:cool: Wondering if you were still messaging on this board? Was hoping we might keep one another posted on the progress for our kids, as their symptoms sound so much the same? Maybe one of us will find the answer, and then can help the other. Was hoping you would see this post and tell me whether this sounds like a good plan. ~ :wave: Tracy

Hi, Im still here, been real busy, Im so fed up with doctors! My daughter and I talked about whats going on with her, and all the homework i have done. For now we are going to try...increase fluid, salt and a multi-vit. I hope this works since I cant get a doctor to listen to me. We are also documenting everything about her....wake time, bed time, what she eats, when she eats, dizzy level on 1 to 10 scale, headachs, temp in morning before rising, at noon, and afternoon. So far there hasnt been a day that she is not dizzy, on a scale of 1 to 10 her average is 5-6. We have a athletic phys. on Aug 2, I might change that to a "WE WANT TO KNOW WHATS GOING ON" type instead.
Thanks for your concern. How is your kid doing, anything seem to help him?

So glad to hear from you! I've wanted to write or talk to someone with a similar situation for such a long time. The others on the boards are so helpful, but thought it might help to have contact with someone who had very similar symptoms, as does your daugter. I almost think the kids should become pen pals to vent THEIR frustration and sense of hopelessness, only I don't want either of them to become obsessed with their problems.

No luck in gettting a diagnosis yet, but at least we've found a doctor who doesn't give us five minutes and a handful of free anti-depressents and send us on our way. He seems to want to get to the bottom of this for us, and to care about how much impact these symptoms will have on my son's upcoming school year, which will not exist if he doesn't get to feeling better than he does now!

You mention your daughter rides horses. Just yesterday I was reading a story about Lyme Disease, and a person who rode horses being checked for it. Don't know if your daughter's been given the Western Blot test for Lyme (they say the Elisa isn't reliable), but thought I'd bring it up. This is something we have not pushed for. One doctor I suggested it to "poo pooed" it. Haven't brought it up again, because it hasn't been our prime suspicion.

HOW LONG HAS YOUR DAUGHTER BEEN FEELING LIKE THIS? I'm hazarding a guess that it must have been several mos., since you made some comments about her wanting to get up to go to school. My son started feeling badly in November, but was having some fatigue prior to this, with some accompanying sinus and ear infections. Don't know if the fatigue was this coming on, or just due to the infections.

Hoping to go back to have the ACTH stim test. It has beem recommended to me to check his renin, aldosterone and ACTH. Has your daughter been able to get any of THESE tests? This recommendation comes from a highly respected endo. The aldosterone can be low by itself, or it can go along with Addison's (& low Cortisol). Low aldosterone symptoms look very fitting for the symptoms our two kiddos are experiencing, especially in that it would lower blood volume and cause dizziness, especially upon rising. Perhaps if your doctor won't do any more tests at this time, you might want to go to the HealthcheckUSA on the web to see if you could order the renin and aldosterone tests. It has been my experience that these labs can't/won't do the ACTH stim test, but they will do ACTH plasma.

I know what you mean about spending time on the computer doing research. I hunger for a doctor who will do his job, so I don't have to try and miserbly fail. I think the one we've found this time will stick with us. I'll keep in touch to let you know when we find a diagnosis. I hope your daughter is able to maintain fairly high hopes and spirits throughout this ordeal. Wishing you all the best in your trial of salt and fluids and vitamins. We've been indirectly trying this through Gatorade and water and salty foods. We've tried various vitamins (B complex, trace minerals, multi-vitamins) but to no noticable end. The B complex seems to help his waning appetite. And the fluids seemed to take away the dark circles around his eyes.

