Dee74
08-25-2004, 06:36 PM
Yesterday I had one of THE BEST days I've had in years.. I had ZERO (yes you read that right) pain all day long. I was a little tired for maybe 2 hours, but I truly felt on top of the world. DH and I had a good night.. alot of laughs, hell we laughed for over an hour nonstop.. just one of those things where I was all giggly about everything, which made him laugh, then made me laugh more, then he was laughing so hard he started making snorting noises, and by then both of us had stomach aches and we had tears running down our faces.. yet had NO clue what the hell we were even laughing about! Ahhh a great night :)
This morning I felt great as well. I actually felt like I had a great night's sleep even though I remember waking up every other hour.. and I was in a great mood.
Then it hit about 2 hours ago.. Extreme tiredness and pain that seemed to come out of nowhere. It started in my elbows this time - which is a little odd because it almost always starts in my legs and works it's way up. Totally opposite today. Anyway, within an hour, I'm in pain EVERYWHERE.. even my poor toes hurt :(
I'm ticked off.. why did I get a teaser yesterday? Anyone else have this happen? I mean absolutely NO pain at all for a whole day and then BOOM, you feel like you're dying the next day?
Grrrrrrrrrrrrrrrrrrrrrrrrrrrrrrrrrrrrrrr rrrrrrrrrrrrrrrrrrrrrrrrrrrrrrrrrr
I'm still in a decent mood though.. I just HURT. Owie :(
This morning I felt great as well. I actually felt like I had a great night's sleep even though I remember waking up every other hour.. and I was in a great mood.
Then it hit about 2 hours ago.. Extreme tiredness and pain that seemed to come out of nowhere. It started in my elbows this time - which is a little odd because it almost always starts in my legs and works it's way up. Totally opposite today. Anyway, within an hour, I'm in pain EVERYWHERE.. even my poor toes hurt :(
I'm ticked off.. why did I get a teaser yesterday? Anyone else have this happen? I mean absolutely NO pain at all for a whole day and then BOOM, you feel like you're dying the next day?
Grrrrrrrrrrrrrrrrrrrrrrrrrrrrrrrrrrrrrrr rrrrrrrrrrrrrrrrrrrrrrrrrrrrrrrrrr
I'm still in a decent mood though.. I just HURT. Owie :(
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healthseeker
08-25-2004, 06:43 PM
Yes Dee! I have been there. It is so frustrating and I am sorry you feel this way. I have had a flare up that has lasted a few weekes now, but I am TTC and that causes stress...and you know what that causes!!! If I could give you any advice, it would be not to let this get you down but do the opposite. If you had THIS pain-free episode, why can't you have another? Focus on that. I have after many years learned that it is not about getting rid of this crap, but maintaining it and when I have good moments.......I SEIZE THEM :D !!! And all that laughter.......what great medicine :jester: . I wish you many more pain-free moments!!!
Dee74
08-25-2004, 07:02 PM
I'm praying for another great day like that.. most definately :)
I just feel like dog doodie now. I'm trying to stay positive though. I'm hoping this isn't a long flare, just one of those one or two day ones. I tend to get really bad flares like that from time to time. Usually, I'm always in pain, but then I have the days like today where I just don't want to move AT ALL.
Keep your fingers crossed for me that this doesn't last much longer!
I just feel like dog doodie now. I'm trying to stay positive though. I'm hoping this isn't a long flare, just one of those one or two day ones. I tend to get really bad flares like that from time to time. Usually, I'm always in pain, but then I have the days like today where I just don't want to move AT ALL.
Keep your fingers crossed for me that this doesn't last much longer!
Icefire
08-25-2004, 07:23 PM
Oh girl I feel for you and know exactly what you mean. I actually had almost ZERO pain for 9 whole months. I had to go to the chiro occasionally for my back but other than that I was fine. Then one day 2 months ago, out of nowhere, I started get numb all over and then BAM, the pain was worse than I've ever had it. It hasn't left yet and I'm bummed because I've never had a flare-up last this long. Here's wishing you more good days.
Good Luck
Chris
Good Luck
Chris
pa235
08-25-2004, 09:54 PM
Oh Dee, I know exactly how you feel, I can never say I had a day that was totally pain free, but a good day. About two years ago I had almost three months of very low pain levels, I was so happy though I went into remission, Boy, when it came back, it came back with a vengence ans also new pain sites added. I was so dissapointed.
ginnyash
08-26-2004, 06:57 PM
Same here! Before I was officially diagosied, I had a period of three months were I felt pretty good and like some of the people said before, the pain came back worse then ever. Righ now I am so much pain, I just want to crawl in a hole and never come out. Of course I won't do that, lol.
taurus3
08-27-2004, 12:12 AM
I too have my "I feel like superwoman" days. I also try to just seize and appreciate them when it happens. It means I have to live very spontaneously. But I've also learned to manage the cycle well enough that if I have a planned event or a few days ina row where I need to be functional I rest up for it. I spend two or three days ahead of time just resting. Then I can get the most out of whatever it is I'm doing. But sometimes that plan doesn't work and I wind up being too wiped out to enjoy it. BUt I can at least show up so I don't always disappoint everybody.
- Andy
- Andy