Icefire
08-26-2004, 09:53 AM
From what I've read on Fibro that it was not a progressive disease. I took that to mean that once you've had it with a certain pain level that it would stay that way. I've seen this wording many times in many different books and on the web. After reading several posts and even with myself, I'm seeing this not to be true. If you have a certain pain level in certain places and then you go into "remission", and when it comes back it comes back with a vegenance, then I would take that to be progressive. My pain level for the first 15 years was almost manageable, that is until 2 months ago. My pain level is not only not manageable now, I have pain in tons of spots that I never had before. So if I'm understanding this right now, to not be progressive you would keep the same symptoms, the same pain level ( for the most part, I know days are different) and not add on many different symptoms. Am I missing something?
Chris
Chris
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pa235
08-26-2004, 10:53 AM
Hi Chris, When I was first diagnosed, 20 years ago, the Dr. told me that fm will progress and will affect every
muscle in your body except your heart, because that is not a connective muscle. I can tell you from my experience that it is progressive, just the last five years are getting worse for me. My flairs are closer, lasting longer, other symtons appearing and pain in areas that were not affected before.
Linda
muscle in your body except your heart, because that is not a connective muscle. I can tell you from my experience that it is progressive, just the last five years are getting worse for me. My flairs are closer, lasting longer, other symtons appearing and pain in areas that were not affected before.
Linda
LadyMasters
08-26-2004, 05:41 PM
:bouncing: :bouncing: What I understood by what was meant by non progressive was that as long as you take pro active measures such as; streching exercises, walking, biking, swimming, hot tub therapies, etc. , you don't have to be crippled by FMS nor will you die from it. Now I don't know if I understood that correctly or not but that's how I deal with it. :wave:
Icefire
08-26-2004, 06:47 PM
Well that theory is blown out the window too because I was doing what I was supposed to do when it flared up. I can't even lift an arm right now let alone exercise. :confused:
Chris
Chris
taurus3
08-27-2004, 12:07 AM
HI Chris,
Sorry you're feeling so down. That was funny about your kids. You're probably right about them needing your more than mine needs me right now. All he needs is Elmo and a cookie to make him happy..lol.
I do agree that it seems to get worse the longer you have it. Donna Jeanis right about how it's intended to be meant. But I think variations in treatment plans, medication and responses to it, can make the fibro become progressive. Meaning that if you are a perfect test case, the ADs, muscle relaxers, pain meds, etc. all work for you, you don't get worse. But if they don't and nothing seems to work you do.
But they are just now discovering the neurological link to a cause of fibro which tells me that if it winds up being a neuropathy of some kind that it would have to be progressive.
It's curious - Andy
Sorry you're feeling so down. That was funny about your kids. You're probably right about them needing your more than mine needs me right now. All he needs is Elmo and a cookie to make him happy..lol.
I do agree that it seems to get worse the longer you have it. Donna Jeanis right about how it's intended to be meant. But I think variations in treatment plans, medication and responses to it, can make the fibro become progressive. Meaning that if you are a perfect test case, the ADs, muscle relaxers, pain meds, etc. all work for you, you don't get worse. But if they don't and nothing seems to work you do.
But they are just now discovering the neurological link to a cause of fibro which tells me that if it winds up being a neuropathy of some kind that it would have to be progressive.
It's curious - Andy
italys_finest18
08-29-2004, 08:12 PM
Also Ice for your little comment about "AMEN for any speaking his mind"
Please judge me after you go to my name "italys_finest18" then click to view all post written by me. then finally scroll down to my original post "A nightmare, nope just my life" AMEN for the stupid girl who dosnt understand what it is to be in pain!!!!!!!!!! I also wonder why after my story would I actually want to help people in my same situation "HHHHHMMMMM" Maybe because I am SOOOOO cruel!
Please judge me after you go to my name "italys_finest18" then click to view all post written by me. then finally scroll down to my original post "A nightmare, nope just my life" AMEN for the stupid girl who dosnt understand what it is to be in pain!!!!!!!!!! I also wonder why after my story would I actually want to help people in my same situation "HHHHHMMMMM" Maybe because I am SOOOOO cruel!