judypatootie
07-01-2004, 01:02 PM
Hey all... I wrote on here earlier that My SSD caseworker said I'd receive my norification (approved or not) NO LATER than the end of June. Let's see... this is July 1, and no answer. I was so upset and crying last night I couldn't see straight, but I definitely dialed his number on the phone! I left a message.. I think he got the general idea through my sobbing that I was at my wits end with this. (I feel like an idiot now, leaving a message when I was so upset I could hardly breathe) But he called me back this morning and told me.."TA DAAAAAAAAA", he made his final decision on June 18 (still no indication of yes or no) & when it was "sent out" (whatever that means), I was one of the lucky ones to have their filed pulled for Quality Assurance and it and all of my information was sent to Chicago for another review. He said that it would probably take ANOTHER 6-8 weeks. He said that they could either agree with his decision, or disagree. EIther way, it would be sent back to the local office where I'd applied. In my case, even though I live in Ohio,the closest claim ofice is Huntington, WV where I applied. He said that after THEY got the file, THEN from there I'd be getting a yes/no letter on the case. Has anyone else ever been shipped off to Chicago????
WHY WHY WHY WHY do they jerk you around like this?? I am in so much pain, both physicially and mentally, I dn't know if I can even hang on another 6-8 weeks. Financially, I can't.. I went to the Medicaid office and all they will give me is $350 in a food stamp card for a month, which I admit will help. But because I cannot work.. (To them, its "WON"T Work) they will not give me any cash assistance to help with the house payment, electric bill, nothing. My exhusband helps on and off, when he feels like it, We are separated and I have filed for dissolution because he left us in February. At the time, a dissolution was what he wanted because its less expensive than a divorce, but now he is dragging his feet and won't sign the papers. I don' t have the money to go ahead and change it to a full divorce and file against him and he knows that.
I'm sorry i'm rambling on with stuff htat has nothing to do with disability, but i have jujst had it up to **there** with everythign. I'm simply sick of everythign and everyone involved with this stupid crap.
WHY WHY WHY WHY do they jerk you around like this?? I am in so much pain, both physicially and mentally, I dn't know if I can even hang on another 6-8 weeks. Financially, I can't.. I went to the Medicaid office and all they will give me is $350 in a food stamp card for a month, which I admit will help. But because I cannot work.. (To them, its "WON"T Work) they will not give me any cash assistance to help with the house payment, electric bill, nothing. My exhusband helps on and off, when he feels like it, We are separated and I have filed for dissolution because he left us in February. At the time, a dissolution was what he wanted because its less expensive than a divorce, but now he is dragging his feet and won't sign the papers. I don' t have the money to go ahead and change it to a full divorce and file against him and he knows that.
I'm sorry i'm rambling on with stuff htat has nothing to do with disability, but i have jujst had it up to **there** with everythign. I'm simply sick of everythign and everyone involved with this stupid crap.
Sponsor
msrsd
07-01-2004, 02:46 PM
hey judy, I just wanted to let you know my case was sent to quality review in chicago( i am from ohio ) here is the infor I recieved. I also was told chicago takes 6 to 8 weeks, after four weeks my hubby called dds worker this is what he said--- the ones that are pulled for chicago is usually approved but there is a small percentage that is not but usually you are approved and that if chicago would go agaist the dds worker it would not reverse the decision it would just want further documentaion. well I was like you feeling just my luck, but I was pulled on april 29th and I recieved back pay around june 9th and due to get my first check in july. Also just so you know my hubby called local office and made an appoitment to file for my children and let them know that my file was in chicago , they let us go in for the appoitment and bring birth certificates and my local office said we saved 2 weeks by getting that taken care of. so my hubby figured if they are willing to file for the children, tell me what i am getting on ssd then they are just as assured it will be approved, and sure enough it came back from chicago just fine. so hang in there you are finally seeing an end to this nightmare. By the way no letters came until 2 weeks after my back pay came in the mail.
judypatootie
07-01-2004, 03:11 PM
Thank you MSRSD..
I probably should go ahead & file then for my boys. That would be one thing out of the way in case they do approve me. I'm sorry I'm not in a more "Yeah, yeah, whoooppeee" kind of mood right now, I guess I'm just feeling sorry for myself. Hopefully that will pass, too. :)
Maybe Chicago is a good thing after all !
