worryworttx
07-27-2004, 11:28 AM
A couple of years ago, I had seen a neurologist because I was running into walls, dropping things, muscle atrophy in my upper thigh area and not being able to distenguish hot from cold...did all the MRI's and stuff and everything was good. I have been having some health related problems over the last couple of years from extreme stress...I have that under control but can't help but feel like a hypochondriac with everything right now...the symptoms that I am having are the top of my legs (both thighs) are like I have pins and needles on them and even my skirt is bothering them today.
What do I do? I truely think that I may be having symptoms and have been for years of MS...but I just don't know what to do...
Any help would be nice.
What do I do? I truely think that I may be having symptoms and have been for years of MS...but I just don't know what to do...
Any help would be nice.
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Jewel2
07-27-2004, 06:38 PM
Hi,
Have you seen the neurologist recently about your newer symptoms? If it has been a while since your MRI it might be worth having another one done. Did he ever do a lumbar puncture? Again, it might be worth pursuing this in light of your newest symptoms.
You know your body best. If things aren't right, then don't be afraid to see the doctor.
Best wishes,
Julie
Have you seen the neurologist recently about your newer symptoms? If it has been a while since your MRI it might be worth having another one done. Did he ever do a lumbar puncture? Again, it might be worth pursuing this in light of your newest symptoms.
You know your body best. If things aren't right, then don't be afraid to see the doctor.
Best wishes,
Julie
painsucks
07-27-2004, 07:02 PM
Jewel is right. You should see your neurologist again. Since MS is so difficult to diagnose, especially if it is inactive at the time you're being tested, then some things may not have been detected in your last tests. I went for ten years, suffering with fibromyalgia and always thinking there was more to what was going on in my body than that, without a diagnosis. Finally, last March, I went to a different neurologist who was amazed that I hadn't had an MRI with contrast and a spinal tap. He ordered both and found lesions on my brain and spine, among other things that I can't remember right now. Good luck to you, keep us informed.
worryworttx
07-27-2004, 10:23 PM
thank you all so much for giving me some information...I just need to take the bull by the horns and go back to the doc for a new set of problems.
californiasunflower
07-29-2004, 05:58 PM
Jewel is right. You should see your neurologist again. Since MS is so difficult to diagnose, especially if it is inactive at the time you're being tested, then some things may not have been detected in your last tests. I went for ten years, suffering with fibromyalgia and always thinking there was more to what was going on in my body than that, without a diagnosis. Finally, last March, I went to a different neurologist who was amazed that I hadn't had an MRI with contrast and a spinal tap. He ordered both and found lesions on my brain and spine, among other things that I can't remember right now. Good luck to you, keep us informed.
Hey Painsucks! :wave: Hope you're feeling good today! A very good question came to light after reviewing your post---
How does one know when MS is inactive? Especially if someone has ON and their MRI is negative. That is puzzling, but I know it happens. Can you or someone clarify that more?
Hey Painsucks! :wave: Hope you're feeling good today! A very good question came to light after reviewing your post---
How does one know when MS is inactive? Especially if someone has ON and their MRI is negative. That is puzzling, but I know it happens. Can you or someone clarify that more?
Jewel2
07-29-2004, 06:06 PM
Hi CalSun,
We consider my daughter's MS 'inactive' (I use that term loosely) when she hasn't had any new symptoms and her old ones aren't flaring. But this is only a guideline because as we all know activity can be happening even when symptoms aren't showing it. For example, my mom's MS hasn't really caused her lots of external symptoms over the years, but her MRI's keep showing more lesions. I guess some day it will catch up with her - though I fervently pray it doesn't!!
I know that's as clear as mud, but it's the best I could do.
:wave:
Julie
We consider my daughter's MS 'inactive' (I use that term loosely) when she hasn't had any new symptoms and her old ones aren't flaring. But this is only a guideline because as we all know activity can be happening even when symptoms aren't showing it. For example, my mom's MS hasn't really caused her lots of external symptoms over the years, but her MRI's keep showing more lesions. I guess some day it will catch up with her - though I fervently pray it doesn't!!
I know that's as clear as mud, but it's the best I could do.
:wave:
Julie
painsucks
07-29-2004, 06:56 PM
Hey CalSun!
I think Julie summed it up pretty well, I guess I consider my MS "active" when I'm not suffering from severe attacks of vertigo or electric shock feelings, etc. But that's certainly not a medical definition for what goes on in my body. Perhaps a closer hit at a medical definition would be to say that MS is active when there is actually demylenation happening??? I don't know, gee, that really is worth some thought. :confused:
I think Julie summed it up pretty well, I guess I consider my MS "active" when I'm not suffering from severe attacks of vertigo or electric shock feelings, etc. But that's certainly not a medical definition for what goes on in my body. Perhaps a closer hit at a medical definition would be to say that MS is active when there is actually demylenation happening??? I don't know, gee, that really is worth some thought. :confused:
californiasunflower
08-10-2004, 12:26 PM
Julie, actually, I'm beginning to understand mud very clearly now!
Painsucks, that makes sense that MS is active when demyelin....ation occurs.
Hey you guys, Thanks for the clarification. Both your posts were helpful. I appreciate it! :)
Cal Sun :cool:
Painsucks, that makes sense that MS is active when demyelin....ation occurs.
Hey you guys, Thanks for the clarification. Both your posts were helpful. I appreciate it! :)
Cal Sun :cool: