karaokediva33
08-14-2004, 05:36 PM
Can someone who suffers from the this give me advice on pain management?
Intestinal Endometriosis is what i have!
Intestinal Endometriosis is what i have!
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1sttimemom05
09-21-2004, 05:00 PM
i have endometriosis also, and i have had it for 7 years and i have had 2 surgeries for it. I went through hell with pain management, first of all my OB sent me to a pain management Doc and he prescribed me Norco and he told me to take 2 four times a day everyday, so that is what i did. Come to find out it is addictive so i became addicted to it. I seen a new OB and told him about it. I have never been addicted before so he said i could take Ultram and small doses of Vicodin and he monitored me closely, he also put me on birth control pills and i would only have a period every 2 months. But i am pregnant now and i have no symptoms, but my OB said they will return right after my baby is born and i will go right back on my pain management regimine. It helps, you should see a Gynecologist they know best when it comes to treating Endo. trust me i have it bad, in my intestines also, and in my abdomen on my ovaries and just about everywhere else. It took me 4 years to find a doctor who actually cared and helped with my pain.
Good Luck
Good Luck
Sarahlou
11-04-2005, 09:31 AM
Can someone who suffers from the this give me advice on pain management?
Intestinal Endometriosis is what i have!
Hi There,
I suffer with severe endo and have had 2 ops in this year for it!! Its always been on both ovaries, around my ovaries and on my bladder...................Here's the thing, i think i may have intestinal endo but have no idea how i would go about getting this diagnosed! How was yours diagnosed? My symptoms are: severe cramping, diahorreah, nausea, bloating, loud gas noises, trouble taking a pee, frequent bowel motions then constipation....................i was diagnosed with IBS 11 years ago but this pain is much more intense and more often............what were your symptoms?
Thanks for your help
Take care
Sarah
Intestinal Endometriosis is what i have!
Hi There,
I suffer with severe endo and have had 2 ops in this year for it!! Its always been on both ovaries, around my ovaries and on my bladder...................Here's the thing, i think i may have intestinal endo but have no idea how i would go about getting this diagnosed! How was yours diagnosed? My symptoms are: severe cramping, diahorreah, nausea, bloating, loud gas noises, trouble taking a pee, frequent bowel motions then constipation....................i was diagnosed with IBS 11 years ago but this pain is much more intense and more often............what were your symptoms?
Thanks for your help
Take care
Sarah
tina76
11-04-2005, 11:27 AM
The only way to truly diagnose endometriosis, is to see a gyno and have them schedule a laproscopic surgery. They go in thru your belly button and look around for the endo growths on different internal organs. I have it growing all over and that is the only way they can see it, as it does not show up on things like cat-scans, etc....
As for pain management. I am on depo provera. But while it helps a little, I have a pretty severe case that causes cramping all month long. I have taken vicodin for about 5 years. I had a break of about a yeark and half in there where I had a scraping surgery and my pain diminished until the endo started growing back. Recently I spoke with my doctor because I was taking SO much of the vic's that I was worried about the effect of the tylenol in them on my stomach. Also, they weren't as effective after taking them for so long and I was having to take more and more and more... So my doctor has recently prescribed methadone which I take one a day every day. And I take one extra when my cramps are exceptionally bad and I have break thru pain.
As for pain management. I am on depo provera. But while it helps a little, I have a pretty severe case that causes cramping all month long. I have taken vicodin for about 5 years. I had a break of about a yeark and half in there where I had a scraping surgery and my pain diminished until the endo started growing back. Recently I spoke with my doctor because I was taking SO much of the vic's that I was worried about the effect of the tylenol in them on my stomach. Also, they weren't as effective after taking them for so long and I was having to take more and more and more... So my doctor has recently prescribed methadone which I take one a day every day. And I take one extra when my cramps are exceptionally bad and I have break thru pain.
Sarahlou
11-09-2005, 09:23 AM
Hi There,
I suffer with severe endo on my ovaries and bladder but i'm certain i have it on my bowel also as i'm experiencing terrible problems.