Thanks for writing back. I wanted to believe you were still following the board, in case either of us finds an answer. It doesn't have to be the same answer for both kids, but I have a feeling it WILL be! It would be nice to think of ourselves as sort of a small "team". Best wishes, Tracy

Hi, the salt and stuff seems to be helping a littile bit, she still has dark rings under eyes. I am sooooooooo frustrated! She has been sleeping almost 15 hrs a day now. When I think back, I think she was starting to have a problem a few years ago and I didnt pay any attention to it, just thought it was her way of getting out of stuff. Over the past 5 years she has had many upset stomics, sinus infection, headachs and times when she was a little dizzy. In April of last year is when it really started to hit hard, by May she didnt have a day that was good. I didnt think she was going to pass the grade she was in, or that the school would call her truant and take us to court, at least they beleaved me that something was wrong. In the last 3 weeks of school I think she went 5 times, the day after she would go would be real bad, she would have to crawl everywhere so she wouldnt pass out. Im taking her to the peds doctor one more time and if she wont look into this more I have found a endo that we can go to. Im just tired of the run around, I know this is hard on the kids, but it is starting to take a toll on me too.
The doc didnt even think to test for lymes which now that I think about it is a possable, when she was still knee high to a grasshopper she had a deer tick stuck to her, had to have a doctor remove it, at the time they said they didnt think the thing had lymes, but who really knows, they never tested her for it. I will keep in mind what you have said about the testing. Better go for now, Ill keep in touch.
:bouncing: Janice

Dear Janice,

I'm sorry your daughter is feeling so poorly. Don't know if I said so in another post, but I've read that Aldosterone shortage can lead to dizziness, fatigue and postural hypotension/vasovagal.. One can have this without having a cortisol shortage or Addison's. I wonder whether this would be an easy enough thing to talk your doctor into checking? Sometimes they don't want to buy the idea of our kids having "rare" diseases, but perhaps an aldosterone insufficiency wouldn't seem so far fetched? Does your daughter have the tanned skin? Travis does not.
I, too, worried about how to explain things to the high school. Travis started missing school Nov., 2003 and didn't go at all the last few weeks of the semester. It got so hard for me to call the school that I started to ask my husband to take that stressful deed from me, and call in. In January we enrolled him in e-school (computerized school from the home). He started out excited about it, and feeling better for a week or so, then fell back into a slump of fatigue. Oddly, he had been given some antibiotics that week for a staph infection on his face, and it seemed as though the antibiotic got rid of most of the rest of his symptoms, too. But they came back shortly after he ran out of meds. Later we tried an antibiotic for another staph sore, and he didn't feel better this time. With the e-school, even though he didn't have to go anywhere to school, his thought processes were effected, and he was sleeping so many hours, he slept right through school hours. He could have worked from 4:00 p.m. until 9:00 p.m., but said his mind was foggy and could not even think the way it used to. I knew he wasn't faking it or just trying to get out of his studies, but try to tell that to strangers (school officials or even doctors who don't know you). They all look at you like you're being fooled by your child and aren't smart enough to know it. Then if that form of intimidation doesn't work, they try to jump to the conclusion that the child is emotionally upset, stressed out, or going through a depression. For this they offer anti-depressents we know won't address their symptoms, and are the kiss of death if you're chasing after a REAL diagnosis. It's basically a cop-out some doctors use when they give up on finding the cause of symptoms. When in doubt, blame it on the patient. It can get very exasperating, to the point where I feel almost as if I am being put on trial every time we enter a new doctor's office, at their mercy as to whether they'll swallow our "story"! Sometimes I feel like bringing character witnesses with me or written references about what type of a person I have always been. You want the doctors to believe you, and not think you're actually ENJOYING having a sick child! Sometimes I wonder, "What POSSIBLE motive could they think I have for 'wanting' more blood tests? I have no agenda except for my son to be healed! I would have been happy with just ONE blood test, if they'd known which one to give him. School was just an added pressure. His health was the REAL concern and worry. But I got so tired of having people get all excited and ask whether I realized how serious his missing all that school was. The analogy I came up with involves a handicapped child in a wheelchair. The coach of the athletic team in high school comes over and asks if his parents wouldn't like to see him participate on the track team. They say, "There's nothing that would give us greater pleasure, but it's not possible!". Then the coach goes on to argue, "But, don't you know he needs excercise and interaction with the other kids his age?!! He needs to get up out of his chair and run with the rest of the kids, or his heart won't be as healthy, the muscles in his legs will atrophy, and he will not fit in!" You feel like saying, "Don't you think I know this? You're nuts if you think YOU want him to be able to run any more than WE do, but he can't do it. Let's make the most of the life he has to live." I've found that even all but the best of friends and the closest of relatives have a hard time believing I'm taking the right steps to handle my son's situation. Many think I should just try giving him the antipressents, that maybe he's depressed and I don't know it. Many think I'm just going to have to start pushing him back into school. They don't understand that this would be impossible, as with your daughter. How can they attend? No matter how much they and we want them to be able to attend, we are not God or doctors, and we do not have the power to make this happen! I am so weary from trying to do a job I'm not up to. So tired of trying to doctor my son, because no one with the knowledge and training cares enough to do it for me. It is a panicky feeling when we can't get others to care and to invest time and effort into helping our children, and we don't feel competent to do so ourselves. What I told my younger son's school nurse last year was that I was to the point of needing a doctor who cared first, and a doctor with experience and know-how second. The right doctor won't feel right about sending us off with no solution. I pray that we will both find doctors like this! May God watch over you and your daughter, until she gets treatment.
This Wednesday we are going to see the endo. on staff at the same location as the new doctor we've found. I'm going to go in armed with some "ammunition", as I told my son. I'm going to take some suggestions and some support for my requests. If all else fails, we will pack ourselves up and go see a top-notch doctor I've heard about in L.A. At least there is a plan B, even though it will get costly!
Thanks for writing back! ~ :wave: Tracy

