Hi I am a 32 yr old male with C.P. My main mobility problem is that I have a subluxated left hip which has been dislocated for many years. There is some reluctance to tackle this my means of total hip replacement as the spasticity of the muscles means that there is a good chance that the hip will dislocate. Does anyone have any advice as to the management of this please? This is very frustrating for me. I have recently started doing pilates and find this of benefit but this hip problem is my biggest obstacle to being more mobile.

Wow, I've never heard of anything like that happening. My father-in-law recently had a hip replacement and he was in a great deal of pain immediately after the surgery. However, within just a few weeks he was back at work (owns a plumbing company) manhandling water heaters and doing things his doctor would have a cow over...yep, he's hard headed but he really did have an amazing recovery.

Seems to me the doctors would want to get that hip of yours corrected and find a way of keeping the muscles under control until you were at least moderately healed (muscle relaxers maybe?). It just sounds so bizarre that they'd expect you to function with a dislocated hip and not plan to do anything about it. That's GOT to be excrutiating!

Jack

hi,
do you use a wheelchair for mobility? my daughters left hip is partially subluxed and they told us that nothing was worth doing with it becuase she uses a wheelchair for mobility....and that it would onlybe of real concern if she was walking. do you get any pain from it?
Linda P

hi,
do you use a wheelchair for mobility? my daughters left hip is partially subluxed and they told us that nothing was worth doing with it becuase she uses a wheelchair for mobility....and that it would onlybe of real concern if she was walking. do you get any pain from it?
Linda P
thank you for your reply! Yes I do use a wheelchair but can walk to an extent. The doctors are hoping to inject my leg muscles with botox to help them relax. This is a start at least. I am hopeful for the future and believe that in time this problem will be corrected. For now I have no pain thank God and am doing Pilates also which I find of great benefit. I wish your daughter and you the very best of luck. Keep trying and Trust in God- He will make all ok again.

Wow, I've never heard of anything like that happening. My father-in-law recently had a hip replacement and he was in a great deal of pain immediately after the surgery. However, within just a few weeks he was back at work (owns a plumbing company) manhandling water heaters and doing things his doctor would have a cow over...yep, he's hard headed but he really did have an amazing recovery.

Seems to me the doctors would want to get that hip of yours corrected and find a way of keeping the muscles under control until you were at least moderately healed (muscle relaxers maybe?). It just sounds so bizarre that they'd expect you to function with a dislocated hip and not plan to do anything about it. That's GOT to be excrutiating!

Jack
Thks jack for your reply. I hope to get botox injected into my leg muscles to help them relax. maybe in the future I might get a hip replacement and I believe there is cause to be hopeful.

I'm probably going to be starting Botox around Christmas... I heard it can be really helpful in some cases :)

yes i hope to go on those injections too. When you have CP, you produce too much of a chemical called acetylcholine which relaxes the muscles, but when too much is produced the muscles get rigid and tight. Botox injections stop the production of this chemical and relax the muscles. Good Luck!