I probably should go ahead & file then for my boys. That would be one thing out of the way in case they do approve me. I'm sorry I'm not in a more "Yeah, yeah, whoooppeee" kind of mood right now, I guess I'm just feeling sorry for myself. Hopefully that will pass, too. :)
Maybe Chicago is a good thing after all !
msrsd
07-01-2004, 03:25 PM
judy, you know I can can agree with your mood, I thought I was going to go crazy waiting for ssd and I can tell you I will never wait for the postman again----I would wait for that darn postman and he would never bring me my news---Lol but anyways the day I didnt wait for postman was the day my check was here so go figure. so you hang in there and you will see that with gods grace you will see the light at the end of this dark road we call ssd.
judypatootie
07-01-2004, 03:38 PM
msrsd: :)
LOL! Gods grace is the O N L Y thing getting me through this stuff!
Well... AND the help of a great bunch of people on this board. I'm so thankful I found this.
LOL! Gods grace is the O N L Y thing getting me through this stuff!
Well... AND the help of a great bunch of people on this board. I'm so thankful I found this.
dalesgirl
07-01-2004, 03:52 PM
When DH's case was sent to Chicago we were told 3 weeks and if I remember correctly it only took too. Judy just feel good that by everything you've said you've been approved. I either told you here or through e-mail that with some of the questions they've asked you that all indicates your approved. I know it sucks waiting to hear but this is when you really can start to relax a bit I truely do believe that!!
Kissa
07-01-2004, 04:24 PM
I live in Ohio as well and my file was also sent to Chicago for review only I was not aware of it. It was actually in my best interest as I had gotten denied and was slated to go before a judge when they pulled the file and approved it. Funny thing was is I got my funds before I ever got the approval letter. I was checking my bank balance to see if I could go grocery shopping and found a rather large sum deposited. I called up the bank and they said it was from the SS office. So I called there and they told me yes I was approved but that it sometimes takes longer to get the letter.
Good luck I hope it works out well for you.
Good luck I hope it works out well for you.
judypatootie
07-02-2004, 02:35 PM
sorry, I deleted the original
judypatootie
07-02-2004, 02:40 PM
Thanks Kissa and Dalesgirl...
Yes, if I'm approved the money will be a pleasant surprise..especially to my creditors.. LOL.. but it will never take away the pain this old body feels or the "inside" pain caused by the mental and emotional problems. It will never replace being able to ride in a car 8 hours to get to the beach, or even 2 just to see my brother. Going to church is a tough one. I'm squirming and moving, getting up to be able to walk off a spasm or something, or just trying sit thru a sermon is not possible anymore. I hate it, hate it, hate it.There are so many,many things that I haven't been able to or will never again be able to do with my boys. THey are 15 & 16 now and all they hear is "I'm sorry, I can't, I hurt too bad" I'm doing everything the doc tells me to do and taking the meds he gives me, but I'm still in so much stupid pain. I"m tired of not being able to do anything and I'm sick of thinking that MY childred will only remember a mom who complained about hurting or was always at the docs or in the hospital. It's not fair to them & I hate myself for it. When it was obvious that I was getting much worse and not able to work, keep house,run the kids, etc,etc thats when my husband bailed on us. Talk about a wimp. When the going got tough, he slithered away.
I have to either find a new pain center to go to or not go at all until/if the disability takes effect. My back doctor that I've went to for over 5 years does not accept Ohio Medicaid but said that if my disability clm works out, he does accept Medicare. I worked for a hospital for 28 years and always had Blue Cross...no problem... but when I showed up at my appt with a Medicaid card, well My dr was sympathetic and went ahead and seen me for that appt, but now I can't have any caudal epidurals or shots or DRS Tractions because they are too expensive for me to pay for on my own. I realize that Medicaid reimbursements to providers really stinks, but what are people like me supposed to do? Usually in this area, when you find a specialist who takes OH Medicaid the practice is not that reputable for whatever reason.
I don't know.. I guess I'm just feeling sorry for myself again and venting, rambling, going on and on just to 'get it out' I suppose. sorry. Judy
Yes, if I'm approved the money will be a pleasant surprise..especially to my creditors.. LOL.. but it will never take away the pain this old body feels or the "inside" pain caused by the mental and emotional problems. It will never replace being able to ride in a car 8 hours to get to the beach, or even 2 just to see my brother. Going to church is a tough one. I'm squirming and moving, getting up to be able to walk off a spasm or something, or just trying sit thru a sermon is not possible anymore. I hate it, hate it, hate it.There are so many,many things that I haven't been able to or will never again be able to do with my boys. THey are 15 & 16 now and all they hear is "I'm sorry, I can't, I hurt too bad" I'm doing everything the doc tells me to do and taking the meds he gives me, but I'm still in so much stupid pain. I"m tired of not being able to do anything and I'm sick of thinking that MY childred will only remember a mom who complained about hurting or was always at the docs or in the hospital. It's not fair to them & I hate myself for it. When it was obvious that I was getting much worse and not able to work, keep house,run the kids, etc,etc thats when my husband bailed on us. Talk about a wimp. When the going got tough, he slithered away.
