor.. because of the extremes this medication had on me.
I am not sure why your taking topamax..and as i previously stated it might be good for someone who truely has to take this drug because there is no alternatives.
however, i have read many many ppl who have taken this drug call it the 8 weeks of pure hell they must endure to recieve a possitive outcome after.
So, is it worth it to you to continue or possibly have severe problems later and mind you im no doctor..im going on what ive seen, read, and experienced through my 5 days of hell.
if your going on 2 months of topamax and dont feel normal by that time id definatly see a nuerologist..perhaps they can tell you something more..or help you to get off of this drug...i was also told never to stop abrubtly either that it will cause seizures.. also something you dont want to deal with alone.
Just be careful and write down everything you expeirence.. adn yell at your doctor when you do see him..this is your life and he should be responding to what you are paying him for.
this angers me very much.. so many ppl needing relief, and being suckjered into taking this drug without knowing the REAL dangers of the side affects.. id most rather have been put under 24 hour watch for two months then go it alone on this drug. But then.. why go through it at all?
I called my step father he is a retired Doctor..told me i should try seeking Acupuncture for my problem with my headaches..he said he used to have massive migrains and used to have acupuncture done..and after a few visits he has never experienced them again.
I hope you get help, i hope your doctor calls you soon.. your in my prayers for a recovery.. i come back checking messages here, once a week or so.. let me know what happends k?
ps. i did read when ppl did have side affects there is virtually nothing you can do to get rid of them.. just wait the 8 weeks until they go away.. its your body getting used to the drugs..
It baffles me when a doctor gives this type of medications knowing full well what it can and will cause for someone that they are not more responsible.. i have called the AMA(american medical association) on my doctor.. because of the extremes this medication had on me.
I am not sure why your taking topamax..and as i previously stated it might be good for someone who truely has to take this drug because there is no alternatives.
however, i have read many many ppl who have taken this drug call it the 8 weeks of pure hell they must endure to recieve a possitive outcome after.
So, is it worth it to you to continue or possibly have severe problems later and mind you im no doctor..im going on what ive seen, read, and experienced through my 5 days of hell.
if your going on 2 months of topamax and dont feel normal by that time id definatly see a nuerologist..perhaps they can tell you something more..or help you to get off of this drug...i was also told never to stop abrubtly either that it will cause seizures.. also something you dont want to deal with alone.
Just be careful and write down everything you expeirence.. adn yell at your doctor when you do see him..this is your life and he should be responding to what you are paying him for.
this angers me very much.. so many ppl needing relief, and being suckjered into taking this drug without knowing the REAL dangers of the side affects.. id most rather have been put under 24 hour watch for two months then go it alone on this drug. But then.. why go through it at all?
I called my step father he is a retired Doctor..told me i should try seeking Acupuncture for my problem with my headaches..he said he used to have massive migrains and used to have acupuncture done..and after a few visits he has never experienced them again.
I hope you get help, i hope your doctor calls you soon.. your in my prayers for a recovery.. i come back checking messages here, once a week or so.. let me know what happends k?
ps. i did read when ppl did have side affects there is virtually nothing you can do to get rid of them.. just wait the 8 weeks until they go away.. its your body getting used to the drugs..
socalsean
06-10-2004, 08:54 PM
I about flippeed out on Topomax and thought I was gonna hurt myself as well. It's the third time I've tried it because I'm so desperate to get rid of my headaches.
XGypsyX
06-13-2004, 07:24 PM
socal have you thought about acupuncture? and if you must do the topamax have friends around you.. or someone knowing what your going through.
its definatly a drug that someone needs to watch over you for 24 hours a day.. never know what will happen.
its definatly a drug that someone needs to watch over you for 24 hours a day.. never know what will happen.

