It's not so common, I guess. Does anyone here have it? I was diagnosed with it some 10 years ago, but it always seemed like it was a bigger deal to my doctor than to me. I haven't seen my doc for a few years and now I am starting to worry about it. I have been having symptoms of all kinds of things and I am feeling terrible. I thought that I had Lyme Disease, but my tests just came back negative for that. So that got me thinking about my IgA deficiency and maybe that is causing my symptoms. The info that I find online either makes it sound like a total big deal or a non issue. Which is it? Does anyone have any credible info about this syndrome?

Any info is greatly appreciated.
Thank You!
Steph

Hi, i have Sel. Iga Def. w/ anti iga antibodies. I was dx a few yrs ago. What symptoms are you having?
I have been told that 1 in 700 have it, but i have never run into anyone either....and all my doctors have told me that i am their only patient ever w/ it! That would be a hematologist, GI, fertility specialist, Rhumatologist, OB-gyn....lol

It's not so common, I guess. Does anyone here have it? I was diagnosed with it some 10 years ago, but it always seemed like it was a bigger deal to my doctor than to me. I haven't seen my doc for a few years and now I am starting to worry about it. I have been having symptoms of all kinds of things and I am feeling terrible. I thought that I had Lyme Disease, but my tests just came back negative for that. So that got me thinking about my IgA deficiency and maybe that is causing my symptoms. The info that I find online either makes it sound like a total big deal or a non issue. Which is it? Does anyone have any credible info about this syndrome?

Any info is greatly appreciated.
Thank You!
Steph
I have been tested and came up positive 3 times over many years. With me it causes any ordinary cold to turn into a sinus infection needing to be treated with antibiotics.
A real drag. A lot of time in my life has been wasted getting rid of these things.

My understanding is that IgA exists in the nasal membranes and is a first line of defense against virus and bacteria. I don't know that there is any remedy for its lack, but it's always worth looking.

If you find any out anything else about it please post it.

I was tested for IgA and IgG antibodies. I tested positive for the IgG one. This may indicate gluten sensitivity.

In my case, I wanted to find out about it because I have serious osteoporosis, thought to be associated with gluten sensitivity. I don't have full blown celiac disease. A dr that has written a lot about this is Dr Mario Hadjivassiliou. One of his articles is entitled "The immunology of gluten sensitivity: beyond the gut." You might want to do a medline search fro some of his articles, which are about IgA antibodies and the importance of them. The problem is that gluten sensitivity, if not taken care of, can do long term damage (like my osteoporosis).

My 17 month old son has selective iga deficancy, or he will be officially diagnosised at age three anyhow. (Some children under three don't produce much iga, but will catch up by three. My son produced NONE at age 12 months - and she said although she doesn't think he will start producing it since he had none - he could so she won't diagnosis him until three)

he definetly gets sick more often than other kids, and it seems to last longer.