Hey hows it going? Im fit to be tied. Now my daughter doesnt want to admit or tell me when shes not doing well. Now she thinks I WANT something to be wrong with her. Which of corse I dont. I try to tell her that I can tell when she isnt feeling well JUST BY LOOKING AT HER, shes soooooooo pale, I've seen ghosts on TV that have more color to them. Yesterday she had to support herself with the walls just to make it from room to room. But "No mom theres nothing wrong". She doesnt have the tanning, but a small scrape or cut turns very brown as it heals. I keep telling her that its not normal for a girl her age to be like this. Im going to have a list of things I want the dotors to check out and if Im blown off again Im just going to tell them that I guess I need to find a new doc that will listen and check these things out, after all is it not me who is paying them for their service! Back when all this came to a head, I asked if she might be depressed and maybe we could try a anti-depressant, they wouldnt hear of it, they wanted me to take her to counsaling(sp). My daughter told me that she does get bummed out sometimes because of peer pressure but its not anything that any other kid isnt dealing with and she didnt think telling someone about all the petty things that happen in school is going to help her not feel dizzy or stop a headach. Which she is right about.
The one thing I have learned with all this is doctors dont like it when someone does homework to help themself understand or find a answer to whats going on, as if everybody who doesnt have a degree is some kind of idiot.
What I dont want for my daughter.....
To be dizzy all the time,
sleep all the time,
in general to feel like crap all the time.
What I do want for her.....
To be a happy healthy 15 yr old girl,
ride her horse when she wants,
and live life to its fullest.
Ok I'm done venting, I better go do chores, the animals are calling me. :D

