:eek: :eek: Look under the P's on this Health Board and go to Post Polio Syndrome. I never knew it existed until tonight and I had mild Polio as a child. Well, you can read my post on there. Maybe this can answer some questions for some of you too.
"Above All Do No Harm" Healing Love and Light to All of You, and to Me...kovena :angel:
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Icefire
08-23-2004, 08:18 AM
Kovena,
Did you see my post to you? It's at the bottom of the page now.
Chris
kovena
08-23-2004, 02:41 PM
:eek: :eek: Look under the P's on this Health Board and go to Post Polio Syndrome. I never knew it existed until tonight and I had mild Polio as a child. Well, you can read my post on there. Maybe this can answer some questions for some of you too.
"Above All Do No Harm" Healing Love and Light to All of You, and to Me...kovena :angel:
:confused: Please go visit the Post-Polio Syndrome Site. I have connected the dots and come up with this. Especially since I have had Polio as a child in the 50s. I really need some feed back from this and no one is at the site anymore. so Please go to the site, read up what others have said, and what I have said. Especially if any of you have had any doings with mild polio, Extreem fever asa child..even one episode around the early 50s can mean Polio. Please check this out because I do believe I have this along with Fibro, Degenerative Disc Disease, and Arthritis...those are documented illnesses that I have. Now I have to go to my MD and try and feel him out to see if he even believes in PPS. I am so scared. I get worse on a daily basis and have no one to talk to on the PPS site. Why did they all leave? Anyway please go there and check out the symptoms people talk about and leave me a message about what you think. You all mean a lot to me and I trust your judgements, I am not asking for a diagnosis, merely to ask if it makes sense that I had Polio as a Child, that I would have this??
"Above All Do No Harm" Love and Healing Light to All..kovena :angel:
taurus3
08-23-2004, 08:35 PM
HI Kovena,
I did go read a bit. Seems like before you showed up it was a personal chat room for two people. I would definitely go to your doctor and ask about this. I think a lot of us are too young to have had polio. So maybe that's why nobody's travelled yet.
But I would go get it checked out because maybe there is more they can do to help you.
My grandmother had polio as a child and later had epilepsy, lupus and fibro. She might've had the other problem and they didn'tknow.
I hope you get some answers soon from the doctor or someone who is PPS.
Good luck and keep checking in when you're up to it and let usknow how you are doing.
Love - Andy
kovena
08-23-2004, 10:43 PM
Kovena,
Did you see my post to you? It's at the bottom of the page now.
Chris
Yes I did see it. I do not think I have MS. But who the heck knows anymore. I am so confused that I have promised myself to stop self-diagnosing for a while! It is driving me nuts! But the PPS really sounds like the real thing. Unfortunately, like Fibro, most MDs do not believe in it, or have never heard of it. The nearest place to go is over 200 miles away where there are MDS that know about it UGH! well, I will take a break for now anyway. I am in so much pain lately that it is a miracle I even force myself to get out of bed for a bit every day. I have to or I will not be able to walk. God I hurt. As if the MS Contin is hardly doing anything, but I know if I say anything about it my MD will get mad like he did last time. Better to have some releif than none at all! Glad to see you all and Andy...WOOHOO! Gonna have blessed event soon!How exciting! My Heart is with all of you. If I dont come on often and post, its not because I do not want to!
"Above All Do No Harm"..Healing Light and Love to All..kovena :angel:
taurus3
08-24-2004, 08:54 AM
Hi Sweetheart,
Don't worry we all know when you don't post it's just cause you're not feeling well. That stinks that you ahve to go so far to see the doctor. Even though I live in a kind of small remote area, we're like the hub for the western slope of Colorado. So other people come 200 miles here to see our doctors. I always feel for them when I meet them in the waiting room, etc.
Yes I am so excited about the baby! Can't hardly wait. Oh, I think another reason some of the people disappeared in the other room is that I thought a couple had been banned. So maybe they'll come back when the ban is lifted. I wish I knew more about it so I could be helpful but I'm totally clueless in that subject.
Take care my friend and at least if it only does one thing, it made your smelly Ross man pay a little attention to your illness and show some true compassion.
Love-Andy
kovena
08-24-2004, 09:41 AM
That was too funny...Boy did I laugh when you said my Smelly Ross Man!!! Thanks..I needed that!
I went back to the PPS site and someone had answered me. She had said that she did not think I had PPS because it comes on really slow. So did mine except for the past 2 years it has changed and become aggressive and almost every day a new debilitating symptom crops up, or what I do have worsens. She said to look into Lymes disease, but I had the tick bite back in 1976, It would have shown up before this wouldnt it have? I know not much about Lyme disease so I will go look for info.
Again, Thanks so much for the Laugh!!!
"Above All do No Harm" Divine Love and Light to You All..kovena
Barberian
08-24-2004, 09:48 AM
Kovena,
My uncle had polio as a young adult. He was very sick but recovered enough to be functional. He's always had to wear braces. Several years ago he started getting worse again. He was in a lot of pain and having difficulty walking, even with his braces and crutches. He was dx'd with post polio syndrome. I think he was seing a doc in Little Rock, or Memphis. He is better now, but has been thru hell. Since you've had polio as a child, I definately would find a specialist that can help you.
Barb
zinnia26
08-27-2004, 12:32 AM
Hi kovena,
just wanted to let you know that it appears that they have removed the entire thread on pps so I won't be back here anymore. Good luck and keep searching.
zinnia26