Hello to all of U

I have not been around for a long time - this has been an amazing source of information and support and fun for me and sorry to all my friends for not being around lately.

Things had been moving along as normal a nearly a year on Keppra and whilst it has reduced seizures not controlled - I was still having several in the two week leading up to my period and then BINGO :bouncing:

I get an appointment at the John Radcliffe Teaching Hospital in Oxford (Inspector Moorse Land) in the UK one of the top nuro hospitals probably THE top nuro hospital in the UK - and I walk into a room and face a panel of 4 doctors............. scary stuff.

Anyway after long discussions and and having questions being fired at me from all directions - I finally get a solution and 1 hour later I have an injection in my bum to put my ovaries to sleep (can be woken up later if needed for childbirth :) ) and that is it no more periods so no more seizures.

AMAZING and I bet this treatment has been around in the US for years

So girls give me experiences and feedback anything would be greatefully received

depo-provera? we have that here. you get a shot every 3 months and you dont get your period. im bad about taking my meds to begin with so i mentioned to my gyno if instead of going on the pill, if the shot is a good idea. she said weight gain is huge....10-20lbs and you may spot blood for months and sometimes a year. After hearing some peoples stories about going on it i decided that it wasn't a good idea.

I started taking the depo provera shot in feb. and had a little spotting for 2 weeks in march but that was also the last time I had a seizure. I am so glad I decided to go ahead with it to me a little weight gain is worth it for seizure control I feel like I have finnally gotten my life back it is so amazing for me I love it No periods and NO SEIZURES its great I have gained about 20 pounds since feb and Im not to very happy about that but its really no big deal I can lose weight lol I myself would recomend any lady that has these typse of seizures to atleast give it a try I did most people only spot for a couple weeks and for the ladies that do spot for a long time are usually the ones that cant tolerate the pill.

Hey guys... I don't have much to add, just some questions I guess, because I think I may be leaning toward a connection with my cycle! I am so excited!!! This connection has just been discovered and I don't see my neuro till the 16th, so I'm biting at the bit to share my discovery!!! :rolleyes: I just happened to come across it because a ct scan showed a possible ovarian cyst, so I figured I better check and see when my last cycle was (I'm very irregular). But to my surprise this is what I came across: cycle started May 29th, seizure on 29th
April 13th, seizure on 13th
Feb 6th, seizure on 10th
Jan 16th, no seizures
Dec 17th, seizure on 17th, 22nd,31st,2nd (all during)
Nov 5th, seizure on 4th, 10th

That was as far back as I kept my seizure books. I had seizures inbetween there, but my topamax has taken care of those!! But Topamax hasn't stopped the ones that SEEM to be related to my cycle! I had a seizure free time of 24 days that ended because my cycle started, another time when I had went 34 days with none then my cycle started. It just seems so obvious!! Will my neuro think so??? Is this hard to convince them of?? I don't want to go off of Topamax either, just because its working for the others. Its been three years and FINALLY something seems to be falling in place.... can't wait for my appointment!!!!

And now I might have this ovarian cyst causing all these other problems, darn being a female sure can be a pain at times!!!! :D

Any ideas as to what they may want me to try?? Thanks for listening and sorry I couldn't add anything.....

Lisa

Hey Lisa I see and epileptologist for my seizures I have seen many drs in the last 7 years and tried telling them all that my periods were triggering my seizures but none of them would hear it they all told me that it wasnt possible. I finnally gave up and went to my family doc who is really cool and basiclly told them what was up and that I wanted to try the shot he has been there for me through all the crap I have been through for the last 7 years so he was more than happy to give this a try. My epi on the other hand said no to me as soon as I brought it because really people with seizures arent suppose to use it but in my case with catamenial E it works I really think it is worth a try I mean I was at the point of what do I have to lose. I had tried every med available and nothing helped at all I even had the VNS surgery and it hasnt helped but the shot has. 1 shot every 3 months for me it is amazing.