Hi, Was wondering when your appointment is? Maybe your daughter is afraid to say that she's still not well, because she is getting tired of the doctors' reactions, or lack of concern? Perhaps that is taking a toll on her. Poor thing. My son had a somewhat similar reaction when he finally started to give up and think maybe the doctors knew more about him than he did himself. There are all these commercials out about depression and being too shy or this or that. He said one day an the way home from appointment number 16 or so, "Mom, maybe I should just try one of those medicines, unless they have bad side effects? They (the TV commercials) say you can even be depressed without knowing it.". I had to reassure him that he was not depressed; the doctors were just out of ideas, so they wanted to try to blame it on psychological causes to get themselves off the hook. A psychologist reading this would probably say, "Ah hah! Maybe he really IS depressed, and you will not stop denying it! Poor kid. He needs help, and you won't let him seek it!" But this is not the case. He just wants some kind of medicine. Once I mentioned a doctor was going to give him an MRI to see whether there was any swelling around the brain. He said, "I know it sounds weired, but I hope they DO find something wrong with my brain, IF it's easy to cure. It would explain my trouble with concentrating. And I could be healed!" Undoubtedly there are many who benefit from antidepressents, and there are probably those who are depressed without knowing that is what is bothering them. But I know my son, and he certainly knows HIMSELF, as well. There are certain symptoms that depression is NOT likely to be able to cause. Your daugter's very low blood pressure and my son's intermittent fevers at the onset of his troubles are examples. Again, when is your upcoming appointment? I pray that it will go well, and the doctor will listen and agree to do the tests for you! Be sure to ask for him/her to test Aldosterone level. It is such a humiliating thing to go through-- trying to convince a doctor to help us. But for our children's sake, I guess we need to try to keep a fairly calm and pleasant way about us. I know my son sometimes accuses me of being "dramatic" about his symptoms. I don't feel that I AM being dramatic, but he is easily embarrassed. He doesn't know that if I don't emphasize the symptoms, the doctors will DISMISS them as unimportant and unimpressive. Our next appointment is with an endochrinologist, and is coming up this Wednesday. I'll let you know how it turns out, although I may not know any test results for several days after. Your daughter's tan scars sound very familiar as an Addison's symptom. But you will get others chiming in to verify that, I hope! ~ Tracy

My daughter doctor moved her appointment up to this thursday. Now when I note to her that she looks real pale she tells me to 'go away theres nothing wrong with me'. I dont know if she is just scared or what. I told the nurse that called me that this appointment is going to be interesting because she doesnt want to admit that she has been dizzy, and sleeping too much.
I will let you know how it went.

I'm so sorry; this is hard on you too. Do you think she's just tired of being doted upon, or wanting to believe nothings wrong because of fear? Hope it is a stage she will work through. Maybe she will open up to Dad or a sibling? It WILL be hard to talk to a doctor if she isn't able to focus on her problems and be open any longer. I will pray for her strength and hope to return to her. Our appointments are only one day away. I am starting to be fearful. His tests are all turning out "normal", which is great on the one hand. But I know that doesn't really mean that everything is hunky dorey. Sometimes people act as though we should be happy the tests are O.K., but all it really means is that we still don't have a diagnosis. We can chalk a few things off our list, which is great, but we still don't have an answer OR most importantly a treatment. Let us know how Thursday goes. I hope it is a positive appointment. Maybe the doctor will encourage your daughter out of her "shell" of denial again. Hope you will have some light shed on matters. I'll fill you in on our appointment. I think things have got to be harder on your daughter, because her symptoms seem a bit more debilitating than my son's right now, and because it is her inclination and disposition to be ACTIVE. Trav loved TaeKwondo, but other than this was not an athletic type. He is content playing video games and his guitar. Not that he'd pretend to be sick to be allowed to do nothing but these, but he is not being kept from the only activities he enjoys by the sypmtoms. Maybe your daughter is trying to convince you AND herself that she is O.K. because cheerleading and school are coming up. Perhaps she fears she will be prohibited from taking place in cheerleading and school if she's too sick. Well, had better go get my kids off to bed! Have seven, but only four still living at home. ~ Tracy

AAAAAAAAAAAAAAAAAAAAAA, there I feel better, what a night. Every time I looked at my daughter she would say 'Im fine leave me alone, theres nothing wrong'. Most of the time I was looking at her because I was going to ask her to do something for me, man is she hyper sensitive now. She keeps telling me that Im treating her like a invalid, which is not true, if I was then why would I ask her to take care of the horse chore for me, Im not treating her any differant that I always have. Now mind you this is not something I would really do, but, I am so temted to duct tape her mouth so she would quit saying that Im treating her differant.
I only have 2 kids, my son is 21 and lives in a differant state, so she cant go to him, I dont think she would anyway, they didnt get along very well, sibling rivalry was really bad between them, I had hoped that when he moved out of my home they would get closer, so much for hoping.
As far as going to anyone else she didnt and doesnt want people to know that she has a problem, even with school, I had to make sure I told them to keep it to just the teacher and administrtion, she didnt want her friends to know. She reacts the same way to dad as she does to me. Grandmas out of the question, she has a problem understanding things to start off with, thats another story I wont get into.
Being a mom really eats dog doodoo sometimes. I try to remember when I was 15 to help me deal with this stuff, sometimes it helps to remember how I felt and thought at that age. ttfn tc Janice

