jbot
08-25-2004, 03:18 PM
I`m new to this board and to fibro.My dr diag me with fibro a year ago and I have so many aches and real pain that I don`t know how to tell what I really do have. Also have OA and other problems.I do not know what having a flare means because I never ever have a good day they are all bad with alot of pain and fatigue. I still push myslef to work but it gets harder and harde and when I get home at night In just crash. Thank goodness In have a wonderful husband that takes a lot of the work around the house off of me.I`m pass 50 so don`t have any small children at home.Any help as to how it effects you and what I can do to help it will be appreciated.All i know when i don`t sleep at night i`m worse off the next day big time. Well thanks and hope you all have a pain free day...........jbot
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LadyMasters
08-26-2004, 05:52 PM
Look to "the list" on this board. Eye opener on how accurate it is! Maybe you can print off and take with you to Doctor's. Get to feeling better and know others are here to support you :wave:
orchidbeauty78
08-26-2004, 08:10 PM
I have only Fibro for only a year too and I can only speak from my personal experiences. I have my good days and bad days. I recently started to listen to my Rheumy and start an excercise program, mostly light aerobics and can honestly say when i miss a day or slack off on the exercise I feel worse. You may want to try an aquatics program if one is available to you, this is the best on the joints and muscles. When I first got ill the pain was worse mainly because i was not sleeping and I thought I was dying.
There are days when the pain is so bad that I feel like knives are in my muscles all the way down to the bones, and then I have days like today when I just have slight pain and feel as if I am getting better. I keep hoping that one day it will just stay that way, but it does not. I also know from reading a lot that some people have more severe pain than others. The trick is to find a good Rheumy or doctor that will listen and understand actually really understand and can interpret the pain that comes with Fibro. I take some medicines almost daily and he also gave me medication for the bad days...I think that with exercise and watching my sugar intake has helped me. As far as what to expect from this darn disease, well I really don't know. Just take it one day at a time and don't push yourself past your limits...This disease has a way of making you pay for that. I hope you feel better:) :angel:
There are days when the pain is so bad that I feel like knives are in my muscles all the way down to the bones, and then I have days like today when I just have slight pain and feel as if I am getting better. I keep hoping that one day it will just stay that way, but it does not. I also know from reading a lot that some people have more severe pain than others. The trick is to find a good Rheumy or doctor that will listen and understand actually really understand and can interpret the pain that comes with Fibro. I take some medicines almost daily and he also gave me medication for the bad days...I think that with exercise and watching my sugar intake has helped me. As far as what to expect from this darn disease, well I really don't know. Just take it one day at a time and don't push yourself past your limits...This disease has a way of making you pay for that. I hope you feel better:) :angel:
taurus3
08-27-2004, 12:16 AM
Hi Jbot, Most of us find after having fibro for awhile that once we get an effective treatment going that we will have flares when our pain and symptoms all seem to get bad at once. We're forced to rest and it can take varying lengths of time to get better. That's not to say that we don't all have something almost every day that hurts. But there is a huge difference between I'm sore and hurt and I can't move my right arm or hold a pen or pick up anything.
Hope that helps and welcome, everyone is great here - Andy
Hope that helps and welcome, everyone is great here - Andy
singerja1999
08-27-2004, 10:37 PM
One of the things that is so hard about this disease is that it effects people differnetly. I, for one, find that if I do not get a good night's sleep the following day I am in pain. The severity can vary. The hard part is that you cannot say that, well, 5 years this will happen or that will happen. Doesn't work that way. Seems to be a very individual disease. Try and surround yourself with good support people. For example. I have a weight trainer, water therapist, my brother is a physical therapist. I also have a wonderful husband who just takes each day as it comes. I feel very blessed.