Please could you let me know how you were diagnosed with intestinal endo and what treatment you've recieved so far?
Many thanks for your help
Sarah
I suffer with severe endo on my ovaries and bladder but i'm certain i have it on my bowel also as i'm experiencing terrible problems.
Please could you let me know how you were diagnosed with intestinal endo and what treatment you've recieved so far?
Many thanks for your help
Sarah
jules1
11-14-2005, 02:23 PM
I'm curious about intestinal endometriosis as well. I'm having my second lap in December. I have thought that my bowel problems were due to IBS, but I wonder if they could be due to endometriosis.
I've tried Tyl 3 for my cramps, but I was having to take 3 at a time to even touch the pain, and the codeine would make me so sick. Now I'm on lortab 2.5, and those don't help much either. I worry that if I take more than I should that I'll be doing serious damage to my liver.
I've tried Tyl 3 for my cramps, but I was having to take 3 at a time to even touch the pain, and the codeine would make me so sick. Now I'm on lortab 2.5, and those don't help much either. I worry that if I take more than I should that I'll be doing serious damage to my liver.
BrittleBones
11-15-2005, 07:30 PM
:wave: I had severe endometriosis as a young woman. It started in my teens and by the age of 19 I was suffering 10 day periods every month, huge clots with massive bleeding, diahrea, cramping and PAIN throughout the month. It completely ruined the quality of my life! I was diagnosed by laperoscopy (sp?) and an exploratory laperatomy. I spent years on many kinds of hormones and I also had laperoscopies every now and then to burn off the endometrial tissue. I had operations where the docs would remove an ovary and maybe a tube...then 2 years later maybe another tube, etc. I got pregnant at 20 (that was a miracle!!) and the endo subsided for 9 months. I can remember thinking that maybe I'd get a break from the pain of my period if I breast fed my daughter. I was WRONG! I got my period the next month without skipping a beat. Ugh!! So, when my daughter was a year old I had a complete hysterectomy. I had many feet of intestine removed and resected, they were covered with endometriosis and stuck to other organs in my belly. They found endometrial tissue near my lungs! The hysterctomy was the best thing that could have ever happened to me. It improved the quality of my life beyond my expectations. But that was 30 years ago and I haven't a clue as to what is new as far as treatment for this horrible disease. But I can certainly empathise with you. Hope you find an answer soon. All the best - KathyMac :)
friendly_one
11-15-2005, 08:49 PM
Hi All,
I had severe endometriosis and polycystic ovaries. I had my right ovary removed at age 14 and left ovary and uterus at age 18. Yes, I had a radical hystrectomy at age 18. It was the best thing I ever did. My doc was very good at treating my pain with various opioids, but the pain became too much to deal with along with my chronic kidney pain and numerous surgeries for that. I could only deal with one pain problem at a time.
He said when he opened me up to do the hyst. he had to cut through 2 inches of scar tissue. He said I would have never been able to get pregnant. I'm now 34 and married. To be quite honest, kids don't fit into our marriage because of my constant pain and surgeries and misery that me and my husband have to deal with on a daily basis. This is just my experience. My doc and myself made the radical decision to leave me sterile at age 18, but it was for the best. I know this option isn't right for everyone, but it helped me.
I had severe endometriosis and polycystic ovaries. I had my right ovary removed at age 14 and left ovary and uterus at age 18. Yes, I had a radical hystrectomy at age 18. It was the best thing I ever did. My doc was very good at treating my pain with various opioids, but the pain became too much to deal with along with my chronic kidney pain and numerous surgeries for that. I could only deal with one pain problem at a time.
He said when he opened me up to do the hyst. he had to cut through 2 inches of scar tissue. He said I would have never been able to get pregnant. I'm now 34 and married. To be quite honest, kids don't fit into our marriage because of my constant pain and surgeries and misery that me and my husband have to deal with on a daily basis. This is just my experience. My doc and myself made the radical decision to leave me sterile at age 18, but it was for the best. I know this option isn't right for everyone, but it helped me.