Well the appointment didnt go as I had hoped. The doctor doesnt feel she has any type of adrenal problems because my daughter doesnt have the "tanning" all over just on healing cuts. She said maybe my daughter needs more structure in her life, so this is what we are to do for the next two weeks.....
no more than 9 hrs of sleep
only 1 hr of tv per day
excersize 1 hr a day
do something with her friends everyday
set chores that she is to do everyday(she already has chores)
In two weeks we go back and report IF this helped, if not the doctor doesnt know what to do, 'I have checked everything and cant find anything wrong, I guess I would have to send you to a nuro or something' was her coment. She did do a antibody tests to see if her body is making too many antibodies, we wont know the results of that till Aug 3 or 4, if my daughter wasnt depressed before she sure is now.
I dont know why or how she thinks that these 5 things are going to change anything, she had structure all year with school and she still had the problem. If this doesnt make any differance Im going to tell the doctor that we want to go to a osteopath, or should I say tell her AGAIN. Well I guess we will see how the next two weeks go.

Oh dear, Janice

Just who do these doctors think they ARE?! They weild the power to either let us languish in ill health while they chart the seas to Jamaica in cruise ships and proudly display pictures of marathons they've run in on their office wall, or to help us get well! They're actually trying to become psychologists, in their own right, when they speak about daily routines, etc. Our kingdom fr one or two who actually are enthusiastic about their jobs and would welcome a challenge once in a while! My Mom said, "Makes ya wonder what they get paid for!" You have my most sincere sympathies, as does your daughter. I would never have dreamed we'd have to fight this hard for care for our children in modern day America. It's with deep sadness these realities sink in. To let you know you are not alone, my husband stood by when I read your reply; he knows your situation, too. At the end of it, he shook his head and disgustedly said, "Oh, so in other words, the doctor's trying to teach her how to parent, huh? That's all! As if it's HER fault her daughter's sick!". And we have had the exact same approach or advise. They find out Travis' sleeping habits and don't bother to ask "Why?". They blame the CAUSE on the SYMPTOM. Everything goes inside out. They are sleeping such wacky hours or so many hours! That's why they're body is confused and tired. But Travis started out going to bed at a normal time, and was just unable to get up until the afternoon. Now he has two problems. Can't get to sleep until the wee hours of the morning AND doesn't rise until very late. Of course we've already tried waking him up early so he will get tired earlier the next night, etc. It's very hard to orchestrate the habits of a person whose body is just not working normally anymore!! And this idea of making the child return to life, because they can't find out what's wrong with them is a total cop-out! What they are really saying is, "I don't know how to fix them, so you're going to have to just PRETEND they're all right, and get them back into the swing of things!" This is just exactly what our primary care doctor said to me when he refused to test more or send us to any more referrals. His voice was stern, too, as if I was a greedy child asking for more attention than I deserved for my son! I was very proud of myself. I gaged that there was nothing to be gained by lashing back at him, even with kind but stern logic. You can't get anywhere with a person as closed-minded as he. So I stayed calm and just answered that I didn't think there was any chance we could just pretend him well, and get on with our lives. I thanked him, hung up and switched doctors. But who to switch to was another trial. And I still haven't found that "sage at the end of the rainbow".
A friend on another message board had a good idea. Perhaps it would help in your case, especially, since your daughter is being worn down by all the attention placed on her and the lack of concern by the doctors. My friend suggested I go to different doctors with the lab sheets I have for Trav and interview or meet them WITHOUT Travis. Some doctors will allow us to do this (they call it a "meet and greet" appointment). This can get costly, depending on our insurance. But it is something I had actually inquired about at one doctor's office. If we could interview some doctors BEFORE our child came with us, perhaps we'd spare our children the encounters with the ones with the poor, suspicious attitudes. What one needs when ill is NOT suspicion or insinuations of faking it. I might make a few calls today to see if I can get in to meet an osteopath or two. I live in Kansas (native So. Californian). What about you guys? Would be great if we were neighbors, so we could share any good doctor either of us comes up with!
Oh, one more thing. I'm SURE Chris or someone else will support me on this one (if they get this far in my messge!) Your doctor's all wet when she says the tanned scars cannot be a sign of Addison's!!! You may know that already. I have read DOZENS of testimonials by Addisonians who have said that one of their suspicious signs were their tel-tale dark scars! I am on other message boards, as well. I don't think this one permits us to share helpful, sometimes lifesaving websites, doctor's names and info or other such hints with one another. It is a board full of good people, with a few rules getting in the way at times. Wish we could have met under different circumstances!
Love, prayers and hope to you both! ~ :wave: Tracy

Thanks, Im going to try the eye test on her this morning(if I can get her up before noon/one). Going to look for that book today also, maybe I'll bring it with me to the next appontment. Then again I think I'll call a osteo on monday and make a "meet and greet" appointment and see what they say.
My daughter even asked me how the doctor thought what she said would help, its not like she doesnt have a routine to begin with. She tryed to get up after 9 hrs of sleep and her body just wouldnt have it, it took her 3 more hrs and me harping at her every 15 mins to get up, I asked her if she remembers me bugging her and she doesnt, I even bounced on her bed with no responce, she doesnt remember that either, although we had a good laugh about it('the stuff mom will do to make me get up')its a running joke now, atleast we can find stuff to laugh at.
I live in northern Minnesota, in the middle of nowhere so sharing a doctor wouldnt work(bummer)
:bouncing: good imitation of me yesterday.

Hi, :bouncing: Janice,
You were the topic of conversation between my mother and I yesterday, and while we spoke and I told her about your doctor's "orders" to have your daughter follow a regular routine, I remarked, "I'll bet she's going to find it VERY hard to get her daughter up!". Whether it's CFS, thyroid or adrenal issues we're dealing with, it sounds as if we're dealing with the SAME issues. Travis once couldn't get to sleep ALL night! I was so worried about him the next day, yet thought, "Ah ha! Maybe NOW we'll get him back to regular sleep habits. We can ask him to stay up all day, but go to bed no later than 10:00!". I told him my hopes, but about 3:00 p.m. he retired to his room and fell asleep, big clunky skater shoes and all! I tried to wake him about 5:00, thinking maybe the nap wouldn't ruin my plan. He would not be awakened. He slept all afternoon and evening, and wouldn't even get up at a decent time the next day. So all "routine" was lost. The doctors believe that our kids' funny sleep patterns are messing up their Circadian (sp?) rhythms, thus causing their fatigue, etc. But they are no doubt putting the horse before the cart. Their illnesses are causing the strange sleep patterns! We can try causing a routine, but I'm afraid we will both find out again and again that it is not capable of existing until treatment is given, just as it is not possible to "just force them to attend school", as some of my friends have suggested I will have to do with Trav. It is just not possible for them to attend school, as we have both seen. Last semester I withdrew him (so I could rid us of the pressure of calling in each morning and TRYING to attend). I just told the school he'd be home schooled, which he will, as much as his illness will allow. I keep telling Trav that I wish he was on a schedule more like ours, so we could interract with him a bit more, and we wouldn't have to leave him up alone in the wee hours of the night. I explained to him that with school approaching, I'm going to HAVE to get up at 6:00 a.m. to get the other kids on their way. If I continue to stay up late to spend some time with HIM, I might soon be the next victim of illness! :o) I told him I'd like to slowly try to ease him back to regular hours -- awaken him at 1:30 for three days, then 12:30 for another three days, then 11:00, and so on, until he awakens at 10:00 a.m. or so most of the time. Then maybe he will start to feel sleepy earlier and earlier. Travis doesn't sleep 15 hours anymore. He just sleeps weird hours (from 3:00 a.m., when he can finally fall asleep, to 3-4:00 p.m.!).