Iwantacure
09-15-2004, 08:31 PM
I don't see any blessing in this debilitating disease. Even if you have supportive husband and friends it won't change the fact that this illness is debilitating. Today I'm so tired and the body hurt me. I slept yesterday enough but I feel like I have not slept in 7 days?. This is all because of all the pain I'm in. Here is what I do before my appointment with the Dr. Before I go to sleep(like yesterday)I take a hot shower, drink a chamomile tea(it helps sooth the nerves some)and go to sleep. Also, I take flaxeed oil, it helps some.(I don't recommend it because it can cause cancer). Then in the morning I wake up with pain. Oh my. I only experiencing this for 2 weeks none stops. It used to be every 6 months and now it's every day. I'm still in a complete shock.
I'm the one to blame. All the constant stress in my whole life, trauma took a toll on me today.
I totally FORGOT what it means to live without pain. I should have appreciated those days. Living without pain is a luxury for me.
Anyway, I don't think that fibromyaglia is a good thing to have, it's not only the pain I'm talking about it's just that if it signals pain there MUST BE something wrong about the body. I doubt it that a person can have fibro and that is all the problem about him. For example, how come people with fibro need all the time new glasses prescription?. It is damaging the eye muscles also. I bet the ear muscle also. I hope some scientist will find a shot to take and than I won't have it anymore. Just like a shot of any other illness. I hope so much. :bouncing:
I'm the one to blame. All the constant stress in my whole life, trauma took a toll on me today.
I totally FORGOT what it means to live without pain. I should have appreciated those days. Living without pain is a luxury for me.
Anyway, I don't think that fibromyaglia is a good thing to have, it's not only the pain I'm talking about it's just that if it signals pain there MUST BE something wrong about the body. I doubt it that a person can have fibro and that is all the problem about him. For example, how come people with fibro need all the time new glasses prescription?. It is damaging the eye muscles also. I bet the ear muscle also. I hope some scientist will find a shot to take and than I won't have it anymore. Just like a shot of any other illness. I hope so much. :bouncing:
Icefire
09-16-2004, 09:56 AM
I don't think everyone with Fibro has to change precriptions. My eyes haven't changed in the last 15 years. That was before I had it, and while I've had it.
Chris
Chris
Iwantacure
09-16-2004, 11:40 PM
Well, about changing prescriptions. I was reading about that in the medical book.
It said to most people. You are the lucky one.
It said to most people. You are the lucky one.
Icefire
09-17-2004, 12:03 AM
Aren't I the lucky one. Must be the only good thing I have going for me . During a test today, I actually had 20/25 vision with my glasses on. I think my vision has gotten better LOL
Chris
Chris
Iwantacure
09-17-2004, 12:42 AM
That's cool. I wonder though, is there anybody out there who has fibro and does not wear glasses?. I'm trying to see a connection here in order to find a cure.
Well, heck. I'm 33 and I won't allow myself to suffer and being a disable. I used to walk distances, miles and miles and now.....
Well, heck. I'm 33 and I won't allow myself to suffer and being a disable. I used to walk distances, miles and miles and now.....
tina riley
09-17-2004, 07:16 AM
everyone with fibro is different i read a lot of books and got on the internet a lot . its good to know in a way that you are not alone however you can go into remission and be sympton free unfortunatly that does not happen to many of us . i have suffered with fibro for 15yrs and chronic fatigue for 20yrs and still i'm not used to it. today i'm having a bad one for pain my eyes are hurting my face my arms ,legs thats just to name a few i,ts realy hard somedays i dont want to get out of bed but if i dont it will make me ache more we just can't win .goodluck and i wish you all the best
DecLady
09-17-2004, 09:50 AM
You sound like your fibro is alot like mine..I am 51, and was dx'd 2 years ago. Before and for a bit after the dx...I just had the occaisional ache..and bad day..but in the last year I have really gone down hill. I have had way more achey pain filled days..and I feel like I am living on drugs more than I would like! I still have some days where I feel ok...but I don't remember the last "normal" day I had. I do try and stay busy...I don't have kids at home either...and I was lucky enough to be able to stop working...so I can concentrate on me..and my home....I have a great husband which helps a lot..but nothing really makes having this darn illness ok in my book! Try and stay positive..that helps more than most other things I have tried!