:confused: Hey Illia, Emma, finally I got my password reset and computer up and running, and managed to get logged on here! Well reached my year anniversary on Sunday. This head monster is really dragging me down now. I'm always normally so positive and keep smiling when ever I see anyone but as soon as I get home. I think a year of not being able to go out socially and do the things I love to do has really worn me down and I am struggling to keep it together :( do u know Em I was so glad to see your post about your dizzy days going down. I've been doing my VRT religiously since Ocotber and I am now just as bad as I was this time last year with every day dizzy and my ear feeling full of pressure and sore. I don't know what else to try, why isn't this getting any better.....? :bouncing: am considering tryng London, does anyone have any contact details for them? or CBT, has anyone found anything that has worked!! Sx

S - I send a HUGE HUGE hug to you and I know how you feel....

Firslty yes go to London, ilia was give you the details...You need answers and support...and yes CBT a v good idea, they will provide this at london. I dont know how you are managing to work...You are doing so well....it is such a drain to pretend to everyone you are fine then come home and cry, I have been there. This illness is v v cruel.

Thank you for saying what you did about my bad days. I am dizzy all the time however. What I meant was the horrendous days are not as common but it is slow.

I am, at the moment, however having a horrendous time again. Have got a bad cold, sore glands, huge temp and been sick. Period started today too so dizziness gone insane. Have to work tm, dont know how im going to... Liek you, I am the end of my tether, I simply cannot see an end to this head monster.

I am waiting to hear if Ive got to london...If not I will prob save the money and go whenever I am able.

As for the VRT, I know I have proof the horrendous days are less but (maybe its cos am v disheartened at mo) but I am v disheartened (sorry couldnt think of another word to use!) about the VRt too...expected far better results but I know I have to keep going. I have my apoointment for VRT on tues so will certainly be having words!!!

Thinking of you.

xxx

Hi,

Sorry that you are feeling sooo bad its just rotten. I am assuming that you got all the contact details? the ones I gave you are for private referals, if you are going the NHS route then there is another number.

I am going for a check up again on the 12th July and am seeing the VRT and CBT guy again there.

I too get sincerely fed up the back teeth with these symptoms they are just soooo non-stop.

The VRT that London do is different to what S suggested to you, which if my memeory serves me correctly was very limited. Has he no idea why your symptoms are going on. For me any ways seem I have just failed to fuly compensate, which is likely the same for you.

Hang on in there!!!!

Ilia xx

Hi guys....sorry to hear about how crummy everyone seems to be feeling at the moment. Em, maybe you were also feeling so rotten with the increased bouncing etc because of the viral infection which was working its way into your system! I know when I have a virus on the way everything goes slightly wild again as it did last week. Even last night I had some strange symptoms again as this cold of mine hits its peak - I woke up feeling edgy (the cappuccino effect I call it now) at 4 am and also when I got out of bed...but I know that once this cold dies so will these residual symptoms.

Hope it clears soon!

Cheers...Scott x

hi all

i have felt the same way about the vrt, but i will give itanother go when i have my appointment with hospital in london, i have had this constant episode for 1yr and 3mnths approx..... and ihave appointment with cbt and see how that goes........as for going out socially........very rarely......but have been invited to a friends this w/e........and feel anxious........as i know i wont be giving my full attention, it will make me feel sad as the last time i went to one of her parties i was well and could enjoy myself.......s get to london if u can , am so sorry u feel dragged down, i hope u can be positive again soon, its a bumpy ride with this thing, wishing u all a better day