Hey everyone, My name is Amber and I have recently been diagnosed with seizures. Ive had them since March/April. I also have CP, the docs say they dont know what causes them yet, but I have epileptic and non epileptic type seizures,
If anyone would like to chat, just post a reply.
Thanks again,
Amber

hello amber,

welcome to the boards and just feel free to read and jump in to any that you want to respond to. maybe start off giving a little bit backroud and introduction to your self and your siezures. this might make it easier to get responses back. my name is jen and i have a 5 year old with siezures. hope you enjoy the board and talk at ya soon. :wave:

Jen,
Thanks for replying...I Have a mixture of sz umm i take 600 mgs of tegretal which IS NOT WORKING! Urrggg.... Im not sure what else to...say?
Amber

hi amber,

thats a good start. why dont you read some of the other posts. alot of them will start with mu introduction or somethign along that line. it will give youa good idea as to what to input. this way it will give people an insite as to what "your" situation is and then you might get someone who is going through what you are and can connect with you. if not then like i said feel free to jump in any other ones. good luck and welcome to the boards again. this is the place for the best friends that you dont know :)

Welcome Amber..... We are very chatty around here and quite friendly so feel free to ask any questions you need, someone general can answer it for you and if not, we will support you thru it!!

I'm Lisa, I've had E for three years now. I take Topamax, never tried Tegetral.. be patient, sometimes it takes these docs awhile to find that right drug for us!! How long have you been on this one??

How was your fourth? Have a great day and chat with you soon!! :wave:

Lisa

Thanks for the warm hello everyone!
Okay lets see if I get this intro thing right, ;)
My name is Amber (as some know by now,) and Im 16 years old. I was born 3months premature with Cerebral Palsy. I currently reside with My grandparents In PA.
On Dec 18th of last year my grandfather and I were in a car accident where we were hit from behind in a 45-50mph speed zone. the woman who hit us was going about 85.. I hit my head VERY HARD on the seat, when i came to, I called 911. I was the last to be taken away from the scene..they thought I broke my neck because i couldnt move volintarly, but I was shakeing and drooling. I got to the ER and everything was cool, they sent me home. A few days later i ended back up in a different ER and they had to put a neck brace on me. In March I was at Physical Therapy, and suffered my first seizure. They called the Ambulance, and I was in the hospital for like 3 weeks haveing 5-6 seizures a day... They waited and waited and waited to do the VEEG on me and the day I had in put on I only suffered 1 sz. They told me it was a fluke or something, but while I was down in that ER when They first admitted me, they told my grandparents I had several types of seizures...but my grandmother forgets what they are! I balled my eyes out because of that! So ever since they havent pin pointed my seizures, but I am going back to another neuro at AI DUPONT HOSPITAL FOR CHILDREN for tests.. Ever since being out of the hospital Ive still had seizures but they WERE controlled to about 1-2 a day. Now Im back up to 6-7 a day, I had a blood test to check my levels for the tegretal... last week and am still waiting for results... Ill let you all know what they are when I get them.
So thats...my novel.. And did I mention I was getting a service/seizure alert/response dog?

Thanks for listening.
Amber

Hi Amber,

My (our) daughter is 16 and has had E since she was 9 months old. She has Complex Partial seizures and just had surgery to remove her seizure focus. Her surgery was 4 weeks ago, and so far she has been seizure free!

She was having 3-5 Simple Partial seizures a day and a full Complex Partial once a week, that we knew of.

Did they do an MRI to see if you had any extra damage from the accident? Or is it difficult to distinguish with having CP? I don't know if a brain looks different on an MRI if you have CP. Is it possible the CP is causing your seizures and the accident was just a coincidence or weird timing? Just a thought. It's awesome you are getting a dog! They are so well trained! Were you on a waiting list for one?

I have worked with many kids with CP through the school district, and I am so happy to see that you are very aware of your situation and being proactive in your medical care...that is GREAT! Katie has been too, and that made the world of difference in her attitude toward having surgery.

Thanks for the more detailed info on yourself, and take good care of yourself!

p.s. Do you mind me asking if you are wheelchair bound? I don't at all mean to offend you Amber...is that why you have physical therapy now? Or from the accident?

Vicki

Vikki,
My dog should be ready by the end of the year! They did do an MRI but said things were hard to distinguish, stupid CP! I was paralysed for about 3 months after the accident and yes I was wheelchair bound. But for now I only use the wheelchair if Im...going LONG distance. :) {:bouncing:} that kinda looks like a w/ch huh? Thats great to hear about your daughter! Im so happy for her!
Keep in touch,
Amber