worryworttx
07-28-2004, 11:42 AM
If you don't mind me asking, what were everyone's first symptoms? I am going to get the courage to call the doc today and see if he will send me to a neurologist? I just can't help but to think that there is something wrong...my legs hurt so badly with the pins and needles feeling and the numbness is driving me crazy...I do have anxiety issues, but I really don't think that it contributes to the majoirity of the symptoms that I have. I did blow off my symptoms over the last couple of years due to the illness and death of my Mom. While she was alive the stress was unimaginable...and was having some very bad panic/anxiety issues with my heart. Mom passed away a year ago and now it seems that my heart (although sometimes it flutters and skips some beats) is doing better. My weakness, seeing spots, numbness in different parts of my body, dizzyness, inability to type or spell sometimes, inability to speak clearly and what not...it seems to be worse...right this instant if feels like a have a million ants crawling up my leg. I have every test imaginable from C-Scans, MRI, heart test, stress test and every blood test known to man. I do have a few real problems that I am having surgery for at the end of next month...I have a breast problem and had a lumpectomy last year and now I am going to have to have the whole duct removed which will cause deformation in the breast..although I don't care and my wonderful husband doesn't care either. But I just can't seem to get rid of the numbness and uneasy feeling...and again I am scared to ask my doctor about it, but am going to suck it up and call him later. And although I am not telling my husband anything because he is so tired of hearing anything from me...you have to understand the amount of stress we have had on us...I now that it is not as much as other people but it sure was a lot with my Mom...and we took care of her until we took her off of life support last year a day before my Dad's birthday.
O.K., I am just starting to ramble...the end of the story is yes I think that stress can cause some serious problems, yes I have dealth with those (deal with them everyday) but I just can't imagine that this is all a direct result of the same stress that I had a few years ago.
Just would like to have some input on your diagnosis...my doctor seems to be putting everything off to stress, which to some degree I accept, but my stress level has gone way down...I do have a very high stress/high profile job, but who doesn't these days...
Thanks to everyone...
Bec :wave:
O.K., I am just starting to ramble...the end of the story is yes I think that stress can cause some serious problems, yes I have dealth with those (deal with them everyday) but I just can't imagine that this is all a direct result of the same stress that I had a few years ago.
Just would like to have some input on your diagnosis...my doctor seems to be putting everything off to stress, which to some degree I accept, but my stress level has gone way down...I do have a very high stress/high profile job, but who doesn't these days...
Thanks to everyone...
Bec :wave:
Sponsor
Jewel2
07-28-2004, 11:53 AM
Hi Bec,
Just be forthright with your doctor and tell him that, yes, you are stressed, but the symptoms you have go beyond what stress might cause.
My daughter's presenting symptoms were tingling toes and leg weakness. Shortly after that she had ON and then complete paralysis.
Best wishes with the doctor visit. Please stay in touch.
:wave:
Julie
Just be forthright with your doctor and tell him that, yes, you are stressed, but the symptoms you have go beyond what stress might cause.
My daughter's presenting symptoms were tingling toes and leg weakness. Shortly after that she had ON and then complete paralysis.
Best wishes with the doctor visit. Please stay in touch.
:wave:
Julie
RVB
07-28-2004, 12:02 PM
Hey Bec.
I want you to know that I am by no means a doctor. However, over the past few months I've been sufforing from symptoms of MS and am currently waiting a diagnosis. During that time I've been studing MS and also studing common misdiagnosis of MS. If you say you've gone through the MRI's and everything else is clear. To me it sounds like Chronic Fatigue Syndrome.
Maybe this is something to look into.
Just trying to help
Rich
I want you to know that I am by no means a doctor. However, over the past few months I've been sufforing from symptoms of MS and am currently waiting a diagnosis. During that time I've been studing MS and also studing common misdiagnosis of MS. If you say you've gone through the MRI's and everything else is clear. To me it sounds like Chronic Fatigue Syndrome.
Maybe this is something to look into.
Just trying to help
Rich
sunshine149
07-28-2004, 01:14 PM
My first MS symptoms were loss of vision in one eye, numbness and weakness in my legs, numbness on one side of my face and tongue and extreme fatigue. My initial MRI scan showed nothing and I didn't have a definitive MS diagnosis for 2 years.
