An idiot at work was stomping on plastic bags all night at work making loud explosions 4 months ago. That night I came home and felt pressure, fullness, clicking noises in my middle ear, and I became real sensitive to noise. I went to the ENT and he said I had ETD and gave me a bunch of nasal sprays and decogenstiants which i've been taking for the last 3 months. The medicine he gave me has done nothing for my ears, I haven't improved at all. He thinks it was caused by my alergies which I know that is not what caused it. I think it may be palatal myoclonus because the roof of my mouth jumps up and down real fast in sync w/ the clicking noises in my ears, especially when I pinch my nose with my mouth open(always causes seizure when I do this).

I need to know soon because I am going to see him on Monday about getting tubes put in my ears for my "ETD". :P

the idiot got fired by the way.

hi,
oh boy, sounds like a similar situation for me, first do you get clicking in the ears when you swallow? if your eardrum is not retracted do not get the tubes just yet. i am in a similar boat, at first thinking it was edt, over treated with meds and steroid nose sprays, turns out i have pet and all the treatment from ent #1 made my situation much much worse. can you see the palate moving in the mirror when it happens? i have a clicking sound in my face when i talk, it is the muscle in my e. tube. i went to the absolute top specialist on the e tube and he said a lot of pet patients get clicks. be very careful about treatment, if its pet developing tubes and those meds can make it much worse. find the top neurotoligist in your area a go there? where do you live? good luck! lib
oh and sound sensitivity should not be etd, usually its harder to hear,
look into patulous eustachian tube and hyperacusis

How do they treat pet?

hi,
well "they" dont treat pet in fact all of the drs i saw were idiots and could not even dx it much less try to treat it, sad ents are not educated . however, not all i found the 2 best neurotoligists ever, and they are helping me, one dr. will do surgery for this and i am scheduled in august, he is a wonderful man. its sad he is the only one and not more are trying to help people with pet, its a life ruining problem. so i thank god everyday for my"guys" and i think they will get me fixed up. lib

What are the syptoms of pet? The reason I ask is I aaalways thought I had ETD, but the ENTs I saw always said I was fine in that regard. When I swallow sometimes I hear crunching and I feel like a lump that feels like it's sitting inside the palate.

hi,
dont know about the lump, ok, ears..pop, click, voice reverberates, eardrums move when talking and breathing, can breath air up into the ears, swallowing sound loud, pressure, popping while talking, basically the eustachian tube does not close. any thing sound farmiliar? lib

No, that doesn't sound familiar. Mine is probably more of a sinus problem. Can they close the tubes or at least make them smaller for you?

I asked my ENT if I had Hyperacusis on my first visit. His response was "No, that is really rare." :P I am not as sensitive to sound as I was the first few weeks after it happened but I am still sensitive to certain noises. Children screaming, loud vaccum cleaners, silverware being rattled, dogs barking, etc. I couldn't even listen to music the first few weeks after it happened but my tolerance for sound is getting better and I can listen to music once again with out any problems. I'm not so sure I have PET, people with this often complain that their voices sound too loud when they talk and they sometimes get wooshing sounds in their ears. I don't have either one of those symptoms. My ears click when I swallow and the roof of my mouth jumps up after I do so. Does the roof of your mouth jump up and down like 200 times per minute when you have your mouth open? It does for me and it doesn't stop, it pulls on my E tubes when it does this. So I just leave my mouth shut and breath through my nose. :( There is some kind of pressure imbalance or seizure going on in my middle ear that has creating like a vaccum or something. That is why I thought about getting the tubes put in to hopefully equalize the pressure, but if it is a myoclonus then the tubes won't help. :(

Thanks for the support.

No, that doesn't sound familiar. Mine is probably more of a sinus problem. Can they close the tubes or at least make them smaller for you?
yes with cartlidge and alloderm, to try to close the open area. lib

I asked my ENT if I had Hyperacusis on my first visit. His response was "No, that is really rare." :P I am not as sensitive to sound as I was the first few weeks after it happened but I am still sensitive to certain noises. Children screaming, loud vaccum cleaners, silverware being rattled, dogs barking, etc. I couldn't even listen to music the first few weeks after it happened but my tolerance for sound is getting better and I can listen to music once again with out any problems. I'm not so sure I have PET, people with this often complain that their voices sound too loud when they talk and they sometimes get wooshing sounds in their ears. I don't have either one of those symptoms. My ears click when I swallow and the roof of my mouth jumps up after I do so. Does the roof of your mouth jump up and down like 200 times per minute when you have your mouth open? It does for me and it doesn't stop, it pulls on my E tubes when it does this. So I just leave my mouth shut and breath through my nose. :( There is some kind of pressure imbalance or seizure going on in my middle ear that has creating like a vaccum or something. That is why I thought about getting the tubes put in to hopefully equalize the pressure, but if it is a myoclonus then the tubes won't help. :(

Thanks for the support.
sounds definatley like palatal myclonus, see a neurotoligist for that, i dont think tubes will help. lib