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twisted123
06-19-2004, 03:43 AM
I have been dx with fibro for more then 13 years. Some times I am almost without symptoms and sometimes I feel like I have been run over by an 18-wheeler.

I have both low blood pressure and low temperature. For a VERY long time I have felt that I have poor circulation because something was always asleep. With all of my symptoms it is clear that my body is very toxic. I believe that because of the "engine not being fired up within" I am not able to get rid of toxins as well as some. These toxins build up and cause plenty of havoc.

Any Idea's?

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Ajijaak
06-19-2004, 10:11 AM
I've had both low BP and low temp my entire life. Neither one is, by itself, a bad thing - in fact, it's usually a good thing, if anything at all. However . . . .

The numbness is much more likely to be a result of peripheral neuropathy, or problems with the nerves in your extremities. It's called paresthesia (plural paresthesiae), and it can be one of the most uncomfortable, worrisome symptoms of autoimmune illnesses. In fact, it was the fact that all four extremities went numb when I slept - whether I slept for 10 hours or 10 minutes - that finally drove me to the doctor, although it was still years before I received any kind of real DX. The paresthesiae don't result from low BP/temp, although if you have circulation problems generally, I imagine that low temp would aggravate it. They probably were initially triggered by whatever initially triggered your fibro symptoms. In my case, I clearly had this since adolescence, at least, but the trigger that blew my symptoms wide open was the flu vaccine. Incidentally, think back over your vaccination history - if you had a flu vaccine just before the onset or serious worsenings of your FMS symptoms, tell your doctor.

As far as dealing with the numbness goes, I haven't found anything that really works. I've gotten so accustomed to it that I can now mostly ignore it - at least, in comparison to the pain and fatigue!
:p

Anyway, hope this helps. All of this is something to take to your doctor - s/he should be reassuring you on the paresthesiae and explaining how it's caused and what to expect. If not,maybe it's time for a new rheumatologist (I went through I don't know how many specialists before I found one who took me seriously).

Ajijaak

typingterror
06-19-2004, 10:21 AM
I have low BP also and temp. I think everything I have is low including immunity system, energy, stamina, etc. Fibro is just a low blow period. I only remember one period of remission for several months, but that was so long ago I forget what it even felt like. Now the 18-wheeler just keeps backing up to run over my poor body repeatedly so I cannot stay on my feet too long. I have no idea how to control anything any longer so I just fumble through each day best I can. I wish there was a constant technique to living, but like everything else this changes as fast as our symptoms do so it is like a guessing game. All I can say is thank God for fibro friends or we would all be living in isolation! (TT)

 
 
 




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