Hey everyone My daughter Cayla lost all eye contact at 12 months old. I took her off of milk at 14 months old and started supplementing cod liver oil. Within a month her eye contact was coming back. My question is she has very good eye contact now and will follow me through the room, but i still dont feel like i am reaching her. She cant talk so her only communication is crying (which she does a lot). I still feel like she is in a fog. She will look at me and smile, and i can get her to laugh, but just cant get her to come out of that shell. We are trying many supplements and she is on the gf/cf diet. We will be starting chelation at the end of september. I am hoping the chelation will make a big difference. I know that a lot of autistic kids have trouble with eye contact. I was just wondering if this is a great sign that we may get our daughter out of this shell she is in. thanks for listening.

Wow! It sounds like her eye contact is very encouraging! I hope all goes well with the chelation.

:angel:

Hi my name is Sylvia. I have two boys with Autisum. I was just wondering if a doctor told you your child has Autisum? I was told it was everything else before they finally figured it out. There is at least 16 characteristic's to Autisum. Your child does not have to have all of them. The biggest ones are no eye contact, delay in speech, withdraw'n(i spelt that wrong. sorry)they seem to like to play by themselves. They don't like to be hugged very much. some children start out saying a few words but then stop talking all of a sudden. that happened with one of my children. I hope i help'ed some Sylvia :wave:

hi sylvia Caylas doctor has diagnosed her with an autistic spectrum disorder but not specifically autism at this time. She has had MRI EEG Metabolic Testing Chromosonal testing, genetic testing. All came back normal. She is 21 months old and doesnt walk, crawl, or stand. She also does not talk. She does have eye contact and will follow me through the room. She has never hugged or kissed. Never waved bye bye. Never liked toys. she arched her back and head from birth and rocked from about 3 months old. She also hand flapped constantly. We are baffled by the low tone in her body. Thought it could be carnitine deficency, but test came back normal. We are getting ready to start chelation at the end of the month. She is on numerous supplements along with the gf/cf diet. Thanks for responding. rochelle

Hi was your daughter Caylas jaundice at birth.I noticed your post that your daughter arched her head and back.My daughter went thru that also like she was in a bow positition as a baby shes 8 now.I might be thinking that my daughter who was very jaundice at birth that her doctor let a diagnosis of Bilirubin encephalopathy go by!She also had quite a bit of vomiting. My daughter has been thru alot but she is getting better every day :)

hey there thanks for the reply I havent ever heard of Bilirubin encephalopathy. My daughter never had jaundice. Is it still possible to have this without the jaundice???

Rochelle

Hi Rochelle,

Have the Dr's given you a reason why Cayla (beautiful name) does not walk? Does she get PT and OT?

Corinne

Hi Rochelle,Yes jaundice is the key.Its normal for a new born to have some jaundice but my girl turned as orange as a pumpkin.Shes come alongway.She still has some spasticity(stiffness) in her back when she walks thats why she walks on her tip toes.Shes been checked 5 times by a neurologist.He said i cant find anything wrong with her!Shes had a MRI EEG and also a spine MRI all normal.He said i dont know why she walks stiff on her toes i see it but i dont know why!Any way he said shes fine her problems are not from anything neurologic.So my guessing with what happened to her continues?I will find out and i wont quit till i do.She will be seeing a genetic doctor.But it will take a couple of months to get in thats ok.This has been a 8 yr battle.Shes been anemic at age 5 she was put on a Multi flintstones for 2 months and her count came up . She still takes a childrens Multi.She had normal lead and other metabolic tests that came back normal but i still want feed back from a genetic doctor
Shes knocked down alot of walls and continues to.I have a post about her story i think its under going to resturants.My prayers are with Everyone.Thanks for letting me Vent.

Hey corrine NO the doctors havent given me a reason. They said it is not cerebral palsy and she's been tested for everything else. She has been in early intervention with pt ot and st for 14 months. She didnt sit up until 12 months old and she still wont do it on her own. The therapists say she has low muscle tone.


rochelle

Rochelle,

Best of luck to you and your beautiful baby girl, I hope she gets all the help she needs. It's always frustrating not having an answer to "why". I have never been a religious person but, I think my son Nicolas was sent to save me, he continues to amaze me with his efforts to learn. I know he has taught me so much. Anyway, I hope everything works out for you. Do you have other children?

Corinne