It sounds as if you have had a lot of stress recently. My mother was very ill for an extended period of time so I can relate. I think you do need to keep advocating for yourself with your doctor and absolutely as to see a neurologist. Also consider medication to treat your anxiety. I am taking an SSRI drug for anxiety and depression and it has absolutely saved my life.
Best of luck, I mean that!
It sounds as if you have had a lot of stress recently. My mother was very ill for an extended period of time so I can relate. I think you do need to keep advocating for yourself with your doctor and absolutely as to see a neurologist. Also consider medication to treat your anxiety. I am taking an SSRI drug for anxiety and depression and it has absolutely saved my life.
Best of luck, I mean that!
worryworttx
07-28-2004, 05:24 PM
Thank you all for your responses...I do have serious vision problems as well, and I do take medication for my anxiety. I really don't think that is what the problem is...
How were you finally diagnosed?
Bec
How were you finally diagnosed?
Bec
HeatherJM
07-28-2004, 11:45 PM
Hi Bec, it sounds like your a real trooper! Your battles with your doctor are not uncommon and, although I haven't been there, you really need to lay it out for him. If he mentions stress again, just tell him that your stressed b/c of your symptoms and the fact that he's not taking your seriously! If that doesn't work, find another one!
My initial symptoms were fatigue (so bad I was falling asleep at work!) and right side numbness. I couldn't figure out why I was so tired all the time! Now I know. gggrrr! ;)
Hopefully what your suffering with is something simple, and hopefully the suffering will stop!
Good luck!!
My initial symptoms were fatigue (so bad I was falling asleep at work!) and right side numbness. I couldn't figure out why I was so tired all the time! Now I know. gggrrr! ;)
Hopefully what your suffering with is something simple, and hopefully the suffering will stop!
Good luck!!
worryworttx
07-29-2004, 10:40 AM
Thank you so much everyone, it is so lonely when you don't know what is going on...although I have great family support, it still makes you feel like you are crazy...
I am always tired...although I do not fall asleep at work (too high profile and stressful LOL) I could probably go to sleep at any time of the day...the only real health problems that I have are:
Horrible Acid Reflux/GERD...my own fault b/c I am afraid of medication
Breast Disease--having surgery at the end of August to remove the entire duct
Ear Problems...seeing ENT tomorrow for surgery...
Panic/Anxiety problems, but seem to have them under control for the most part sometimes I get a bit anxious, but who doesn't.
Again, thanks for all the response...
Bec
I am always tired...although I do not fall asleep at work (too high profile and stressful LOL) I could probably go to sleep at any time of the day...the only real health problems that I have are:
Horrible Acid Reflux/GERD...my own fault b/c I am afraid of medication
Breast Disease--having surgery at the end of August to remove the entire duct
Ear Problems...seeing ENT tomorrow for surgery...
Panic/Anxiety problems, but seem to have them under control for the most part sometimes I get a bit anxious, but who doesn't.
Again, thanks for all the response...
Bec
sunshine149
07-29-2004, 02:13 PM
I was finally diagnosed when a subsequent MRI scan showed lesions "not unlike those associated with multiple sclerosis."
elecchic1022
07-29-2004, 05:09 PM
Hi Worryworttx,
My first symptoms of MS were double vision when I looked to the left(lasted only 3 days), facial numbness on left side, weakness in my body on left side, fatigue (fell asleep during my first MRI :D ), confusion, stumbled over my words, tremor in left hand (which still remains) and a feeling of being off balance. All went away in about 9 months, except the tremor.
My MRI had a VERY tiny lesion in my brain stem, right side. It was thought that I had a mini-stroke. What sealed my fate was a spinal tap (lumbar puncture). There were elevated protein levels in my spinal fluid. This is usually a pretty accurate test, in conjuction with MRI and, for some, an Evoked Potentials test, which I did not have.
All the best and Take care of YOU!
Chrissy
My first symptoms of MS were double vision when I looked to the left(lasted only 3 days), facial numbness on left side, weakness in my body on left side, fatigue (fell asleep during my first MRI :D ), confusion, stumbled over my words, tremor in left hand (which still remains) and a feeling of being off balance. All went away in about 9 months, except the tremor.
