If you are not a registered member of our community, please click here to register...


 Home Message Boards Health Guide Join for Free Testimonials About Us
Search
   
  


PDA

View Full Version : is there hope for people with meniere's disease?


pookah
06-26-2004, 03:51 PM
meniere's appears to run in my family.

in 1984, when i was 16, i had a test for meniere's after suffering w/dizziness and nausea for months. they said i had it (back then it was a "syndrome", apparently it's called a disease now).

i took diuretics for 2 years with not much help. then i saw a homeopath that was able to get things under control.

just recently, i stopped a medication (for another problem) that i'd been taking for about a year. within 3 days, i got seasickness-like feelings and couldn't sit at the computer.

now, 10 days later, i'm tired of being nauseated and dizzy. i cannot do *anything* because i feel so lousy. i finally dragged myself to the doctor yesterday and he prescribed antivert (meclizine) and told me to take dramamine as needed.

the antivert helps but knocks me out. and, it appears to wear off after about 6 hours and i have to take another one, then get knocked out again.

i'm very concerned about my future with meniere's, as my mother is bed-bound a lot of the time because of her vertigo.

is there hope? any ideas? should i see an ENT?

thanks!

OhioRocker
06-26-2004, 04:31 PM
Have you seen an neurotoligist yet? From my understanding there are plenty of options out there for people with Meniere's. If you only have it in one ear (which is quite often the case) there are even surgical procedures that can be done if medications don't work.

I've also seen numerous medical research sites that say in a majority of cases Meniere's will run it's course in 10-20 years. So if you had it at 16, the odds are in your favor that the disease will "burn out" by the time you reach your mid 30s. You say you were diagnosed with it 20 years ago....have you noticed any changes in symptoms? Hearing loss?

I would definitely go see a neurotologist.

pookah
06-26-2004, 04:56 PM
hello,

i haven't seen a neurotologist, in fact i don't know what one is. *blush*

i will definitely look into that if this doesn't clear up soon.

if meniere's runs its course in 10-20 years, its time is about up with me. i hope that's the case. i'm also hoping this is a short aggravation of the disease, and that i can get over this soon.

i think that i do have hearing loss. i have to frequently ask people to repeat themselves. mainly the hearing part of this illness is a crackly noise i get in my ears if i'm listening to a certain frequency of music.

i will look into the neurotologist definitely if this doesn't go away soon.

thanks for your help!

OhioRocker
06-26-2004, 05:14 PM
pookah,
A neurotologist is basically a neurologist (brain doctor) who studied extra time on the inner ear. They are a rarer breed of doctor, but that's definitely where you want to go. Are you in the States?

pookah
06-26-2004, 07:24 PM
pookah,
A neurotologist is basically a neurologist (brain doctor) who studied extra time on the inner ear. They are a rarer breed of doctor, but that's definitely where you want to go. Are you in the States?

yes, i'm in the states- washington state. i'm guessing i could probably find one of those doctors here near seattle.

i sure am hoping this gets better soon though- i can't take the nausea and dizziness between antivert doses. :(

thanks for the info!

OhioRocker
06-26-2004, 07:46 PM
I'm sure there's a good nuerotologist in Seattle. If not, I believe Portland has one of the best in the country. I think someone like Subs may know better, but I think I've seen a few docs in that area mentioned on here before.

pookah
06-26-2004, 09:21 PM
I'm sure there's a good nuerotologist in Seattle. If not, I believe Portland has one of the best in the country. I think someone like Subs may know better, but I think I've seen a few docs in that area mentioned on here before.

i know uw has a really good medical facility. i am just hoping this spell goes away on its own, because i just can't see getting myself out to seattle to see a neurotologist for this. i'm soooo nauseated.

thanks again for your help!

 
 
 




Site owned and operated by HealthBoards.com (TM)
Copyright and Terms of Use © 1998-2008 HealthBoards.com (TM) All rights reserved.
Do not copy or redistribute in any form!