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Dessell
07-25-2004, 10:54 PM
Getting tested the 28th,,getting nervous,,symptoms like stuttering,clumsyness, memory getting worse this week,,wondered if anyone here experienced symptoms getting worse with moods??Thanks

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Jewel2
07-26-2004, 01:00 AM
Hi,
Yes, stress can exacerbate MS symptoms. But keep in mind that stress can make an otherwise healthy person have all of those symptoms you described.

I know it's easier said than done, but try to relax. Do some deep breathing. Or sing out loud! I just heard on the radio that singing is very healthy. You have to breathe deep to sing and it releases tension.

Not making light of your situation, but it is important to remain calm.

Best wishes for the 28th. Please let us know how it goes.

Best wishes,
Julie

Jewel2
07-26-2004, 10:48 AM
I don't know if it's just my computer or what, but I replied to this post and it is not picking up on the first MS page - it still reads zero replies. :confused: Hopefully this message will kick it into gear.

Julie

It worked!:)

Dessell
07-26-2004, 11:07 PM
Its on here Julie,,Thanks for your reply !! Took your advice and trying to get relaxed,,doing better.

catbirdpondlady
07-29-2004, 07:04 PM
I'm anxious to hear how the testing went and how you are doing. This all is very stressful.......not only all of the "diagnosing", but the wondering, the worrying and THE SYMPTOMS! Learning to live with the unknown is very difficult, but not imposible. The validity of learning relaxation techniques cannot be stressed enough. They have been a big help for me.
Right now I am in the midst of one of the worst flare ups I have had in several years. Lots of neuropathic pain all over my body, weakness in my arms, legs, hands, trouble with speech, vision........but the worst part is that feeling of my skin being on fire. I can hardly stand for anything to touch it. I have started a high dose prednisone pulse and taper and am taking ever increasing doses of neurontin in hopes that it will help. If it doesn't, I guess then it is back to the IV Solu-Medrol.
If my cardiac echo and other tests come back OK I will have another dose of Novantrone. Even though the last time landed me in the hosp with a white count of near zero and a severe fungal kidney infection, it DID help. My flare-ups have been at an all time low and the residuals almost undetectable. So, I'm in for an interesting next few wks. I will keep you posted......Please send some good thoughts my way and a prayer or two wouldn't hurt either :)
Love,
Penny

Jewel2
07-29-2004, 07:19 PM
Hi Penny,
So sorry to hear about the pain you're in right now. My daughter has found that a combination of neurontin and topomax really help cut down the neuropathic pain and burning. Just a low dose helps her best. You might talk to your doctor. Those two drugs are commonly used by people with RSD like I have to help with the burning.

Hope you get to feeling better soon!

Take care,
Julie

Dessell
07-30-2004, 02:07 AM
Hi all,,so sorry to hear bout your flare up Penny,my skin does'nt actually burn,but hurts,,especially if I take a shower,,feels like nails hitting my skin!! I went to the Neuor doc,,and I am sort of pissed,,(excuse my language).I told him my symptoms,he looked at my cervical mri,,I will admit I was nervous and was shaking badly,,he had the nerve to tell me I was "wired",,I overlooked the comment and asked if my probs would be related to ms,,he said I don't look like I have it,,meaning physically,,then looked at the mri and said,but I can;t guarantee you won't get it,,meaning the effacing around the spinal cord will just get worse.So,,I am getting blood work in the morning to see if my probs are due to any other disease,,like diabetes or thyroid ,enemic.The doc's I have went to have acted like I am putting these things on or faking,,I KNOW my body,something ain't right.The last thing I want is to be sick,I have 2 kids and my oldest has had Cerebal Palsy since birth,,so I can't understand why anyone would think or want to fake an illness,,sorry to dump on here to you guys just very frustrated.I am getting an EEG on the 11'th,,all that will show is my squirrel is as crazy as I am,lol,,any comments would be appreciated..,,prayers to all,Dessell

catbirdpondlady
07-31-2004, 05:47 PM
Thank you all for the good thoughts sent my way. I will check out the topomax.........Don't feel well enough to write much today, but I'll be back.
Good thoughts to you all!
Penny :blob_fire

Jewel2
07-31-2004, 07:21 PM
Dessell,
I believe you. Don't give up!

Penny,
I'm glad to hear you'll check out the topomax. These meds have helped my daughter so much. I hope you get to feeling better soon!