My MRI had a VERY tiny lesion in my brain stem, right side. It was thought that I had a mini-stroke. What sealed my fate was a spinal tap (lumbar puncture). There were elevated protein levels in my spinal fluid. This is usually a pretty accurate test, in conjuction with MRI and, for some, an Evoked Potentials test, which I did not have.
All the best and Take care of YOU!
Chrissy
californiasunflower
07-29-2004, 05:29 PM
Thank you so much everyone, it is so lonely when you don't know what is going on...although I have great family support, it still makes you feel like you are crazy...
I am always tired...although I do not fall asleep at work (too high profile and stressful LOL) I could probably go to sleep at any time of the day...the only real health problems that I have are:
Horrible Acid Reflux/GERD...my own fault b/c I am afraid of medication
Breast Disease--having surgery at the end of August to remove the entire duct
Ear Problems...seeing ENT tomorrow for surgery...
Panic/Anxiety problems, but seem to have them under control for the most part sometimes I get a bit anxious, but who doesn't.
Again, thanks for all the response...
Bec
Hey Bec! :wave:
Well, I would have to say you are a powerhouse after all that you have done and are doing!
I regret to hear about the loss of your mother. Saying goodbye is very difficult and taking care of them during their last years takes a toll on your heart too! You must feel gratified that you were there and what a comfort that was for her! Very loving and kind.
With the breast cancer diagnosis and treatment, does that include a CA-125 lab test? If not, I recommend you have one to see what your level is.
Cancer is very fatiguing. I "highly" recommend reading the book or listening to the book on tape, "It's Always Something," by Gilda Radner. Gilda left us with valuable insight into symptoms and signs of illness, how she was diagnosed and treated. Very valuable. Anyone who is ill and on a journey to a diagnosis--this is a must read/listen to on tape. Regardless of their condition--even if not cancer related. Because she speaks about many of the issues on that journey. After her diagnosis, she spoke highly of the Wellness Community, a support group.
You've been through a lot, but it appears to me that the causation of symptoms may be more than just stress. So I hope you will pursue finding the cause of your symptoms as well as finding a physician who will be your partner getting the diagnosis & treatment. Keep us informed!
I am always tired...although I do not fall asleep at work (too high profile and stressful LOL) I could probably go to sleep at any time of the day...the only real health problems that I have are:
Horrible Acid Reflux/GERD...my own fault b/c I am afraid of medication
Breast Disease--having surgery at the end of August to remove the entire duct
Ear Problems...seeing ENT tomorrow for surgery...
Panic/Anxiety problems, but seem to have them under control for the most part sometimes I get a bit anxious, but who doesn't.
Again, thanks for all the response...
Bec
Hey Bec! :wave:
Well, I would have to say you are a powerhouse after all that you have done and are doing!
I regret to hear about the loss of your mother. Saying goodbye is very difficult and taking care of them during their last years takes a toll on your heart too! You must feel gratified that you were there and what a comfort that was for her! Very loving and kind.
With the breast cancer diagnosis and treatment, does that include a CA-125 lab test? If not, I recommend you have one to see what your level is.
Cancer is very fatiguing. I "highly" recommend reading the book or listening to the book on tape, "It's Always Something," by Gilda Radner. Gilda left us with valuable insight into symptoms and signs of illness, how she was diagnosed and treated. Very valuable. Anyone who is ill and on a journey to a diagnosis--this is a must read/listen to on tape. Regardless of their condition--even if not cancer related. Because she speaks about many of the issues on that journey. After her diagnosis, she spoke highly of the Wellness Community, a support group.
You've been through a lot, but it appears to me that the causation of symptoms may be more than just stress. So I hope you will pursue finding the cause of your symptoms as well as finding a physician who will be your partner getting the diagnosis & treatment. Keep us informed!
californiasunflower
07-29-2004, 05:37 PM
Hi Worryworttx,
My first symptoms of MS were double vision when I looked to the left(lasted only 3 days), facial numbness on left side, weakness in my body on left side, fatigue (fell asleep during my first MRI :D ), confusion, stumbled over my words, tremor in left hand (which still remains) and a feeling of being off balance. All went away in about 9 months, except the tremor.
