ladybird988
09-06-2004, 08:51 AM
To those of you who wrote back when I wrote my step mom was dying of leukemia and I couldn't get to her because of this back (had surgery July 1st), I am hanging in there and thank you for your kind words. I lost that thread and finally found it again.
I couldn't get to her because I'm in still in too much pain to ride in the car and was sick with flu. Many of you can relate to that.
She passed quickly of the leukemia (at least she only knew she had it for 5 days), opting to forego the blood transfusions and just go. My brother spoke for me at her funeral. I did talk to my dad on the phone and have been every two days since and I know that helps him. He came to visit me this weekend - my brother drove him - and my brother is taking care of him (dad's elderly) we had a nice visit. I think that I just have been overburdened lately with pain and shock that she is gone, and now my dad's health is worse...I know, I can't do anything and have to accept it.
To top it all off, I have major post traumatic stress and it's flaring up. My back problme is due to being attacked at age 11 by a killer with a gun to my head (my mom was attacked too and shot). He kicked me hard repeatedly and told me he'd kick me so hard I'd never walk again, (well, he almost got his wish but the surgery this july got me walking) so any back pain brings on flashbacks. Nice addition, huh? anyone else here with back pain and post traumatic stress?
I've told my doctor this but people don't understand what a flashback is. I cry so hard at the doctors, because just talking about my back throws me into a flashback and my brain blanks. I write stuff down and hand it to him becasue I can't talk sometimes. He probably thinks I'm a nut case. Talking about difficulty communicating with the doctor!
If I go back to therapy he'll want me on prozac or some other med. I hate drugs because it was a drug dealer that attacked me. I do take pain meds when I absolutely need them though and there is a lot of talk about taking or not taking them, but those in great pain, what else can you do? I have total empathy for those in pain who need to take something.
So it's 4:00 in the morning and I'm up writing here due to nightmares and pain, saw the wondeful postings to my post, and had to write back.
Anyways, I guess I posted because I wanted to make a point. I saw t hat the hardest thing about this back pain is missing out on family. Not being there when they die. missing funerals. Not being there to comfort a father. Or drive him around and clean his house when he's laid up himself. I feel totally useless. and I worry about being a burden to my husband.
I've explained to my family about my back and they are understanding. Still, it's hard. I'm terrified of being in pain forever, as many of you are too. I had a nice visit with my dad and brother though you konw how it is...when you're in pain it's hard to focus and be in the moment. I did get a letter to my stepmom before she died. I waited too late to call. She was sleeping and then was out of it.
My dad I think didn't tell me how bad she was because he tries to protect me from bad things and then she went mostly unconscious. Plus, everyone is in shock still that she went into the hospital and then died so suddenly, no one knowing she even had leukemia. Many people missed getting to say goodbye to her. It was good for her though to go quick.
I wish my father had a computer. At 80, he refuses to use one. but the phone is enough and I'm on it!!
So, yeah, i got hit all of a sudden with a lot of stuff, (understatement!) and yes, if you need a pain pill, take one. I do have one thing going for me. I remember being with God when I was dead (it was wonderful) and know he is always with me, and that keeps me going. That makes letting go of loved ones easier. Knowing they are better off. I know too that this back pain is for a reason, and it has made me a better human, more compassionate, more loving, more forgiving. And that's what being on earth is all about, to develop our spirits. I learned that when I died. And it helps me to keep going in this pain. Many of you can relate to that.
I am so thankful I got to see my father this weekend. I'm thankful my stepmom is in heaven and out of pain. I'm thankful to be able to walk again. I just think of all the things I'm thankful for, like being alive. And take it one day at a time. Like all of us have to. It's all we have. And I 'm thankful for all of you. We all need to hang in there. And everybody's got problems upon problems, (I read the posts here and am amazed at the pain and disability people are living with - you are all very special spirits) but we need to look at the positive. How else are we going to get through this?
thanks again.
Blessings
I couldn't get to her because I'm in still in too much pain to ride in the car and was sick with flu. Many of you can relate to that.
She passed quickly of the leukemia (at least she only knew she had it for 5 days), opting to forego the blood transfusions and just go. My brother spoke for me at her funeral. I did talk to my dad on the phone and have been every two days since and I know that helps him. He came to visit me this weekend - my brother drove him - and my brother is taking care of him (dad's elderly) we had a nice visit. I think that I just have been overburdened lately with pain and shock that she is gone, and now my dad's health is worse...I know, I can't do anything and have to accept it.
To top it all off, I have major post traumatic stress and it's flaring up. My back problme is due to being attacked at age 11 by a killer with a gun to my head (my mom was attacked too and shot). He kicked me hard repeatedly and told me he'd kick me so hard I'd never walk again, (well, he almost got his wish but the surgery this july got me walking) so any back pain brings on flashbacks. Nice addition, huh? anyone else here with back pain and post traumatic stress?
I've told my doctor this but people don't understand what a flashback is. I cry so hard at the doctors, because just talking about my back throws me into a flashback and my brain blanks. I write stuff down and hand it to him becasue I can't talk sometimes. He probably thinks I'm a nut case. Talking about difficulty communicating with the doctor!
If I go back to therapy he'll want me on prozac or some other med. I hate drugs because it was a drug dealer that attacked me. I do take pain meds when I absolutely need them though and there is a lot of talk about taking or not taking them, but those in great pain, what else can you do? I have total empathy for those in pain who need to take something.
So it's 4:00 in the morning and I'm up writing here due to nightmares and pain, saw the wondeful postings to my post, and had to write back.
Anyways, I guess I posted because I wanted to make a point. I saw t hat the hardest thing about this back pain is missing out on family. Not being there when they die. missing funerals. Not being there to comfort a father. Or drive him around and clean his house when he's laid up himself. I feel totally useless. and I worry about being a burden to my husband.
I've explained to my family about my back and they are understanding. Still, it's hard. I'm terrified of being in pain forever, as many of you are too. I had a nice visit with my dad and brother though you konw how it is...when you're in pain it's hard to focus and be in the moment. I did get a letter to my stepmom before she died. I waited too late to call. She was sleeping and then was out of it.
My dad I think didn't tell me how bad she was because he tries to protect me from bad things and then she went mostly unconscious. Plus, everyone is in shock still that she went into the hospital and then died so suddenly, no one knowing she even had leukemia. Many people missed getting to say goodbye to her. It was good for her though to go quick.
I wish my father had a computer. At 80, he refuses to use one. but the phone is enough and I'm on it!!
So, yeah, i got hit all of a sudden with a lot of stuff, (understatement!) and yes, if you need a pain pill, take one. I do have one thing going for me. I remember being with God when I was dead (it was wonderful) and know he is always with me, and that keeps me going. That makes letting go of loved ones easier. Knowing they are better off. I know too that this back pain is for a reason, and it has made me a better human, more compassionate, more loving, more forgiving. And that's what being on earth is all about, to develop our spirits. I learned that when I died. And it helps me to keep going in this pain. Many of you can relate to that.
I am so thankful I got to see my father this weekend. I'm thankful my stepmom is in heaven and out of pain. I'm thankful to be able to walk again. I just think of all the things I'm thankful for, like being alive. And take it one day at a time. Like all of us have to. It's all we have. And I 'm thankful for all of you. We all need to hang in there. And everybody's got problems upon problems, (I read the posts here and am amazed at the pain and disability people are living with - you are all very special spirits) but we need to look at the positive. How else are we going to get through this?
thanks again.
Blessings