I have to either find a new pain center to go to or not go at all until/if the disability takes effect. My back doctor that I've went to for over 5 years does not accept Ohio Medicaid but said that if my disability clm works out, he does accept Medicare. I worked for a hospital for 28 years and always had Blue Cross...no problem... but when I showed up at my appt with a Medicaid card, well My dr was sympathetic and went ahead and seen me for that appt, but now I can't have any caudal epidurals or shots or DRS Tractions because they are too expensive for me to pay for on my own. I realize that Medicaid reimbursements to providers really stinks, but what are people like me supposed to do? Usually in this area, when you find a specialist who takes OH Medicaid the practice is not that reputable for whatever reason.
I don't know.. I guess I'm just feeling sorry for myself again and venting, rambling, going on and on just to 'get it out' I suppose. sorry. Judy
Kissa
07-03-2004, 02:19 AM
Judy.. it is ok to vent, it is ok to feel sorry for yourself. It is normal.
I've had chronic pain since I was 10, I am now 38. Not a day in my life do I know what it is like to be "normal", but for me living life the way I did for many years was normal. I have one son living with me he's 18 and another who is 19. My 18 yo has pretty much taken care of me as well as my husband for alot of years. It is frustrating but something I learned long ago is there is always someone worse off than you. It's the only way I can cope.
Be greatful for the small things you can do and do what you can to try to get the help you can so you can lead a somewhat normal life.
Not sure what part of OH you live in, but where I am theres a fabulous PM doc here not afriad to prescribe medications, he gave me my life back or a resembelance of one at least. Between him and a wonderful psychiatrist, we found the right balance of medications and natural things (stretching, meditation, etc) to help me have a somewhat normal life. I wake up in the morning smiling, I go to bed smiling. My house is actually cleaned, well with the help of others, but it's done. And I've waited 27 years for this.
Theres alot of things I still can not do but theres alot of things I can that I couldn't just a few years ago. I still have days where I hurt more than others but I get by much better than I have in the past and that's what counts I think.
Once you get your SS approved you will be eligible for medicare, I suggest you might want to consider part B, theres alot of doctors who do accept that and you may have better luck. That however is a 2 year wait but it might be from the day you applied, I can't recall so you will have to look into it. I didnt take part B because me and my husband had always had great insurance.
At any rate, don't give up, no matter how hard it is, just think of the little things and keep smiling, it will get better, I promise.
Barbie
I've had chronic pain since I was 10, I am now 38. Not a day in my life do I know what it is like to be "normal", but for me living life the way I did for many years was normal. I have one son living with me he's 18 and another who is 19. My 18 yo has pretty much taken care of me as well as my husband for alot of years. It is frustrating but something I learned long ago is there is always someone worse off than you. It's the only way I can cope.
Be greatful for the small things you can do and do what you can to try to get the help you can so you can lead a somewhat normal life.
Not sure what part of OH you live in, but where I am theres a fabulous PM doc here not afriad to prescribe medications, he gave me my life back or a resembelance of one at least. Between him and a wonderful psychiatrist, we found the right balance of medications and natural things (stretching, meditation, etc) to help me have a somewhat normal life. I wake up in the morning smiling, I go to bed smiling. My house is actually cleaned, well with the help of others, but it's done. And I've waited 27 years for this.
Theres alot of things I still can not do but theres alot of things I can that I couldn't just a few years ago. I still have days where I hurt more than others but I get by much better than I have in the past and that's what counts I think.
Once you get your SS approved you will be eligible for medicare, I suggest you might want to consider part B, theres alot of doctors who do accept that and you may have better luck. That however is a 2 year wait but it might be from the day you applied, I can't recall so you will have to look into it. I didnt take part B because me and my husband had always had great insurance.
At any rate, don't give up, no matter how hard it is, just think of the little things and keep smiling, it will get better, I promise.
Barbie
judypatootie
07-03-2004, 08:24 AM
Barbie:
I live in southern Ohio, between Gallipolis and Ironton. Just across the OH river from Huntington, WV, Closer there than anywhere "big" in Ohio. judy
I live in southern Ohio, between Gallipolis and Ironton. Just across the OH river from Huntington, WV, Closer there than anywhere "big" in Ohio. judy
Kissa
07-03-2004, 12:33 PM
I have family just north of you :) but I live near Cleveland so that doesn't help much unfortunately.
Just hang in there the best you can, take things minute by minute if you have to. Alot of us know what you are going through so feel free to "vent" if you need. Always helps to have a shoulder to cry on :)
Hugs
Barbie
Just hang in there the best you can, take things minute by minute if you have to. Alot of us know what you are going through so feel free to "vent" if you need. Always helps to have a shoulder to cry on :)
Hugs
Barbie