My MRI had a VERY tiny lesion in my brain stem, right side. It was thought that I had a mini-stroke. What sealed my fate was a spinal tap (lumbar puncture). There were elevated protein levels in my spinal fluid. This is usually a pretty accurate test, in conjuction with MRI and, for some, an Evoked Potentials test, which I did not have.
All the best and Take care of YOU!
Chrissy
Chrissy,
Hi! Thanks for sharing! I hope you can answer a question for me.
My doc is monitoring me since ON. I wanted to ask you about the tremor. I've developed one too. I'm not sure how to put this but do you feel not only is the tremor affecting your L. hand, but internally, can you feel it inside? I know this sounds weird. When I lay down I can feel it more strongly. Do you experience this? Again, weird, huh? :D
My first symptoms of MS were double vision when I looked to the left(lasted only 3 days), facial numbness on left side, weakness in my body on left side, fatigue (fell asleep during my first MRI :D ), confusion, stumbled over my words, tremor in left hand (which still remains) and a feeling of being off balance. All went away in about 9 months, except the tremor.
My MRI had a VERY tiny lesion in my brain stem, right side. It was thought that I had a mini-stroke. What sealed my fate was a spinal tap (lumbar puncture). There were elevated protein levels in my spinal fluid. This is usually a pretty accurate test, in conjuction with MRI and, for some, an Evoked Potentials test, which I did not have.
All the best and Take care of YOU!
Chrissy
Chrissy,
Hi! Thanks for sharing! I hope you can answer a question for me.
My doc is monitoring me since ON. I wanted to ask you about the tremor. I've developed one too. I'm not sure how to put this but do you feel not only is the tremor affecting your L. hand, but internally, can you feel it inside? I know this sounds weird. When I lay down I can feel it more strongly. Do you experience this? Again, weird, huh? :D
californiasunflower
07-29-2004, 05:40 PM
Hi Bec, it sounds like your a real trooper! Your battles with your doctor are not uncommon and, although I haven't been there, you really need to lay it out for him. If he mentions stress again, just tell him that your stressed b/c of your symptoms and the fact that he's not taking your seriously! If that doesn't work, find another one!
My initial symptoms were fatigue (so bad I was falling asleep at work!) and right side numbness. I couldn't figure out why I was so tired all the time! Now I know. gggrrr! ;)
Hopefully what your suffering with is something simple, and hopefully the suffering will stop!
Good luck!!
Hi Heather! I'm back! Thanks for the posts you left me and waiting patiently for me to return! :D
Hi Bec, Ditto!
My initial symptoms were fatigue (so bad I was falling asleep at work!) and right side numbness. I couldn't figure out why I was so tired all the time! Now I know. gggrrr! ;)
Hopefully what your suffering with is something simple, and hopefully the suffering will stop!
Good luck!!
Hi Heather! I'm back! Thanks for the posts you left me and waiting patiently for me to return! :D
Hi Bec, Ditto!
elecchic1022
07-29-2004, 07:32 PM
Hi Californiasunflower,
Have you seen your neurologist to talk to him/her about your recent hand and internal tremor?
I am sorry, but I haven't had an internal tremor. I get more like internal nerve tics. Not painful, just bothersome. I get them often, but mostly in my thighs, but on occassion, it feels like it is somewhere deep inside my torso.
A couple of times I have experienced a "buzzing" sensation in my left upper arm. Not sure what that is all about.
That internal tremor must feel really weird. If you haven't talked with or seen your neuro lately you may want to have that checked out.
All the best,
Chrissy
Have you seen your neurologist to talk to him/her about your recent hand and internal tremor?
I am sorry, but I haven't had an internal tremor. I get more like internal nerve tics. Not painful, just bothersome. I get them often, but mostly in my thighs, but on occassion, it feels like it is somewhere deep inside my torso.
A couple of times I have experienced a "buzzing" sensation in my left upper arm. Not sure what that is all about.
That internal tremor must feel really weird. If you haven't talked with or seen your neuro lately you may want to have that checked out.