I hope you can get a "meet and greet" appointment (OR two, if needed, to find a GOOD osteopath). I have one scheduled for 11:45 on Tuesday with another osteopath. Not taking Trav. Hope they will let you do that, too. I'm just going to tell him I would like him to have adrenal issues ruled out, especially, using and ACTH stim test, aldosterone and renin levels. I'll see what he says to that, then ask some more questions about whether he treats patients based on their symptoms as well as their labs for thyroid issues. I'm sorry I don't remember, has your daughter had her thyroid tested already? Travis has, and he falls in the normal range, but has a steadily increasing TSH. I wonder whether trying meds for hypothyroid might help him. His body temp when he awakens seems very low, too. Chris and some others think this is a sign of thyroid issues. Not all doctors accept this idea. I'll tell you one thing. My blood pressure has always been about 108/64 most of my life. I often would give blood, but was right at the bottom level of what you could weigh to do it (110 lbs.). I was once called to L.A. to give blood for a man who was going to have heart surgery, because I have B- blood, and it is fairly rare. I drove up to L.A. the next morning, but when they were taking my blood, all of a sudden the nurse starting getting real excited. She looked frantic, and was elevating my feet and head and putting a blanket over me. I knew about shock, being a recent graduate of EMT-I (emergency med) training. I felt fine, but VERY relaxed and sleepy. After the hustle and bustle, she told me my blood pressure had fallen to 60/40, and they struck my name from the donor records and told me never to come back again! Rather dramatic, but I got the idea. My point for YOU is, your daughter's BP is from time to time near this dangerous level! Doctors should be worried about this. That nurse sure was, with me on the table, though there was an obvious CAUSE of my lowered blood pressure. I'm sure she wished she could have put my blood back in! Be sure to mention these LOW BP's to any doctor you interview. If they don't raise on eyebrow, they're not good doctors!! I say this with no hesitation or apology, no if's or buts. Your daughter's emergency room BP's have been good warnings of a condition that needs paying attention to!! That nurse minced no words to me when she said they almost "lost" me over a blood donation. She was furious (scared, probably, but it almost seemed as though she was angry with ME and thought I should have KNOWN better than to donate)! I probabaly know how your daughter feels when she feels faint. Usually after the blood donations I'd done before this particularly bad one, I would feel almost faint or dizzy about 30 min. after giving the blood. My BP was probably doing what your daughters does.
We'll just have to keep in touch. Best wishes, and sorry for the long post. ~ :wave: Tracy

Well my daughter did get up at 6 this morning, she strugled to stay awake all day, at 4 this afternoon she lost the fight and fell asleep on the couch, now its supper time and I cant get her up(oh well) she'll just have to eat when she does get up, the only bummer is now she will probably be up most of the night. I'll have to try to stay up with her for a while tonight, its hard for me thou because I'm used to getting up at 4 in the morning and going to bed by 10, going to drink coffee, maybe it will give me the buzz I need to stay awake with her, its such a drag not being able to do much with her. Her friends wanted her to go swimmin with them this afternoon, she was too tired to even think about it.
I told her what chris said and she blew up at me. Im so frustrated. Now she has it in her head that I WANT something to be wrong with her. I told her what mother in her right mind would WANT something to be wrong with their child. Then she wouldnt talk to me for a few hours.
I dont know what to do anymore, I dont want her to think that way about me, but since the DOCTOR said there was nothing wrong what does mom know. I feel like crying, screeming or just hiding (ok now I know I'm depressed) this is just getting to be too much.
:(

Would it work, then, to just kind of let her "alone" for a while (not solicit any info from her about how she feels, or make any comments about her not looking well) until she feels conpelled to come to YOU with a complaint? Maybe that way she'll be more likely to break down and pour out her heart of woes? So sorry things are not yet working out smoothly for you all. Maybe our appointments with these osteopaths next weeks will yield some information or cooperation, whichever way you want to think of it. Take care. May today be a better one. ~ :wave: Tracy