CarlaSue
07-29-2004, 05:21 PM
Well I had my MRI this morning. It took forever. Had to have MRI of C spine and brain with and without contrast. By the time it was over I thought my bladder would bust. While laying there having the test my entire right arm went numb while my legs and feet and back continued to have that sleepy/tingly feeling. When she injected the dye into my right arm my index finger (which has twitches quite often) was twitching like crazzzzzy. Now I just have to wait to hear what if anything they found. The waiting is driving me crazy. And now a new thing has seemed to start......I now am having little feelings in my left and right hand ....feels like my muscle twitches or jumps. It's wierd. Didn't know if that was something or if it was just me being over aware of things. But it has been doing it since about 1pm. Not sure if anyone else has those muscle jumping feelings or not. I am at the point where I don't even care what I have........I just want the tingling to stop. It is about to drive me insane. Any advice would be welcome. Thanks for listening to me :)
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Jewel2
07-29-2004, 05:47 PM
Hi CarlaSue,
I'm glad you're through the MRI. I know they take a long time and are very wearing. It's good that they did it while you are having symptoms. There's a better chance of it picking up the activity.
I can't help you with all of the idiosyncrasies of MS symptoms as I don't have MS myself. Unfortunately I do know about a lot of them because my daughter and mother both have MS.
Try to get your mind off of the MRI's and the tingling this weekend if possible. Treat yourself to some fun! The time will pass a lot faster.
Take care,
Julie
I'm glad you're through the MRI. I know they take a long time and are very wearing. It's good that they did it while you are having symptoms. There's a better chance of it picking up the activity.
I can't help you with all of the idiosyncrasies of MS symptoms as I don't have MS myself. Unfortunately I do know about a lot of them because my daughter and mother both have MS.
Try to get your mind off of the MRI's and the tingling this weekend if possible. Treat yourself to some fun! The time will pass a lot faster.
Take care,
Julie
catbirdpondlady
07-29-2004, 06:46 PM
Congratulations for getting through the MRI.......they have to sedate me every time....I am SOOO claustrophobic that I freak out....literally!
So many of the "little things" that come with MS can also be attributed to other things. Soon you will be able to recognise what is and what isn't MS, most of the time, but not always.
I agree with Julie......get out of the mental pattern that you are in. Choose to do something good for yourself. Anything to distract you from thinking about the results, the tingles, etc. is a step in the right direction.
And Keep Smiling!
Love to you,
Penny
So many of the "little things" that come with MS can also be attributed to other things. Soon you will be able to recognise what is and what isn't MS, most of the time, but not always.
I agree with Julie......get out of the mental pattern that you are in. Choose to do something good for yourself. Anything to distract you from thinking about the results, the tingles, etc. is a step in the right direction.
And Keep Smiling!
Love to you,
Penny
HeatherJM
07-30-2004, 05:17 AM
Hi CarlaSue, well your one step closer to an answer! A step in the right direction, at least! :) Take a vacation from your worries and try to relax and enjoy the weekend! No better reason to treat yourself to something nice than this! Good luck and keep us posted!!
CarlaSue
07-30-2004, 07:14 AM
Thank you all for your well wishes and support. I am up already because once I get up.....I cant go back to sleep. Not sure if its the tingling feeling all over that is keeping me from going back to sleep or my mind racing on what is wrong w/me. I see so many entries that people make saying that the doctor's think they are crazy and there is nothing wrong w/them. I have to admit that scares the hell outta me. I don't know what I will do if they tell me that. This feeling and these tremors or twitches or whatever....they are driving me crazy. Sometimes the tingling feeling is so slight that it makes me feel like scratching, and sometimes its so bad I can't move well. I have been reading and have seen that there is nothing to do about the tingling feeling.....even if it is MS. I hope it goes away soon. I try to think of other things and do things to keep my mind occupied........but I cant. It always goes back to that feeling. And lately most of the time my head feels like it is going to explode. Again is this just worry or another sign? Who knows. All I know is I want it to stop. Thank you all so moch for your comments and suggestions. Its nice to know I am not alone. Praying for you all
Carla :)
Carla :)
catbirdpondlady
07-30-2004, 11:30 AM
There are many things that you can take/do to help the tingles.....please don't believe everything you read. Drugs like Neurontin, some anti-depressants and a few others DO help. The reason that you probably aren't reading about them is that many are Rx'd "off label" (they were made to treat something else, but they do work for other things also).
If the doc does say that it is all in your head, you do not have to take his word as the gospel truth. I was told that for years (and finally believed them), but was ultimately diagnosed with MS....almost a relief to know that it wasn't all in my head (at least not how they were thinking before LOL). You have a right to another opinion. We are at that point now with my husband. We know that he has something pretty major going on neurologically, but are having a hard time getting the neuro people to look at him as a whole person. One guy treats neuropathies (and has really dropped the ball there), another only treats sleep disorders, yadda , yadda, yadda. We have gone back to his primary care doc and explained the situation. Also told him that I thought he was having some heart problems again (BP swings from normal to very low, tight chest feelings, short of breath...(things that the neuro people wouldn't even give him a referral for) that are now being taken care of by his primary care doc. BUT, if I hadn't been advocating for him, he would still be in limbo wondering what is wrong.
It is hard to keep you chin up, but remember there is still a great big world out there with lots of joy to offer, so take advantage of the good things. And try to look at yourself in the mirror several times a day, take 4 or 5 deep breaths, let them out slowly, and smile. It actually can have a positive effect if you do if often enough :wave:
Good thoughts to you!
Love,
Penny
If the doc does say that it is all in your head, you do not have to take his word as the gospel truth. I was told that for years (and finally believed them), but was ultimately diagnosed with MS....almost a relief to know that it wasn't all in my head (at least not how they were thinking before LOL). You have a right to another opinion. We are at that point now with my husband. We know that he has something pretty major going on neurologically, but are having a hard time getting the neuro people to look at him as a whole person. One guy treats neuropathies (and has really dropped the ball there), another only treats sleep disorders, yadda , yadda, yadda. We have gone back to his primary care doc and explained the situation. Also told him that I thought he was having some heart problems again (BP swings from normal to very low, tight chest feelings, short of breath...(things that the neuro people wouldn't even give him a referral for) that are now being taken care of by his primary care doc. BUT, if I hadn't been advocating for him, he would still be in limbo wondering what is wrong.
It is hard to keep you chin up, but remember there is still a great big world out there with lots of joy to offer, so take advantage of the good things. And try to look at yourself in the mirror several times a day, take 4 or 5 deep breaths, let them out slowly, and smile. It actually can have a positive effect if you do if often enough :wave:
Good thoughts to you!
Love,
Penny