Julie

californiasunflower
08-02-2004, 01:28 PM
Hi Penny! Since your professional was nursing, here are some funnies I hope with cheer you up and speed your healing process! :jester:

Cal Sun :cool:

A retired nurse in her 70's was a pateint in the ICU. She was alert but a bit disoriented after her surgery. In a nearby cubicle, a confused elderly male patient was having difficulty settling down. Whenever he was left alone he
would shout out, "Nurse, Nurse!" relentlessly. At one point, his neighbor, the retired nurse, shouted back from her bed, "I'm busy right now, but I'll be there in a minute." -Fran London, RN

HOW TO KNOW YOUR PATIENT IS A NURSE

*Takes her own pulse while you get the temperature
*Asks if she'll be NPO tonight
*Lists her pills generically
*Can thread an IV tubing through the armhole of a gown without making any knots
*Brings a "Living Will" with her on admission and understands it
*Makes her own bed--and the roommate's, too, if she can get to it
*Takes out her own IV and foley catheter
*Calls out suggestions to the code team when her roommate arrests
--Nancy Burden, RN

As I was eating breakfast one morning
I overhead two oncologists conversing
One was complaining bitterly, "You know, Bob, I just don't understand it. We used the same drugs, the same dosage, the same schedule, and the same entry criteria. Yet I got a 22 percent response rate and you got a 74 percent. That's unheard of for metastatic lung cancer. How do you do it?"
His colleague replied, "We're both using Etoposide, Platino, Oncovin, and Hydrousyurea. YOu call yours EPOH. I tell my patients I'm giving them HOPE. As dismal as the statistics are, I emphasis that we have a chance."
Dr Buchholz

Hope sees the invisible
feels the intangible
and achieves the impossible!

I was doing a sexual history on my patient at the time of her Pap test. I asked my 80 year old if she was sexually active, and she replied, "Well, not active, active--not every night!!!!"
Sandra Crandall, RN, FNP

I have what a laugh can do. It can transform almost unbearable tears into something bearable, even hopeful. Bob Hope

When someone has a personal phone call during a hectic time in our emergency room, we use the code, "Dr. Jones is on the phone!" This provides discretion when one is with a patient. One busy night, Christie's nine-year old son called for the second time that night. Christie was treating a man with a minor laceration right outside the nurse's station, so it was easy to attract her attention.
"Oh Christie, Dr Jones is calling, " I said. Christie asked the man to keep pressure on the wound, and headed for the phone.
The patient overheard when Christie narled, "What did I tell you mister? You get into that tub immediately!" and slammed down the phone. She never noticed her patient's wide eyes. But he did follow her every instruction! :D
Vince Maravek, RN

A LIST OF BOOKS ABOUT NEW AGE TOPICS

*There's No Mind, Never Mind--and Zen Some by Roshi Alzheimer
*I Never Metaphysics I Didn't Like, by Will Tulku Rogers
*A Knife Thrower's Guide to Acupuncture, by Guy Fat Fang
*Everybody Needs Samadhi Sometime, by Paramahansa Yogananda Parlez-Vous?
* The Egyptian Book of Dead Jokes by Pharoah Hohotep
*Dont Fall Off a Limb, by Surely Deranged

To encourage patients to take deep breaths after surgery, nurses, or respiratory therapists will teach the patient to use inspirometers. Several years ago, a popular model included a chamber with three plastic balls, which when the patient blew into the mouthpiece hard enough the balls would rise to the top of the chamber.
The young male respiratory therapist had been working with 85 year old Mrs. M. every hour, and she was growing weary. As he entered the room for the ninth time, the patient announced, "Looky here,, sonny. You can just blow your own balls!" Patty Wooten, RN

You know you're getting older when you stoop to tie your shoes and you ask yourself. "What else can I do while I'm down here?" George Burns

I had just finished applying a condom catheter to my slightly confused 70 yr old patient, when he scolded me: "Does your mother know what you do for a living?" Patty Wooten, RN

Ten minutes of genuine belly laughter had an anesthetic effect and would give me at least two hours of pain-free sleep. Norman Cousins

I was working in the ER during my 3rd year as a resident in cardiology. The ambulance had brought a man into the hospital in full cardiac arrest. While the rest of the team was busy with the Code, I went out to interview the wife about the possible causes.
She explained to me: "Well, we was making love, and he just started shakin' and shakin' and turnin' blue. I couldn't figure out if he was comin' or goin'. Finally, I figured out he was goin' so I called 911." M. Grais, MD

Warning: Humor may be hazardous to your illness

I was preparing to leave the hospital when one of the doctors gave me some last minute instructions. He tole me to wait two weeks before I had sex and six weeks before I drove a car. Or was it the other way around? I was still a little foggy and the entire discussion confused me, so I just promised him that I wouldn't have sex and drive at the same time and let it go at that. Lewis Grizzard

Sending lots of prayers and hugs. :angel: I know you'll get well! :)

catbirdpondlady
08-03-2004, 03:54 PM
You are soooo good for me CalSun!! Laughing does make the whole situation much more manageable. We are catching hurricane Alex..........it's not that bad. We have had much worse. More later.
:wave: Penny

californiasunflower
08-05-2004, 06:24 PM
Good! I'm very glad! I'll watch the news to see how Hurricane Alex is progressing....

Take care! :)





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