All the best,
Chrissy
HeatherJM
07-30-2004, 04:50 AM
Oh me Oh my! Cal Sun has returned!! What happened to you? Had me wondering.. LOL. As far as the internal tremor.. similar to a buzzing? Does it feel like you plugged your finger into the wall? I've had that.
So tell me whats up? Other than the I.T., how are ya?
So tell me whats up? Other than the I.T., how are ya?
californiasunflower
07-30-2004, 12:46 PM
Hi Californiasunflower,
Have you seen your neurologist to talk to him/her about your recent hand and internal tremor?
I am sorry, but I haven't had an internal tremor. I get more like internal nerve tics. Not painful, just bothersome. I get them often, but mostly in my thighs, but on occassion, it feels like it is somewhere deep inside my torso.
A couple of times I have experienced a "buzzing" sensation in my left upper arm. Not sure what that is all about.
That internal tremor must feel really weird. If you haven't talked with or seen your neuro lately you may want to have that checked out.
All the best,
Chrissy
HI Chrissy,
Yes, my neuro dx'd the tremor. But I need to discuss the other. And, I do feel it in my torso. That is where it is strongest particularly when I lay down. Also, I feel shaky inside sometimes. From my neck down. And when I feel that internal strange sensation, sometimes it ends with a jerking of my limbs )arms/shoulders and/or upper legs sometimes). Cute, huh? Is the tic you experience like a jerking?
Have you seen your neurologist to talk to him/her about your recent hand and internal tremor?
I am sorry, but I haven't had an internal tremor. I get more like internal nerve tics. Not painful, just bothersome. I get them often, but mostly in my thighs, but on occassion, it feels like it is somewhere deep inside my torso.
A couple of times I have experienced a "buzzing" sensation in my left upper arm. Not sure what that is all about.
That internal tremor must feel really weird. If you haven't talked with or seen your neuro lately you may want to have that checked out.
All the best,
Chrissy
HI Chrissy,
Yes, my neuro dx'd the tremor. But I need to discuss the other. And, I do feel it in my torso. That is where it is strongest particularly when I lay down. Also, I feel shaky inside sometimes. From my neck down. And when I feel that internal strange sensation, sometimes it ends with a jerking of my limbs )arms/shoulders and/or upper legs sometimes). Cute, huh? Is the tic you experience like a jerking?
californiasunflower
07-30-2004, 01:04 PM
Oh me Oh my! Cal Sun has returned!! What happened to you? Had me wondering.. LOL. As far as the internal tremor.. similar to a buzzing? Does it feel like you plugged your finger into the wall? I've had that.
So tell me whats up? Other than the I.T., how are ya?
Hey There! Really good to share posts with you again! I had reached a low point where I was so fatigued and in lots of pain. No enery whatsoever and just out of my mind. Have been having treatment which has me up and around, plus able to cope with the symptoms better. I absolutely got to a point where I couldn't do anything.
Warning: Couch potato kills. :o I'm banned from the couch and have restrictions for laying around on the bed! :D Of course, I'm just kidding. From this experience though, I learned, hopefull, how to manage keeping a level of activity in with rest time. It is difficult to balance. I know you know what I mean. Hopefully, I won't fall back into the fatigue/pain stupor I was in. My eye flared up too and will be seeing the doc soon.
Yeah, I feel like I could supply the power to our house. Who needs the electric company with these currents! :D
So tell me whats up? Other than the I.T., how are ya?
Hey There! Really good to share posts with you again! I had reached a low point where I was so fatigued and in lots of pain. No enery whatsoever and just out of my mind. Have been having treatment which has me up and around, plus able to cope with the symptoms better. I absolutely got to a point where I couldn't do anything.
Warning: Couch potato kills. :o I'm banned from the couch and have restrictions for laying around on the bed! :D Of course, I'm just kidding. From this experience though, I learned, hopefull, how to manage keeping a level of activity in with rest time. It is difficult to balance. I know you know what I mean. Hopefully, I won't fall back into the fatigue/pain stupor I was in. My eye flared up too and will be seeing the doc soon.
