Has anybody here had a child with Kawasaki. I would like to here of your experience. My grandson 3 years old has been diagnosed with cat scratch fever but symptoms seem similar to me. All blood work comes back normal but for high white count and high fever. Has some symptoms of Kawasaki and some of Cat scratch.

Any info helpful.

No but I hope yall got rid of those cats and litter. Preg women are not supposed to be around cats and litter or sand boxes
so why should small kids be around these things.

Never let your kid near a playground sandbox.

any animal fecal contamination in wounds can be severe and left untreated worse.

Hi there. My son had Kawasaki disease in May 2003 at 16 months. He was very ill, fever for 14 days, most times over 103, rash, swollen feet and hands, unable to walk for 10 days for unknown reason (xrays and bone scan normal), swollen liver and spleen, fluid around the heart, lungs and in the abdominal cavity, etc. The drs tested him for cancer (bone marrow biopsy) due to pancytopenia, all blood levels extremely low. He needed 2 albumin transfusions, a platlet transfusion and IVIG, witch cleared up the illness. There are 5 markers used to diagnose KD. [removed] The platlets in the blood in KD patients usually go very high, but Lukes went very low. I hope your grandson doesnt' have KD! Has he had an echo on his heart? If not, I would push to get it done. KD can cause heart problems in some kids. Let us know how it turns out. [removed] Take care

Wendy :wave:

my 3 month old son has kawasaki disease he was very ill , in hospital for 2 1/2 weeks his body was all swollen very high temp fluid around the heart brain and testicles was very floppy all over body rash glands were swollen , i really wish its not kd if u think it could be then u should get a second opinion as soon as possible good luck to u

hi there. Sorry to hear that your son was so ill. How is he doing now? How long ago was it that he had kd? Luke had it at 16 months old, almost 2 years ago. He has been pretty healthy since then, although he has been diagnosed with C4 complement deficiency and hypogammagobulemina (?sp). Hope all is well with your little one. take care

Wendy

WendyK33 what are those things you mentioned about your son? My son had KD a year ago and find that he does tire easily and is very pale.
could you elaborate on what your son has now.
Thanks

Hi there. Sorry to hear that your son had KD and that he is not feeling so well now. I am not sure what you are asking about but I will try to answer the best that I can and if I dont' answer your question you can ask again. Luke is fairly healthy now. He is anemic and is on iron supplement for that. If your son is tired easily and very pale you should get his iron checked...it could be that. Luke also has 2 immune deficiencies, c4 complement and hypogamagobuleminia. The last one means that he is low in Iga and Igg and he also didn't produce antibodies to some of his vaccines. He also tires very easily and he complains of joint pain. The c4 deficieny gives him a 75% chance of developing Lupus so we have to keep an eye on him for that. If your son is still not himself I would for sure have him rechecked by the dr, esp for an iron deficiency. Let me know how it turns out and if you need more info don't hesitate to ask.

thanks
Wendy :wave:

WendyK
Thank you for responding. I apologize for being unclear.
When your son had KD did he have Intravenous Gammaglobulin treatment for it?
What type of blood test could I have done now to determine the C4 and Hypogamagobulin deficiency?
I will bring him in for a blood test, thank you for that tip.
What is a C4 deficiency and how does it affect the child?

Thanks, T

Hi T.
Yes, Luke had IVIG for the KD. he had an atypical case as all of his blood cells went down instead of up so he also had 2 albumin transfusions and a platlet transfusion. We were actually told that is all likelyhood he had cancer and we were informed of the treatment opitons, told about getting a hick line in (a type of central line iv) and were conselled on how to talk to the other children about lukes condition (we have 4 boys). We were almost happy to hear that he had KD until we actually heard about the heart complications.

C4 is a component of your immune system that helps clear your body of certain bacteria and also protects against certain autoimmune diseases, like Lupus rhuematoid arthritis. the normal is 1.9-2.2 and luke is 0.006, barely readable. Hypogammaglobulinemia is the absence or severd decrease of IGA and IGG antibodies and reduced or no response to certain vaccines. You would have to ask your dr for a blood test to check your sons immunity and they would do a lot of different tests on his blood to see if his immune responses are normal.

Does he get a lot of sinus infections or other infections? That is a sign of low immunity if he does. How old was he when he got KD? Luke was 16 months and is now 3. Did your son have a "normal" course of KD? (if there is such a thing) and was he treated with IVIG? Hope to hear from you soon.

Wendy

Wendy,
My son was 3(birthday going on 4) when he got KD. The doctor said it was not a typical case because he did not have a high fever and was not irritable. But each child is different. He did receive IV IGG within the "crucial" time limit. He also did a heavy course of Aspirin therapy. We were under the care of a ped cardiologist for a few months because he does have a heart murmur(born with it) and does have dilation of one of the major coronary arteries. They think he may have been born with that too. He had many echocardiograms because they thought he had an enlarged artery. He will continue to be followed by the cardiologist for the rest of his life, and we will go for annual echos. Other wise he is healthy, except for tiring easily, seasonal allergies, and paleness. What is interesting is that I have just been diagnosed with having rheumatoid arthritis and have other autoimmune diseases Rosacea,Allegies & Asthma. I am interested in your peds idea of possible LUPUS in the future for your son. How can they determine that now?
Thanks,
T

T
People with a C4 deficiency have a known risk for lupus. Actually, it is a 75% chance of getting it so he gets tested annually now. Also, his older brother has a 75% chance of getting it too. he also has the C4 deficiency. I wonder if you have the deficiency where u have autoimmune diseases? Wendy

Thank you Wendy for all of your help and insight. Some interesting things to think about and be tested for.
I am glad to hear your son is doing well.
Keep it positive.
Terri :)