I was wondering if there is too much info you can share with a rheumy dr? How do i sort out what needs to be discussed and what doesn't? I have lots of different dxs. And the PA looks at me as if somethings arent pertenent (sp). When i share all my problems it makes me feel like they are going think i am a hypocondreact (sp?). Does anyone else feel this way? How do i sort this all out? Sorry for all the ?'s but i am so confused and trying to figure this out. Remember when you could go to the Dr. and he would fix whatever the problem. Now we get sent to so many different specialist for each and everything that happens. I hope this makes some since.

Hi Countrygal, I sure do know where you are coming from! That has been one of my main head trips...always wondering if these medical people I've come to for help even believe that I am really ill. I have come to believe that regardless of what they "think" , I know that what I am experiening is real and it is their job to provide me me ways to help myself be as pain free as possible. Which doesn't always mean via drugs since we Fibro members often have opposite responses to their drugs than expected.

:wave: One more thought...
This is not your fault nor did any one of us who is experiencing the pain and loneliness of this Syndrome ask for this. We can only love and support each other through it. Teach each other how to deal in the healthiest fashion we can.

Thanks for the reply and welcome to the board Ladymasters. I read every day what everyone has to say and are feeling. And find out more and more each day. I'm always looking for someone that has ?'s like i do. It was 3months before i got into rheumy, then found out i had to see his PA. Then i had a problem communicating with her. She seemed so young, that i really wonder how much experience she has. Then as she glared at me as i was explaining WHY i was there. I got a copy of her dictation she did, and it was a good thing i knew who she was talking about . I felt humiliated. We dont ask to be sick and can not help if we have lots of problems. But where does it end? And how do we get everything covered going to so many Drs.? I always look to see if there is a chart hanging around showing what areas and problems they do!! LOL I am new to FMS dxing, but not to the pain and symtoms. For over 5 years i have searched for help..When no one would believe me that something was wrong, i did believe in myself.. So i will continue the search until i find the help i deserve.. EVERYONE DESERVES!!!!

Hi Countrygal,

I think the more information that you give your Drs, the better off that you are. They may be missing something that you haven't brought up because you feel silly. I tell my Dr. everything so that I can get the best care.
After a not so good appt. with a rhuemy one day, I told my Dr. that the rheumy was rude and refused to treat the Fibro because he said that he wasn't doing a good job at it. He had such a bighead that he refused to try anything that didn't make him look perfect. I respect my Dr. for his reply because it was the most honest thing that I've heard in a longtime. His reply was " So what, none of us can fully treat you guys, it's all trial and error and we do the best that we can for you. We try to keep you out of pain and make you not so miserable until someone can come up with something better".

Good Luck
Chris

I was just looking at "The List" some wonderful had shared with us. Since it groups the symptoms according to what is affected, the doc could quickly find what he wanted to know.

In my dizzying round of doctors over the past few months, I and my Doctors have discovered there could be a connection between my sinus problems and the lung they have to keep track of. My ENT and Pulmonologist make sure they send a report to the other one after each office visit. I've known of them to talk over the phone on at least two occasions. I have been very blessed in that they are both very good doctors.

I think I will try to have my DH fill out the list for his Docs. He doesn't have Fibro, but the list sure can give a tremendous amount of organized information in a short time

Alice