Yeah, I feel like I could supply the power to our house. Who needs the electric company with these currents! :D
elecchic1022
07-31-2004, 03:58 PM
Hi Calsun,
No, the tic isn't like a jerking. It is more like what you might get occassionally in the eyelid. It is rapid, and can be seen at times. When it is going in one of my limbs, it looks like I am moving that muscle area at a rapid pace. It can last in one area for a day or two, off and on during the day. Then, all of the sudden, go at an extreme pace (like a grand finale), then it stops, and another tic will appear somewhere :rolleyes: else on my body.
Yesterday, it was in my right eyebrow....very strange sensations, but not painful at all. Just bothersome.
Hope you get help with that internal tremor.
All the best,
Chrissy
No, the tic isn't like a jerking. It is more like what you might get occassionally in the eyelid. It is rapid, and can be seen at times. When it is going in one of my limbs, it looks like I am moving that muscle area at a rapid pace. It can last in one area for a day or two, off and on during the day. Then, all of the sudden, go at an extreme pace (like a grand finale), then it stops, and another tic will appear somewhere :rolleyes: else on my body.
Yesterday, it was in my right eyebrow....very strange sensations, but not painful at all. Just bothersome.
Hope you get help with that internal tremor.
All the best,
Chrissy
Jewel2
07-31-2004, 07:16 PM
I had reached a low point where I was so fatigued and in lots of pain. No enery whatsoever and just out of my mind. Have been having treatment which has me up and around, plus able to cope with the symptoms better. I absolutely got to a point where I couldn't do anything.
Warning: Couch potato kills. :o I'm banned from the couch and have restrictions for laying around on the bed! :D Of course, I'm just kidding. From this experience though, I learned, hopefull, how to manage keeping a level of activity in with rest time. It is difficult to balance. I know you know what I mean. Hopefully, I won't fall back into the fatigue/pain stupor I was in.
I don't have MS, but I can so relate! I'm in the throes of some major fatigue. Had a bunch of blood work done on Thursday to find out why. Hopefully it's something simple like the thyroid and not just my RSD. Which reminds me - be careful not to automatically blame things like extreme fatigue on your MS. Something else could be going on that is fixable. Okay, mini-sermon is over.
A forum friend gave me a great perspective on fatigue. When we're really struggling, don't do anything more in a day than what can be repeated the next day. I hope that makes sense. Some days it might be just showering and dressing. Period. Some days it might be a little more, some days even less. We really have to listen to our bodies and not push ourselves past the point of no return.
Here's to increased energy levels!
Take care,
Julie
Warning: Couch potato kills. :o I'm banned from the couch and have restrictions for laying around on the bed! :D Of course, I'm just kidding. From this experience though, I learned, hopefull, how to manage keeping a level of activity in with rest time. It is difficult to balance. I know you know what I mean. Hopefully, I won't fall back into the fatigue/pain stupor I was in.
I don't have MS, but I can so relate! I'm in the throes of some major fatigue. Had a bunch of blood work done on Thursday to find out why. Hopefully it's something simple like the thyroid and not just my RSD. Which reminds me - be careful not to automatically blame things like extreme fatigue on your MS. Something else could be going on that is fixable. Okay, mini-sermon is over.
A forum friend gave me a great perspective on fatigue. When we're really struggling, don't do anything more in a day than what can be repeated the next day. I hope that makes sense. Some days it might be just showering and dressing. Period. Some days it might be a little more, some days even less. We really have to listen to our bodies and not push ourselves past the point of no return.
Here's to increased energy levels!
Take care,
Julie
californiasunflower
08-02-2004, 01:34 PM
Hi Calsun,
No, the tic isn't like a jerking. It is more like what you might get occassionally in the eyelid. It is rapid, and can be seen at times. When it is going in one of my limbs, it looks like I am moving that muscle area at a rapid pace. It can last in one area for a day or two, off and on during the day. Then, all of the sudden, go at an extreme pace (like a grand finale), then it stops, and another tic will appear somewhere :rolleyes: else on my body.
Yesterday, it was in my right eyebrow....very strange sensations, but not painful at all. Just bothersome.
Hope you get help with that internal tremor.
All the best,
Chrissy
Hi Chrissy,
Thanks so much for clarifying. That is really helpful. Your explanations and descriptions are clear and I appreciate your posts!
