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View Full Version : Makeing a "Seizure Alert Binder"


missbbpepper
07-05-2004, 09:25 PM
For Anyone and Everyone,
I recently had to start takeing a backpack with me everyewhere I go, because of the Incline of seizures ive been haveing. In the back I included, First Aid Materials, A Towel, for putting my head on incase of a seizure, my medical information, and my Emergency Card. Ive also put together a binder type folio, that has Seizure First Aid, Types of Seizures, and Information. In The beginning of the binder it has my information about me such as (in this packet Ive made it easier for you by simply highlighting and or underlineing the types of seizures I have, and first aid for them. Although the papers say to call an Ambulance after 5 minitues if the seizure has not ended, please do not do so for me. A normal seizure for me lasts anywhere between 1-8 minutes so please do not be alarmed. And Ive also written down ways that the person, or standbyers can best help me)

I carry this around in my bag everywhere I go.
Just a thought that maybe some of you might like to do.

And As always Im open feedback! :) Thanks Again!
Amber :bouncing:

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tkdmom96
07-06-2004, 12:17 AM
WAY TO GO AMBER! :bouncing:

Being proactive!

Awesome! :bouncing:

Vicki,

Daughter Katie, 16, with E

MandiX
07-06-2004, 02:49 AM
That's a great idea but I do believe if you are somewhere where people don't know you-- they will call 911 right away. Its just instinct now when something like that happens.

missbbpepper
07-06-2004, 11:37 AM
I also have a patch on my bag that says, "If Im seizeing please open bag" :)

LisaGuthrie
07-12-2004, 05:16 PM
Hi Amber,

What a wonderful idea. I have 2 (yes count them, 2) kids with E. Jenny is 15 and out and about on her own to school and such... and I do worry, but would never think of taking her freedom or spirit away with my "Momma's worry!"

She's at her dad's in Vegas for the summer... and I hate when she flies alone (coming back 7/29)...

Thanks so much for sharing.

Love and light,

Lisa and kids

missbbpepper
07-17-2004, 11:47 PM
Lisa,
Sorry I didnt reply sooner! Ive been seizing out the wazoo...and so yeah.. Im praying for your children, AND YOU GURL! 2 kids with E....how does that happen!?!?! I think its great you dont take Jennys spirit and freedom away... we need that the most when we are kids with E.. after all if we cant get it from society, we NEED it from our parents to a certain degree... we need our independance even if we do have E. People today Dont and refuse to understand that... Lisa, if its okay may I send Jenny a friendship bracelet via snail mail if I make her one. I would love to chat with her sometime!
HUGS and PRAYERS FOR YOU AND KIDS!!!!!
Amber

 
 
 




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