No, the tic isn't like a jerking. It is more like what you might get occassionally in the eyelid. It is rapid, and can be seen at times. When it is going in one of my limbs, it looks like I am moving that muscle area at a rapid pace. It can last in one area for a day or two, off and on during the day. Then, all of the sudden, go at an extreme pace (like a grand finale), then it stops, and another tic will appear somewhere :rolleyes: else on my body.
Yesterday, it was in my right eyebrow....very strange sensations, but not painful at all. Just bothersome.
Hope you get help with that internal tremor.
All the best,
Chrissy
Hi Chrissy,
Thanks so much for clarifying. That is really helpful. Your explanations and descriptions are clear and I appreciate your posts!
californiasunflower
08-02-2004, 01:39 PM
I don't have MS, but I can so relate! I'm in the throes of some major fatigue. Had a bunch of blood work done on Thursday to find out why. Hopefully it's something simple like the thyroid and not just my RSD. Which reminds me - be careful not to automatically blame things like extreme fatigue on your MS. Something else could be going on that is fixable. Okay, mini-sermon is over.
A forum friend gave me a great perspective on fatigue. When we're really struggling, don't do anything more in a day than what can be repeated the next day. I hope that makes sense. Some days it might be just showering and dressing. Period. Some days it might be a little more, some days even less. We really have to listen to our bodies and not push ourselves past the point of no return.
Here's to increased energy levels!
Take care,
Julie
Thanks for the great info! It certainly does make a lot of good sense! :)
A forum friend gave me a great perspective on fatigue. When we're really struggling, don't do anything more in a day than what can be repeated the next day. I hope that makes sense. Some days it might be just showering and dressing. Period. Some days it might be a little more, some days even less. We really have to listen to our bodies and not push ourselves past the point of no return.
Here's to increased energy levels!
Take care,
Julie
Thanks for the great info! It certainly does make a lot of good sense! :)
worryworttx
08-02-2004, 04:48 PM
I just don't know what anyone would do without all the great information that we gather on this site along with others...the test that I am having is an ENG to find out weather or not the dizzyness is coming from the ear or not. I almost want to just give up and go on with my life...it is the woozy, swooshing feeling that I can't stand...the pain has some what subsided in my legs, but I am having problems with my vision, alway's little flashers and my twitches are getting more agitated for some reason.
How were any of you diagnosed? MRI or spinal or both?
Keep it coming ladies...your are all the best...
Bec :bouncing:
How were any of you diagnosed? MRI or spinal or both?
Keep it coming ladies...your are all the best...
Bec :bouncing:
californiasunflower
08-05-2004, 06:28 PM
Have you had your eyes examined by an ophthalmologist or looked at by the neurologist to discern if you have any inflammation or cause for your vision disturbances?
See term Optic Neuritis, if you're not already familiar with it.
See term Optic Neuritis, if you're not already familiar with it.
HeatherJM
08-05-2004, 08:29 PM
Hey Bec, that wooziness you describe seems soooo familiar.. Hhhmm, wonder... ;) that was my originating symptom and I still battle that bugger! I feel like I'm on a carnival ride every day, and I do not do rides! I haven't found a cure for it, for if I had I would certainly pass it on, but all I can say is that it will most likely fade out after a while. Mine comes and goes but it's not nearly as bad as it was at first. Cross your fingers that yours will, too. I get the vision flashes too. Sometimes, I swear to you that somebody is walking silently around my house and is so quick I barely catch a glimpse! Apparently it's me and not somebody else... I'm the one stealthily stalking an imaginary person.. ;) LOL.
I was diagnosed by MRI and L.P. The MRI showed something in my head... contradicted what everyone had thought for so many years (at least I can prove that my head's not hollow now.. LOL) and the L.P. confirmed that I had the enzymes that are 'typical' of MS... of course, the only time I ever go the 'typical' route.. :D
I was diagnosed by MRI and L.P. The MRI showed something in my head... contradicted what everyone had thought for so many years (at least I can prove that my head's not hollow now.. LOL) and the L.P. confirmed that I had the enzymes that are 'typical' of MS... of course, the only time I ever go the 'typical' route.. :D